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Health : Diseases, Disorders, and Disciplines (Grantmaking)

Friedreich's Ataxia Research Alliance

Together, we will cure FA!

four stars

98.23

533 West Uwchlan Avenue Downingtown, PA 19335
tel: (484) 879-6160   Web Site
EIN: 52-2122720

Board Leadership
Paul Avery
Chairman

CEO
Jennifer Farmer
Chief Executive Officer

  Score
(out of 100)
Rating
Overall Score & Rating 98.23 four stars
  Financial 97.50 four stars
  Accountability & Transparency 100.00 four stars
This rating was published 03/01/2021 and includes data from FY2019, the most recent 990 received at that time.

The Friedreich's Ataxia Research Alliance (FARA) is a national, public, 501(c)(3), non-profit, tax-exempt organization dedicated to curing Friedreich's ataxia (FA) through research. FA is a debilitating, life-shortening, degenerative neuromuscular disorder affecting one in 50,000 people in the United States. FARA focuses on grant making for FA research and building collaborations with organizations dedicated to advancing treatments for FA. Due to the progressive nature of the disease and the promise of treatments in development, there is urgency to our efforts. Directing attention and resources to FA research and partnering with others who share this commitment, FARA believes we can help bring forward the first effective treatments and a cure for FA.

The Friedreich's Ataxia Research Alliance (FARA) is a national, public, 501(c)(3), non-profit, tax-exempt organization dedicated to curing Friedreich's ataxia (FA) through research. FA is a debilitating, life-shortening, degenerative neuromuscular disorder affecting one in 50,000 people in the United States. FARA focuses on grant making for FA research and building collaborations with organizations dedicated to advancing treatments for FA. Due to the progressive nature of the disease and the promise of treatments in development, there is urgency to our efforts. Directing attention and resources to FA research and partnering with others who share this commitment, FARA believes we can help bring forward the first effective treatments and a cure for FA.

Financial

four stars

97.50

Accountability & Transparency

four stars

100.00

This rating was published 03/01/2021 and includes data from FY2019, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
96.4%
  Administrative Expenses 1.9%
  Fundraising Expenses 1.5%
  Fundraising Efficiency < $0.01
  Working Capital Ratio (years) 0.53
  Program Expenses Growth 10.2%
  Liabilities to Assets 9.4%
All data for Financial Performance Metrics calculations was provided by Friedreich's Ataxia Research Alliance on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Friedreich's Ataxia Research Alliance on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
Friedreich's Ataxia Research Alliance (PA) 98.23 four stars
The Boomer Esiason Foundation (NY) 90.36 four stars
Epilepsy Foundation of Minnesota (MN) 89.56 three stars
Cystic Fibrosis Foundation (MD) 94.75 four stars
Restless Legs Syndrome Foundation (TX) 85.22 three stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $3,301,515
   Federated Campaigns $14,305
   Membership Dues $0
   Fundraising Events $3,830,337
   Related Organizations $0
   Government Grants $0
Total Contributions $7,146,157
   Program Service Revenue $0
Total Primary Revenue $7,146,157
   Other Revenue $-68,568
TOTAL REVENUE $7,077,589
   
EXPENSES  
   Program Expenses $7,168,645
   Administrative Expenses $185,275
   Fundraising Expenses $128,511
TOTAL FUNCTIONAL EXPENSES $7,482,431
   
Payments to Affiliates $0
Excess (or Deficit) for the year $-404,842
   
Net Assets $3,792,917

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Research and Grant Program $5,518,193 77.0%
Research Conferences $528,576 7.4%
Education, Awareness, and Outreach Programs $277,770 3.9%

Ratings History
Friedreich's Ataxia Research Alliance has received 11 consecutive 4-star ratings from Charity Navigator.

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2019-12 03/01/2021 98.23 four stars
2018-12 03/01/2020 97.38 four stars
2017-12 03/01/2019 98.23 four stars
2016-12 03/01/2018 98.23 four stars
2015-12 12/01/2016 98.23 four stars
2014-12 06/01/2016 98.23 four stars
 
CN 2.0
2014-12 12/22/2015 97.96 four stars
2013-12 06/01/2015 93.21 four stars
2012-12 11/01/2013 97.77 four stars
2011-12 12/20/2012 97.89 four stars
2010-12 12/01/2011 92.95 four stars
2009-12 09/20/2011 94.32 four stars
 
CN 1.0
2009-12 02/01/2011 96.06 four stars
2008-12 08/01/2010 78.27 two stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 52-2122720
Name in IRS Master File FRIEDREICHS ATAXIA RESEARCH ALLIANCE FARA
NTEE Code H99
NTEE Classification Medical Research N.E.C.
NTEE Type Medical Research
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date May, 1999
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2018
  • December, 2017
  • December, 2016
  • December, 2015
  • December, 2014
Compensation % of Expenses Paid to Title
$130,000 1.73% Jennifer Farmer Chief Executive Officer

Highly Rated

Charity Name & State Overall Score Overall Rating
Friedreich's Ataxia Research Alliance (PA) 98.23 four stars
FSHD Society (MA) 91.14 four stars
The Boomer Esiason Foundation (NY) 90.36 four stars
Restless Legs Syndrome Foundation (TX) 85.22 three stars
Hunter's Hope Foundation (NY) 93.62 four stars

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Charity Contact Info

Friedreich's Ataxia Research Alliance
533 West Uwchlan Avenue
Downingtown, PA 19335
tel: (484) 879-6160
fax: (484) 872-1402
EIN: 52-2122720

Visit Web Site

Board Leadership

Paul Avery
Chairman

CEO

Jennifer Farmer
Chief Executive Officer

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