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Health : Diseases, Disorders, and Disciplines

Cystic Fibrosis Research, Inc.

Connecting cystic fibrosis resources with community needs

four stars

100.00

1731 Embarcadero Road Suite 210
Palo Alto, CA 94303
tel: (855) 237-4669   Web Site
EIN: 51-0169988

Board Leadership
Bill Hult
President

CEO
Sue Landgraf
Executive Director

  Score
(out of 100)
Rating
Overall Score & Rating 100.00 four stars
  Financial 100.00 four stars
  Accountability & Transparency 100.00 four stars
This rating was published 07/01/2018 and includes data from FY2016, the most recent 990 received at that time.

The Cystic Fibrosis Research, Inc. (CFRI) works to fund research, provide educational and personal support, and spread awareness of cystic fibrosis (CF), a life-threatening genetic disease. Cystic fibrosis (CF) is an inherited chronic disease that affects the respiratory, digestive and reproductive systems. As we work to find a cure for cystic fibrosis, CFRI envisions informing, engaging, and empowering the CF community to help all who have this challenging disease attain the highest possible quality of life. Our committees include: the Research Advisory Committee, which administers, reviews and offers guidance on what cystic fibrosis research to fund; the Events Committees, which organize and coordinate many popular events throughout the year; and the Newsletter Committee, which produces our award-winning monthly newsletter, with over 15,000 subscribers.

The Cystic Fibrosis Research, Inc. (CFRI) works to fund research, provide educational and personal support, and spread awareness of cystic fibrosis (CF), a life-threatening genetic disease. Cystic fibrosis (CF) is an inherited chronic disease that affects the respiratory, digestive and reproductive systems. As we work to find a cure for cystic fibrosis, CFRI envisions informing, engaging, and empowering the CF community to help all who have this challenging disease attain the highest possible quality of life. Our committees include: the Research Advisory Committee, which administers, reviews and offers guidance on what cystic fibrosis research to fund; the Events Committees, which organize and coordinate many popular events throughout the year; and the Newsletter Committee, which produces our award-winning monthly newsletter, with over 15,000 subscribers.

Impact Information

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Financial

four stars

100.00

Accountability & Transparency

four stars

100.00

This rating was published 07/01/2018 and includes data from FY2016, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
88.4%
  Administrative Expenses 3.3%
  Fundraising Expenses 8.1%
  Fundraising Efficiency $0.07
  Working Capital Ratio (years) 1.63
  Program Expenses Growth 13.3%
  Liabilities to Assets 6.1%
All data for Financial Performance Metrics calculations was provided by Cystic Fibrosis Research, Inc. on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Cystic Fibrosis Research, Inc. on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
Cystic Fibrosis Research, Inc. (CA) 100.00 four stars
Tuberous Sclerosis Alliance (MD) 93.40 four stars
Crohn's & Colitis Foundation (NY) 88.07 three stars
The Marfan Foundation (NY) 91.83 four stars
National Hemophilia Foundation (NY) 95.33 four stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $1,355,629
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $25,300
   Related Organizations $0
   Government Grants $0
Total Contributions $1,380,929
   Program Service Revenue $157,849
Total Primary Revenue $1,538,778
   Other Revenue $113,311
TOTAL REVENUE $1,652,089
   
EXPENSES  
   Program Expenses $943,443
   Administrative Expenses $33,662
   Fundraising Expenses $76,574
TOTAL FUNCTIONAL EXPENSES $1,053,679
   
Payments to Affiliates $0
Excess (or Deficit) for the year $598,410
   
Net Assets $1,760,839

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Education & Support $589,884 62.5%
Funding of Research Projects $353,559 37.5%

Ratings History
Cystic Fibrosis Research, Inc. has received 3 consecutive 4-star ratings from Charity Navigator.

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2016-12 07/01/2018 100.00 four stars
2016-12 06/01/2018 97.17 four stars
2016-12 05/01/2018 94.34 four stars
2015-12 04/01/2017 94.05 four stars
2014-12 06/01/2016 93.84 four stars
 
CN 2.0
2014-12 11/01/2015 94.71 four stars
2013-12 12/01/2014 86.76 three stars
2012-12 10/01/2013 89.61 three stars
2011-12 09/01/2012 89.03 three stars
2010-12 12/23/2011 91.98 four stars
2010-12 12/01/2011 88.82 three stars
2009-12 09/20/2011 93.60 four stars
 
CN 1.0
2009-12 02/01/2011 90.95 four stars
2008-12 11/01/2009 86.22 three stars
2007-12 11/01/2008 93.73 four stars
2006-12 11/01/2007 91.05 four stars
2005-12 02/01/2007 88.04 three stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 51-0169988
Name in IRS Master File CYSTIC FIBROSIS RESEARCH INC
NTEE Code H24
NTEE Classification [Not Provided by IRS]
NTEE Type [Not Provided by IRS]
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (161) Scientific research (diseases)
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date December, 1975
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2016
  • December, 2015
  • December, 2014
  • December, 2013
  • December, 2012

The data displayed in this profile is provided by the IRS for free in the form of Publication 78 and the Business Master File (BMF).

Compensation % of Expenses Paid to Title
$122,616 11.63% Sue Landgraf Executive Director

Highly Rated

Charity Name & State Overall Score Overall Rating
Cystic Fibrosis Research, Inc. (CA) 100.00 four stars
Epilepsy Foundation of Texas (TX) 90.58 four stars
Glaucoma Research Foundation (CA) 92.44 four stars
American Brain Tumor Association (IL) 89.86 three stars
Movember Foundation (CA) 87.28 three stars

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Charity Contact Info

Cystic Fibrosis Research, Inc.
1731 Embarcadero Road
Suite 210
Palo Alto, CA 94303
tel: (855) 237-4669
fax: (650) 404-9981
EIN: 51-0169988

Visit Web Site

Board Leadership

Bill Hult
President

CEO

Sue Landgraf
Executive Director

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