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Health : Diseases, Disorders, and Disciplines
Board Leadership
Kevin Lyons-Tarr
Chairman
CEO
Neil Horikoshi
Chief Executive Officer
|
The Aplastic Anemia and MDS Foundation International is the world's leading nonprofit health organization dedicated to supporting patients and families living with aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH) and related bone marrow failure diseases. The Foundation provides answers, support, and hope to thousands of patients and their families around the world through the three phases of bone marrow failure diseases: the life-changing phase of diagnosis; the life-threatening phase of treatment; and the life-long phase of living with a chronic disease.
The Aplastic Anemia and MDS Foundation International is the world's leading nonprofit health organization dedicated to supporting patients and families living with aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH) and related bone marrow failure diseases. The Foundation provides answers, support, and hope to thousands of patients and their families around the world through the three phases of bone marrow failure diseases: the life-changing phase of diagnosis; the life-threatening phase of treatment; and the life-long phase of living with a chronic disease.
77.50
100.00
Program Expenses (Percent of the charity's total expenses spent on the programs and services it delivers) |
88.1% | |
Administrative Expenses | 3.6% | |
Fundraising Expenses | 8.1% | |
Fundraising Efficiency | $0.09 | |
Working Capital Ratio (years) | 0.32 | |
Program Expenses Growth | -3.5% | |
Liabilities to Assets | 42.4% |
Charity Name & State | Overall Score | Overall Rating |
---|---|---|
Aplastic Anemia & MDS International Foundation (MD) | 84.09 | |
Epilepsy Foundation of Minnesota (MN) | 89.56 | |
Hunter's Hope Foundation (NY) | 93.62 | |
Restless Legs Syndrome Foundation (TX) | 89.88 | |
Osteogenesis Imperfecta Foundation (MD) | 88.11 |
REVENUE | |
Contributions | |
Contributions, Gifts & Grants | $2,550,034 |
Federated Campaigns | $19,971 |
Membership Dues | $0 |
Fundraising Events | $344,713 |
Related Organizations | $0 |
Government Grants | $0 |
Total Contributions | $2,914,718 |
Program Service Revenue | $49,787 |
Total Primary Revenue | $2,964,505 |
Other Revenue | $91,977 |
TOTAL REVENUE | $3,056,482 |
EXPENSES | |
Program Expenses | $3,885,332 |
Administrative Expenses | $200,701 |
Fundraising Expenses | $522,248 |
TOTAL FUNCTIONAL EXPENSES | $4,608,281 |
Payments to Affiliates | $0 |
Excess (or Deficit) for the year | $-1,551,799 |
Net Assets | $1,907,720 |
Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.
Due to an error on this organization's Form 990, we are unable to display program information.
Form 990 FYE | Date Published | Overall Score | Overall Rating | ||||||
---|---|---|---|---|---|---|---|---|---|
CN 2.1 | |||||||||
2018-12 | 03/01/2020 | 84.09 | |||||||
2017-12 | 06/01/2019 | 92.00 | |||||||
2017-12 | 04/01/2019 | 91.51 | |||||||
2016-12 | 06/01/2018 | 91.45 | |||||||
2015-12 | 07/01/2017 | 93.32 | |||||||
2014-12 | 06/01/2016 | 96.66 | |||||||
CN 2.0 | |||||||||
2014-12 | 10/01/2015 | 96.13 | |||||||
2013-12 | 12/22/2014 | 99.08 | |||||||
2012-12 | 11/01/2013 | 97.33 | |||||||
2011-12 | 09/01/2012 | 93.54 | |||||||
2010-12 | 12/23/2011 | 98.75 | |||||||
2009-12 | 09/20/2011 | 96.87 | |||||||
CN 1.0 | |||||||||
2009-12 | 04/01/2011 | 98.10 | |||||||
2008-12 | 05/01/2010 | 97.35 | |||||||
2007-12 | 03/01/2009 | 98.47 | |||||||
2006-12 | 03/01/2008 | 99.04 | |||||||
2005-12 | 02/01/2007 | 98.90 | |||||||
2004-12 | 07/01/2006 | 98.76 |
The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).
EIN | 52-1336903 |
Name in IRS Master File | APLASTIC ANEMIA & MDS INTERNATIONAL FOUNDATION INC |
NTEE Code | [Not Provided by IRS] |
NTEE Classification | [Not Provided by IRS] |
NTEE Type | [Not Provided by IRS] |
Classification | Charitable Organization |
Subsection | 501(c)(3) (View the list of codes) |
Activities | (161) Scientific research (diseases) (602) Gifts, grants, or loans to other organizations |
Foundation Status | Organization which receives a substantial part of its support from a governmental unit or the general public 170(b)(1)(A)(vi) |
Deductibility | Contributions are deductible |
Affiliation | Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations). |
Group Name | [Not Applicable] |
Ruling Date | May, 1984 |
Filing Requirement | 990 (all other) or 990EZ return |
Fiscal Year End | December |
IRS Forms 990 (provided courtesy of Foundation Center) |
(Log In or Register Now to View Forms 990!)
|
Compensation | % of Expenses | Paid to | Title | |
---|---|---|---|---|
$19,082 | 0.41% | Neil Horikoshi | CEO | |
Other Salaries of Note | ||||
$241,887 | 5.24% | Kathleen Weis | Former CEO |
Charity Name & State | Overall Score | Overall Rating |
---|---|---|
Aplastic Anemia & MDS International Foundation (MD) | 84.09 | |
American Brain Foundation (MN) | 89.65 | |
Cystic Fibrosis Foundation (MD) | 98.21 | |
The Boomer Esiason Foundation (NY) | 90.36 | |
Epilepsy Foundation of Minnesota (MN) | 89.56 |
This charity has an official representative registered with Charity Navigator.
This organization is sharing information on how they communicate with stakeholders to better inform your giving.
Aplastic Anemia & MDS International Foundation
4330 East West Highway
Suite 230
Bethesda,
MD 20814
tel: (800) 747-2820
fax: (301) 279-7205
EIN: 52-1336903
Kevin Lyons-Tarr
Chairman
Neil Horikoshi
Chief Executive Officer
Charity Navigator
299 Market Street Suite 250
Saddle Brook, NJ 07663
EIN: 13-4148824
BRIDGE ID: 3108588923