Health : Diseases, Disorders, and Disciplines

Cystic Fibrosis Research, Inc.

Connecting cystic fibrosis resources with community needs

four stars

97.17

1731 Embarcadero Road Suite 210
Palo Alto, CA 94303
tel: (855) 237-4669   Web Site
EIN: 51-0169988

Board Leadership
Bill Hult
President

CEO
Siri Vaeth
Executive Director

  Score
(out of 100)
Rating
Overall Score & Rating 97.17 four stars
  Financial 100.00 four stars
  Accountability & Transparency 96.00 four stars
This rating was published 10/01/2019 and includes data from FY2017, the most recent 990 received at that time.

The Cystic Fibrosis Research, Inc. (CFRI) works to fund research, provide educational and personal support, and spread awareness of cystic fibrosis (CF), a life-threatening genetic disease. Cystic fibrosis (CF) is an inherited chronic disease that affects the respiratory, digestive and reproductive systems. As we work to find a cure for cystic fibrosis, CFRI envisions informing, engaging, and empowering the CF community to help all who have this challenging disease attain the highest possible quality of life. Our committees include: the Research Advisory Committee, which administers, reviews and offers guidance on what cystic fibrosis research to fund; the Events Committees, which organize and coordinate many popular events throughout the year; and the Newsletter Committee, which produces our award-winning monthly newsletter, with over 15,000 subscribers.

The Cystic Fibrosis Research, Inc. (CFRI) works to fund research, provide educational and personal support, and spread awareness of cystic fibrosis (CF), a life-threatening genetic disease. Cystic fibrosis (CF) is an inherited chronic disease that affects the respiratory, digestive and reproductive systems. As we work to find a cure for cystic fibrosis, CFRI envisions informing, engaging, and empowering the CF community to help all who have this challenging disease attain the highest possible quality of life. Our committees include: the Research Advisory Committee, which administers, reviews and offers guidance on what cystic fibrosis research to fund; the Events Committees, which organize and coordinate many popular events throughout the year; and the Newsletter Committee, which produces our award-winning monthly newsletter, with over 15,000 subscribers.

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Financial

four stars

100.00

Accountability & Transparency

four stars

96.00

This rating was published 10/01/2019 and includes data from FY2017, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
87.2%
  Administrative Expenses 4.0%
  Fundraising Expenses 8.6%
  Fundraising Efficiency $0.07
  Working Capital Ratio (years) 1.99
  Program Expenses Growth 12.9%
  Liabilities to Assets 2.6%
All data for Financial Performance Metrics calculations was provided by Cystic Fibrosis Research, Inc. on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Cystic Fibrosis Research, Inc. on recent 990s filed with the IRS.
REVENUE  
Contributions  
   Contributions, Gifts & Grants $1,362,602
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $0
   Related Organizations $0
   Government Grants $0
Total Contributions $1,362,602
   Program Service Revenue $0
Total Primary Revenue $1,362,602
   Other Revenue $297,869
TOTAL REVENUE $1,660,471
   
EXPENSES  
   Program Expenses $1,053,920
   Administrative Expenses $72,324
   Fundraising Expenses $130,928
TOTAL FUNCTIONAL EXPENSES $1,257,172
   
Payments to Affiliates $0
Excess (or Deficit) for the year $403,299
   
Net Assets $2,193,583

Charts

Compensation % of Expenses Paid to Title
None reported -- This organization did not report a CEO

Mission

The Cystic Fibrosis Research, Inc. (CFRI) works to fund research, provide educational and personal support, and spread awareness of cystic fibrosis (CF), a life-threatening genetic disease. Cystic fibrosis (CF) is an inherited chronic disease that affects the respiratory, digestive and reproductive systems. As we work to find a cure for cystic fibrosis, CFRI envisions informing, engaging, and empowering the CF community to help all who have this challenging disease attain the highest possible quality of life. Our committees include: the Research Advisory Committee, which administers, reviews and offers guidance on what cystic fibrosis research to fund; the Events Committees, which organize and coordinate many popular events throughout the year; and the Newsletter Committee, which produces our award-winning monthly newsletter, with over 15,000 subscribers.

Highly Rated

Charity Name & State Overall Score Overall Rating
Cystic Fibrosis Research, Inc. (CA) 97.17 four stars
Jeffrey Modell Foundation (NY) 93.94 four stars
National Hemophilia Foundation (NY) 94.84 four stars
Solve ME/CFS Initiative (CA) 89.01 three stars
Organization for Autism Research (VA) 94.75 four stars

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Charity Contact Info

Cystic Fibrosis Research, Inc.
1731 Embarcadero Road
Suite 210
Palo Alto, CA 94303
tel: (855) 237-4669
fax: (650) 404-9981
EIN: 51-0169988

Visit Web Site

Board Leadership

Bill Hult
President

CEO

Siri Vaeth
Executive Director