Health : Diseases, Disorders, and Disciplines
Aplastic Anemia & MDS International Foundation
Answers. Support. Hope.
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This rating was published 03/01/2020 and includes data from FY2018, the most recent 990 received at that time.
Impact Information
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GuideStar has recognized this organization with a Platinum Seal of Transparency for voluntarily and publicly sharing
information about how they measure their progress and results.
Learn More about Impact Information.
Reported Results
Showing 3 of 9
Total in 2019
Total number of classes offered
34
Total Patients Served by Patient Educator
4,910
Number of website pageviews
1,145,370
Number of unique website visitors
997,179
Number of conference attendees
413
Number of conferences held
5
Total dollar amount of grants awarded
3,000,000
Number of health education trainings conducted
1,337
Total amount of grants awarded by AAMDSIF in the area of bone marrow failure research.
165,000
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This impact information is current as of August 2020, when it was provided to us by GuideStar.
At this time, Impact information published on this organization's page has no effect on its rating per our methodology.
Financial
77.50
Accountability & Transparency
100.00
This rating was published 03/01/2020 and includes data from FY2018, the most recent 990 received at that time.
All data for Financial Performance Metrics calculations was provided by Aplastic Anemia & MDS International Foundation on recent 990s filed with the IRS.
Constituent Feedback
Charity Navigator believes nonprofit organizations that engage in inclusive practices, such as collecting feedback from the people/communities they serve, may be more effective. We've partnered with GuideStar by Candid to survey organizations about their feedback practices. Nonprofit organizations are encouraged to fill out the How We Listen section of their Candid profile.
Here's how this organization is listening and learning from the people they serve:
Here's how this organization is listening and learning from the people they serve:
How is the organization collecting feedback?
Electronic surveys (by email, tablet, etc), Focus groups or interviews (by phone or in person), Constituent (client or resident, etc) advisory committees
How is the organization using feedback?
To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To strengthen relationships with the people we serve
With whom is the organization sharing feedback?
The people we serve, Our staff, Our board, Our funders, Our community partners
What challenges does the organization face when collecting feedback?
It is difficult to get the people we serve to respond to requests for feedback, It is difficult to find the ongoing funding to support feedback collection, It is difficult to identify actionable feedback
Describe a recent change in your organization that resulted from feedback.
We solicited feedback from a number of constituent stakeholder groups about our patient-focused programs and services and used the recommendations to adjust our educational offerings for the current and future program years
This Constituent Feedback information is provided to us by Candid.
At this time, Constituent Feedback information published on this organization's page has no effect on its star rating per our methodology.
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