Health : Diseases, Disorders, and Disciplines

GBS|CIDP Foundation International

Improving the quality of life for individuals and families affected by GBS, CIDP, MMN, Miller Fisher and their variants.

four stars

95.02

375 East Elm Street Suite 101
Conshohocken, PA 19428
tel: (610) 667-0131   Web Site
EIN: 22-2474769

Board Leadership
James Crone
President

CEO
Lisa Butler
Executive Director

  Score
(out of 100)
Rating
Overall Score & Rating 95.02 four stars
  Financial 92.97 four stars
  Accountability & Transparency 100.00 four stars
This rating was published 10/01/2019 and includes data from FY2018, the most recent 990 received at that time.

Founded in 1980, GBS/CIDP (Guillain-Barré Syndrome / Chronic Inflammatory Demyelinating Polyneuropathy) Foundation International works to improve the quality of life for individuals and families worldwide affected by GBS, CIDP and variants by: providing a network for all patients, their caregivers and families; providing public and professional educational programs worldwide designed to heighten awareness and improve the understanding and treatment of GBS, CIDP and variants; and expanding the Foundation's role in sponsoring research and engaging in patient advocacy. Guillain-Barré Syndrome is an inflammatory disorder of the peripheral nerves those outside the brain and spinal cord. Chronic Inflammatory Demyelinating Polyneuropathy is a rare disorder of the peripheral nerves characterized by gradually increasing weakness of the legs and, to a lesser extent, the arms.

Founded in 1980, GBS/CIDP (Guillain-Barré Syndrome / Chronic Inflammatory Demyelinating Polyneuropathy) Foundation International works to improve the quality of life for individuals and families worldwide affected by GBS, CIDP and variants by: providing a network for all patients, their caregivers and families; providing public and professional educational programs worldwide designed to heighten awareness and improve the understanding and treatment of GBS, CIDP and variants; and expanding the Foundation's role in sponsoring research and engaging in patient advocacy. Guillain-Barré Syndrome is an inflammatory disorder of the peripheral nerves those outside the brain and spinal cord. Chronic Inflammatory Demyelinating Polyneuropathy is a rare disorder of the peripheral nerves characterized by gradually increasing weakness of the legs and, to a lesser extent, the arms.

Impact Information

data icon Looking for Impact Information?

Charity Navigator is collaborating with GuideStar, GlobalGiving, Classy, and ImpactMatters to display impact-related information on our rated profile pages. Each partner collects this data directly from nonprofits and provides updates to Charity Navigator when available.

If you are interested in seeing this charity provide its impact information, please click below. This will indicate your interest and encourage the nonprofit to share data with partners that are currently collecting information.

Financial

four stars

92.97

Accountability & Transparency

four stars

100.00

This rating was published 10/01/2019 and includes data from FY2018, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
88.5%
  Administrative Expenses 8.0%
  Fundraising Expenses 3.4%
  Fundraising Efficiency $0.04
  Working Capital Ratio (years) 3.62
  Program Expenses Growth 2.0%
  Liabilities to Assets 5.9%
All data for Financial Performance Metrics calculations was provided by GBS|CIDP Foundation International on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by GBS|CIDP Foundation International on recent 990s filed with the IRS.
REVENUE  
Contributions  
   Contributions, Gifts & Grants $1,710,302
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $439,653
   Related Organizations $0
   Government Grants $0
Total Contributions $2,149,955
   Program Service Revenue $0
Total Primary Revenue $2,149,955
   Other Revenue $273,335
TOTAL REVENUE $2,423,290
   
EXPENSES  
   Program Expenses $1,651,604
   Administrative Expenses $193,215
   Fundraising Expenses $68,986
TOTAL FUNCTIONAL EXPENSES $1,913,805
   
Payments to Affiliates $0
Excess (or Deficit) for the year $509,485
   
Net Assets $7,318,685

Charts

Compensation % of Expenses Paid to Title
$137,156 7.16% Elizabeth Butler Executive Director

Mission

Founded in 1980, GBS/CIDP (Guillain-Barré Syndrome / Chronic Inflammatory Demyelinating Polyneuropathy) Foundation International works to improve the quality of life for individuals and families worldwide affected by GBS, CIDP and variants by: providing a network for all patients, their caregivers and families; providing public and professional educational programs worldwide designed to heighten awareness and improve the understanding and treatment of GBS, CIDP and variants; and expanding the Foundation's role in sponsoring research and engaging in patient advocacy. Guillain-Barré Syndrome is an inflammatory disorder of the peripheral nerves those outside the brain and spinal cord. Chronic Inflammatory Demyelinating Polyneuropathy is a rare disorder of the peripheral nerves characterized by gradually increasing weakness of the legs and, to a lesser extent, the arms.

Highly Rated

Charity Name & State Overall Score Overall Rating
GBS|CIDP Foundation International (PA) 95.02 four stars
Brain Aneurysm Foundation (MA) 86.08 three stars
Epilepsy Foundation (MD) 90.77 four stars
International OCD Foundation (MA) 86.95 three stars
Epilepsy Foundation of Texas (TX) 89.60 three stars

Compare These Charities (Highly Rated)

Charity Contact Info

GBS|CIDP Foundation International
375 East Elm Street
Suite 101
Conshohocken, PA 19428
tel: (610) 667-0131
fax: (610) 667-7036
EIN: 22-2474769

Visit Web Site

Board Leadership

James Crone
President

CEO

Lisa Butler
Executive Director