Health : Patient and Family Support

National Organization for Rare Disorders

Alone we are rare. Together we are strong.®

four stars

100.00

55 Kenosia Avenue Danbury, CT 06813
tel: (203) 744-0100   Web Site
EIN: 13-3223946

Board Leadership
Marshall Summar
Chairman

CEO
Peter Saltonstall
President/CEO

Programs (FYE 12/2018)

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Patient Services $27,734,925 91.5%
Educational Initiatives $1,176,407 3.9%
Registry Platform $647,524 2.1%

Charity Contact Info

National Organization for Rare Disorders
55 Kenosia Avenue
Danbury, CT 06813
tel: (203) 744-0100
fax: (203) 798-2291
EIN: 13-3223946

Visit Web Site

Board Leadership

Marshall Summar
Chairman

CEO

Peter Saltonstall
President/CEO