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Health : Diseases, Disorders, and Disciplines

Interstitial Cystitis Association

Conquering IC. Changing Lives.

four stars

95.34

7918 Jones Branch Drive Suite 300
McLean, VA 22102
tel: (703) 442-2070   Web Site
EIN: 13-3292137

Board Leadership
Barbara Zarnikow & Eric Zarnikow
Co-Chairs

  Score
(out of 100)
Rating
Overall Score & Rating 95.34 four stars
  Financial 97.30 four stars
  Accountability & Transparency 94.00 four stars
This rating was published 11/01/2016 and includes data from FY2015, the most recent 990 received at that time.

Learn more about how we calculate the overall score and rating.

Financial

four stars

97.30

Accountability & Transparency

four stars

94.00

This rating was published 11/01/2016 and includes data from FY2015, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
84.3%
  Administrative Expenses 7.7%
  Fundraising Expenses 7.9%
  Fundraising Efficiency $0.09
  Working Capital Ratio (years) 0.57
  Program Expenses Growth 24.2%
  Liabilities to Assets 0.9%
All data for Financial Performance Metrics calculations was provided by Interstitial Cystitis Association on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Interstitial Cystitis Association on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
Interstitial Cystitis Association (VA) 95.34 four stars
GBS/CIDP Foundation International (PA) 100.00 four stars
Doug Flutie Jr. Foundation For Autism (MA) 86.09 three stars
Cystic Fibrosis Research, Inc. (CA) 94.05 four stars
Immune Deficiency Foundation (MD) 97.17 four stars

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The mission of the Interstitial Cystitis Association is giving hope to all those living with interstitial cystitis (IC), as well as the healthcare providers and researchers who strive to improve the lives of IC patients. IC is a condition consisting of pelvic pain, pressure, or discomfort related to the bladder, typically associated with urinary urgency or urinary frequency. IC may also be referred to as painful bladder syndrome (PBS). The ICA provides advocacy, research funding, and education to ensure early diagnosis and optimal care with dignity for people affected by IC.

REVENUE  
Contributions  
   Contributions, Gifts & Grants $527,227
   Federated Campaigns $7,863
   Membership Dues $0
   Fundraising Events $0
   Related Organizations $0
   Government Grants $561,400
Total Contributions $1,096,490
   Program Service Revenue $132,000
Total Primary Revenue $1,228,490
   Other Revenue $7,793
TOTAL REVENUE $1,236,283
   
EXPENSES  
   Program Expenses $1,196,554
   Administrative Expenses $100,098
   Fundraising Expenses $94,508
TOTAL FUNCTIONAL EXPENSES $1,391,160
   
Payments to Affiliates $0
Excess (or Deficit) for the year $-154,877
   
Net Assets $710,862

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
CDCP Interstitial Cystitis Cooperative Agreement $561,400 46.9%
Education $282,603 23.6%
Advocacy $119,583 10.0%

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2015-09 11/01/2016 95.34 four stars
2014-09 06/01/2016 88.07 three stars
 
CN 2.0
2014-09 11/01/2015 82.65 three stars
2013-09 12/22/2014 86.58 three stars
2012-09 10/01/2013 76.32 two stars
2012-09 09/01/2013 78.06 two stars
2011-09 07/01/2012 79.24 two stars
2010-09 10/01/2011 83.18 three stars
2010-09 09/20/2011 82.47 three stars
 
CN 1.0
2009-09 08/01/2010 75.56 two stars
2008-09 10/01/2009 88.98 three stars
2007-09 07/01/2008 85.34 three stars
2006-09 07/01/2007 78.42 two stars
2005-09 02/01/2007 82.46 three stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 13-3292137
Name in IRS Master File INTERSTITIAL CYSTITIS ASSOCIATION OF AMERICA
NTEE Code [Not Provided by IRS]
NTEE Classification [Not Provided by IRS]
NTEE Type [Not Provided by IRS]
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (162) Other medical research
(179) Other health services
(927) Fundraising
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date November, 1985
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End September
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • September, 2015
  • September, 2014
  • September, 2013
  • September, 2012
  • September, 2011

The data displayed in this profile is provided by the IRS for free in the form of Publication 78 and the Business Master File (BMF).

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Compensation % of Expenses Paid to Title
Not compensated -- Lee Classen Executive Director (Independent Contractor)

The mission of the Interstitial Cystitis Association is giving hope to all those living with interstitial cystitis (IC), as well as the healthcare providers and researchers who strive to improve the lives of IC patients. IC is a condition consisting of pelvic pain, pressure, or discomfort related to the bladder, typically associated with urinary urgency or urinary frequency. IC may also be referred to as painful bladder syndrome (PBS). The ICA provides advocacy, research funding, and education to ensure early diagnosis and optimal care with dignity for people affected by IC.

Highly Rated

Charity Name & State Overall Score Overall Rating
Interstitial Cystitis Association (VA) 95.34 four stars
The Marfan Foundation (NY) 92.72 four stars
Glaucoma Research Foundation (CA) 91.98 four stars
National Hemophilia Foundation (NY) 93.60 four stars
Tuberous Sclerosis Alliance (MD) 87.24 three stars

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Charity Contact Info

Interstitial Cystitis Association
7918 Jones Branch Drive
Suite 300
McLean, VA 22102
tel: (703) 442-2070
fax: (703) 506-3266
EIN: 13-3292137

Visit Web Site

Board Leadership

Barbara Zarnikow & Eric Zarnikow
Co-Chairs

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