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Health : Diseases, Disorders, and Disciplines

Hydrocephalus Association

To find a cure for hydrocephalus and improve the lives of those affected by the condition.

impact data icon

Impact Information is available from our partner, GuideStar

three stars

86.21

4340 East West Highway Suite 905
Bethesda, MD 20814
tel: (888) 598-3789   Web Site
EIN: 94-3000301

Board Leadership
Brett Weitz
Chair

CEO
Diana Gray
President and Chief Executive Officer

  Score
(out of 100)
Rating
Overall Score & Rating 86.21 three stars
  Financial 80.51 three stars
  Accountability & Transparency 100.00 four stars
This rating was published 03/01/2019 and includes data from FY2017, the most recent 990 received at that time.

The Hydrocephalus Association's mission is to find a cure for hydrocephalus and improve the lives of those impacted by the condition. The Hydrocephalus Association (HA) will accomplish this by collaborating with patients, caregivers, researchers and industry, increasing awareness and funding innovative, high-impact research to prevent, treat and, ultimately, cure hydrocephalus.

Hydrocephalus is an abnormal accumulation of fluid - cerebrospinal fluid, or CSF - within cavities called ventricles inside the brain. Hydrocephalus occurs when there is an imbalance between the amount of CSF that is produced and the rate at which it is absorbed. As the CSF builds up, it causes the ventricles to enlarge and the pressure inside the head to increase. We advocate for increased research and funding to advance understanding, improve diagnosis and treatment, and find a cure.

The Hydrocephalus Association's mission is to find a cure for hydrocephalus and improve the lives of those impacted by the condition. The Hydrocephalus Association (HA) will accomplish this by collaborating with patients, caregivers, researchers and industry, increasing awareness and funding innovative, high-impact research to prevent, treat and, ultimately, cure hydrocephalus.

Hydrocephalus is an abnormal accumulation of fluid - cerebrospinal fluid, or CSF - within cavities called ventricles inside the brain. Hydrocephalus occurs when there is an imbalance between the amount of CSF that is produced and the rate at which it is absorbed. As the CSF builds up, it causes the ventricles to enlarge and the pressure inside the head to increase. We advocate for increased research and funding to advance understanding, improve diagnosis and treatment, and find a cure.

Impact Information

GuideStar is Charity Navigator's trusted partner in sharing information on how this organization seeks impact.  GuideStar has recognized this organization with a Platinum Seal of Transparency for voluntarily and publicly sharing information about how they measure their progress and results.  Learn More about Impact Information.
Reported Results
Total in 2018
Compiling a hydrocephalus "registry" for the US to confirm the number of Americans living with hydrocephalus.
315
This impact information is current as of July 2019, when it was provided to us by GuideStar. At this time, Impact information published on this organization's page has no effect on its rating per our methodology.

Financial

three stars

80.51

Accountability & Transparency

four stars

100.00

This rating was published 03/01/2019 and includes data from FY2017, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
69.3%
  Administrative Expenses 15.5%
  Fundraising Expenses 15.1%
  Fundraising Efficiency $0.14
  Working Capital Ratio (years) 0.66
  Program Expenses Growth 23.4%
  Liabilities to Assets 13.3%
All data for Financial Performance Metrics calculations was provided by Hydrocephalus Association on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Hydrocephalus Association on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
Hydrocephalus Association (MD) 86.21 three stars
American Autoimmune Related Diseases Association (MI) 98.23 four stars
The Marfan Foundation (NY) 91.83 four stars
The Glaucoma Foundation (NY) 87.48 three stars
Tuberous Sclerosis Alliance (MD) 92.95 four stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $2,182,790
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $1,936,482
   Related Organizations $0
   Government Grants $0
Total Contributions $4,119,272
   Program Service Revenue $0
Total Primary Revenue $4,119,272
   Other Revenue $-255,177
TOTAL REVENUE $3,864,095
   
EXPENSES  
   Program Expenses $3,428,884
   Administrative Expenses $721,766
   Fundraising Expenses $605,716
TOTAL FUNCTIONAL EXPENSES $4,756,366
   
Payments to Affiliates $0
Excess (or Deficit) for the year $-892,271
   
Net Assets $2,753,608

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Research $1,802,925 52.6%
Support and Education $1,404,456 40.9%
Advocacy $115,677 3.4%

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2017-12 03/01/2019 86.21 three stars
2016-12 08/01/2018 89.26 three stars
2016-12 02/01/2018 88.17 three stars
2015-12 09/01/2017 87.55 three stars
2014-12 06/01/2016 85.42 three stars
 
CN 2.0
2013-12 12/22/2015 82.77 three stars
2013-12 08/01/2015 77.14 two stars
2012-12 08/01/2014 70.97 two stars
2011-12 08/01/2013 87.62 three stars
2010-12 05/01/2012 85.94 three stars
2009-12 09/20/2011 87.75 three stars
 
CN 1.0
2009-12 04/01/2011 84.15 three stars
2008-12 03/01/2010 81.38 three stars
2007-12 03/01/2009 83.90 three stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 94-3000301
Name in IRS Master File HYDROCEPHALUS ASSN
NTEE Code G48
NTEE Classification Brain Disorders
NTEE Type Diseases, Disorders, Medical Disciplines
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (160) Aid to the handicapped (see also 031)
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date May, 1991
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2017
  • December, 2016
  • December, 2015
  • December, 2014
  • December, 2013
Compensation % of Expenses Paid to Title
$221,642 4.65% Diana Gray President, CEO

Highly Rated

Charity Name & State Overall Score Overall Rating
Hydrocephalus Association (MD) 86.21 three stars
Immune Deficiency Foundation (MD) 97.17 four stars
Tuberous Sclerosis Alliance (MD) 92.95 four stars
American Thyroid Association (VA) 91.42 four stars
National Sleep Foundation (VA) 89.94 three stars

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This charity has an official representative registered with Charity Navigator.

Charity Contact Info

Hydrocephalus Association
4340 East West Highway
Suite 905
Bethesda, MD 20814
tel: (888) 598-3789
fax: (301) 202-3813
EIN: 94-3000301

Visit Web Site

Board Leadership

Brett Weitz
Chair

CEO

Diana Gray
President and Chief Executive Officer

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