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Health : Diseases, Disorders, and Disciplines

Hydrocephalus Association

Promoting a cure for hydrocephalus and improving the lives of those affected by the condition.

three stars

88.17

4340 East West Highway Suite 905
Bethesda, MD 20814
tel: (888) 598-3789   Web Site
EIN: 94-3000301

Board Leadership
Aseem Chandra
Chair

CEO
Diana Gray
Chief Executive Officer

 
 
  Score
(out of 100)
Rating
Overall Score & Rating 88.17 three stars
  Financial 84.82 three stars
  Accountability & Transparency 93.00 four stars
This rating was published 02/01/2018 and includes data from FY2016, the most recent 990 received at that time.

The Hydrocephalus Association's mission is promote a cure for hydrocephalus and improve the lives of those affected by the condition. The Hydrocephalus Association (HA) will accomplish this by collaborating with patients, caregivers, researchers and industry, increasing awareness and funding innovative, high-impact research to prevent, treat and, ultimately, cure hydrocephalus.

Hydrocephalus is an abnormal accumulation of fluid - cerebrospinal fluid, or CSF - within cavities called ventricles inside the brain. Hydrocephalus occurs when there is an imbalance between the amount of CSF that is produced and the rate at which it is absorbed. As the CSF builds up, it causes the ventricles to enlarge and the pressure inside the head to increase. We advocate for increased research and funding to advance understanding, improve diagnosis and treatment, and find a cure.

The Hydrocephalus Association's mission is promote a cure for hydrocephalus and improve the lives of those affected by the condition. The Hydrocephalus Association (HA) will accomplish this by collaborating with patients, caregivers, researchers and industry, increasing awareness and funding innovative, high-impact research to prevent, treat and, ultimately, cure hydrocephalus.

Hydrocephalus is an abnormal accumulation of fluid - cerebrospinal fluid, or CSF - within cavities called ventricles inside the brain. Hydrocephalus occurs when there is an imbalance between the amount of CSF that is produced and the rate at which it is absorbed. As the CSF builds up, it causes the ventricles to enlarge and the pressure inside the head to increase. We advocate for increased research and funding to advance understanding, improve diagnosis and treatment, and find a cure.

Results Information

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This results data is current as of November 2017, when it was provided to us by GuideStar. Results information published on this organization's rating page has no effect on its rating at this time. data iconLearn More

Financial

three stars

84.82

Accountability & Transparency

four stars

93.00

This rating was published 02/01/2018 and includes data from FY2016, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
66.9%
  Administrative Expenses 14.9%
  Fundraising Expenses 18.1%
  Fundraising Efficiency $0.15
  Working Capital Ratio (years) 1.06
  Program Expenses Growth 24.1%
  Liabilities to Assets 10.7%
All data for Financial Performance Metrics calculations was provided by Hydrocephalus Association on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Hydrocephalus Association on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
Hydrocephalus Association (MD) 88.17 three stars
Crohn's & Colitis Foundation of America (NY) 87.84 three stars
Movember Foundation (CA) 85.05 three stars
Glaucoma Research Foundation (CA) 91.98 four stars
Asthma and Allergy Foundation of America (MD) 88.21 three stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $2,897,648
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $1,697,359
   Related Organizations $0
   Government Grants $0
Total Contributions $4,595,007
   Program Service Revenue $53,443
Total Primary Revenue $4,648,450
   Other Revenue $47,177
TOTAL REVENUE $4,695,627
   
EXPENSES  
   Program Expenses $2,805,884
   Administrative Expenses $611,779
   Fundraising Expenses $562,998
TOTAL FUNCTIONAL EXPENSES $3,980,661
   
Payments to Affiliates $0
Excess (or Deficit) for the year $714,966
   
Net Assets $3,645,570

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Research $1,234,512 44.0%
Support and Education $983,615 35.1%
National Conference $466,305 16.6%

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2016-12 02/01/2018 88.17 three stars
2015-12 09/01/2017 87.55 three stars
2014-12 06/01/2016 85.42 three stars
 
CN 2.0
2013-12 12/22/2015 82.77 three stars
2013-12 08/01/2015 77.14 two stars
2012-12 08/01/2014 70.97 two stars
2011-12 08/01/2013 87.62 three stars
2010-12 05/01/2012 85.94 three stars
2009-12 09/20/2011 87.75 three stars
 
CN 1.0
2009-12 04/01/2011 84.15 three stars
2008-12 03/01/2010 81.38 three stars
2007-12 03/01/2009 83.90 three stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 94-3000301
Name in IRS Master File HYDROCEPHALUS ASSN
NTEE Code G48
NTEE Classification Brain Disorders
NTEE Type Diseases, Disorders, Medical Disciplines
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (160) Aid to the handicapped (see also 031)
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date May, 1991
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2016
  • December, 2015
  • December, 2014
  • December, 2013
  • December, 2012

The data displayed in this profile is provided by the IRS for free in the form of Publication 78 and the Business Master File (BMF).

Compensation % of Expenses Paid to Title
$200,000 5.02% Diana Gray CEO

Highly Rated

Charity Name & State Overall Score Overall Rating
Hydrocephalus Association (MD) 88.17 three stars
Doug Flutie Jr. Foundation For Autism (MA) 86.09 three stars
Massachusetts Down Syndrome Congress (MA) 89.91 three stars
National MPS Society (NC) 96.85 four stars
The Association for Frontotemporal Degeneration (PA) 94.52 four stars

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This charity has an official representative registered with Charity Navigator.

Charity Contact Info

Hydrocephalus Association
4340 East West Highway
Suite 905
Bethesda, MD 20814
tel: (888) 598-3789
fax: (301) 202-3813
EIN: 94-3000301

Visit Web Site

Board Leadership

Aseem Chandra
Chair

CEO

Diana Gray
Chief Executive Officer

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