Health : Diseases, Disorders, and Disciplines (Grantmaking)

Friedreich's Ataxia Research Alliance

Together, we will cure FA!

four stars

98.23

533 West Uwchlan Avenue Downingtown, PA 19335
tel: (484) 879-6160   Web Site
EIN: 52-2122720

Board Leadership
Ronald Bartek
Chairman

CEO
Ronald Bartek
President

  Score
(out of 100)
Rating
Overall Score & Rating 98.23 four stars
  Financial 97.50 four stars
  Accountability & Transparency 100.00 four stars
This rating was published 03/01/2019 and includes data from FY2017, the most recent 990 received at that time.

The Friedreich's Ataxia Research Alliance (FARA) is a national, public, 501(c)(3), non-profit, tax-exempt organization dedicated to curing Friedreich's ataxia (FA) through research. FA is a debilitating, life-shortening, degenerative neuromuscular disorder affecting one in 50,000 people in the United States. FARA focuses on grant making for FA research and building collaborations with organizations dedicated to advancing treatments for FA. Due to the progressive nature of the disease and the promise of treatments in development, there is urgency to our efforts. Directing attention and resources to FA research and partnering with others who share this commitment, FARA believes we can help bring forward the first effective treatments and a cure for FA.

The Friedreich's Ataxia Research Alliance (FARA) is a national, public, 501(c)(3), non-profit, tax-exempt organization dedicated to curing Friedreich's ataxia (FA) through research. FA is a debilitating, life-shortening, degenerative neuromuscular disorder affecting one in 50,000 people in the United States. FARA focuses on grant making for FA research and building collaborations with organizations dedicated to advancing treatments for FA. Due to the progressive nature of the disease and the promise of treatments in development, there is urgency to our efforts. Directing attention and resources to FA research and partnering with others who share this commitment, FARA believes we can help bring forward the first effective treatments and a cure for FA.

Impact Information

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This impact information is current as of September 2019, when it was provided to us by GuideStar. At this time, Impact information published on this organization's page has no effect on its rating per our methodology.

Financial

four stars

97.50

Accountability & Transparency

four stars

100.00

This rating was published 03/01/2019 and includes data from FY2017, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
96.7%
  Administrative Expenses 1.6%
  Fundraising Expenses 1.6%
  Fundraising Efficiency < $0.01
  Working Capital Ratio (years) 0.75
  Program Expenses Growth 12.6%
  Liabilities to Assets 6.6%
All data for Financial Performance Metrics calculations was provided by Friedreich's Ataxia Research Alliance on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Friedreich's Ataxia Research Alliance on recent 990s filed with the IRS.
REVENUE  
Contributions  
   Contributions, Gifts & Grants $3,762,649
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $3,756,127
   Related Organizations $0
   Government Grants $0
Total Contributions $7,518,776
   Program Service Revenue $0
Total Primary Revenue $7,518,776
   Other Revenue $14,761
TOTAL REVENUE $7,533,537
   
EXPENSES  
   Program Expenses $6,603,594
   Administrative Expenses $106,435
   Fundraising Expenses $101,785
TOTAL FUNCTIONAL EXPENSES $6,811,814
   
Payments to Affiliates $0
Excess (or Deficit) for the year $721,723
   
Net Assets $4,529,784

Charts

Compensation % of Expenses Paid to Title
$110,000 1.61% Jennifer Farmer Executive Director
Other Salaries of Note
$100,000 1.46% Ronald Bartek President

Mission

The Friedreich's Ataxia Research Alliance (FARA) is a national, public, 501(c)(3), non-profit, tax-exempt organization dedicated to curing Friedreich's ataxia (FA) through research. FA is a debilitating, life-shortening, degenerative neuromuscular disorder affecting one in 50,000 people in the United States. FARA focuses on grant making for FA research and building collaborations with organizations dedicated to advancing treatments for FA. Due to the progressive nature of the disease and the promise of treatments in development, there is urgency to our efforts. Directing attention and resources to FA research and partnering with others who share this commitment, FARA believes we can help bring forward the first effective treatments and a cure for FA.

Highly Rated

Charity Name & State Overall Score Overall Rating
Friedreich's Ataxia Research Alliance (PA) 98.23 four stars
Epilepsy Foundation of Minnesota (MN) 89.56 three stars
Cure SMA (IL) 90.45 four stars
Aplastic Anemia & MDS International Foundation (MD) 92.00 four stars
Restless Legs Syndrome Foundation (TX) 89.88 three stars

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Charity Contact Info

Friedreich's Ataxia Research Alliance
533 West Uwchlan Avenue
Downingtown, PA 19335
tel: (484) 879-6160
fax: (484) 872-1402
EIN: 52-2122720

Visit Web Site

Board Leadership

Ronald Bartek
Chairman

CEO

Ronald Bartek
President