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Health : Diseases, Disorders, and Disciplines
Board Leadership
Lewis Phelps
Chair
CEO
Karla M. Dzienkowski
Executive Director
|
In 1992 the Restless Legs Syndrome Foundation was incorporated to address the growing need for research and information about restless legs syndrome. The goals were simple and yet groundbreaking: increase awareness, improve treatments, and, through research, find a cure. Today those goals have taken on a life of their own. Our understanding of restless legs syndrome has also grown. We now know that the condition is not rare at all. In fact, recent research suggests that up to 10 percent of the general population has this neurological condition. The Foundation increases awareness of this disease by raising its profile and educating the public and medical communities alike; strives to be the most reputable source of information; and has taken giant steps to further RLS research, funding grants for 40 research projects.
In 1992 the Restless Legs Syndrome Foundation was incorporated to address the growing need for research and information about restless legs syndrome. The goals were simple and yet groundbreaking: increase awareness, improve treatments, and, through research, find a cure. Today those goals have taken on a life of their own. Our understanding of restless legs syndrome has also grown. We now know that the condition is not rare at all. In fact, recent research suggests that up to 10 percent of the general population has this neurological condition. The Foundation increases awareness of this disease by raising its profile and educating the public and medical communities alike; strives to be the most reputable source of information; and has taken giant steps to further RLS research, funding grants for 40 research projects.
85.70
100.00
Program Expenses (Percent of the charity's total expenses spent on the programs and services it delivers) |
78.7% | |
Administrative Expenses | 9.5% | |
Fundraising Expenses | 11.6% | |
Fundraising Efficiency | $0.13 | |
Working Capital Ratio (years) | 0.44 | |
Program Expenses Growth | 11.1% | |
Liabilities to Assets | 23.4% |
Charity Name & State | Overall Score | Overall Rating |
---|---|---|
Restless Legs Syndrome Foundation (TX) | 89.88 | |
The Boomer Esiason Foundation (NY) | 90.36 | |
Parent Project Muscular Dystrophy (NJ) | 90.04 | |
American Brain Foundation (MN) | 89.65 | |
Friedreich's Ataxia Research Alliance (PA) | 97.38 |
REVENUE | |
Contributions | |
Contributions, Gifts & Grants | $641,810 |
Federated Campaigns | $0 |
Membership Dues | $137,352 |
Fundraising Events | $0 |
Related Organizations | $0 |
Government Grants | $0 |
Total Contributions | $779,162 |
Program Service Revenue | $0 |
Total Primary Revenue | $779,162 |
Other Revenue | $19,922 |
TOTAL REVENUE | $799,084 |
EXPENSES | |
Program Expenses | $671,614 |
Administrative Expenses | $93,565 |
Fundraising Expenses | $65,237 |
TOTAL FUNCTIONAL EXPENSES | $830,416 |
Payments to Affiliates | $0 |
Excess (or Deficit) for the year | $-31,332 |
Net Assets | $378,549 |
Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.
Program Name | Amount Spent | % of Program Expenses |
---|---|---|
Education | $426,451 | 63.5% |
Membership | $148,868 | 22.2% |
Support Groups | $29,709 | 4.4% |
Form 990 FYE | Date Published | Overall Score | Overall Rating | ||||||
---|---|---|---|---|---|---|---|---|---|
CN 2.1 | |||||||||
2018-09 | 10/01/2019 | 89.88 | |||||||
2018-09 | 08/01/2019 | 88.62 | |||||||
2017-09 | 08/01/2018 | 91.16 | |||||||
2016-09 | 12/22/2017 | 90.96 | |||||||
2016-09 | 10/01/2017 | 89.33 | |||||||
2015-09 | 12/01/2016 | 89.27 | |||||||
2015-09 | 11/01/2016 | 88.90 | |||||||
2014-09 | 06/01/2016 | 89.66 | |||||||
CN 2.0 | |||||||||
2014-09 | 11/01/2015 | 85.01 | |||||||
2013-09 | 10/01/2014 | 90.21 | |||||||
2012-09 | 08/01/2013 | 79.69 | |||||||
2011-09 | 05/01/2012 | 81.39 | |||||||
2010-09 | 09/20/2011 | 79.49 | |||||||
CN 1.0 | |||||||||
2009-09 | 04/01/2011 | 72.94 | |||||||
2008-09 | 09/01/2009 | 72.65 | |||||||
2007-09 | 06/01/2008 | 69.98 | |||||||
2006-09 | 04/01/2007 | 79.02 |
The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).
EIN | 56-1784846 |
Name in IRS Master File | RESTLESS LEGS SYNDROME FOUNDATION INC |
NTEE Code | H99 |
NTEE Classification | Medical Research N.E.C. |
NTEE Type | Medical Research |
Classification | Charitable Organization |
Subsection | 501(c)(3) (View the list of codes) |
Activities | (161) Scientific research (diseases) |
Foundation Status | Organization which receives a substantial part of its support from a governmental unit or the general public 170(b)(1)(A)(vi) |
Deductibility | Contributions are deductible |
Affiliation | Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations). |
Group Name | [Not Applicable] |
Ruling Date | January, 1993 |
Filing Requirement | 990 (all other) or 990EZ return |
Fiscal Year End | September |
IRS Forms 990 (provided courtesy of Foundation Center) |
(Log In or Register Now to View Forms 990!)
|
Compensation | % of Expenses | Paid to | Title | |
---|---|---|---|---|
$80,384 | 9.67% | Karla Dzienkowski | Executive Director |
Charity Name & State | Overall Score | Overall Rating |
---|---|---|
Restless Legs Syndrome Foundation (TX) | 89.88 | |
Parent Project Muscular Dystrophy (NJ) | 90.04 | |
American Brain Foundation (MN) | 89.65 | |
Hunter's Hope Foundation (NY) | 93.62 | |
Epilepsy Foundation of Minnesota (MN) | 89.56 |
This charity has an official representative registered with Charity Navigator.
Restless Legs Syndrome Foundation
3006 Bee Caves Road
Suite D206
Austin,
TX 78746
tel: (512) 366-9109
fax: (512) 366-9189
EIN: 56-1784846
Lewis Phelps
Chair
Karla M. Dzienkowski
Executive Director
Charity Navigator
299 Market Street Suite 250
Saddle Brook, NJ 07663
EIN: 13-4148824
BRIDGE ID: 3108588923