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| Charity Name | Tourette Association of America | National Hemophilia Foundation | The Marfan Foundation | GBS|CIDP Foundation International | Huntington's Disease Society of America |
| Location | Bayside, NY | New York, NY | Port Washington, NY | Conshohocken, PA | New York, NY |
| Overall Rating |
(87.13) |
(94.84) |
(93.72) |
(95.02) |
(92.78) |
| Financial Rating | (82.25) |
(92.71) |
(91.12) |
(92.97) |
(89.80) |
| A&T Rating | (96.00) |
(100.00) |
(100.00) |
(100.00) |
(100.00) |
| Financial Metrics | |||||
| Program Expenses | 75.4% | 78.3% | 77.9% | 88.5% | 77.1% |
| Admin Expenses | 11.4% | 16.5% | 9.4% | 8.0% | 11.4% |
| Fund Expenses | 13.1% | 5.0% | 12.5% | 3.4% | 11.3% |
| Fund Efficiency | $0.15 | $0.04 | $0.11 | $0.04 | $0.09 |
| Program Growth | -3.7% | 8.6% | 7.1% | 2.0% | 8.6% |
| Working Capital | 1.98 | 1.11 | 2.53 | 3.62 | 0.74 |
| Liabilitites to Assets | 6.6% | 27.7% | 3.3% | 5.9% | 24.5% |
| Total Revenue | $4,563,025 | $22,117,595 | $4,353,700 | $2,423,290 | $10,273,973 |
| Total Expenses | $5,093,628 | $20,576,103 | $5,374,588 | $1,913,805 | $8,627,132 |
| Excess/Deficit | $-530,603 | $1,541,492 | $-1,020,888 | $509,485 | $1,646,841 |
| Net Assets | $11,009,621 | $23,210,540 | $12,217,706 | $7,318,685 | $6,120,484 |
| CEO Compensation % of Expenses |
$194,451 3.81% |
$331,332 1.61% |
$361,209 6.72% |
$137,156 7.16% |
$280,311 3.24% |
| Accountability & Transparency Metrics | |||||
| Information Provided on the Form 990 | |||||
| Independent Voting Board Members |  | | | | |
| No Material diversion of assets | | | | | |
| Audited financials prepared by independent accountant | | | | | |
| Does Not Provide Loan(s) to or Receive Loan(s) From related parties | | | | | |
| Documents Board Meeting Minutes | | | | | |
| Provided copy of Form 990 to organization's governing body in advance of filing | | | | | |
| Conflict of Interest Policy | | | | | |
| Whistleblower Policy | | | | | |
| Records Retention Policy | | | | | |
| CEO listed with salary | | | | | |
| Process for determining CEO compensation | | | | | |
| Does Not Compensate Any Board Members | | | | | |
| Does the charity's website include readily accessible information about the following: | |||||
| Donor Privacy Policy | | | | | |
| Board Members Listed | | | | | |
| Audited Financials |  | | | | |
| Form 990 | | | | | |
| Key staff listed | | | | | |
