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Health : Diseases, Disorders, and Disciplines

National Fragile X Foundation

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89.02

2100 M Street, NW Suite 170, Box 302
Washington, DC 20037
tel: (800) 688-8765   Web Site
EIN: 84-0960471

Board Leadership
Jennifer Silverton
President

CEO
Tony Ferlenda
Chief Executive Officer

  Score
(out of 100)
Rating
Overall Score & Rating 89.02
  Financial * 86.70
  Accountability & Transparency 92.00
*Please note that this organization recently received a 4-star rating for the same fiscal period under Charity Navigator's previous 2.0 methodology. You can view that rating via the Historical Ratings tab.
This rating was published 06/01/2016 and includes data from FY2014, the most recent 990 received at that time.

Learn more about how we calculate the overall score and rating.

Financial *

86.70

Accountability & Transparency

92.00

*Please note that this organization recently received a 4-star rating for the same fiscal period under Charity Navigator's previous 2.0 methodology. You can view that rating via the Historical Ratings tab.
This rating was published 06/01/2016 and includes data from FY2014, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity’s total expenses spent on the programs
and services it delivers)
82.2%
  Administrative Expenses 12.2%
  Fundraising Expenses 5.5%
  Fundraising Efficiency $0.08
  Working Capital Ratio (years) 0.22
  Program Expenses Growth 24.8%
  Liabilities to Assets 38.6%
All data for Financial Performance Metrics calculations was provided by National Fragile X Foundation on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by National Fragile X Foundation on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
National Fragile X Foundation (DC) 89.02
Cerebral Palsy, Inc. (WI) 87.81
United Cerebral Palsy of Greater Birmingham (AL) 97.73
Alpha-1 Foundation (FL) 94.30
National Down Syndrome Society (NY) 90.98

Compare These Charities (Highly Rated)

The National Fragile X Foundation unites the Fragile X community to enrich lives through educational and emotional support, promote public and professional awareness, and advance research toward improved treatments and a cure for Fragile X. Fragile X is a family of genetic conditions, which can impact individuals and families in various ways. These genetic conditions are related in that they are all caused by gene changes in the same gene, called the FMR1 gene. Fragile X includes: fragile X syndrome, fragile X-associated tremor/ataxia syndrome, and fragile X-associated primary ovarian insufficiency.

REVENUE  
Contributions  
   Contributions, Gifts & Grants $963,548
   Federated Campaigns $0
   Membership Dues $28,570
   Fundraising Events $0
   Related Organizations $0
   Government Grants $0
Total Contributions $992,118
   Program Service Revenue $682,554
Total Primary Revenue $1,674,672
   Other Revenue $242,691
TOTAL REVENUE $1,917,363
   
EXPENSES  
   Program Expenses $1,704,995
   Administrative Expenses $212,733
   Fundraising Expenses $73,088
TOTAL FUNCTIONAL EXPENSES $1,990,816
   
Payments to Affiliates $0
Excess (or Deficit) for the year $-73,453
   
Net Assets $376,129

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Public Awareness, Education, and Advocacy $1,268,598 74.4%
Conferences $406,208 23.8%
Research $30,189 1.8%

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2014-12 06/01/2016 89.02
 
CN 2.0
2014-12 12/01/2015 91.51
2013-12 04/01/2015 82.92
2012-12 10/01/2013 92.76
2011-12 09/01/2012 81.23
2010-12 11/01/2011 87.73
2009-12 09/20/2011 --Donor Advisory

Prior to 9/1/2016, Charity Navigator issued Advisories under the name CN Watchlist and Donor Advisory. For more information on the CN Advisory system click here. This charity was issued a DA.

This donor advisory was published on Tuesday, September 20, 2011

In accordance with our policy for removing Donor Advisories, Charity Navigator  removed the Donor Advisory for the National Fragile X Foundation in November 2011 because  the organization filed an amended FYE 2010 Form 990 with the IRS which reports fundraising expenses.

Charity Navigator had published a Donor Advisory for this charity because we became aware of the following information in connection with this charity:

  • National Fragile X Foundation historically reported fundraising expenses on their Forms 990.  But its FYE 2010 Form 990 listed no fundraising expenses. Based on our experience, charities only rarely are able to raise substantial sums of money without incurring any associated fundraising costs. We reached out to National Fragile X Foundation for clarification, but did not received an adequate explanation. We were therefore unable to evaluate National Fragile X Foundation and thus issued a Donor Advisory. 
 
CN 1.0
2009-12 10/01/2010 83.57

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 84-0960471
Name in IRS Master File NATIONAL FRAGILE X FOUNDATION
NTEE Code H20
NTEE Classification Birth Defects, Genetic Diseases Research
NTEE Type Medical Research
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (161) Scientific research (diseases)
Foundation Status Organization that normally receives no more than one-third of its support from gross investment income and unrelated business income and at the same time more than one-third of its support from contributions, fees, and gross receipts related to exempt purposes.  509(a)(2)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date August, 1983
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2014
  • December, 2013
  • December, 2012
  • December, 2011
  • December, 2010

The data displayed in this profile is provided by the IRS for free in the form of Publication 78 and the Business Master File (BMF).

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Compensation % of Expenses Paid to Title
None reported -- This organization did not report a CEO
Other Salaries of Note
$112,226 5.63% Linda Sorensen Associate Director
$58,692 2.94% Robert Miller Former Executive Director

The National Fragile X Foundation unites the Fragile X community to enrich lives through educational and emotional support, promote public and professional awareness, and advance research toward improved treatments and a cure for Fragile X. Fragile X is a family of genetic conditions, which can impact individuals and families in various ways. These genetic conditions are related in that they are all caused by gene changes in the same gene, called the FMR1 gene. Fragile X includes: fragile X syndrome, fragile X-associated tremor/ataxia syndrome, and fragile X-associated primary ovarian insufficiency.

Highly Rated

Charity Name & State Overall Score Overall Rating
National Fragile X Foundation (DC) 89.02
Cerebral Palsy, Inc. (WI) 87.81
National Down Syndrome Society (NY) 90.98
Alpha-1 Foundation (FL) 94.30
United Cerebral Palsy of Greater Birmingham (AL) 97.73

Compare These Charities (Highly Rated)

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Charity Contact Info

National Fragile X Foundation
2100 M Street, NW
Suite 170, Box 302
Washington, DC 20037
tel: (800) 688-8765
fax: (925) 938-9315
EIN: 84-0960471

Visit Web Site

Board Leadership

Jennifer Silverton
President

CEO

Tony Ferlenda
Chief Executive Officer

[ X ]

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