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Health : Diseases, Disorders, and Disciplines

Angelman Syndrome Foundation

I may not speak, but I have much to say

three stars

83.63

3015 East New York Street Suite A2 #285
Aurora, IL 60504
tel: (630) 978-4245   Web Site
EIN: 59-3092842

Board Leadership
Kathy Rokita
President

CEO
Amanda Moore
Chief Executive Officer

  Score
(out of 100)
Rating
Overall Score & Rating 83.63 three stars
  Financial 76.85 two stars
  Accountability & Transparency 100.00 four stars
This rating was published 03/01/2021 and includes data from FY2019, the most recent 990 received at that time.

The Angelman Syndrome Foundation (ASF) works to advance the awareness and treatment of Angelman Syndrome (AS) through education and information, research, and support for individuals with Angelman Syndrome, their families and other concerned parties. ASF is a national organization dedicated to helping families, care providers and medical professionals arm themselves with as much helpful information about Angelman Syndrome as possible. AS is a neuro-genetic disorder. Characteristics of AS include: developmental delay, lack of speech, seizures, and walking and balance disorders. Individuals with AS will require life-long care. The Foundation sponsors AS research through grants to researchers pursuing promising avenues of discovery. Since 1996, ASF has funded research grants totaling over $2.5 million.

The Angelman Syndrome Foundation (ASF) works to advance the awareness and treatment of Angelman Syndrome (AS) through education and information, research, and support for individuals with Angelman Syndrome, their families and other concerned parties. ASF is a national organization dedicated to helping families, care providers and medical professionals arm themselves with as much helpful information about Angelman Syndrome as possible. AS is a neuro-genetic disorder. Characteristics of AS include: developmental delay, lack of speech, seizures, and walking and balance disorders. Individuals with AS will require life-long care. The Foundation sponsors AS research through grants to researchers pursuing promising avenues of discovery. Since 1996, ASF has funded research grants totaling over $2.5 million.

Financial

two stars

76.85

Accountability & Transparency

four stars

100.00

This rating was published 03/01/2021 and includes data from FY2019, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
74.0%
  Administrative Expenses 7.1%
  Fundraising Expenses 18.8%
  Fundraising Efficiency $0.19
  Working Capital Ratio (years) 0.83
  Program Expenses Growth -4.2%
  Liabilities to Assets 2.6%
All data for Financial Performance Metrics calculations was provided by Angelman Syndrome Foundation on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Angelman Syndrome Foundation on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
Angelman Syndrome Foundation (IL) 83.63 three stars
Cerebral Palsy Foundation (NY) 85.09 three stars
National Fragile X Foundation (VA) 86.92 three stars
Alpha-1 Foundation (FL) 93.26 four stars
The Progeria Research Foundation (MA) 92.06 four stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $1,197,209
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $1,005,519
   Related Organizations $0
   Government Grants $0
Total Contributions $2,202,728
   Program Service Revenue $108,854
Total Primary Revenue $2,311,582
   Other Revenue $18,621
TOTAL REVENUE $2,330,203
   
EXPENSES  
   Program Expenses $1,260,158
   Administrative Expenses $159,289
   Fundraising Expenses $442,809
TOTAL FUNCTIONAL EXPENSES $1,862,256
   
Payments to Affiliates $0
Excess (or Deficit) for the year $467,947
   
Net Assets $1,794,326

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Conference and Grant Program $1,036,687 82.3%
Educational Tools $223,471 17.7%

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2019-09 03/01/2021 83.63 three stars
2018-09 08/01/2019 90.55 four stars
2017-09 09/01/2018 90.57 four stars
2017-09 08/01/2018 83.83 three stars
2016-09 10/01/2017 75.89 two stars
2015-09 07/01/2016 76.66 two stars
2014-09 06/01/2016 69.92 one star
 
CN 2.0
2014-09 10/01/2015 72.19 two stars
2013-09 08/01/2014 88.11 three stars
2012-09 02/01/2014 75.54 two stars
2011-09 05/01/2012 88.72 three stars
2010-09 12/23/2011 83.78 three stars
2009-09 09/20/2011 82.33 three stars
 
CN 1.0
2009-09 08/01/2010 90.24 four stars
2008-09 11/01/2009 90.10 four stars
2007-09 12/01/2008 95.87 four stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 59-3092842
Name in IRS Master File ANGELMAN SYNDROME FOUNDATION INC
NTEE Code H90
NTEE Classification Medical Specialty Research
NTEE Type Medical Research
Classification Educational Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (161) Scientific research (diseases)
(179) Other health services
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Central - the organization is a parent (group ruling) and is not a church or 501(c)(1) organization.
Group Name ANGELMAN SYNDROME FOUNDATION INC
Ruling Date June, 2001
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End September
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • September, 2018
  • September, 2017
  • September, 2016
  • September, 2015
  • September, 2014
Compensation % of Expenses Paid to Title
$38,252 2.05% Amanda Moore CEO

Highly Rated

Charity Name & State Overall Score Overall Rating
Angelman Syndrome Foundation (IL) 83.63 three stars
Dystrophic Epidermolysis Bullosa Research Association of America (debra of America) (NY) 92.42 four stars
Fanconi Anemia Research Fund (OR) 97.25 four stars
Alpha-1 Foundation (FL) 93.26 four stars
The Progeria Research Foundation (MA) 92.06 four stars

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Charity Contact Info

Angelman Syndrome Foundation
3015 East New York Street
Suite A2 #285
Aurora, IL 60504
tel: (630) 978-4245
fax: (630) 978-7408
EIN: 59-3092842

Visit Web Site

Board Leadership

Kathy Rokita
President

CEO

Amanda Moore
Chief Executive Officer

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