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Health : Diseases, Disorders, and Disciplines

The Progeria Research Foundation

Together we WILL find the cure!

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Impact Information is available from our partner, GuideStar

four stars

92.09

P.O. Box 3453 Peabody, MA 01961
tel: (978) 535-2594   Web Site
EIN: 04-3460220

Board Leadership
Scott D. Berns
Chair

CEO
Audrey Gordon
Executive Director

  Score
(out of 100)
Rating
Overall Score & Rating 92.09 four stars
  Financial 88.82 three stars
  Accountability & Transparency 100.00 four stars
This rating was published 04/01/2019 and includes data from FY2017, the most recent 990 received at that time.

To discover treatments and the cure for Progeria and its aging-related disorders. Progeria is a fatal, "rapid aging" disease that afflicts children, who die of heart disease at an average age of 13 years - the same heart disease affecting millions of normal aging adults. The Progeria Research Foundation (PRF) was founded in 1999 in response to the lack of resources for doctors, scientists, patients, and families of those with Progeria. PRF has been the driving force behind the tremendous progress in the field, moving from total obscurity, to gene discovery, to first-ever drug treatment in just 13 years. PRF is the only non-profit solely dedicated to finding treatments and the cure for Progeria, and is hailed as a prime example of a successful translational research organization. Moreover, with the now-documented biological connection between Progeria, common heart disease and aging, finding the cure for one of the rarest disease on earth may help the entire aging population.

To discover treatments and the cure for Progeria and its aging-related disorders. Progeria is a fatal, "rapid aging" disease that afflicts children, who die of heart disease at an average age of 13 years - the same heart disease affecting millions of normal aging adults. The Progeria Research Foundation (PRF) was founded in 1999 in response to the lack of resources for doctors, scientists, patients, and families of those with Progeria. PRF has been the driving force behind the tremendous progress in the field, moving from total obscurity, to gene discovery, to first-ever drug treatment in just 13 years. PRF is the only non-profit solely dedicated to finding treatments and the cure for Progeria, and is hailed as a prime example of a successful translational research organization. Moreover, with the now-documented biological connection between Progeria, common heart disease and aging, finding the cure for one of the rarest disease on earth may help the entire aging population.

Impact Information

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This impact information is current as of July 2019, when it was provided to us by GuideStar. At this time, Impact information published on this organization's page has no effect on its rating per our methodology.

Financial

three stars

88.82

Accountability & Transparency

four stars

100.00

This rating was published 04/01/2019 and includes data from FY2017, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
80.9%
  Administrative Expenses 12.7%
  Fundraising Expenses 6.3%
  Fundraising Efficiency $0.08
  Working Capital Ratio (years) 1.59
  Program Expenses Growth -4.9%
  Liabilities to Assets 7.3%
All data for Financial Performance Metrics calculations was provided by The Progeria Research Foundation on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by The Progeria Research Foundation on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
The Progeria Research Foundation (MA) 92.09 four stars
Cerebral Palsy (WI) 88.99 three stars
Angelman Syndrome Foundation (IL) 90.55 four stars
Dystrophic Epidermolysis Bullosa Research Association of America (debra of America) (NY) 93.82 four stars
Fanconi Anemia Research Fund (OR) 93.21 four stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $1,600,530
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $0
   Related Organizations $0
   Government Grants $0
Total Contributions $1,600,530
   Program Service Revenue $0
Total Primary Revenue $1,600,530
   Other Revenue $546,757
TOTAL REVENUE $2,147,287
   
EXPENSES  
   Program Expenses $1,905,702
   Administrative Expenses $303,134
   Fundraising Expenses $154,027
TOTAL FUNCTIONAL EXPENSES $2,362,863
   
Payments to Affiliates $0
Excess (or Deficit) for the year $-215,576
   
Net Assets $4,178,941

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Research Grants $626,671 32.9%
Progeria Drug Trial $616,655 32.4%
Other $560,734 29.4%
Cell and Tissue Bank $101,642 5.3%

Ratings History
The Progeria Research Foundation has received 6 consecutive 4-star ratings from Charity Navigator.

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2017-12 04/01/2019 92.09 four stars
2016-12 05/01/2018 94.88 four stars
2015-12 04/01/2017 97.94 four stars
2014-12 06/01/2016 99.93 four stars
 
CN 2.0
2014-12 03/01/2016 99.00 four stars
2013-12 10/01/2015 96.96 four stars
2013-12 08/01/2015 94.23 four stars
2012-12 03/01/2014 96.92 four stars
2011-12 05/01/2013 89.34 three stars
2010-12 09/01/2012 80.57 three stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 04-3460220
Name in IRS Master File THE PROGERIA RESEARCH FOUNDATION INC
NTEE Code H12
NTEE Classification Fund Raising and/or Fund Distribution
NTEE Type Medical Research
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date September, 1999
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2016
  • December, 2015
  • December, 2014
  • December, 2013
  • December, 2012
Compensation % of Expenses Paid to Title
$103,000 4.35% Meryl Fink Executive Director

Highly Rated

Charity Name & State Overall Score Overall Rating
The Progeria Research Foundation (MA) 92.09 four stars
Angelman Syndrome Foundation (IL) 90.55 four stars
National Down Syndrome Society (NY) 94.37 four stars
Cerebral Palsy (WI) 88.99 three stars
Fanconi Anemia Research Fund (OR) 93.21 four stars

Compare These Charities (Highly Rated)

This charity has an official representative registered with Charity Navigator.

Charity Contact Info

The Progeria Research Foundation
P.O. Box 3453
Peabody, MA 01961
tel: (978) 535-2594
fax: (978) 535-5849
EIN: 04-3460220

Visit Web Site

Board Leadership

Scott D. Berns
Chair

CEO

Audrey Gordon
Executive Director

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