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Health : Diseases, Disorders, and Disciplines

Aplastic Anemia & MDS International Foundation

Fighting bone marrow diseases through patient support and research since 1983

96.66

100 Park Avenue Suite 108
Rockville, MD 20850
tel: (800) 747-2820   Web Site
EIN: 52-1336903

Board Leadership
Kevin Lyons-Tarr
Chairman

CEO
Kathleen Weis
Chief Executive Officer

  Score
(out of 100)
Rating
Overall Score & Rating 96.66
  Financial 97.50
  Accountability & Transparency 96.00
This rating was published 06/01/2016 and includes data from FY2014, the most recent 990 received at that time.

Learn more about how we calculate the overall score and rating.

Financial

97.50

Accountability & Transparency

96.00

This rating was published 06/01/2016 and includes data from FY2014, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity’s total expenses spent on the programs
and services it delivers)
87.5%
  Administrative Expenses 5.3%
  Fundraising Expenses 7.1%
  Fundraising Efficiency $0.06
  Working Capital Ratio (years) 1.11
  Program Expenses Growth 43.7%
  Liabilities to Assets 17.6%
All data for Financial Performance Metrics calculations was provided by Aplastic Anemia & MDS International Foundation on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Aplastic Anemia & MDS International Foundation on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
Aplastic Anemia & MDS International Foundation (MD) 96.66
The Boomer Esiason Foundation (NY) 96.46
Can Do Multiple Sclerosis (CO) 89.92
Cystic Fibrosis Foundation (MD) 94.63
Hunter's Hope Foundation (NY) 93.80

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Founded in 1983, the Aplastic Anemia & MDS International Foundation (AA&MDSIF) is an independent organization whose mission is to support patients, families, and caregivers coping with Aplastic Anemia (AA), Myelodysplastic Syndromes (MDS), Paroxysmal Nocturnal Hemoglobinuria (PNH), and related bone marrow failure diseases. AA&MDSIF provides educational materials, medical information, and access to peer support; builds awareness and knowledge of bone marrow failure diseases among medical and healthcare professionals and the general public; and raises public and private support for research to improve patient treatments, restore patients to health, and ultimately, to find cures for bone marrow failure diseases. AA&MDSIF provides patients and families fighting bone marrow failure diseases with answers, support & hope!

REVENUE  
Contributions  
   Contributions, Gifts & Grants $7,235,498
   Federated Campaigns $44,358
   Membership Dues $0
   Fundraising Events $114,838
   Related Organizations $0
   Government Grants $0
Total Contributions $7,394,694
   Program Service Revenue $46,029
Total Primary Revenue $7,440,723
   Other Revenue $351,303
TOTAL REVENUE $7,792,026
   
EXPENSES  
   Program Expenses $6,629,431
   Administrative Expenses $341,168
   Fundraising Expenses $571,553
TOTAL FUNCTIONAL EXPENSES $7,542,152
   
Payments to Affiliates $0
Excess (or Deficit) for the year $249,874
   
Net Assets $6,105,911

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Due to an error on this organization's Form 990, we are unable to display program information.

Ratings History
Aplastic Anemia & MDS International Foundation has received 11 consecutive 4-star ratings from Charity Navigator.

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2014-12 06/01/2016 96.66
 
CN 2.0
2014-12 10/01/2015 96.13
2013-12 12/22/2014 99.08
2012-12 11/01/2013 97.33
2011-12 09/01/2012 93.54
2010-12 12/23/2011 98.75
2009-12 09/20/2011 96.87
 
CN 1.0
2009-12 04/01/2011 98.10
2008-12 05/01/2010 97.35
2007-12 03/01/2009 98.47
2006-12 03/01/2008 99.04
2005-12 02/01/2007 98.90
2004-12 07/01/2006 98.76

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 52-1336903
Name in IRS Master File APLASTIC ANEMIA & MDS INTERNATIONAL FOUNDATION INC
NTEE Code [Not Provided by IRS]
NTEE Classification [Not Provided by IRS]
NTEE Type [Not Provided by IRS]
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (161) Scientific research (diseases)
(602) Gifts, grants, or loans to other organizations
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date May, 1984
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2014
  • December, 2013
  • December, 2012
  • December, 2011
  • December, 2010

The data displayed in this profile is provided by the IRS for free in the form of Publication 78 and the Business Master File (BMF).

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Compensation % of Expenses Paid to Title
$192,500 2.55% John M. Huber Executive Director

Founded in 1983, the Aplastic Anemia & MDS International Foundation (AA&MDSIF) is an independent organization whose mission is to support patients, families, and caregivers coping with Aplastic Anemia (AA), Myelodysplastic Syndromes (MDS), Paroxysmal Nocturnal Hemoglobinuria (PNH), and related bone marrow failure diseases. AA&MDSIF provides educational materials, medical information, and access to peer support; builds awareness and knowledge of bone marrow failure diseases among medical and healthcare professionals and the general public; and raises public and private support for research to improve patient treatments, restore patients to health, and ultimately, to find cures for bone marrow failure diseases. AA&MDSIF provides patients and families fighting bone marrow failure diseases with answers, support & hope!

Highly Rated

Charity Name & State Overall Score Overall Rating
Aplastic Anemia & MDS International Foundation (MD) 96.66
Restless Legs Syndrome Foundation (TX) 89.27
Can Do Multiple Sclerosis (CO) 89.92
Friedreich's Ataxia Research Alliance (PA) 98.23
Cystic Fibrosis Foundation (MD) 94.63

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This charity has an official representative registered with Charity Navigator.

Charity Contact Info

Aplastic Anemia & MDS International Foundation
100 Park Avenue
Suite 108
Rockville, MD 20850
tel: (800) 747-2820
fax: (301) 279-7205
EIN: 52-1336903

Visit Web Site

Board Leadership

Kevin Lyons-Tarr
Chairman

CEO

Kathleen Weis
Chief Executive Officer

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