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Health : Diseases, Disorders, and Disciplines

Aplastic Anemia & MDS International Foundation

Fighting bone marrow diseases through patient support and research since 1983

four stars

93.32

4330 East West Highway Suite 230
Bethesda, MD 20814
tel: (800) 747-2820   Web Site
EIN: 52-1336903

Board Leadership
Kevin Lyons-Tarr
Chairman

CEO
Kathleen Weis
Chief Executive Officer

 
 
  Score
(out of 100)		 Rating
Overall Score & Rating 93.32 four stars
  Financial 95.00 four stars
  Accountability & Transparency 92.00 four stars
This rating was published 07/01/2017 and includes data from FY2015, the most recent 990 received at that time.
Why isn't this based on more recent data?

Learn more about how we calculate the overall score and rating.

Financial

four stars

95.00

Accountability & Transparency

four stars

92.00

This rating was published 07/01/2017 and includes data from FY2015, the most recent 990 received at that time.
Why isn't this based on more recent data?
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)		 88.1%
  Administrative Expenses 5.1%
  Fundraising Expenses 6.7%
  Fundraising Efficiency $0.06
  Working Capital Ratio (years) 0.72
  Program Expenses Growth 24.4%
  Liabilities to Assets 24.8%
All data for Financial Performance Metrics calculations was provided by Aplastic Anemia & MDS International Foundation on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Aplastic Anemia & MDS International Foundation on recent 990s filed with the IRS.
Information Provided on the Form 990  
  Independent Voting Board Members
  No Material diversion of assets
  Audited financials prepared by independent accountant
  Does Not Provide Loan(s) to or Receive Loan(s) From related parties
  Documents Board Meeting Minutes
  Provided copy of Form 990 to organization's governing body in advance of filing
  Conflict of Interest Policy
  Whistleblower Policy
  Records Retention and Destruction Policy
  CEO listed with salary
  Process for determining CEO compensation
  Board Listed / Board Members Not Compensated
Is the following information easily accessible on the charity's website?  
  Donor Privacy Policy
  Board Members Listed
  Audited Financials
  Form 990
  Key staff listed

Highly Rated

Charity Name & State Overall Score Overall Rating
Aplastic Anemia & MDS International Foundation (MD) 93.32 four stars
FSH Society (MA) 98.23 four stars
Restless Legs Syndrome Foundation (TX) 89.27 three stars
Can Do Multiple Sclerosis (CO) 89.92 three stars
The Boomer Esiason Foundation (NY) 94.09 four stars

Compare These Charities (Highly Rated)

AAMDSIF focuses on bone marrow failure diseases, educating and connecting patients and families and health professionals worldwide. It also promotes and invests in collaborative clinical research to study and find cures for aplastic anemia, MDS and PNH.

REVENUE  
Contributions  
   Contributions, Gifts & Grants $5,073,961
   Federated Campaigns $38,610
   Membership Dues $0
   Fundraising Events $105,195
   Related Organizations $60,000
   Government Grants $0
Total Contributions $5,277,766
   Program Service Revenue $33,365
Total Primary Revenue $5,311,131
   Other Revenue $241,900
TOTAL REVENUE $5,553,031
   
EXPENSES  
   Program Expenses $5,906,943
   Administrative Expenses $315,423
   Fundraising Expenses $397,947
TOTAL FUNCTIONAL EXPENSES $6,620,313
   
Payments to Affiliates $0
Excess (or Deficit) for the year $-1,067,282
   
Net Assets $4,727,786

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Due to an error on this organization's Form 990, we are unable to display program information.

Ratings History
Aplastic Anemia & MDS International Foundation has received 12 consecutive 4-star ratings from Charity Navigator.

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2015-12 07/01/2017 93.32 four stars
2014-12 06/01/2016 96.66 four stars
 
CN 2.0
2014-12 10/01/2015 96.13 four stars
2013-12 12/22/2014 99.08 four stars
2012-12 11/01/2013 97.33 four stars
2011-12 09/01/2012 93.54 four stars
2010-12 12/23/2011 98.75 four stars
2009-12 09/20/2011 96.87 four stars
 
CN 1.0
2009-12 04/01/2011 98.10 four stars
2008-12 05/01/2010 97.35 four stars
2007-12 03/01/2009 98.47 four stars
2006-12 03/01/2008 99.04 four stars
2005-12 02/01/2007 98.90 four stars
2004-12 07/01/2006 98.76 four stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 52-1336903
Name in IRS Master File APLASTIC ANEMIA & MDS INTERNATIONAL FOUNDATION INC
NTEE Code [Not Provided by IRS]
NTEE Classification [Not Provided by IRS]
NTEE Type [Not Provided by IRS]
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (161) Scientific research (diseases)
(602) Gifts, grants, or loans to other organizations
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date May, 1984
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)		 (Log In or Register Now to View Forms 990!)
  • December, 2015
  • December, 2014
  • December, 2013
  • December, 2012
  • December, 2011

The data displayed in this profile is provided by the IRS for free in the form of Publication 78 and the Business Master File (BMF).

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Compensation % of Expenses Paid to Title
$84,977 1.28% Kathleen Weis CEO
Other Salaries of Note
$230,313 3.47% John M. Huber Former Executive Director

AAMDSIF focuses on bone marrow failure diseases, educating and connecting patients and families and health professionals worldwide. It also promotes and invests in collaborative clinical research to study and find cures for aplastic anemia, MDS and PNH.

Highly Rated

Charity Name & State Overall Score Overall Rating
Aplastic Anemia & MDS International Foundation (MD) 93.32 four stars
The Boomer Esiason Foundation (NY) 94.09 four stars
Cystic Fibrosis Foundation (MD) 94.70 four stars
FSH Society (MA) 98.23 four stars
Epilepsy Foundation of Minnesota (MN) 93.75 four stars

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Charity Contact Info

Aplastic Anemia & MDS International Foundation
4330 East West Highway
Suite 230
Bethesda, MD 20814
tel: (800) 747-2820
fax: (301) 279-7205
EIN: 52-1336903

Visit Web Site

Board Leadership

Kevin Lyons-Tarr
Chairman

CEO

Kathleen Weis
Chief Executive Officer

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