Health : Diseases, Disorders, and Disciplines

Hydrocephalus Association

To find a cure for hydrocephalus and improve the lives of those affected by the condition.

three stars

88.38

4340 East West Highway Suite 905
Bethesda, MD 20814
tel: (888) 598-3789   Web Site
EIN: 94-3000301

Board Leadership
Brett Weitz
Chair

CEO
Diana Gray
President and Chief Executive Officer

  Score
(out of 100)
Rating
Overall Score & Rating 88.38 three stars
  Financial 83.58 three stars
  Accountability & Transparency 100.00 four stars
This rating was published 12/20/2019 and includes data from FY2018, the most recent 990 received at that time.

The Hydrocephalus Association's mission is to find a cure for hydrocephalus and improve the lives of those impacted by the condition. The Hydrocephalus Association (HA) will accomplish this by collaborating with patients, caregivers, researchers and industry, increasing awareness and funding innovative, high-impact research to prevent, treat and, ultimately, cure hydrocephalus.

Hydrocephalus is an abnormal accumulation of fluid - cerebrospinal fluid, or CSF - within cavities called ventricles inside the brain. Hydrocephalus occurs when there is an imbalance between the amount of CSF that is produced and the rate at which it is absorbed. As the CSF builds up, it causes the ventricles to enlarge and the pressure inside the head to increase. We advocate for increased research and funding to advance understanding, improve diagnosis and treatment, and find a cure.

The Hydrocephalus Association's mission is to find a cure for hydrocephalus and improve the lives of those impacted by the condition. The Hydrocephalus Association (HA) will accomplish this by collaborating with patients, caregivers, researchers and industry, increasing awareness and funding innovative, high-impact research to prevent, treat and, ultimately, cure hydrocephalus.

Hydrocephalus is an abnormal accumulation of fluid - cerebrospinal fluid, or CSF - within cavities called ventricles inside the brain. Hydrocephalus occurs when there is an imbalance between the amount of CSF that is produced and the rate at which it is absorbed. As the CSF builds up, it causes the ventricles to enlarge and the pressure inside the head to increase. We advocate for increased research and funding to advance understanding, improve diagnosis and treatment, and find a cure.

Impact Information

GuideStar is Charity Navigator's trusted partner in sharing information on how this organization seeks impact.  GuideStar has recognized this organization with a Platinum Seal of Transparency for voluntarily and publicly sharing information about how they measure their progress and results.  Learn More about Impact Information.
Reported Results
Showing 3 of 4
Total in 2019
The number of newly diagnosed patients and families (and patients/families experiencing new challenges) receiving support and education.
22,000
Compiling a hydrocephalus "registry" for the US to confirm the number of Americans living with hydrocephalus.
650
Increase the amount of research funding by the Hydrocephalus Association.
1,709,250
HA funded researchers leveraging the organization's initial investment in research to secure federally funded research grants for hydrocephalus.
32,000,000
This impact information is current as of March 2020, when it was provided to us by GuideStar. At this time, Impact information published on this organization's page has no effect on its rating per our methodology.

Financial

three stars

83.58

Accountability & Transparency

four stars

100.00

This rating was published 12/20/2019 and includes data from FY2018, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
71.3%
  Administrative Expenses 15.0%
  Fundraising Expenses 13.5%
  Fundraising Efficiency $0.13
  Working Capital Ratio (years) 0.51
  Program Expenses Growth 18.7%
  Liabilities to Assets 20.3%
All data for Financial Performance Metrics calculations was provided by Hydrocephalus Association on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Hydrocephalus Association on recent 990s filed with the IRS.
REVENUE  
Contributions  
   Contributions, Gifts & Grants $2,334,111
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $2,369,001
   Related Organizations $0
   Government Grants $11,283
Total Contributions $4,714,395
   Program Service Revenue $82,052
Total Primary Revenue $4,796,447
   Other Revenue $-226,998
TOTAL REVENUE $4,569,449
   
EXPENSES  
   Program Expenses $3,501,199
   Administrative Expenses $722,010
   Fundraising Expenses $678,773
TOTAL FUNCTIONAL EXPENSES $4,901,982
   
Payments to Affiliates $0
Excess (or Deficit) for the year $-332,533
   
Net Assets $2,415,922

Charts

Compensation % of Expenses Paid to Title
$200,769 4.09% Diana Gray President, CEO

Mission

The Hydrocephalus Association's mission is to find a cure for hydrocephalus and improve the lives of those impacted by the condition. The Hydrocephalus Association (HA) will accomplish this by collaborating with patients, caregivers, researchers and industry, increasing awareness and funding innovative, high-impact research to prevent, treat and, ultimately, cure hydrocephalus.

Hydrocephalus is an abnormal accumulation of fluid - cerebrospinal fluid, or CSF - within cavities called ventricles inside the brain. Hydrocephalus occurs when there is an imbalance between the amount of CSF that is produced and the rate at which it is absorbed. As the CSF builds up, it causes the ventricles to enlarge and the pressure inside the head to increase. We advocate for increased research and funding to advance understanding, improve diagnosis and treatment, and find a cure.

Highly Rated

Charity Name & State Overall Score Overall Rating
Hydrocephalus Association (MD) 88.38 three stars
The Myositis Association (VA) 97.05 four stars
Cystic Fibrosis Research, Inc. (CA) 96.58 four stars
Epilepsy Foundation (MD) 90.77 four stars
NEXT for AUTISM (NY) 96.38 four stars

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Charity Contact Info

Hydrocephalus Association
4340 East West Highway
Suite 905
Bethesda, MD 20814
tel: (888) 598-3789
fax: (301) 202-3813
EIN: 94-3000301

Visit Web Site

Board Leadership

Brett Weitz
Chair

CEO

Diana Gray
President and Chief Executive Officer