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Health : Medical Research (Grantmaking)

Citizens United for Research in Epilepsy

Our commitment is unrelenting.

four stars

94.69

430 West Erie Street Suite 210
Chicago, IL 60654
tel: (312) 255-1801   Web Site
EIN: 36-4253176

Board Leadership
Ann Benschoter
Chair

CEO
Laura Lubbers
Chief Scientific Officer

 
 
  Score
(out of 100) 		Rating
Overall Score & Rating 94.69 four stars
  Financial 92.50 four stars
  Accountability & Transparency 100.00 four stars
This rating was published 05/01/2018 and includes data from FY2016, the most recent 990 received at that time.
Why isn't this based on more recent data?

Our mission is to CURE epilepsy, transforming and saving millions of lives. We identify and fund cutting-edge research, challenging scientists worldwide to collaborate and innovate in pursuit of this goal. Our commitment is unrelenting.

Our mission is to CURE epilepsy, transforming and saving millions of lives. We identify and fund cutting-edge research, challenging scientists worldwide to collaborate and innovate in pursuit of this goal. Our commitment is unrelenting.

Learn more about how we calculate the overall score and rating.

Financial

four stars

92.50

Accountability & Transparency

four stars

100.00

This rating was published 05/01/2018 and includes data from FY2016, the most recent 990 received at that time.
Why isn't this based on more recent data?
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)		 88.1%
  Administrative Expenses 5.7%
  Fundraising Expenses 6.0%
  Fundraising Efficiency $0.07
  Working Capital Ratio (years) 0.62
  Program Expenses Growth 10.2%
  Liabilities to Assets 49.1%
All data for Financial Performance Metrics calculations was provided by Citizens United for Research in Epilepsy on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Citizens United for Research in Epilepsy on recent 990s filed with the IRS.
Information Provided on the Form 990  
  Independent Voting Board Members
  No Material diversion of assets
  Audited financials prepared by independent accountant
  Does Not Provide Loan(s) to or Receive Loan(s) From related parties
  Documents Board Meeting Minutes
  Provided copy of Form 990 to organization's governing body in advance of filing
  Conflict of Interest Policy
  Whistleblower Policy
  Records Retention and Destruction Policy
  CEO listed with salary
  Process for determining CEO compensation
  Board Listed / Board Members Not Compensated
Is the following information easily accessible on the charity's website?  
  Donor Privacy Policy
  Board Members Listed
  Audited Financials
  Form 990
  Key staff listed

Highly Rated

Charity Name & State Overall Score Overall Rating
Citizens United for Research in Epilepsy (IL) 94.69 four stars
TB Alliance (NY) 95.64 four stars
Cure Alzheimer's Fund (MA) 98.23 four stars
Foundation for Orthopaedic Research and Education (FL) 87.90 three stars
Autism Research Institute (CA) 92.92 four stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $2,578,523
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $1,752,812
   Related Organizations $0
   Government Grants $229,614
Total Contributions $4,560,949
   Program Service Revenue $0
Total Primary Revenue $4,560,949
   Other Revenue $-128,366
TOTAL REVENUE $4,432,583
   
EXPENSES  
   Program Expenses $5,112,647
   Administrative Expenses $427,936
   Fundraising Expenses $529,839
TOTAL FUNCTIONAL EXPENSES $6,070,422
   
Payments to Affiliates $0
Excess (or Deficit) for the year $-1,637,839
   
Net Assets $4,122,170

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Grant Distribution $4,970,459 97.2%
Scientific Conferences $142,188 2.8%

Ratings History
Citizens United for Research in Epilepsy has received 6 consecutive 4-star ratings from Charity Navigator.

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2016-12 05/01/2018 94.69 four stars
2015-12 12/01/2017 94.69 four stars
2015-12 02/01/2017 93.98 four stars
2014-12 06/01/2016 96.66 four stars
 
CN 2.0
2014-12 12/01/2015 97.08 four stars
2013-12 05/01/2015 94.55 four stars
2012-12 12/20/2013 95.24 four stars
2011-12 07/01/2013 96.59 four stars
2011-12 09/01/2012 93.99 four stars
2010-12 10/01/2011 86.66 three stars
2009-12 09/20/2011 89.38 three stars
 
CN 1.0
2009-12 11/24/2010 99.24 four stars
2008-12 11/01/2009 93.40 four stars
2007-12 02/01/2009 99.56 four stars
2006-12 10/01/2008 97.14 four stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 36-4253176
Name in IRS Master File CITIZENS UNITED FOR RESEARCH IN EPILEPSY
NTEE Code H12
NTEE Classification Fund Raising and/or Fund Distribution
NTEE Type Medical Research
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date March, 1999
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)		 (Log In or Register Now to View Forms 990!)
  • December, 2016
  • December, 2015
  • December, 2014
  • December, 2013
  • December, 2012

The data displayed in this profile is provided by the IRS for free in the form of Publication 78 and the Business Master File (BMF).

Compensation % of Expenses Paid to Title
$262,114 4.31% Robin Harding Chief Executive Officer

Highly Rated

Charity Name & State Overall Score Overall Rating
Citizens United for Research in Epilepsy (IL) 94.69 four stars
The Hope Foundation (MI) 94.69 four stars
myFace (NY) 93.69 four stars
NEXT for AUTISM (NY) 85.42 three stars
Diabetes Action Research and Education Foundation (MD) 89.44 three stars

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This charity has an official representative registered with Charity Navigator.

Charity Contact Info

Citizens United for Research in Epilepsy
430 West Erie Street
Suite 210
Chicago, IL 60654
tel: (312) 255-1801
fax: (312) 255-1809
EIN: 36-4253176

Visit Web Site

Board Leadership

Ann Benschoter
Chair

CEO

Laura Lubbers
Chief Scientific Officer

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