Disable all preview features

Health : Medical Research (Grantmaking/Grants Payable)

Citizens United for Research in Epilepsy

Our commitment is unrelenting.

three stars

87.39

430 West Erie Street Suite 210
Chicago, IL 60654
tel: (312) 255-1801   Web Site
EIN: 36-4253176

Board Leadership
Ann Benschoter
Chair

CEO
Beth Lewin Dean
Chief Executive Officer

 
 
  Score
(out of 100) 		Rating
Overall Score & Rating 87.39 three stars
  Financial 82.43 three stars
  Accountability & Transparency 97.00 four stars
This rating was published 08/01/2019 and includes data from FY2017, the most recent 990 received at that time.
Why isn't this based on more recent data?

CURE's mission is to find a cure for epilepsy, by promoting and funding patient-focused research.

CURE's mission is to find a cure for epilepsy, by promoting and funding patient-focused research.

Impact Information

Looking for Impact Information?

Charity Navigator is collaborating with GuideStar, GlobalGiving, Classy, and ImpactMatters to display impact-related information for rated nonprofits. However, not all rated nonprofits have provided impact information yet. Each of these partners has supplied Charity Navigator with the impact information they receive directly from nonprofits. Submissions must be made on our partner's websites and we plan to update the display of this information regularly.

If you are interested in seeing this charity provide its impact information, please click below. Note, this is simply an indication of your interest.

data icon

Learn more about how we calculate the overall score and rating.

Financial

three stars

82.43

Accountability & Transparency

four stars

97.00

This rating was published 08/01/2019 and includes data from FY2017, the most recent 990 received at that time.
Why isn't this based on more recent data?
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)		 83.9%
  Administrative Expenses 7.0%
  Fundraising Expenses 8.9%
  Fundraising Efficiency $0.10
  Working Capital Ratio (years) 0.68
  Program Expenses Growth -2.8%
  Liabilities to Assets 39.5%
All data for Financial Performance Metrics calculations was provided by Citizens United for Research in Epilepsy on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Citizens United for Research in Epilepsy on recent 990s filed with the IRS.
Information Provided on the Form 990  
  Independent Voting Board Members
  No Material diversion of assets
  Audited financials prepared by independent accountant
  Does Not Provide Loan(s) to or Receive Loan(s) From related parties
  Documents Board Meeting Minutes
  Provided copy of Form 990 to organization's governing body in advance of filing
  Conflict of Interest Policy
  Whistleblower Policy
  Records Retention and Destruction Policy
  CEO listed with salary
  Process for determining CEO compensation
  Board Listed / Board Members Not Compensated
Is the following information easily accessible on the charity's website?  
  Donor Privacy Policy
  Board Members Listed
  Audited Financials
  Form 990
  Key staff listed

Highly Rated

Charity Name & State Overall Score Overall Rating
Citizens United for Research in Epilepsy (IL) 87.39 three stars
Steadman Philippon Research Institute (CO) 86.07 three stars
FRAXA Research Foundation (MA) 97.17 four stars
Foundation for Prader-Willi Research (CA) 91.78 four stars
Foundation Fighting Blindness (MD) 86.67 three stars

Compare These Charities (Highly Rated)

REVENUE  
Contributions  
   Contributions, Gifts & Grants $2,243,938
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $1,782,869
   Related Organizations $0
   Government Grants $76,711
Total Contributions $4,103,518
   Program Service Revenue $0
Total Primary Revenue $4,103,518
   Other Revenue $33,712
TOTAL REVENUE $4,137,230
   
EXPENSES  
   Program Expenses $3,415,250
   Administrative Expenses $480,405
   Fundraising Expenses $653,582
TOTAL FUNCTIONAL EXPENSES $4,549,237
   
Payments to Affiliates $0
Excess (or Deficit) for the year $-412,007
   
Net Assets $4,013,173

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Grant Distribution $3,212,219 94.1%
Scientific Conferences $203,031 5.9%

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2017-12 08/01/2019 87.39 three stars
2017-12 07/01/2019 87.25 three stars
2016-12 12/01/2018 96.46 four stars
2015-12 12/01/2017 94.69 four stars
2015-12 02/01/2017 93.98 four stars
2014-12 06/01/2016 96.66 four stars
 
CN 2.0
2014-12 12/01/2015 97.08 four stars
2013-12 05/01/2015 94.55 four stars
2012-12 12/20/2013 95.24 four stars
2011-12 07/01/2013 96.59 four stars
2011-12 09/01/2012 93.99 four stars
2010-12 10/01/2011 86.66 three stars
2009-12 09/20/2011 89.38 three stars
 
CN 1.0
2009-12 11/24/2010 99.24 four stars
2008-12 11/01/2009 93.40 four stars
2007-12 02/01/2009 99.56 four stars
2006-12 10/01/2008 97.14 four stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 36-4253176
Name in IRS Master File CITIZENS UNITED FOR RESEARCH IN EPILEPSY
NTEE Code H12
NTEE Classification Fund Raising and/or Fund Distribution
NTEE Type Medical Research
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date March, 1999
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)		 (Log In or Register Now to View Forms 990!)
  • December, 2016
  • December, 2015
  • December, 2014
  • December, 2013
  • December, 2012
Compensation % of Expenses Paid to Title
$145,063 3.18% Kathleen Carr Chief Executive Officer
Other Salaries of Note
$153,820 3.38% Robin Harding Former Chief Executive Officer

Highly Rated

Charity Name & State Overall Score Overall Rating
Citizens United for Research in Epilepsy (IL) 87.39 three stars
Project ALS (NY) 89.02 three stars
Ovarian Cancer Research Alliance (NY) 93.28 four stars
The Hastings Center (NY) 91.54 four stars
Hearing Health Foundation (NY) 98.23 four stars

Compare These Charities (Highly Rated)

This charity has an official representative registered with Charity Navigator.

Charity Contact Info

Citizens United for Research in Epilepsy
430 West Erie Street
Suite 210
Chicago, IL 60654
tel: (312) 255-1801
fax: (312) 255-1809
EIN: 36-4253176

Mail donations to:
P.O. Box 74008164
Chicago, IL 60674

Visit Web Site

Board Leadership

Ann Benschoter
Chair

CEO

Beth Lewin Dean
Chief Executive Officer

please wait...

    • I want to donate to Citizens United for Research in Epilepsy

      $
      next

    • Frequency

      back
      next

    • Would you like us to email someone and CC you?

      This email identifies you as the donor but does not specify the amount of your gift.
      back
    A donation of to has been added to your Giving Basket!

    Basket Total:
    Check Out Now or Continue Researching

Join Our Mailing List

Join over 400,000 other informed givers and get updates on charity ratings, new features, hot topics, and tips for donating.

As seen on