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Health : Diseases, Disorders, and Disciplines

Cystic Fibrosis Research, Inc.

Connecting cystic fibrosis resources with community needs

93.84

1731 Embarcadero Road Suite 210
Palo Alto, CA 94303
tel: (855) 237-4669   Web Site
EIN: 51-0169988

Board Leadership
Bill Hult
President

CEO
Sue Landgraf
Executive Director

  Score
(out of 100)
Rating
Overall Score & Rating 93.84
  Financial 92.27
  Accountability & Transparency 96.00
This rating was published 06/01/2016 and includes data from FY2014, the most recent 990 received at that time.

Learn more about how we calculate the overall score and rating.

Financial

92.27

Accountability & Transparency

96.00

This rating was published 06/01/2016 and includes data from FY2014, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity’s total expenses spent on the programs
and services it delivers)
84.2%
  Administrative Expenses 6.3%
  Fundraising Expenses 9.3%
  Fundraising Efficiency $0.10
  Working Capital Ratio (years) 0.84
  Program Expenses Growth 16.6%
  Liabilities to Assets 16.5%
All data for Financial Performance Metrics calculations was provided by Cystic Fibrosis Research, Inc. on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Cystic Fibrosis Research, Inc. on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
Cystic Fibrosis Research, Inc. (CA) 93.84
Immune Deficiency Foundation (MD) 95.47
Crohn's & Colitis Foundation of America (NY) 87.25
GBS/CIDP Foundation International (PA) 100.00
The Marfan Foundation (NY) 94.80

Compare These Charities (Highly Rated)

The Cystic Fibrosis Research, Inc. (CFRI) works to fund research, provide educational and personal support, and spread awareness of cystic fibrosis (CF), a life-threatening genetic disease. Cystic fibrosis (CF) is an inherited chronic disease that affects the respiratory, digestive and reproductive systems. As we work to find a cure for cystic fibrosis, CFRI envisions informing, engaging, and empowering the CF community to help all who have this challenging disease attain the highest possible quality of life. Our committees include: the Research Advisory Committee, which administers, reviews and offers guidance on what cystic fibrosis research to fund; the Events Committees, which organize and coordinate many popular events throughout the year; and the Newsletter Committee, which produces our award-winning monthly newsletter, with over 15,000 subscribers.

REVENUE  
Contributions  
   Contributions, Gifts & Grants $1,044,370
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $0
   Related Organizations $0
   Government Grants $0
Total Contributions $1,044,370
   Program Service Revenue $201,386
Total Primary Revenue $1,245,756
   Other Revenue $114,946
TOTAL REVENUE $1,360,702
   
EXPENSES  
   Program Expenses $1,032,282
   Administrative Expenses $45,558
   Fundraising Expenses $111,262
TOTAL FUNCTIONAL EXPENSES $1,189,102
   
Payments to Affiliates $0
Excess (or Deficit) for the year $171,600
   
Net Assets $826,176

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Education & Support $544,521 52.7%
Funding of Research Projects $487,761 47.3%

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2014-12 06/01/2016 93.84
 
CN 2.0
2014-12 11/01/2015 94.71
2013-12 12/01/2014 86.76
2012-12 10/01/2013 89.61
2011-12 09/01/2012 89.03
2010-12 12/23/2011 91.98
2010-12 12/01/2011 88.82
2009-12 09/20/2011 93.60
 
CN 1.0
2009-12 02/01/2011 90.95
2008-12 11/01/2009 86.22
2007-12 11/01/2008 93.73
2006-12 11/01/2007 91.05
2005-12 02/01/2007 88.04

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 51-0169988
Name in IRS Master File CYSTIC FIBROSIS RESEARCH INC
NTEE Code H24
NTEE Classification [Not Provided by IRS]
NTEE Type [Not Provided by IRS]
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (161) Scientific research (diseases)
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date December, 1975
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2014
  • December, 2013
  • December, 2012
  • December, 2011
  • December, 2010

The data displayed in this profile is provided by the IRS for free in the form of Publication 78 and the Business Master File (BMF).

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Compensation % of Expenses Paid to Title
$120,848 10.16% Sue Langraf Executive Director

The Cystic Fibrosis Research, Inc. (CFRI) works to fund research, provide educational and personal support, and spread awareness of cystic fibrosis (CF), a life-threatening genetic disease. Cystic fibrosis (CF) is an inherited chronic disease that affects the respiratory, digestive and reproductive systems. As we work to find a cure for cystic fibrosis, CFRI envisions informing, engaging, and empowering the CF community to help all who have this challenging disease attain the highest possible quality of life. Our committees include: the Research Advisory Committee, which administers, reviews and offers guidance on what cystic fibrosis research to fund; the Events Committees, which organize and coordinate many popular events throughout the year; and the Newsletter Committee, which produces our award-winning monthly newsletter, with over 15,000 subscribers.

Highly Rated

Charity Name & State Overall Score Overall Rating
Cystic Fibrosis Research, Inc. (CA) 93.84
National Alopecia Areata Foundation (CA) 95.66
The Myositis Association (VA) 92.77
The Marfan Foundation (NY) 94.80
Interstitial Cystitis Association (VA) 95.34

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This charity has an official representative registered with Charity Navigator.

Charity Contact Info

Cystic Fibrosis Research, Inc.
1731 Embarcadero Road
Suite 210
Palo Alto, CA 94303
tel: (855) 237-4669
fax: (650) 404-9981
EIN: 51-0169988

Visit Web Site

Board Leadership

Bill Hult
President

CEO

Sue Landgraf
Executive Director

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