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Health : Medical Research (Grantmaking/Grants Payable)

Citizens United for Research in Epilepsy

Our commitment is unrelenting.

three stars

86.83

420 N. Wabash Avenue Suite 650
Chicago, IL 60611
tel: (312) 255-1801   Web Site
EIN: 36-4253176

Board Leadership
Stacey Pigott
Chair

CEO
Beth Lewin Dean
Chief Executive Officer

 
 
  Score
(out of 100) 		Rating
Overall Score & Rating 86.83 three stars
  Financial 81.62 three stars
  Accountability & Transparency 97.00 four stars
This rating was published 06/01/2020 and includes data from FY2018, the most recent 990 received at that time.
Why isn't this based on more recent data?

CURE's mission is to find a cure for epilepsy, by promoting and funding patient-focused research.

CURE's mission is to find a cure for epilepsy, by promoting and funding patient-focused research.

Impact Information

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Financial

three stars

81.62

Accountability & Transparency

four stars

97.00

This rating was published 06/01/2020 and includes data from FY2018, the most recent 990 received at that time.
Why isn't this based on more recent data?
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)		 81.1%
  Administrative Expenses 6.7%
  Fundraising Expenses 12.1%
  Fundraising Efficiency $0.12
  Working Capital Ratio (years) 0.76
  Program Expenses Growth -1.8%
  Liabilities to Assets 17.2%
All data for Financial Performance Metrics calculations was provided by Citizens United for Research in Epilepsy on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Citizens United for Research in Epilepsy on recent 990s filed with the IRS.
Information Provided on the Form 990  
  Independent Voting Board Members
  No Material diversion of assets
  Audited financials prepared by independent accountant
  Does Not Provide Loan(s) to or Receive Loan(s) From related parties
  Documents Board Meeting Minutes
  Provided copy of Form 990 to organization's governing body in advance of filing
  Conflict of Interest Policy
  Whistleblower Policy
  Records Retention and Destruction Policy
  CEO listed with salary
  Process for determining CEO compensation
  Board Listed / Board Members Not Compensated
Is the following information easily accessible on the charity's website?  
  Donor Privacy Policy
  Board Members Listed
  Audited Financials
  Form 990
  Key staff listed

Highly Rated

Charity Name & State Overall Score Overall Rating
Citizens United for Research in Epilepsy (IL) 86.83 three stars
24 Foundation (NC) 86.51 three stars
Focused Ultrasound Foundation (VA) 96.13 four stars
Be The Match Foundation (MN) 89.42 three stars
Masonic Medical Research Institute (NY) 85.61 three stars

Compare These Charities (Highly Rated)

REVENUE  
Contributions  
   Contributions, Gifts & Grants $3,107,971
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $1,882,841
   Related Organizations $0
   Government Grants $2,564,383
Total Contributions $7,555,195
   Program Service Revenue $0
Total Primary Revenue $7,555,195
   Other Revenue $-104,333
TOTAL REVENUE $7,450,862
   
EXPENSES  
   Program Expenses $4,934,776
   Administrative Expenses $207,893
   Fundraising Expenses $826,344
TOTAL FUNCTIONAL EXPENSES $5,969,013
   
Payments to Affiliates $0
Excess (or Deficit) for the year $1,481,849
   
Net Assets $5,290,994

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Grant Distribution $4,140,755 83.9%
Scientific Conferences $794,021 16.1%

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2018-12 06/01/2020 86.83 three stars
2017-12 08/01/2019 87.39 three stars
2017-12 07/01/2019 87.25 three stars
2016-12 12/01/2018 96.46 four stars
2015-12 12/01/2017 94.69 four stars
2015-12 02/01/2017 93.98 four stars
2014-12 06/01/2016 96.66 four stars
 
CN 2.0
2014-12 12/01/2015 97.08 four stars
2013-12 05/01/2015 94.55 four stars
2012-12 12/20/2013 95.24 four stars
2011-12 07/01/2013 96.59 four stars
2011-12 09/01/2012 93.99 four stars
2010-12 10/01/2011 86.66 three stars
2009-12 09/20/2011 89.38 three stars
 
CN 1.0
2009-12 11/24/2010 99.24 four stars
2008-12 11/01/2009 93.40 four stars
2007-12 02/01/2009 99.56 four stars
2006-12 10/01/2008 97.14 four stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 36-4253176
Name in IRS Master File CITIZENS UNITED FOR RESEARCH IN EPILEPSY
NTEE Code H12
NTEE Classification Fund Raising and/or Fund Distribution
NTEE Type Medical Research
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date March, 1999
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)		 (Log In or Register Now to View Forms 990!)
  • December, 2017
  • December, 2016
  • December, 2015
  • December, 2014
  • December, 2013
Compensation % of Expenses Paid to Title
$133,237 2.23% Kathleen Carr Chief Executive Officer
Other Salaries of Note
$310,523 5.20% Laura Lubbers Chief Scientific Officer

Highly Rated

Charity Name & State Overall Score Overall Rating
Citizens United for Research in Epilepsy (IL) 86.83 three stars
Pediatric Brain Tumor Foundation (NC) 89.05 three stars
Hearing Health Foundation (NY) 91.16 four stars
TB Alliance (NY) 97.23 four stars
Brain & Behavior Research Foundation (NY) 85.21 three stars

Compare These Charities (Highly Rated)

This charity has an official representative registered with Charity Navigator.

Charity Contact Info

Citizens United for Research in Epilepsy
420 N. Wabash Avenue
Suite 650
Chicago, IL 60611
tel: (312) 255-1801
EIN: 36-4253176

Mail donations to:
PO Box 10572
Chicago, IL 60610

Visit Web Site

Board Leadership

Stacey Pigott
Chair

CEO

Beth Lewin Dean
Chief Executive Officer

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