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Charity Name National Down Syndrome Society Fanconi Anemia Research Fund The Cornelia de Lange Syndrome Foundation The Progeria Research Foundation Dystrophic Epidermolysis Bullosa Research Association of America (debra of America)
Location New York, NY Eugene, OR Avon, CT Peabody, MA New York, NY
   
Overall Rating
 
three stars
(87.13)
three stars
(86.44)
four stars
(92.92)
four stars
(97.94)
four stars
(95.31)
   
Financial Rating three stars
(82.25)
four stars
(97.50)
four stars
(90.00)
four stars
(97.10)
four stars
(94.71)
   
A&T Rating four stars
(96.00)
three stars
(81.00)
four stars
(100.00)
four stars
(100.00)
four stars
(96.00)
   
Financial Metrics
Program Expenses 75.4% 86.0% 86.8% 83.6% 84.0%
Admin Expenses 11.2% 7.5% 5.6% 12.1% 4.6%
Fund Expenses 13.2% 6.3% 7.4% 4.1% 11.2%
Fund Efficiency $0.16 $0.06 $0.07 $0.05 $0.19
Program Growth -4.7% 12.3% -8.3% 20.3% 18.1%
Working Capital 1.12 2.31 1.50 1.49 2.00
Liabilitites to Assets 5.2% 15.9% 1.8% 10.0% 2.0%
Total Revenue $2,085,901 $3,408,713 $840,918 $2,015,719 $1,607,929
Total Expenses $2,079,992 $2,349,715 $749,945 $2,823,533 $1,616,327
Excess/Deficit $5,909 $1,058,998 $90,973 $-807,814 $-8,398
Net Assets $3,655,844 $5,138,645 $1,259,142 $3,874,212 $2,775,860
CEO Compensation
% of Expenses
$141,382
6.79%
$28,269
1.20%
$77,555
10.34%
$102,364
3.62%
$153,012
9.46%
   
Accountability & Transparency Metrics
Information Provided on the Form 990      
Independent Voting Board Members
No Material diversion of assets
Audited financials prepared by independent accountant
Does Not Provide Loan(s) to or Receive Loan(s) From related parties
Documents Board Meeting Minutes
Provided copy of Form 990 to organization's governing body in advance of filing
Conflict of Interest Policy
Whistleblower Policy
Records Retention Policy
CEO listed with salary
Process for determining CEO compensation
Does Not Compensate Any Board Members
Does the charity's website include readily accessible information about the following:
Donor Privacy Policy
Board Members Listed
Audited Financials
Form 990
Key staff listed
       

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