Health : Diseases, Disorders, and Disciplines

Angelman Syndrome Foundation

I may not speak, but I have much to say

four stars

90.55

75 Executive Drive Suite 327
Aurora, IL 60504
tel: (630) 978-4245   Web Site
EIN: 59-3092842

Board Leadership
Justin Grill
President

CEO
Eileen Braun
Executive Director

  Score
(out of 100)
Rating
Overall Score & Rating 90.55 four stars
  Financial 87.26 three stars
  Accountability & Transparency 96.00 four stars
This rating was published 08/01/2019 and includes data from FY2018, the most recent 990 received at that time.

The Angelman Syndrome Foundation (ASF) works to advance the awareness and treatment of Angelman Syndrome (AS) through education and information, research, and support for individuals with Angelman Syndrome, their families and other concerned parties. ASF is a national organization dedicated to helping families, care providers and medical professionals arm themselves with as much helpful information about Angelman Syndrome as possible. AS is a neuro-genetic disorder. Characteristics of AS include: developmental delay, lack of speech, seizures, and walking and balance disorders. Individuals with AS will require life-long care. The Foundation sponsors AS research through grants to researchers pursuing promising avenues of discovery. Since 1996, ASF has funded research grants totaling over $2.5 million.

The Angelman Syndrome Foundation (ASF) works to advance the awareness and treatment of Angelman Syndrome (AS) through education and information, research, and support for individuals with Angelman Syndrome, their families and other concerned parties. ASF is a national organization dedicated to helping families, care providers and medical professionals arm themselves with as much helpful information about Angelman Syndrome as possible. AS is a neuro-genetic disorder. Characteristics of AS include: developmental delay, lack of speech, seizures, and walking and balance disorders. Individuals with AS will require life-long care. The Foundation sponsors AS research through grants to researchers pursuing promising avenues of discovery. Since 1996, ASF has funded research grants totaling over $2.5 million.

Impact Information

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Financial

three stars

87.26

Accountability & Transparency

four stars

96.00

This rating was published 08/01/2019 and includes data from FY2018, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
75.9%
  Administrative Expenses 6.7%
  Fundraising Expenses 17.3%
  Fundraising Efficiency $0.19
  Working Capital Ratio (years) 0.61
  Program Expenses Growth 8.9%
  Liabilities to Assets 3.4%
All data for Financial Performance Metrics calculations was provided by Angelman Syndrome Foundation on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Angelman Syndrome Foundation on recent 990s filed with the IRS.
REVENUE  
Contributions  
   Contributions, Gifts & Grants $869,681
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $1,174,675
   Related Organizations $0
   Government Grants $0
Total Contributions $2,044,356
   Program Service Revenue $23,969
Total Primary Revenue $2,068,325
   Other Revenue $43,124
TOTAL REVENUE $2,111,449
   
EXPENSES  
   Program Expenses $1,585,501
   Administrative Expenses $146,704
   Fundraising Expenses $410,929
TOTAL FUNCTIONAL EXPENSES $2,143,134
   
Payments to Affiliates $0
Excess (or Deficit) for the year $-31,685
   
Net Assets $1,326,379

Charts

Compensation % of Expenses Paid to Title
None reported -- This organization did not report a CEO

Mission

The Angelman Syndrome Foundation (ASF) works to advance the awareness and treatment of Angelman Syndrome (AS) through education and information, research, and support for individuals with Angelman Syndrome, their families and other concerned parties. ASF is a national organization dedicated to helping families, care providers and medical professionals arm themselves with as much helpful information about Angelman Syndrome as possible. AS is a neuro-genetic disorder. Characteristics of AS include: developmental delay, lack of speech, seizures, and walking and balance disorders. Individuals with AS will require life-long care. The Foundation sponsors AS research through grants to researchers pursuing promising avenues of discovery. Since 1996, ASF has funded research grants totaling over $2.5 million.

Highly Rated

Charity Name & State Overall Score Overall Rating
Angelman Syndrome Foundation (IL) 90.55 four stars
Alpha-1 Foundation (FL) 93.26 four stars
Cerebral Palsy (WI) 85.83 three stars
Spina Bifida Association (VA) 85.88 three stars
Prader-Willi Syndrome Association (USA) (FL) 88.00 three stars

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Charity Contact Info

Angelman Syndrome Foundation
75 Executive Drive
Suite 327
Aurora, IL 60504
tel: (630) 978-4245
fax: (630) 978-7408
EIN: 59-3092842

Visit Web Site

Board Leadership

Justin Grill
President

CEO

Eileen Braun
Executive Director