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Health : Diseases, Disorders, and Disciplines

The Progeria Research Foundation

Together we WILL find the cure!

four stars

94.88

P.O. Box 3453 Peabody, MA 01961
tel: (978) 535-2594   Web Site
EIN: 04-3460220

Board Leadership
Scott D. Berns
Chair

CEO
Meryl Fink
President and Executive Director

 
 
  Score
(out of 100)
Rating
Overall Score & Rating 94.88 four stars
  Financial 92.76 four stars
  Accountability & Transparency 100.00 four stars
This rating was published 05/01/2018 and includes data from FY2016, the most recent 990 received at that time.

To discover treatments and the cure for Progeria and its aging-related disorders. Progeria is a fatal, "rapid aging" disease that afflicts children, who die of heart disease at an average age of 13 years - the same heart disease affecting millions of normal aging adults. The Progeria Research Foundation (PRF) was founded in 1999 in response to the lack of resources for doctors, scientists, patients, and families of those with Progeria. PRF has been the driving force behind the tremendous progress in the field, moving from total obscurity, to gene discovery, to first-ever drug treatment in just 13 years. PRF is the only non-profit solely dedicated to finding treatments and the cure for Progeria, and is hailed as a prime example of a successful translational research organization. Moreover, with the now-documented biological connection between Progeria, common heart disease and aging, finding the cure for one of the rarest disease on earth may help the entire aging population.

To discover treatments and the cure for Progeria and its aging-related disorders. Progeria is a fatal, "rapid aging" disease that afflicts children, who die of heart disease at an average age of 13 years - the same heart disease affecting millions of normal aging adults. The Progeria Research Foundation (PRF) was founded in 1999 in response to the lack of resources for doctors, scientists, patients, and families of those with Progeria. PRF has been the driving force behind the tremendous progress in the field, moving from total obscurity, to gene discovery, to first-ever drug treatment in just 13 years. PRF is the only non-profit solely dedicated to finding treatments and the cure for Progeria, and is hailed as a prime example of a successful translational research organization. Moreover, with the now-documented biological connection between Progeria, common heart disease and aging, finding the cure for one of the rarest disease on earth may help the entire aging population.

Financial

four stars

92.76

Accountability & Transparency

four stars

100.00

This rating was published 05/01/2018 and includes data from FY2016, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
82.6%
  Administrative Expenses 12.0%
  Fundraising Expenses 5.2%
  Fundraising Efficiency $0.07
  Working Capital Ratio (years) 1.63
  Program Expenses Growth 2.5%
  Liabilities to Assets 8.0%
All data for Financial Performance Metrics calculations was provided by The Progeria Research Foundation on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by The Progeria Research Foundation on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
The Progeria Research Foundation (MA) 94.88 four stars
Fanconi Anemia Research Fund (OR) 94.74 four stars
The Cornelia de Lange Syndrome Foundation (CT) 100.00 four stars
Dystrophic Epidermolysis Bullosa Research Association of America (debra of America) (NY) 95.31 four stars
Alpha-1 Foundation (FL) 97.13 four stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $2,421,581
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $0
   Related Organizations $0
   Government Grants $35,000
Total Contributions $2,456,581
   Program Service Revenue $0
Total Primary Revenue $2,456,581
   Other Revenue $715,918
TOTAL REVENUE $3,172,499
   
EXPENSES  
   Program Expenses $2,159,097
   Administrative Expenses $315,819
   Fundraising Expenses $177,278
TOTAL FUNCTIONAL EXPENSES $2,652,194
   
Payments to Affiliates $0
Excess (or Deficit) for the year $520,305
   
Net Assets $4,394,517

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Research Grants $725,929 33.6%
Progeria Drug Trial $639,156 29.6%
Cell and Tissue Bank $105,743 4.9%

Ratings History
The Progeria Research Foundation has received 5 consecutive 4-star ratings from Charity Navigator.

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2016-12 05/01/2018 94.88 four stars
2015-12 04/01/2017 97.94 four stars
2014-12 06/01/2016 99.93 four stars
 
CN 2.0
2014-12 03/01/2016 99.00 four stars
2013-12 10/01/2015 96.96 four stars
2013-12 08/01/2015 94.23 four stars
2012-12 03/01/2014 96.92 four stars
2011-12 05/01/2013 89.34 three stars
2010-12 09/01/2012 80.57 three stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 04-3460220
Name in IRS Master File THE PROGERIA RESEARCH FOUNDATION INC
NTEE Code H12
NTEE Classification Fund Raising and/or Fund Distribution
NTEE Type Medical Research
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date September, 1999
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2016
  • December, 2015
  • December, 2014
  • December, 2013
  • December, 2012

The data displayed in this profile is provided by the IRS for free in the form of Publication 78 and the Business Master File (BMF).

Compensation % of Expenses Paid to Title
$90,038 3.39% Meryl Fink President
Other Salaries of Note
$113,192 4.26% Audrey Gordon Director of Development, Former President

Highly Rated

Charity Name & State Overall Score Overall Rating
The Progeria Research Foundation (MA) 94.88 four stars
Prader-Willi Syndrome Association (USA) (FL) 85.60 three stars
National Down Syndrome Society (NY) 86.97 three stars
Alpha-1 Foundation (FL) 97.13 four stars
National Fragile X Foundation (DC) 93.33 four stars

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This charity has an official representative registered with Charity Navigator.

Charity Contact Info

The Progeria Research Foundation
P.O. Box 3453
Peabody, MA 01961
tel: (978) 535-2594
fax: (978) 535-5849
EIN: 04-3460220

Visit Web Site

Board Leadership

Scott D. Berns
Chair

CEO

Meryl Fink
President and Executive Director

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