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Health : Diseases, Disorders, and Disciplines

Aplastic Anemia & MDS International Foundation

Answers. Support. Hope.

four stars

92.00

4330 East West Highway Suite 230
Bethesda, MD 20814
tel: (800) 747-2820   Web Site
EIN: 52-1336903

Board Leadership
Kevin Lyons-Tarr
Chairman

CEO
Neil Horikoshi
Chief Executive Officer

 
 
  Score
(out of 100) 		Rating
Overall Score & Rating 92.00 four stars
  Financial 88.69 three stars
  Accountability & Transparency 100.00 four stars
This rating was published 06/01/2019 and includes data from FY2017, the most recent 990 received at that time.
Why isn't this based on more recent data?

The Aplastic Anemia and MDS Foundation International is the world's leading nonprofit health organization dedicated to supporting patients and families living with aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH) and related bone marrow failure diseases. The Foundation provides answers, support, and hope to thousands of patients and their families around the world through the three phases of bone marrow failure diseases: the life-changing phase of diagnosis; the life-threatening phase of treatment; and the life-long phase of living with a chronic disease.

The Aplastic Anemia and MDS Foundation International is the world's leading nonprofit health organization dedicated to supporting patients and families living with aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH) and related bone marrow failure diseases. The Foundation provides answers, support, and hope to thousands of patients and their families around the world through the three phases of bone marrow failure diseases: the life-changing phase of diagnosis; the life-threatening phase of treatment; and the life-long phase of living with a chronic disease.

Impact Information

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GuideStar is Charity Navigator's trusted partner in sharing information on how this organization seeks impact.  GuideStar has recognized this organization with a Platinum Seal of Transparency for voluntarily and publicly sharing information about how they measure their progress and results.  Learn More about Impact Information.
Reported Results
Showing 3 of 8
Total in 2018
Total number of classes offered
203
Total Patients Served by Patient Educator
2,676
Number of website pageviews
839,671
Number of unique website visitors
491,938
Number of conference attendees
695
Number of groups/individuals benefiting from tools/resources/education materials provided
95,149
Number of books distributed
35,272
Number of conferences held
4
This organization has earned a GuideStar's Platinum Seal of Transparency by voluntarily sharing the measures of progress and results they use to pursue their mission. Organizations earn Platinum Seals by selecting from a catalog of over 900 expert recognized metrics or by creating a new metric that best fits their work. This information is reported by the organization and displayed publicly on their GuideStar Nonprofit Profile. With over 1.6 million Nonprofit Profiles, 9 million annual visitors and over 200 data partners, GuideStar is the world's leading source of information about nonprofit organizations. A nonprofit itself, GuideStar is dedicated to providing better data for better decisions for a better world.
This impact information is current as of September 2019, when it was provided to us by GuideStar. At this time, Impact information published on this organization's page has no effect on its rating per our methodology.

Learn more about how we calculate the overall score and rating.

Financial

three stars

88.69

Accountability & Transparency

four stars

100.00

This rating was published 06/01/2019 and includes data from FY2017, the most recent 990 received at that time.
Why isn't this based on more recent data?
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)		 89.4%
  Administrative Expenses 3.8%
  Fundraising Expenses 6.6%
  Fundraising Efficiency $0.07
  Working Capital Ratio (years) 0.54
  Program Expenses Growth 5.2%
  Liabilities to Assets 39.4%
All data for Financial Performance Metrics calculations was provided by Aplastic Anemia & MDS International Foundation on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Aplastic Anemia & MDS International Foundation on recent 990s filed with the IRS.
Information Provided on the Form 990  
  Independent Voting Board Members
  No Material diversion of assets
  Audited financials prepared by independent accountant
  Does Not Provide Loan(s) to or Receive Loan(s) From related parties
  Documents Board Meeting Minutes
  Provided copy of Form 990 to organization's governing body in advance of filing
  Conflict of Interest Policy
  Whistleblower Policy
  Records Retention and Destruction Policy
  CEO listed with salary
  Process for determining CEO compensation
  Board Listed / Board Members Not Compensated
Is the following information easily accessible on the charity's website?  
  Donor Privacy Policy
  Board Members Listed
  Audited Financials
  Form 990
  Key staff listed

