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Health : Diseases, Disorders, and Disciplines

Hydrocephalus Association

Promoting a cure for hydrocephalus and improving the lives of those affected by the condition.

three stars

87.55

4340 East West Highway Suite 905
Bethesda, MD 20814
tel: (888) 598-3789   Web Site
EIN: 94-3000301

Board Leadership
Aseem Chandra
Chair

CEO
Diana Gray
Chief Executive Officer

  Score
(out of 100)
Rating
Overall Score & Rating 87.55 three stars
  Financial 83.85 three stars
  Accountability & Transparency 93.00 four stars
This rating was published 09/01/2017 and includes data from FY2015, the most recent 990 received at that time.

The Hydrocephalus Association's mission is promote a cure for hydrocephalus and improve the lives of those affected by the condition. The Hydrocephalus Association (HA) will accomplish this by collaborating with patients, caregivers, researchers and industry, increasing awareness and funding innovative, high-impact research to prevent, treat and, ultimately, cure hydrocephalus.

Hydrocephalus is an abnormal accumulation of fluid - cerebrospinal fluid, or CSF - within cavities called ventricles inside the brain. Hydrocephalus occurs when there is an imbalance between the amount of CSF that is produced and the rate at which it is absorbed. As the CSF builds up, it causes the ventricles to enlarge and the pressure inside the head to increase. We advocate for increased research and funding to advance understanding, improve diagnosis and treatment, and find a cure.

The Hydrocephalus Association's mission is promote a cure for hydrocephalus and improve the lives of those affected by the condition. The Hydrocephalus Association (HA) will accomplish this by collaborating with patients, caregivers, researchers and industry, increasing awareness and funding innovative, high-impact research to prevent, treat and, ultimately, cure hydrocephalus.

Hydrocephalus is an abnormal accumulation of fluid - cerebrospinal fluid, or CSF - within cavities called ventricles inside the brain. Hydrocephalus occurs when there is an imbalance between the amount of CSF that is produced and the rate at which it is absorbed. As the CSF builds up, it causes the ventricles to enlarge and the pressure inside the head to increase. We advocate for increased research and funding to advance understanding, improve diagnosis and treatment, and find a cure.

Financial

three stars

83.85

Accountability & Transparency

four stars

93.00

This rating was published 09/01/2017 and includes data from FY2015, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
63.5%
  Administrative Expenses 14.6%
  Fundraising Expenses 21.8%
  Fundraising Efficiency $0.17
  Working Capital Ratio (years) 1.01
  Program Expenses Growth 28.2%
  Liabilities to Assets 2.3%
All data for Financial Performance Metrics calculations was provided by Hydrocephalus Association on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Hydrocephalus Association on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
Hydrocephalus Association (MD) 87.55 three stars
Crohn's & Colitis Foundation of America (NY) 87.84 three stars
Jeffrey Modell Foundation (NY) 98.23 four stars
National Foundation for Infectious Diseases (MD) 90.58 four stars
Doug Flutie Jr. Foundation For Autism (MA) 86.09 three stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $2,001,315
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $1,527,910
   Related Organizations $0
   Government Grants $11,283
Total Contributions $3,540,508
   Program Service Revenue $0
Total Primary Revenue $3,540,508
   Other Revenue $-183,131
TOTAL REVENUE $3,357,377
   
EXPENSES  
   Program Expenses $2,093,851
   Administrative Expenses $533,175
   Fundraising Expenses $652,021
TOTAL FUNCTIONAL EXPENSES $3,279,047
   
Payments to Affiliates $0
Excess (or Deficit) for the year $78,330
   
Net Assets $2,948,165

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Research $1,213,538 58.0%
Support and Education $726,655 34.7%
Advocacy $100,466 4.8%

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2015-12 09/01/2017 87.55 three stars
2014-12 06/01/2016 85.42 three stars
 
CN 2.0
2013-12 12/22/2015 82.77 three stars
2013-12 08/01/2015 77.14 two stars
2012-12 08/01/2014 70.97 two stars
2011-12 08/01/2013 87.62 three stars
2010-12 05/01/2012 85.94 three stars
2009-12 09/20/2011 87.75 three stars
 
CN 1.0
2009-12 04/01/2011 84.15 three stars
2008-12 03/01/2010 81.38 three stars
2007-12 03/01/2009 83.90 three stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 94-3000301
Name in IRS Master File HYDROCEPHALUS ASSN
NTEE Code G48
NTEE Classification Brain Disorders
NTEE Type Diseases, Disorders, Medical Disciplines
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (160) Aid to the handicapped (see also 031)
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date May, 1991
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2015
  • December, 2014
  • December, 2013
  • December, 2012
  • December, 2011

The data displayed in this profile is provided by the IRS for free in the form of Publication 78 and the Business Master File (BMF).

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Compensation % of Expenses Paid to Title
$25,833 0.78% Diana Gray CEO
Other Salaries of Note
$157,569 4.80% Dawn Mancuso Former CEO

Highly Rated

Charity Name & State Overall Score Overall Rating
Hydrocephalus Association (MD) 87.55 three stars
American Autoimmune Related Diseases Association (MI) 98.23 four stars
American Thyroid Association (VA) 96.66 four stars
National Hemophilia Foundation (NY) 93.60 four stars
Cystic Fibrosis Research, Inc. (CA) 94.05 four stars

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This charity has an official representative registered with Charity Navigator.

Charity Contact Info

Hydrocephalus Association
4340 East West Highway
Suite 905
Bethesda, MD 20814
tel: (888) 598-3789
fax: (301) 202-3813
EIN: 94-3000301

Visit Web Site

Board Leadership

Aseem Chandra
Chair

CEO

Diana Gray
Chief Executive Officer

[ X ]

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