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Health : Diseases, Disorders, and Disciplines
Board Leadership
EJ Garner
Chair
CEO
Louise Vetter
Chief Executive Officer
|
The Huntington's Disease Society of America (HDSA) is a national, voluntary health organization dedicated to improving the lives of people with Huntington's Disease and their families. Founded in 1967, HDSA promotes and supports research and medical efforts to eradicate Huntington's Disease; assists people and families affected by Huntington's Disease to cope with the problems presented by the disease; and educates the public and health professionals about Huntington's Disease. Huntington's Disease (HD) is a devastating, hereditary, degenerative brain disorder for which there is, at present, no effective treatment or cure. HD slowly diminishes the affected individual's ability to walk, think, talk and reason.
The Huntington's Disease Society of America (HDSA) is a national, voluntary health organization dedicated to improving the lives of people with Huntington's Disease and their families. Founded in 1967, HDSA promotes and supports research and medical efforts to eradicate Huntington's Disease; assists people and families affected by Huntington's Disease to cope with the problems presented by the disease; and educates the public and health professionals about Huntington's Disease. Huntington's Disease (HD) is a devastating, hereditary, degenerative brain disorder for which there is, at present, no effective treatment or cure. HD slowly diminishes the affected individual's ability to walk, think, talk and reason.
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85.77
100.00
Program Expenses (Percent of the charity's total expenses spent on the programs and services it delivers) |
77.0% | |
Administrative Expenses | 9.5% | |
Fundraising Expenses | 13.4% | |
Fundraising Efficiency | $0.11 | |
Working Capital Ratio (years) | 1.02 | |
Program Expenses Growth | 4.6% | |
Liabilities to Assets | 14.7% |
Charity Name & State | Overall Score | Overall Rating |
---|---|---|
Huntington's Disease Society of America (NY) | 89.93 | |
Epilepsy Foundation (MD) | 91.32 | |
Southwest Autism Research & Resource Center (AZ) | 92.20 | |
Epilepsy Foundation of Texas (TX) | 87.30 | |
Tuberous Sclerosis Alliance (MD) | 92.95 |
REVENUE | |
Contributions | |
Contributions, Gifts & Grants | $6,329,931 |
Federated Campaigns | $202,842 |
Membership Dues | $0 |
Fundraising Events | $1,736,820 |
Related Organizations | $2,619,075 |
Government Grants | $0 |
Total Contributions | $10,888,668 |
Program Service Revenue | $0 |
Total Primary Revenue | $10,888,668 |
Other Revenue | $128,715 |
TOTAL REVENUE | $11,017,383 |
EXPENSES | |
Program Expenses | $7,142,452 |
Administrative Expenses | $560,427 |
Fundraising Expenses | $1,490,291 |
TOTAL FUNCTIONAL EXPENSES | $9,193,170 |
Payments to Affiliates | $0 |
Excess (or Deficit) for the year | $1,824,213 |
Net Assets | $9,352,219 |
Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.
Program Name | Amount Spent | % of Program Expenses |
---|---|---|
Patient & Family Services | $2,604,825 | 36.5% |
Research | $1,753,479 | 24.6% |
Community Outreach | $1,089,434 | 15.3% |
Form 990 FYE | Date Published | Overall Score | Overall Rating | ||||||
---|---|---|---|---|---|---|---|---|---|
CN 2.1 | |||||||||
2019-12 | 12/23/2020 | 89.93 | |||||||
2018-12 | 12/20/2019 | 90.00 | |||||||
2017-12 | 12/21/2018 | 92.78 | |||||||
2016-12 | 03/01/2018 | 91.04 | |||||||
2015-12 | 12/01/2016 | 91.37 | |||||||
2014-12 | 08/01/2016 | 87.14 | |||||||
2014-12 | 06/01/2016 | 85.95 | |||||||
CN 2.0 | |||||||||
2014-12 | 12/01/2015 | 91.07 | |||||||
2013-12 | 05/01/2015 | 86.21 | |||||||
2012-12 | 11/01/2013 | 74.97 | |||||||
2011-09 | 10/01/2012 | 75.78 | |||||||
2010-09 | 04/01/2012 | 79.17 | |||||||
2010-09 | 03/01/2012 | 77.38 | |||||||
2010-09 | 02/01/2012 | 77.36 | |||||||
2009-09 | 09/20/2011 | 85.26 | |||||||
CN 1.0 | |||||||||
2009-09 | 06/01/2011 | 74.37 |
The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).
EIN | 13-3349872 |
Name in IRS Master File | HUNTINGTONS DISEASE SOCIETY OF AMERICA INC |
NTEE Code | [Not Provided by IRS] |
NTEE Classification | [Not Provided by IRS] |
NTEE Type | [Not Provided by IRS] |
Classification | Charitable Organization |
Subsection | 501(c)(3) (View the list of codes) |
Activities | (179) Other health services |
Foundation Status | Organization which receives a substantial part of its support from a governmental unit or the general public 170(b)(1)(A)(vi) |
Deductibility | Contributions are deductible |
Affiliation | Central - the organization is a parent (group ruling) and is not a church or 501(c)(1) organization. |
Group Name | HUNTINGTONS DISEASE SOCIETY OF AMERICA INC |
Ruling Date | February, 1988 |
Filing Requirement | 990 (all other) or 990EZ return |
Fiscal Year End | December |
IRS Forms 990 (provided courtesy of Foundation Center) |
(Log In or Register Now to View Forms 990!)
|
Compensation | % of Expenses | Paid to | Title | |
---|---|---|---|---|
$326,226 | 3.54% | Louise Vetter | Chief Executive Officer |
Charity Name & State | Overall Score | Overall Rating |
---|---|---|
Huntington's Disease Society of America (NY) | 89.93 | |
Autism Society of America (MD) | 86.32 | |
American Autoimmune Related Diseases Association (MI) | 98.23 | |
Southwest Autism Research & Resource Center (AZ) | 92.20 | |
Hemophilia Federation of America (DC) | 94.69 |
This charity has an official representative registered with Charity Navigator.
Huntington's Disease Society of America
505 Eighth Avenue
Suite 902
New York,
NY 10018
tel: (212) 242-1968
fax: (212) 239-3430
EIN: 13-3349872
EJ Garner
Chair
Louise Vetter
Chief Executive Officer
Charity Navigator
299 Market Street Suite 250
Saddle Brook, NJ 07663
EIN: 13-4148824
BRIDGE ID: 3108588923