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Health : Diseases, Disorders, and Disciplines

GBS|CIDP Foundation International

Improving the quality of life for individuals and families affected by GBS, CIDP, MMN, Miller Fisher and their variants.

four stars

97.17

375 East Elm Street Suite 101
Conshohocken, PA 19428
tel: (610) 667-0131   Web Site
EIN: 22-2474769

Board Leadership
Jim Crone
President

CEO
Lisa Butler
Executive Director

  Score
(out of 100)
Rating
Overall Score & Rating 97.17 four stars
  Financial 100.00 four stars
  Accountability & Transparency 96.00 four stars
This rating was published 12/01/2017 and includes data from FY2016, the most recent 990 received at that time.

Founded in 1980, GBS/CIDP (Guillain-Barré Syndrome / Chronic Inflammatory Demyelinating Polyneuropathy) Foundation International works to improve the quality of life for individuals and families worldwide affected by GBS, CIDP and variants by: providing a network for all patients, their caregivers and families; providing public and professional educational programs worldwide designed to heighten awareness and improve the understanding and treatment of GBS, CIDP and variants; and expanding the Foundation's role in sponsoring research and engaging in patient advocacy. Guillain-Barré Syndrome is an inflammatory disorder of the peripheral nerves those outside the brain and spinal cord. Chronic Inflammatory Demyelinating Polyneuropathy is a rare disorder of the peripheral nerves characterized by gradually increasing weakness of the legs and, to a lesser extent, the arms.

Founded in 1980, GBS/CIDP (Guillain-Barré Syndrome / Chronic Inflammatory Demyelinating Polyneuropathy) Foundation International works to improve the quality of life for individuals and families worldwide affected by GBS, CIDP and variants by: providing a network for all patients, their caregivers and families; providing public and professional educational programs worldwide designed to heighten awareness and improve the understanding and treatment of GBS, CIDP and variants; and expanding the Foundation's role in sponsoring research and engaging in patient advocacy. Guillain-Barré Syndrome is an inflammatory disorder of the peripheral nerves those outside the brain and spinal cord. Chronic Inflammatory Demyelinating Polyneuropathy is a rare disorder of the peripheral nerves characterized by gradually increasing weakness of the legs and, to a lesser extent, the arms.

Financial

four stars

100.00

Accountability & Transparency

four stars

96.00

This rating was published 12/01/2017 and includes data from FY2016, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
91.7%
  Administrative Expenses 5.5%
  Fundraising Expenses 2.7%
  Fundraising Efficiency $0.03
  Working Capital Ratio (years) 3.92
  Program Expenses Growth 16.4%
  Liabilities to Assets 3.7%
All data for Financial Performance Metrics calculations was provided by GBS|CIDP Foundation International on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by GBS|CIDP Foundation International on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
GBS|CIDP Foundation International (PA) 97.17 four stars
Huntington's Disease Society of America (NY) 91.37 four stars
Massachusetts Down Syndrome Congress (MA) 89.91 three stars
Southwest Autism Research & Resource Center (AZ) 90.17 four stars
Hemophilia Federation of America (DC) 88.71 three stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $1,356,738
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $160,000
   Related Organizations $0
   Government Grants $0
Total Contributions $1,516,738
   Program Service Revenue $0
Total Primary Revenue $1,516,738
   Other Revenue $399,264
TOTAL REVENUE $1,916,002
   
EXPENSES  
   Program Expenses $1,661,239
   Administrative Expenses $106,608
   Fundraising Expenses $64,034
TOTAL FUNCTIONAL EXPENSES $1,831,881
   
Payments to Affiliates $0
Excess (or Deficit) for the year $84,121
   
Net Assets $7,248,515

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Due to an error on this organization's Form 990, we are unable to display program information.

Ratings History
GBS|CIDP Foundation International has received 6 consecutive 4-star ratings from Charity Navigator.

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2016-12 12/01/2017 97.17 four stars
2015-12 12/01/2016 100.00 four stars
2014-12 06/01/2016 100.00 four stars
 
CN 2.0
2014-12 12/22/2015 99.56 four stars
2013-12 08/01/2015 99.08 four stars
2012-12 09/01/2014 96.15 four stars
2012-12 05/01/2014 91.32 four stars
2011-12 04/01/2013 94.07 four stars
2011-12 03/01/2013 93.43 four stars
2011-12 02/01/2013 87.85 three stars
2010-12 03/01/2012 78.92 two stars
2009-12 09/20/2011 79.19 two stars
 
CN 1.0
2009-12 03/01/2011 75.66 two stars
2008-12 03/01/2010 78.11 two stars
2007-12 06/01/2009 91.73 four stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 22-2474769
Name in IRS Master File GBS CIDP FOUNDATION INTERNATIONAL
NTEE Code G99
NTEE Classification Diseases, Disorders, Medical Disciplines N.E.C.
NTEE Type Diseases, Disorders, Medical Disciplines
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (125) Giving information or opinion (see also Advocacy)
(123) Discussion groups, forums, panels lectures, etc.
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date May, 1986
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2015
  • December, 2014
  • December, 2013
  • December, 2012
  • December, 2011

The data displayed in this profile is provided by the IRS for free in the form of Publication 78 and the Business Master File (BMF).

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Compensation % of Expenses Paid to Title
$107,450 5.86% Elizabeth Butler Executive Director

Highly Rated

Charity Name & State Overall Score Overall Rating
GBS|CIDP Foundation International (PA) 97.17 four stars
The Marfan Foundation (NY) 92.72 four stars
Immune Deficiency Foundation (MD) 97.17 four stars
Interstitial Cystitis Association (VA) 95.34 four stars
First Candle (MD) 85.31 three stars

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This charity has an official representative registered with Charity Navigator.

Charity Contact Info

GBS|CIDP Foundation International
375 East Elm Street
Suite 101
Conshohocken, PA 19428
tel: (610) 667-0131
fax: (610) 667-7036
EIN: 22-2474769

Visit Web Site

Board Leadership

Jim Crone
President

CEO

Lisa Butler
Executive Director

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