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Health : Diseases, Disorders, and Disciplines

Angelman Syndrome Foundation

I may not speak, but I have much to say

four stars

90.57

75 Executive Drive Suite 327
Aurora, IL 60504
tel: (630) 978-4245   Web Site
EIN: 59-3092842

Board Leadership
Justin Grill
President

CEO
Eileen Braun
Executive Director

  Score
(out of 100)
Rating
Overall Score & Rating 90.57 four stars
  Financial 87.28 three stars
  Accountability & Transparency 96.00 four stars
This rating was published 09/01/2018 and includes data from FY2017, the most recent 990 received at that time.

The Angelman Syndrome Foundation (ASF) works to advance the awareness and treatment of Angelman Syndrome (AS) through education and information, research, and support for individuals with Angelman Syndrome, their families and other concerned parties. ASF is a national organization dedicated to helping families, care providers and medical professionals arm themselves with as much helpful information about Angelman Syndrome as possible. AS is a neuro-genetic disorder. Characteristics of AS include: developmental delay, lack of speech, seizures, and walking and balance disorders. Individuals with AS will require life-long care. The Foundation sponsors AS research through grants to researchers pursuing promising avenues of discovery. Since 1996, ASF has funded research grants totaling over $2.5 million.

The Angelman Syndrome Foundation (ASF) works to advance the awareness and treatment of Angelman Syndrome (AS) through education and information, research, and support for individuals with Angelman Syndrome, their families and other concerned parties. ASF is a national organization dedicated to helping families, care providers and medical professionals arm themselves with as much helpful information about Angelman Syndrome as possible. AS is a neuro-genetic disorder. Characteristics of AS include: developmental delay, lack of speech, seizures, and walking and balance disorders. Individuals with AS will require life-long care. The Foundation sponsors AS research through grants to researchers pursuing promising avenues of discovery. Since 1996, ASF has funded research grants totaling over $2.5 million.

Impact Information

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Financial

three stars

87.28

Accountability & Transparency

four stars

96.00

This rating was published 09/01/2018 and includes data from FY2017, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
75.5%
  Administrative Expenses 7.0%
  Fundraising Expenses 17.4%
  Fundraising Efficiency $0.18
  Working Capital Ratio (years) 0.67
  Program Expenses Growth 24.5%
  Liabilities to Assets 3.1%
All data for Financial Performance Metrics calculations was provided by Angelman Syndrome Foundation on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Angelman Syndrome Foundation on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
Angelman Syndrome Foundation (IL) 90.57 four stars
Dystrophic Epidermolysis Bullosa Research Association of America (debra of America) (NY) 93.82 four stars
The Progeria Research Foundation (MA) 94.88 four stars
Alpha-1 Foundation (FL) 97.13 four stars
Cerebral Palsy Foundation (NY) 91.52 four stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $959,924
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $1,129,141
   Related Organizations $0
   Government Grants $0
Total Contributions $2,089,065
   Program Service Revenue $85,355
Total Primary Revenue $2,174,420
   Other Revenue $60,492
TOTAL REVENUE $2,234,912
   
EXPENSES  
   Program Expenses $1,930,374
   Administrative Expenses $155,172
   Fundraising Expenses $361,018
TOTAL FUNCTIONAL EXPENSES $2,446,564
   
Payments to Affiliates $0
Excess (or Deficit) for the year $-211,652
   
Net Assets $1,362,196

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Due to an error on this organization's Form 990, we are unable to display program information.

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2017-09 09/01/2018 90.57 four stars
2017-09 08/01/2018 83.83 three stars
2016-09 10/01/2017 75.89 two stars
2015-09 07/01/2016 76.66 two stars
2014-09 06/01/2016 69.92 one star
 
CN 2.0
2014-09 10/01/2015 72.19 two stars
2013-09 08/01/2014 88.11 three stars
2012-09 02/01/2014 75.54 two stars
2011-09 05/01/2012 88.72 three stars
2010-09 12/23/2011 83.78 three stars
2009-09 09/20/2011 82.33 three stars
 
CN 1.0
2009-09 08/01/2010 90.24 four stars
2008-09 11/01/2009 90.10 four stars
2007-09 12/01/2008 95.87 four stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 59-3092842
Name in IRS Master File ANGELMAN SYNDROME FOUNDATION INC
NTEE Code H90
NTEE Classification Medical Specialty Research
NTEE Type Medical Research
Classification Educational Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (161) Scientific research (diseases)
(179) Other health services
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Central - the organization is a parent (group ruling) and is not a church or 501(c)(1) organization.
Group Name ANGELMAN SYNDROME FOUNDATION INC
Ruling Date June, 2001
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End September
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • September, 2017
  • September, 2016
  • September, 2015
  • September, 2014
  • September, 2013

The data displayed in this profile is provided by the IRS for free in the form of Publication 78 and the Business Master File (BMF).

Compensation % of Expenses Paid to Title
None reported -- This organization did not report a CEO

Highly Rated

Charity Name & State Overall Score Overall Rating
Angelman Syndrome Foundation (IL) 90.57 four stars
Prader-Willi Syndrome Association (USA) (FL) 85.60 three stars
Cerebral Palsy Foundation (NY) 91.52 four stars
The Cornelia de Lange Syndrome Foundation (CT) 100.00 four stars
United Ability (AL) 96.14 four stars

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Charity Contact Info

Angelman Syndrome Foundation
75 Executive Drive
Suite 327
Aurora, IL 60504
tel: (630) 978-4245
fax: (630) 978-7408
EIN: 59-3092842

Visit Web Site

Board Leadership

Justin Grill
President

CEO

Eileen Braun
Executive Director

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