Disable all preview features

Health : Diseases, Disorders, and Disciplines

Hydrocephalus Association

To find a cure for hydrocephalus and improve the lives of those affected by the condition.

three stars

88.38

4340 East West Highway Suite 905
Bethesda, MD 20814
tel: (888) 598-3789   Web Site
EIN: 94-3000301

Board Leadership
Brett Weitz
Chair

CEO
Diana Gray
President and Chief Executive Officer

  Score
(out of 100)
Rating
Overall Score & Rating 88.38 three stars
  Financial 83.58 three stars
  Accountability & Transparency 100.00 four stars
This rating was published 12/20/2019 and includes data from FY2018, the most recent 990 received at that time.

The Hydrocephalus Association's mission is to find a cure for hydrocephalus and improve the lives of those impacted by the condition. The Hydrocephalus Association (HA) will accomplish this by collaborating with patients, caregivers, researchers and industry, increasing awareness and funding innovative, high-impact research to prevent, treat and, ultimately, cure hydrocephalus.

Hydrocephalus is an abnormal accumulation of fluid - cerebrospinal fluid, or CSF - within cavities called ventricles inside the brain. Hydrocephalus occurs when there is an imbalance between the amount of CSF that is produced and the rate at which it is absorbed. As the CSF builds up, it causes the ventricles to enlarge and the pressure inside the head to increase. We advocate for increased research and funding to advance understanding, improve diagnosis and treatment, and find a cure.

The Hydrocephalus Association's mission is to find a cure for hydrocephalus and improve the lives of those impacted by the condition. The Hydrocephalus Association (HA) will accomplish this by collaborating with patients, caregivers, researchers and industry, increasing awareness and funding innovative, high-impact research to prevent, treat and, ultimately, cure hydrocephalus.

Hydrocephalus is an abnormal accumulation of fluid - cerebrospinal fluid, or CSF - within cavities called ventricles inside the brain. Hydrocephalus occurs when there is an imbalance between the amount of CSF that is produced and the rate at which it is absorbed. As the CSF builds up, it causes the ventricles to enlarge and the pressure inside the head to increase. We advocate for increased research and funding to advance understanding, improve diagnosis and treatment, and find a cure.

Impact Information

GuideStar is Charity Navigator's trusted partner in sharing information on how this organization seeks impact.  GuideStar has recognized this organization with a Platinum Seal of Transparency for voluntarily and publicly sharing information about how they measure their progress and results.  Learn More about Impact Information.
Reported Results
Showing 3 of 4
Total in 2019
The number of newly diagnosed patients and families (and patients/families experiencing new challenges) receiving support and education.
22,000
Compiling a hydrocephalus "registry" for the US to confirm the number of Americans living with hydrocephalus.
650
Increase the amount of research funding by the Hydrocephalus Association.
1,709,250
HA funded researchers leveraging the organization's initial investment in research to secure federally funded research grants for hydrocephalus.
32,000,000
This impact information is current as of March 2020, when it was provided to us by GuideStar. At this time, Impact information published on this organization's page has no effect on its rating per our methodology.

Financial

three stars

83.58

Accountability & Transparency

four stars

100.00

This rating was published 12/20/2019 and includes data from FY2018, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
71.3%
  Administrative Expenses 15.0%
  Fundraising Expenses 13.5%
  Fundraising Efficiency $0.13
  Working Capital Ratio (years) 0.51
  Program Expenses Growth 18.7%
  Liabilities to Assets 20.3%
All data for Financial Performance Metrics calculations was provided by Hydrocephalus Association on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Hydrocephalus Association on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
Hydrocephalus Association (MD) 88.38 three stars
Huntington's Disease Society of America (NY) 90.00 four stars
Immune Deficiency Foundation (MD) 93.68 four stars
California Dental Association Foundation (CA) 87.21 three stars
The Marfan Foundation (NY) 93.43 four stars

Compare These Charities (Highly Rated)

REVENUE  
Contributions  
   Contributions, Gifts & Grants $2,334,111
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $2,369,001
   Related Organizations $0
   Government Grants $11,283
Total Contributions $4,714,395
   Program Service Revenue $82,052
Total Primary Revenue $4,796,447
   Other Revenue $-226,998
TOTAL REVENUE $4,569,449
   
EXPENSES  
   Program Expenses $3,501,199
   Administrative Expenses $722,010
   Fundraising Expenses $678,773
TOTAL FUNCTIONAL EXPENSES $4,901,982
   
Payments to Affiliates $0
Excess (or Deficit) for the year $-332,533
   
Net Assets $2,415,922

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Research $1,752,798 50.1%
Support and Education $1,074,665 30.7%
National Conference $624,568 17.8%

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2018-12 12/20/2019 88.38 three stars
2017-12 03/01/2019 86.21 three stars
2016-12 08/01/2018 89.26 three stars
2016-12 02/01/2018 88.17 three stars
2015-12 09/01/2017 87.55 three stars
2014-12 06/01/2016 85.42 three stars
 
CN 2.0
2013-12 12/22/2015 82.77 three stars
2013-12 08/01/2015 77.14 two stars
2012-12 08/01/2014 70.97 two stars
2011-12 08/01/2013 87.62 three stars
2010-12 05/01/2012 85.94 three stars
2009-12 09/20/2011 87.75 three stars
 
CN 1.0
2009-12 04/01/2011 84.15 three stars
2008-12 03/01/2010 81.38 three stars
2007-12 03/01/2009 83.90 three stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 94-3000301
Name in IRS Master File HYDROCEPHALUS ASSN
NTEE Code G48
NTEE Classification Brain Disorders
NTEE Type Diseases, Disorders, Medical Disciplines
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (160) Aid to the handicapped (see also 031)
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date May, 1991
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2017
  • December, 2016
  • December, 2015
  • December, 2014
  • December, 2013
Compensation % of Expenses Paid to Title
$200,769 4.09% Diana Gray President, CEO

Highly Rated

Charity Name & State Overall Score Overall Rating
Hydrocephalus Association (MD) 88.38 three stars
Hemophilia Federation of America (DC) 94.69 four stars
Children and Adults with Attention-Deficit/Hyperactivity Disorder (MD) 88.78 three stars
Southwest Autism Research & Resource Center (AZ) 92.20 four stars
Tourette Association of America (NY) 87.13 three stars

Compare These Charities (Highly Rated)

This charity has an official representative registered with Charity Navigator.

Charity Contact Info

Hydrocephalus Association
4340 East West Highway
Suite 905
Bethesda, MD 20814
tel: (888) 598-3789
fax: (301) 202-3813
EIN: 94-3000301

Visit Web Site

Board Leadership

Brett Weitz
Chair

CEO

Diana Gray
President and Chief Executive Officer

Join Our Mailing List

Join over 400,000 other informed givers and get updates on charity ratings, new features, hot topics, and tips for donating.