Disable all preview features

Health : Diseases, Disorders, and Disciplines

The Progeria Research Foundation

Together we WILL find the cure!

four stars

97.94

P.O. Box 3453 Peabody, MA 01961
tel: (978) 535-2594   Web Site
EIN: 04-3460220

Board Leadership
Scott D. Berns
Chair

CEO
Meryl Fink
President and Executive Director

  Score
(out of 100)
Rating
Overall Score & Rating 97.94 four stars
  Financial 97.10 four stars
  Accountability & Transparency 100.00 four stars
This rating was published 04/01/2017 and includes data from FY2015, the most recent 990 received at that time.

Learn more about how we calculate the overall score and rating.

Financial

four stars

97.10

Accountability & Transparency

four stars

100.00

This rating was published 04/01/2017 and includes data from FY2015, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity’s total expenses spent on the programs
and services it delivers)
83.6%
  Administrative Expenses 12.1%
  Fundraising Expenses 4.1%
  Fundraising Efficiency $0.05
  Working Capital Ratio (years) 1.49
  Program Expenses Growth 20.3%
  Liabilities to Assets 10.0%
All data for Financial Performance Metrics calculations was provided by The Progeria Research Foundation on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by The Progeria Research Foundation on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
The Progeria Research Foundation (MA) 97.94 four stars
National Down Syndrome Society (NY) 90.98 four stars
United Ability (AL) 95.46 four stars
Fanconi Anemia Research Fund (OR) 86.44 three stars
Prader-Willi Syndrome Association (USA) (FL) 88.23 three stars

Compare These Charities (Highly Rated)

To discover treatments and the cure for Progeria and its aging-related disorders. Progeria is a fatal, "rapid aging" disease that afflicts children, who die of heart disease at an average age of 13 years - the same heart disease affecting millions of normal aging adults. The Progeria Research Foundation (PRF) was founded in 1999 in response to the lack of resources for doctors, scientists, patients, and families of those with Progeria. PRF has been the driving force behind the tremendous progress in the field, moving from total obscurity, to gene discovery, to first-ever drug treatment in just 13 years. PRF is the only non-profit solely dedicated to finding treatments and the cure for Progeria, and is hailed as a prime example of a successful translational research organization. Moreover, with the now-documented biological connection between Progeria, common heart disease and aging, finding the cure for one of the rarest disease on earth may help the entire aging population.

REVENUE  
Contributions  
   Contributions, Gifts & Grants $1,592,888
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $0
   Related Organizations $0
   Government Grants $0
Total Contributions $1,592,888
   Program Service Revenue $0
Total Primary Revenue $1,592,888
   Other Revenue $422,831
TOTAL REVENUE $2,015,719
   
EXPENSES  
   Program Expenses $2,281,930
   Administrative Expenses $378,473
   Fundraising Expenses $163,130
TOTAL FUNCTIONAL EXPENSES $2,823,533
   
Payments to Affiliates $0
Excess (or Deficit) for the year $-807,814
   
Net Assets $3,874,212

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Progeria Drug Trial $535,167 23.5%
Medical and Research Database $110,892 4.9%
Diagnostic Testing $85,470 3.7%

Ratings History
The Progeria Research Foundation has received 4 consecutive 4-star ratings from Charity Navigator.

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2015-12 04/01/2017 97.94 four stars
2014-12 06/01/2016 99.93 four stars
 
CN 2.0
2014-12 03/01/2016 99.00 four stars
2013-12 10/01/2015 96.96 four stars
2013-12 08/01/2015 94.23 four stars
2012-12 03/01/2014 96.92 four stars
2011-12 05/01/2013 89.34 three stars
2010-12 09/01/2012 80.57 three stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 04-3460220
Name in IRS Master File THE PROGERIA RESEARCH FOUNDATION INC
NTEE Code H12
NTEE Classification Fund Raising and/or Fund Distribution
NTEE Type Medical Research
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date September, 1999
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2015
  • December, 2014
  • December, 2013
  • December, 2012
  • December, 2011

The data displayed in this profile is provided by the IRS for free in the form of Publication 78 and the Business Master File (BMF).

We invite you to share your opinions, thoughts, experiences, and stories about this charity here to help inform the decisions of other donors.  
Need more help getting started? Check out our FAQs.
 
This tool is not for questions about Charity Navigator, such as how we derived this charity’s rating. We will happily answer those questions if you contact us directly. Likewise, if you have questions for this charity, then we encourage you to contact the charity directly (we include the charity’s contact information in the upper left-hand corner of this page) since few charities regularly monitor this commenting tool.

Compensation % of Expenses Paid to Title
$102,364 3.62% Audrey Gordon President

To discover treatments and the cure for Progeria and its aging-related disorders. Progeria is a fatal, "rapid aging" disease that afflicts children, who die of heart disease at an average age of 13 years - the same heart disease affecting millions of normal aging adults. The Progeria Research Foundation (PRF) was founded in 1999 in response to the lack of resources for doctors, scientists, patients, and families of those with Progeria. PRF has been the driving force behind the tremendous progress in the field, moving from total obscurity, to gene discovery, to first-ever drug treatment in just 13 years. PRF is the only non-profit solely dedicated to finding treatments and the cure for Progeria, and is hailed as a prime example of a successful translational research organization. Moreover, with the now-documented biological connection between Progeria, common heart disease and aging, finding the cure for one of the rarest disease on earth may help the entire aging population.

Highly Rated

Charity Name & State Overall Score Overall Rating
The Progeria Research Foundation (MA) 97.94 four stars
Alpha-1 Foundation (FL) 94.31 four stars
National Down Syndrome Society (NY) 90.98 four stars
United Ability (AL) 95.46 four stars
The Cornelia de Lange Syndrome Foundation (CT) 92.92 four stars

Compare These Charities (Highly Rated)

This charity has an official representative registered with Charity Navigator.

Charity Contact Info

The Progeria Research Foundation
P.O. Box 3453
Peabody, MA 01961
tel: (978) 535-2594
fax: (978) 535-5849
EIN: 04-3460220

Visit Web Site

Board Leadership

Scott D. Berns
Chair

CEO

Meryl Fink
President and Executive Director

[ X ]

Did You Know We Are a Charity, Too?

If even a third of the 7 million people who visited our site last year had donated a dollar to Charity Navigator, we would comfortably meet our annual budget and be able to do what so many of you ask us to do every day--rate more charities!

With the support of users like you, we are currently investing in staff and technology. This will allow us to improve the search and organizational features of our site, making it easier to find the information that matters most to you. We will also continue to enhance our evaluation system and metrics.

So, whether you're a first time visitor or a long time user, we ask for your help in achieving our goal. Your gift of any size is most deeply appreciated! Thank You!

With the support of users like you, we are making it easier to find the info that matters most. Thank you!

Join Our Mailing List

Join over 400,000 other informed givers and get updates on charity ratings, new features, hot topics, and tips for donating.

Help Center