Health : Diseases, Disorders, and Disciplines

The Progeria Research Foundation

Together we WILL find the cure!

four stars

91.57

P.O. Box 3453 Peabody, MA 01961
tel: (978) 535-2594   Web Site
EIN: 04-3460220

Board Leadership
Scott D. Berns
Chair

CEO
Audrey Gordon
President and Executive Director

  Score
(out of 100)
Rating
Overall Score & Rating 91.57 four stars
  Financial 88.77 three stars
  Accountability & Transparency 96.00 four stars
This rating was published 03/01/2020 and includes data from FY2018, the most recent 990 received at that time.

To discover treatments and the cure for Progeria and its aging-related disorders. Progeria is a fatal, "rapid aging" disease that afflicts children, who die of heart disease at an average age of 13 years - the same heart disease affecting millions of normal aging adults. The Progeria Research Foundation (PRF) was founded in 1999 in response to the lack of resources for doctors, scientists, patients, and families of those with Progeria. PRF has been the driving force behind the tremendous progress in the field, moving from total obscurity, to gene discovery, to first-ever drug treatment in just 13 years. PRF is the only non-profit solely dedicated to finding treatments and the cure for Progeria, and is hailed as a prime example of a successful translational research organization. Moreover, with the now-documented biological connection between Progeria, common heart disease and aging, finding the cure for one of the rarest disease on earth may help the entire aging population.

To discover treatments and the cure for Progeria and its aging-related disorders. Progeria is a fatal, "rapid aging" disease that afflicts children, who die of heart disease at an average age of 13 years - the same heart disease affecting millions of normal aging adults. The Progeria Research Foundation (PRF) was founded in 1999 in response to the lack of resources for doctors, scientists, patients, and families of those with Progeria. PRF has been the driving force behind the tremendous progress in the field, moving from total obscurity, to gene discovery, to first-ever drug treatment in just 13 years. PRF is the only non-profit solely dedicated to finding treatments and the cure for Progeria, and is hailed as a prime example of a successful translational research organization. Moreover, with the now-documented biological connection between Progeria, common heart disease and aging, finding the cure for one of the rarest disease on earth may help the entire aging population.

Impact Information

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This impact information is current as of March 2020, when it was provided to us by GuideStar. At this time, Impact information published on this organization's page has no effect on its rating per our methodology.

Financial

three stars

88.77

Accountability & Transparency

four stars

96.00

This rating was published 03/01/2020 and includes data from FY2018, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
80.7%
  Administrative Expenses 12.2%
  Fundraising Expenses 6.9%
  Fundraising Efficiency $0.07
  Working Capital Ratio (years) 1.80
  Program Expenses Growth -3.9%
  Liabilities to Assets 9.6%
All data for Financial Performance Metrics calculations was provided by The Progeria Research Foundation on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by The Progeria Research Foundation on recent 990s filed with the IRS.
REVENUE  
Contributions  
   Contributions, Gifts & Grants $1,481,641
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $1,313,827
   Related Organizations $0
   Government Grants $47,500
Total Contributions $2,842,968
   Program Service Revenue $0
Total Primary Revenue $2,842,968
   Other Revenue $41,749
TOTAL REVENUE $2,884,717
   
EXPENSES  
   Program Expenses $2,022,884
   Administrative Expenses $303,069
   Fundraising Expenses $195,566
TOTAL FUNCTIONAL EXPENSES $2,521,519
   
Payments to Affiliates $0
Excess (or Deficit) for the year $363,198
   
Net Assets $4,542,139

Charts

Compensation % of Expenses Paid to Title
$92,847 3.68% Meryl Fink President, Executive Director

Mission

To discover treatments and the cure for Progeria and its aging-related disorders. Progeria is a fatal, "rapid aging" disease that afflicts children, who die of heart disease at an average age of 13 years - the same heart disease affecting millions of normal aging adults. The Progeria Research Foundation (PRF) was founded in 1999 in response to the lack of resources for doctors, scientists, patients, and families of those with Progeria. PRF has been the driving force behind the tremendous progress in the field, moving from total obscurity, to gene discovery, to first-ever drug treatment in just 13 years. PRF is the only non-profit solely dedicated to finding treatments and the cure for Progeria, and is hailed as a prime example of a successful translational research organization. Moreover, with the now-documented biological connection between Progeria, common heart disease and aging, finding the cure for one of the rarest disease on earth may help the entire aging population.

Highly Rated

Charity Name & State Overall Score Overall Rating
The Progeria Research Foundation (MA) 91.57 four stars
The Cornelia de Lange Syndrome Foundation (CT) 96.66 four stars
United Ability (AL) 95.72 four stars
Dystrophic Epidermolysis Bullosa Research Association of America (debra of America) (NY) 93.98 four stars
Cerebral Palsy (WI) 85.83 three stars

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Charity Contact Info

The Progeria Research Foundation
P.O. Box 3453
Peabody, MA 01961
tel: (978) 535-2594
fax: (978) 535-5849
EIN: 04-3460220

Visit Web Site

Board Leadership

Scott D. Berns
Chair

CEO

Audrey Gordon
President and Executive Director