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Health : Diseases, Disorders, and Disciplines

ALS Therapy Development Institute

Dedicated to curing ALS.

four stars

92.10

480 Arsenal Street Suite 201
Watertown, MA 02472
tel: (617) 441-7200   Web Site
EIN: 04-3462719

Board Leadership
Augie Nieto
Chairman

CEO
Fernando Vieira
Chief Executive Officer

  Score
(out of 100)
Rating
Overall Score & Rating 92.10 four stars
  Financial 89.57 three stars
  Accountability & Transparency 96.00 four stars
This rating was published 05/01/2021 and includes data from FY2019, the most recent 990 received at that time.

Our mission is to discover and develop effective treatments for ALS.

We are the most comprehensive drug discovery lab focused solely on ALS research. Our cutting-edge approach to ALS research incorporates every aspect of drug discovery and development, under one roof, to find potential treatments as quickly as possible.

The ALS Therapy Development Institute (ALS TDI) and its researchers quickly discover and validate potential treatments for ALS. It is the world's first and largest nonprofit biotech focused 100 percent on ALS research. Led by drug development experts and people with ALS, ALS TDI understands the urgent need to slow and stop this disease.

Our mission is to discover and develop effective treatments for ALS.

We are the most comprehensive drug discovery lab focused solely on ALS research. Our cutting-edge approach to ALS research incorporates every aspect of drug discovery and development, under one roof, to find potential treatments as quickly as possible.

The ALS Therapy Development Institute (ALS TDI) and its researchers quickly discover and validate potential treatments for ALS. It is the world's first and largest nonprofit biotech focused 100 percent on ALS research. Led by drug development experts and people with ALS, ALS TDI understands the urgent need to slow and stop this disease.

Financial

three stars

89.57

Accountability & Transparency

four stars

96.00

This rating was published 05/01/2021 and includes data from FY2019, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
86.1%
  Administrative Expenses 6.5%
  Fundraising Expenses 7.2%
  Fundraising Efficiency $0.06
  Working Capital Ratio (years) 1.24
  Program Expenses Growth 1.1%
  Liabilities to Assets 13.6%
All data for Financial Performance Metrics calculations was provided by ALS Therapy Development Institute on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by ALS Therapy Development Institute on recent 990s filed with the IRS.

Constituent Feedback

Charity Navigator believes nonprofit organizations that engage in inclusive practices, such as collecting feedback from the people/communities they serve, may be more effective. We've partnered with GuideStar by Candid to survey organizations about their feedback practices. Nonprofit organizations are encouraged to fill out the How We Listen section of their Candid profile.

Here's how this organization is listening and learning from the people they serve:
How is the organization collecting feedback?
Electronic surveys (by email, tablet, etc), Focus groups or interviews (by phone or in person)
How is the organization using feedback?
To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To inform the development of new programs/projects, To strengthen relationships with the people we serve
With whom is the organization sharing feedback?
Note: This organization did not select any of the multiple choice responses to this question
What challenges does the organization face when collecting feedback?
Note: This organization did not select any of the multiple choice responses to this question
Describe a recent change in your organization that resulted from feedback.
Note: This organization did not answer this question
This Constituent Feedback information is provided to us by Candid. At this time, Constituent Feedback information published on this organization's page has no effect on its star rating per our methodology.

Highly Rated

Charity Name & State Overall Score Overall Rating
ALS Therapy Development Institute (MA) 92.10 four stars
The ALS Association Connecticut Chapter (CT) 90.79 four stars
Les Turner ALS Foundation (IL) 96.46 four stars
The ALS Association, National Office (VA) 92.23 four stars
The ALS Association Greater New York Chapter (NY) 96.66 four stars

Compare These Charities (Highly Rated)

REVENUE  
Contributions  
   Contributions, Gifts & Grants $7,666,782
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $4,156,478
   Related Organizations $0
   Government Grants $0
Total Contributions $11,823,260
   Program Service Revenue $410,883
Total Primary Revenue $12,234,143
   Other Revenue $895,593
TOTAL REVENUE $13,129,736
   
EXPENSES  
   Program Expenses $10,016,222
   Administrative Expenses $910,653
   Fundraising Expenses $532,015
TOTAL FUNCTIONAL EXPENSES $11,458,890
   
Payments to Affiliates $0
Excess (or Deficit) for the year $1,670,846
   
Net Assets $15,090,130

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Due to an error on this organization's Form 990, we are unable to display program information.

Ratings History
ALS Therapy Development Institute has received 8 consecutive 4-star ratings from Charity Navigator.

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2019-12 05/01/2021 92.10 four stars
2018-12 11/01/2019 92.80 four stars
2017-12 10/01/2018 91.93 four stars
2016-12 03/01/2018 92.11 four stars
2015-12 12/01/2016 92.92 four stars
2014-12 06/01/2016 96.46 four stars
 
CN 2.0
2014-12 12/22/2015 97.29 four stars
2013-12 08/01/2015 97.31 four stars
2013-12 04/01/2015 96.09 four stars
2012-12 12/01/2013 97.31 four stars
2011-12 03/01/2013 85.41 three stars
2011-12 02/01/2013 85.14 three stars
2010-12 02/01/2012 95.92 four stars
2009-12 09/20/2011 95.86 four stars
 
CN 1.0
2009-12 05/01/2011 95.73 four stars
2008-12 07/01/2010 93.69 four stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 04-3462719
Name in IRS Master File ALS THERAPY DEVELOPMENT FOUNDATION INC
NTEE Code H80
NTEE Classification Specifically Named Diseases Research
NTEE Type Medical Research
Classification Educational Organization
Subsection 501(c)(3)  (View the list of codes)
Activities
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date July, 1999
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2017
  • December, 2016
  • December, 2015
  • December, 2014
  • December, 2013
Compensation % of Expenses Paid to Title
$195,904 1.70% Steven Perrin Chief Executive Officer
Other Salaries of Note
$216,335 1.88% Fernando Vieira Chief Scientific Officer

Highly Rated

Charity Name & State Overall Score Overall Rating
ALS Therapy Development Institute (MA) 92.10 four stars
The ALS Association Florida Chapter (FL) 87.47 three stars
The ALS Association Western Pennsylvania Chapter (PA) 97.17 four stars
The ALS Association, Greater Philadelphia Chapter (PA) 88.53 three stars
The ALS Association, St. Louis Chapter (MO) 93.28 four stars

Compare These Charities (Highly Rated)

This charity has an official representative registered with Charity Navigator.

Constituent Feedback

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Charity Contact Info

ALS Therapy Development Institute
480 Arsenal Street
Suite 201
Watertown, MA 02472
tel: (617) 441-7200
EIN: 04-3462719

Visit Web Site

Board Leadership

Augie Nieto
Chairman

CEO

Fernando Vieira
Chief Executive Officer

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