Disable all preview features

Health : Diseases, Disorders, and Disciplines

Huntington's Disease Society of America

Help for today. Hope for tomorrow.

91.37

505 Eighth Avenue Suite 902
New York, NY 10018
tel: (212) 242-1968   Web Site
EIN: 13-3349872

Board Leadership
Jang-Ho Cha
Chairman

CEO
Louise Vetter
Chief Executive Officer

  Score
(out of 100)
Rating
Overall Score & Rating 91.37
  Financial 87.80
  Accountability & Transparency 100.00
This rating was published 12/01/2016 and includes data from FY2015, the most recent 990 received at that time.

Learn more about how we calculate the overall score and rating.

Financial

87.80

Accountability & Transparency

100.00

This rating was published 12/01/2016 and includes data from FY2015, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity’s total expenses spent on the programs
and services it delivers)
77.3%
  Administrative Expenses 11.0%
  Fundraising Expenses 11.6%
  Fundraising Efficiency $0.10
  Working Capital Ratio (years) 0.56
  Program Expenses Growth 13.0%
  Liabilities to Assets 19.9%
All data for Financial Performance Metrics calculations was provided by Huntington's Disease Society of America on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Huntington's Disease Society of America on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
Huntington's Disease Society of America (NY) 91.37
Tourette Association of America (NY) 87.25
Interstitial Cystitis Association (VA) 95.34
International OCD Foundation (MA) 85.40
National Ataxia Foundation (MN) 90.71

Compare These Charities (Highly Rated)

The Huntington's Disease Society of America (HDSA) is a national, voluntary health organization dedicated to improving the lives of people with Huntington's Disease and their families. Founded in 1967, HDSA promotes and supports research and medical efforts to eradicate Huntington's Disease; assists people and families affected by Huntington's Disease to cope with the problems presented by the disease; and educates the public and health professionals about Huntington's Disease. Huntington's Disease (HD) is a devastating, hereditary, degenerative brain disorder for which there is, at present, no effective treatment or cure. HD slowly diminishes the affected individual's ability to walk, think, talk and reason.

REVENUE  
Contributions  
   Contributions, Gifts & Grants $4,388,403
   Federated Campaigns $207,584
   Membership Dues $0
   Fundraising Events $1,622,377
   Related Organizations $2,246,075
   Government Grants $0
Total Contributions $8,464,439
   Program Service Revenue $0
Total Primary Revenue $8,464,439
   Other Revenue $30,896
TOTAL REVENUE $8,495,335
   
EXPENSES  
   Program Expenses $5,483,715
   Administrative Expenses $758,317
   Fundraising Expenses $792,790
TOTAL FUNCTIONAL EXPENSES $7,034,822
   
Payments to Affiliates $0
Excess (or Deficit) for the year $1,460,513
   
Net Assets $4,134,666

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Patient & Family Services $1,630,751 29.7%
Research $1,543,243 28.1%
Chapter Development $1,409,832 25.7%

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2015-12 12/01/2016 91.37
2014-12 08/01/2016 87.14
2014-12 06/01/2016 85.95
 
CN 2.0
2014-12 12/01/2015 91.07
2013-12 05/01/2015 86.21
2012-12 11/01/2013 74.97
2011-09 10/01/2012 75.78
2010-09 04/01/2012 79.17
2010-09 03/01/2012 77.38
2010-09 02/01/2012 77.36
2009-09 09/20/2011 85.26
 
CN 1.0
2009-09 06/01/2011 74.37

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 13-3349872
Name in IRS Master File HUNTINGTONS DISEASE SOCIETY OF AMERICA INC
NTEE Code [Not Provided by IRS]
NTEE Classification [Not Provided by IRS]
NTEE Type [Not Provided by IRS]
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (179) Other health services
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Central - the organization is a parent (group ruling) and is not a church or 501(c)(1) organization.
Group Name HUNTINGTONS DISEASE SOCIETY OF AMERICA INC
Ruling Date February, 1988
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2015
  • December, 2014
  • December, 2013
  • December, 2012
  • December, 2011

The data displayed in this profile is provided by the IRS for free in the form of Publication 78 and the Business Master File (BMF).

We invite you to share your opinions, thoughts, experiences, and stories about this charity here to help inform the decisions of other donors.  
Need more help getting started? Check out our FAQs.
 
This tool is not for questions about Charity Navigator, such as how we derived this charity’s rating. We will happily answer those questions if you contact us directly. Likewise, if you have questions for this charity, then we encourage you to contact the charity directly (we include the charity’s contact information in the upper left-hand corner of this page) since few charities regularly monitor this commenting tool.

Compensation % of Expenses Paid to Title
$251,957 3.58% Louise Vetter Chief Executive Officer

The Huntington's Disease Society of America (HDSA) is a national, voluntary health organization dedicated to improving the lives of people with Huntington's Disease and their families. Founded in 1967, HDSA promotes and supports research and medical efforts to eradicate Huntington's Disease; assists people and families affected by Huntington's Disease to cope with the problems presented by the disease; and educates the public and health professionals about Huntington's Disease. Huntington's Disease (HD) is a devastating, hereditary, degenerative brain disorder for which there is, at present, no effective treatment or cure. HD slowly diminishes the affected individual's ability to walk, think, talk and reason.

Highly Rated

Charity Name & State Overall Score Overall Rating
Huntington's Disease Society of America (NY) 91.37
Dan Marino Foundation (FL) 92.68
Scleroderma Foundation (MA) 98.14
Crohn's & Colitis Foundation of America (NY) 87.25
Tuberous Sclerosis Alliance (MD) 87.24

Compare These Charities (Highly Rated)

This charity has an official representative registered with Charity Navigator.

Charity Contact Info

Huntington's Disease Society of America
505 Eighth Avenue
Suite 902
New York, NY 10018
tel: (212) 242-1968
fax: (212) 239-3430
EIN: 13-3349872

Visit Web Site

Board Leadership

Jang-Ho Cha
Chairman

CEO

Louise Vetter
Chief Executive Officer

[ X ]

Did You Know We Are a Charity, Too?

If even a third of the 7 million people who visited our site last year had donated a dollar to Charity Navigator, we would comfortably meet our annual budget and be able to do what so many of you ask us to do every day--rate more charities!

With the support of users like you, we are currently investing in staff and technology. This will allow us to improve the search and organizational features of our site, making it easier to find the information that matters most to you. We will also continue to enhance our evaluation system and metrics.

So, whether you're a first time visitor or a long time user, we ask for your help in achieving our goal. Your gift of any size is most deeply appreciated! Thank You!

With the support of users like you, we are making it easier to find the info that matters most. Thank you!

Join Our Mailing List

Join over 400,000 other informed givers and get updates on charity ratings, new features, hot topics, and tips for donating.

Help & Support