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Health : Diseases, Disorders, and Disciplines

GBS|CIDP Foundation International

Improving the quality of life for individuals and families affected by GBS, CIDP, MMN, Miller Fisher and their variants.

100.00

375 East Elm Street Suite 101
Conshohocken, PA 19428
tel: (610) 667-0131   Web Site
EIN: 22-2474769

Board Leadership
James Crone
President

CEO
Elizabeth Butler
Executive Director

 
 
  Score
(out of 100)
Rating
Overall Score & Rating 100.00
  Financial 100.00
  Accountability & Transparency 100.00
This rating was published 12/23/2020 and includes data from FY2019, the most recent 990 received at that time.

Founded in 1980, GBS/CIDP (Guillain-Barré Syndrome / Chronic Inflammatory Demyelinating Polyneuropathy) Foundation International works to improve the quality of life for individuals and families worldwide affected by GBS, CIDP and variants by: providing a network for all patients, their caregivers and families; providing public and professional educational programs worldwide designed to heighten awareness and improve the understanding and treatment of GBS, CIDP and variants; and expanding the Foundation's role in sponsoring research and engaging in patient advocacy. Guillain-Barré Syndrome is an inflammatory disorder of the peripheral nerves those outside the brain and spinal cord. Chronic Inflammatory Demyelinating Polyneuropathy is a rare disorder of the peripheral nerves characterized by gradually increasing weakness of the legs and, to a lesser extent, the arms.

Founded in 1980, GBS/CIDP (Guillain-Barré Syndrome / Chronic Inflammatory Demyelinating Polyneuropathy) Foundation International works to improve the quality of life for individuals and families worldwide affected by GBS, CIDP and variants by: providing a network for all patients, their caregivers and families; providing public and professional educational programs worldwide designed to heighten awareness and improve the understanding and treatment of GBS, CIDP and variants; and expanding the Foundation's role in sponsoring research and engaging in patient advocacy. Guillain-Barré Syndrome is an inflammatory disorder of the peripheral nerves those outside the brain and spinal cord. Chronic Inflammatory Demyelinating Polyneuropathy is a rare disorder of the peripheral nerves characterized by gradually increasing weakness of the legs and, to a lesser extent, the arms.

Financial

100.00

Accountability & Transparency

100.00

This rating was published 12/23/2020 and includes data from FY2019, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
87.6%
  Administrative Expenses 8.6%
  Fundraising Expenses 3.7%
  Fundraising Efficiency $0.04
  Working Capital Ratio (years) 3.73
  Program Expenses Growth 9.6%
  Liabilities to Assets 9.8%
All data for Financial Performance Metrics calculations was provided by GBS|CIDP Foundation International on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by GBS|CIDP Foundation International on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
GBS|CIDP Foundation International (PA) 100.00
Tourette Association of America (NY) 85.23
NEXT for AUTISM (NY) 94.86
Donate Life America (VA) 92.23
Beyond Celiac (PA) 91.67

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $1,697,369
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $439,034
   Related Organizations $0
   Government Grants $0
Total Contributions $2,136,403
   Program Service Revenue $0
Total Primary Revenue $2,136,403
   Other Revenue $236,772
TOTAL REVENUE $2,373,175
   
EXPENSES  
   Program Expenses $2,186,666
   Administrative Expenses $204,360
   Fundraising Expenses $104,713
TOTAL FUNCTIONAL EXPENSES $2,495,739
   
Payments to Affiliates $0
Excess (or Deficit) for the year $-122,564
   
Net Assets $8,363,841

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Due to an error on this organization's Form 990, we are unable to display program information.

Ratings History
GBS|CIDP Foundation International has received 9 consecutive 4-star ratings from Charity Navigator.

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2019-12 12/23/2020 100.00
2018-12 10/01/2019 95.02
2017-12 12/01/2018 100.00
2016-12 12/22/2017 100.00
2016-12 12/01/2017 97.17
2015-12 12/01/2016 100.00
2014-12 06/01/2016 100.00
 
CN 2.0
2014-12 12/22/2015 99.56
2013-12 08/01/2015 99.08
2012-12 09/01/2014 96.15
2012-12 05/01/2014 91.32
2011-12 04/01/2013 94.07
2011-12 03/01/2013 93.43
2011-12 02/01/2013 87.85
2010-12 03/01/2012 78.92
2009-12 09/20/2011 79.19
 
CN 1.0
2009-12 03/01/2011 75.66
2008-12 03/01/2010 78.11
2007-12 06/01/2009 91.73

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 22-2474769
Name in IRS Master File GBS CIDP FOUNDATION INTERNATIONAL
NTEE Code G99
NTEE Classification Diseases, Disorders, Medical Disciplines N.E.C.
NTEE Type Diseases, Disorders, Medical Disciplines
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (125) Giving information or opinion (see also Advocacy)
(123) Discussion groups, forums, panels lectures, etc.
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date May, 1986
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2017
  • December, 2016
  • December, 2015
  • December, 2014
  • December, 2013
Compensation % of Expenses Paid to Title
$157,456 6.30% Elizabeth Butler Executive Director

Highly Rated

Charity Name & State Overall Score Overall Rating
GBS|CIDP Foundation International (PA) 100.00
Epilepsy Foundation of Texas (TX) 89.39
Solve ME/CFS Initiative (CA) 91.90
Angiogenesis Foundation (MA) 85.01
Jeffrey Modell Foundation (NY) 95.31

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This charity has an official representative registered with Charity Navigator.

Charity Contact Info

GBS|CIDP Foundation International
375 East Elm Street
Suite 101
Conshohocken, PA 19428
tel: (610) 667-0131
fax: (610) 667-7036
EIN: 22-2474769

Visit Web Site

Board Leadership

James Crone
President

CEO

Elizabeth Butler
Executive Director

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