Highly Rated

Charity Name & State Overall Score Overall Rating
Aplastic Anemia & MDS International Foundation (MD) 92.00 four stars
FSH Society (MA) 93.11 four stars
Friedreich's Ataxia Research Alliance (PA) 98.23 four stars
Restless Legs Syndrome Foundation (TX) 89.88 three stars
Parent Project Muscular Dystrophy (NJ) 93.98 four stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $4,993,195
   Federated Campaigns $29,352
   Membership Dues $0
   Fundraising Events $293,835
   Related Organizations $0
   Government Grants $0
Total Contributions $5,316,382
   Program Service Revenue $31,135
Total Primary Revenue $5,347,517
   Other Revenue $72,568
TOTAL REVENUE $5,420,085
   
EXPENSES  
   Program Expenses $5,678,232
   Administrative Expenses $219,527
   Fundraising Expenses $550,860
TOTAL FUNCTIONAL EXPENSES $6,448,619
   
Payments to Affiliates $0
Excess (or Deficit) for the year $-1,028,534
   
Net Assets $3,578,961

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Due to an error on this organization's Form 990, we are unable to display program information.

Ratings History
Aplastic Anemia & MDS International Foundation has received 14 consecutive 4-star ratings from Charity Navigator.

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2017-12 06/01/2019 92.00 four stars
2017-12 04/01/2019 91.51 four stars
2016-12 06/01/2018 91.45 four stars
2015-12 07/01/2017 93.32 four stars
2014-12 06/01/2016 96.66 four stars
 
CN 2.0
2014-12 10/01/2015 96.13 four stars
2013-12 12/22/2014 99.08 four stars
2012-12 11/01/2013 97.33 four stars
2011-12 09/01/2012 93.54 four stars
2010-12 12/23/2011 98.75 four stars
2009-12 09/20/2011 96.87 four stars
 
CN 1.0
2009-12 04/01/2011 98.10 four stars
2008-12 05/01/2010 97.35 four stars
2007-12 03/01/2009 98.47 four stars
2006-12 03/01/2008 99.04 four stars
2005-12 02/01/2007 98.90 four stars
2004-12 07/01/2006 98.76 four stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 52-1336903
Name in IRS Master File APLASTIC ANEMIA & MDS INTERNATIONAL FOUNDATION INC
NTEE Code [Not Provided by IRS]
NTEE Classification [Not Provided by IRS]
NTEE Type [Not Provided by IRS]
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (161) Scientific research (diseases)
(602) Gifts, grants, or loans to other organizations
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date May, 1984
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)		 (Log In or Register Now to View Forms 990!)
  • December, 2017
  • December, 2016
  • December, 2015
  • December, 2014
  • December, 2013
Compensation % of Expenses Paid to Title
$224,613 3.48% Kathleen Weis CEO

Highly Rated

Charity Name & State Overall Score Overall Rating
Aplastic Anemia & MDS International Foundation (MD) 92.00 four stars
Restless Legs Syndrome Foundation (TX) 89.88 three stars
Epilepsy Foundation of Minnesota (MN) 89.56 three stars
Osteogenesis Imperfecta Foundation (MD) 86.07 three stars
Hunter's Hope Foundation (NY) 90.45 four stars

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This charity has an official representative registered with Charity Navigator.

Charity Contact Info

Aplastic Anemia & MDS International Foundation
4330 East West Highway
Suite 230
Bethesda, MD 20814
tel: (800) 747-2820
fax: (301) 279-7205
EIN: 52-1336903

Visit Web Site

Board Leadership

Kevin Lyons-Tarr
Chairman

CEO

Neil Horikoshi
Chief Executive Officer

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