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Health : Diseases, Disorders, and Disciplines

The ALS Association, St. Louis Chapter

Create a world without ALS

four stars

93.28

1950 Craig Road Suite 200
St. Louis, MO 63146
tel: (888) 873-8539   Web Site
EIN: 43-1458163

Board Leadership
Josh Rogers
Chair

CEO
Maureen Barber-Hill
President, CEO

  Score
(out of 100)
Rating
Overall Score & Rating 93.28 four stars
  Financial 90.50 four stars
  Accountability & Transparency 100.00 four stars
This rating was published 02/01/2021 and includes data from FY2020, the most recent 990 received at that time.

The ALS Association, St. Louis Regional Chapter is dedicated to improving the quality of life for those affected by Amyotrophic Lateral Sclerosis, educating the community, and supporting research. Our mission is to lead the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig's Disease and their families to live fuller lives by providing them with compassionate care and support. The ALS Association is the only national health organization dedicated solely to the fight against ALS. The ALS Association covers all the bases - patient and community services, public education, advocacy, and research - in providing help and hope to those facing the disease.

The ALS Association, St. Louis Regional Chapter is dedicated to improving the quality of life for those affected by Amyotrophic Lateral Sclerosis, educating the community, and supporting research. Our mission is to lead the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig's Disease and their families to live fuller lives by providing them with compassionate care and support. The ALS Association is the only national health organization dedicated solely to the fight against ALS. The ALS Association covers all the bases - patient and community services, public education, advocacy, and research - in providing help and hope to those facing the disease.

Financial

four stars

90.50

Accountability & Transparency

four stars

100.00

This rating was published 02/01/2021 and includes data from FY2020, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
77.9%
  Administrative Expenses 8.4%
  Fundraising Expenses 13.5%
  Fundraising Efficiency $0.10
  Working Capital Ratio (years) 1.84
  Program Expenses Growth 6.5%
  Liabilities to Assets 5.8%
All data for Financial Performance Metrics calculations was provided by The ALS Association, St. Louis Chapter on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by The ALS Association, St. Louis Chapter on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
The ALS Association, St. Louis Chapter (MO) 93.28 four stars
ALS Association Minnesota/North Dakota/South Dakota Chapter (MN) 86.55 three stars
The ALS Association, Greater Philadelphia Chapter (PA) 88.53 three stars
ALS Therapy Development Institute (MA) 92.10 four stars
The ALS Association, National Office (VA) 92.23 four stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $1,491,485
   Federated Campaigns $189,616
   Membership Dues $0
   Fundraising Events $866,317
   Related Organizations $0
   Government Grants $0
Total Contributions $2,547,418
   Program Service Revenue $0
Total Primary Revenue $2,547,418
   Other Revenue $-17,607
TOTAL REVENUE $2,529,811
   
EXPENSES  
   Program Expenses $1,511,730
   Administrative Expenses $153,914
   Fundraising Expenses $263,140
TOTAL FUNCTIONAL EXPENSES $1,928,784
   
Payments to Affiliates $299,443
Excess (or Deficit) for the year $601,027
   
Net Assets $3,595,043

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Patient Care Services $1,061,854 70.2%
Education, Awareness, and Advocacy $265,274 17.5%
Research $184,602 12.2%

Ratings History
The ALS Association, St. Louis Chapter has received 7 consecutive 4-star ratings from Charity Navigator.

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2020-01 02/01/2021 93.28 four stars
2019-01 03/01/2020 93.01 four stars
2018-01 03/01/2019 95.43 four stars
2017-01 03/01/2018 95.02 four stars
2016-01 04/01/2017 95.24 four stars
2015-01 06/01/2016 94.83 four stars
 
CN 2.0
2015-01 11/01/2015 96.11 four stars
2014-01 08/01/2015 93.30 four stars
2013-01 12/20/2013 89.72 three stars
2012-01 08/01/2013 83.52 three stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 43-1458163
Name in IRS Master File AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION
NTEE Code [Not Provided by IRS]
NTEE Classification [Not Provided by IRS]
NTEE Type [Not Provided by IRS]
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (123) Discussion groups, forums, panels lectures, etc.
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Subordinate - the organization is a subordinate in a group ruling.
Group Name AMYOTROPHIC LATERAL SCLEROSIS ASSN
Ruling Date July, 1990
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End January
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • January, 2019
  • January, 2018
  • January, 2017
  • January, 2016
  • January, 2015
Compensation % of Expenses Paid to Title
$103,627 5.37% Maureen Barber-Hill President, CEO

Highly Rated

Charity Name & State Overall Score Overall Rating
The ALS Association, St. Louis Chapter (MO) 93.28 four stars
Les Turner ALS Foundation (IL) 96.46 four stars
The ALS Association Golden West Chapter (CA) 93.56 four stars
The ALS Association Greater New York Chapter (NY) 96.66 four stars
The ALS Association, National Office (VA) 92.23 four stars

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Charity Contact Info

The ALS Association, St. Louis Chapter
1950 Craig Road
Suite 200
St. Louis, MO 63146
tel: (888) 873-8539
fax: (314) 432-2991
EIN: 43-1458163

Visit Web Site

Board Leadership

Josh Rogers
Chair

CEO

Maureen Barber-Hill
President, CEO

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