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Health : Medical Research (Grantmaking)

Foundation to Eradicate Duchenne

Finding treatments and an ultimate cure for Duchenne Muscular Dystrophy

two stars

78.78

P.O. Box 2371 Alexandria, VA 22301
tel: (703) 683-7500   Web Site
EIN: 71-0874241

Board Leadership
Joel Wood
President

CEO
Joel Wood
President

  Score
(out of 100)
Rating
Overall Score & Rating 78.78 two stars
  Financial 76.78 two stars
  Accountability & Transparency 81.00 three stars
This rating was published 06/01/2020 and includes data from FY2018, the most recent 990 received at that time.

The Foundation to Eradicate Duchenne (FED) was established in 2002 with the goal of finding treatments and an ultimate cure for Duchenne Muscular Dystrophy (DMD), the world's leading lethal childhood genetic disease. The FED raises money to support the world's only clinical trials network for DMD. The clinical trials network known as CINRG works with scientists all over the world on therapies for DMD - a fatal disease which scientists now say is tantalizingly close to being cured. In pursuit of the cure, FED has raised millions of dollars for the best DMD scientists and doctors around the world. DMD is an x-linked hereditary disease characterized by the absence of a protein known as dystrophin which causes degeneration and necrosis of skeletal muscle fibers.

The Foundation to Eradicate Duchenne (FED) was established in 2002 with the goal of finding treatments and an ultimate cure for Duchenne Muscular Dystrophy (DMD), the world's leading lethal childhood genetic disease. The FED raises money to support the world's only clinical trials network for DMD. The clinical trials network known as CINRG works with scientists all over the world on therapies for DMD - a fatal disease which scientists now say is tantalizingly close to being cured. In pursuit of the cure, FED has raised millions of dollars for the best DMD scientists and doctors around the world. DMD is an x-linked hereditary disease characterized by the absence of a protein known as dystrophin which causes degeneration and necrosis of skeletal muscle fibers.

Impact Information

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Financial

two stars

76.78

Accountability & Transparency

three stars

81.00

This rating was published 06/01/2020 and includes data from FY2018, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
82.5%
  Administrative Expenses 8.0%
  Fundraising Expenses 9.4%
  Fundraising Efficiency $0.10
  Working Capital Ratio (years) 0.41
  Program Expenses Growth -6.5%
  Liabilities to Assets 32.4%
All data for Financial Performance Metrics calculations was provided by Foundation to Eradicate Duchenne on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Foundation to Eradicate Duchenne on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
Foundation to Eradicate Duchenne (VA) 78.78 two stars
D-Rev Design for the Other Ninety Percent (CA) 86.28 three stars
Rheumatology Research Foundation (GA) 92.80 four stars
CDC Foundation (GA) 98.23 four stars
International Rett Syndrome Foundation (OH) 85.85 three stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $128,239
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $503,692
   Related Organizations $0
   Government Grants $0
Total Contributions $631,931
   Program Service Revenue $0
Total Primary Revenue $631,931
   Other Revenue $67,106
TOTAL REVENUE $699,037
   
EXPENSES  
   Program Expenses $500,162
   Administrative Expenses $61,557
   Fundraising Expenses $76,425
TOTAL FUNCTIONAL EXPENSES $638,144
   
Payments to Affiliates $0
Excess (or Deficit) for the year $60,893
   
Net Assets $332,358

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Research Grants $500,162 100.0%

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2018-12 06/01/2020 78.78 two stars
2017-12 06/01/2019 80.87 three stars
2016-12 03/01/2018 84.28 three stars
2015-12 04/01/2017 79.34 two stars
2014-12 06/01/2016 81.61 three stars
 
CN 2.0
2014-12 12/22/2015 85.04 three stars
2013-12 06/01/2015 74.31 two stars
2012-12 11/01/2013 66.44 one star
2011-12 10/01/2012 64.64 one star
2010-12 12/01/2011 71.36 two stars
2009-12 09/20/2011 70.31 two stars
 
CN 1.0
2009-12 12/22/2010 62.47 one star
2008-12 11/01/2009 69.65 one star
2007-12 10/01/2008 82.60 three stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 71-0874241
Name in IRS Master File FOUNDATION TO ERADICATE DUCHENNE INC
NTEE Code H80
NTEE Classification Specifically Named Diseases Research
NTEE Type Medical Research
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date May, 2002
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2017
  • December, 2016
  • December, 2015
  • December, 2014
  • December, 2013
Compensation % of Expenses Paid to Title
None reported -- Joel R. Wood President

Highly Rated

Charity Name & State Overall Score Overall Rating
Foundation to Eradicate Duchenne (VA) 78.78 two stars
Ovarian Cancer Research Alliance (NY) 92.01 four stars
Project ALS (NY) 89.02 three stars
Pediatric Brain Tumor Foundation (NC) 89.05 three stars
EB Research Partnership (NY) 96.49 four stars

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This charity has an official representative registered with Charity Navigator.

Charity Contact Info

Foundation to Eradicate Duchenne
P.O. Box 2371
Alexandria, VA 22301
tel: (703) 683-7500
fax: (703) 683-4482
EIN: 71-0874241

Visit Web Site

Board Leadership

Joel Wood
President

CEO

Joel Wood
President

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