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Health : Medical Research

Hereditary Disease Foundation

Innovating research, discovering cures.

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Impact Information is available from our partner, GuideStar

four stars

94.62

601 West 168th Street Suite 54
New York, NY 10032
tel: (212) 928-2121   Web Site
EIN: 23-7376197

Board Leadership
David Zwally
Chairman of the Board

CEO
Meghan Donaldson
CEO

  Score
(out of 100)
Rating
Overall Score & Rating 94.62 four stars
  Financial 93.54 four stars
  Accountability & Transparency 96.00 four stars
This rating was published 12/01/2018 and includes data from FY2017, the most recent 990 received at that time.

The Hereditary Disease Foundation is committed to finding and funding innovative research to cure Huntington's disease and impact other brain disorders. The Foundation focuses on curing Huntington's disease, not only because of its devastating consequences to individuals and families with the disease, but because it is a model for curing other brain disorders.

The Hereditary Disease Foundation is committed to finding and funding innovative research to cure Huntington's disease and impact other brain disorders. The Foundation focuses on curing Huntington's disease, not only because of its devastating consequences to individuals and families with the disease, but because it is a model for curing other brain disorders.

Impact Information

GuideStar is Charity Navigator's trusted partner in sharing information on how this organization seeks impact.  GuideStar has recognized this organization with a Platinum Seal of Transparency for voluntarily and publicly sharing information about how they measure their progress and results.  Learn More about Impact Information.
Reported Results
Showing 3 of 5
Total in 2017
Number of attendees present at rallies/events
247
Number of organizational partners
13
Number of list subscribers
10,026
Number of overall donors
159
Number of research studies funded
21
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This impact information is current as of October 2018, when it was provided to us by GuideStar. At this time, Impact information published on this organization's page has no effect on its rating per our methodology.

Financial

four stars

93.54

Accountability & Transparency

four stars

96.00

This rating was published 12/01/2018 and includes data from FY2017, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
79.9%
  Administrative Expenses 14.7%
  Fundraising Expenses 5.3%
  Fundraising Efficiency $0.07
  Working Capital Ratio (years) 0.90
  Program Expenses Growth 17.9%
  Liabilities to Assets 11.8%
All data for Financial Performance Metrics calculations was provided by Hereditary Disease Foundation on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Hereditary Disease Foundation on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
Hereditary Disease Foundation (NY) 94.62 four stars
Oklahoma Medical Research Foundation (OK) 93.94 four stars
McLaughlin Research Institute for Biomedical Sciences (MT) 91.18 four stars
Salk Institute for Biological Studies (CA) 91.35 four stars
International AIDS Vaccine Initiative (NY) 92.38 four stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $341,815
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $405,562
   Related Organizations $0
   Government Grants $0
Total Contributions $747,377
   Program Service Revenue $0
Total Primary Revenue $747,377
   Other Revenue $326,892
TOTAL REVENUE $1,074,269
   
EXPENSES  
   Program Expenses $2,207,796
   Administrative Expenses $223,352
   Fundraising Expenses $116,470
TOTAL FUNCTIONAL EXPENSES $2,547,618
   
Payments to Affiliates $0
Excess (or Deficit) for the year $-1,473,349
   
Net Assets $10,472,245

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Research $2,207,796 100.0%

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2017-12 12/01/2018 94.62 four stars
2016-12 11/01/2017 86.99 three stars
2015-12 06/01/2017 81.28 three stars
2015-12 03/01/2017 75.10 two stars
2014-12 06/01/2016 71.27 two stars
 
CN 2.0
2014-12 12/22/2015 70.35 two stars
2013-12 02/01/2015 69.72 one star

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 23-7376197
Name in IRS Master File HEREDITARY DISEASE FOUNDATION
NTEE Code H20
NTEE Classification Birth Defects, Genetic Diseases Research
NTEE Type Medical Research
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (161) Scientific research (diseases)
(162) Other medical research
(994) Described in section 170(b)1)(a)(vi) of the Code
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date June, 1974
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2016
  • December, 2015
  • December, 2014
  • December, 2013
  • December, 2012

The data displayed in this profile is provided by the IRS for free in the form of Publication 78 and the Business Master File (BMF).

Compensation % of Expenses Paid to Title
$99,211 3.89% Meghan Donaldson Chief Executive Officer

Highly Rated

Charity Name & State Overall Score Overall Rating
Hereditary Disease Foundation (NY) 94.62 four stars
LuMind Research Down Syndrome Foundation (MA) 89.02 three stars
Oklahoma Medical Research Foundation (OK) 93.94 four stars
The Scripps Research Institute (CA) 89.86 three stars
American Federation for Aging Research (NY) 92.92 four stars

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This charity has an official representative registered with Charity Navigator.

Charity Contact Info

Hereditary Disease Foundation
601 West 168th Street
Suite 54
New York, NY 10032
tel: (212) 928-2121
fax: (212) 928-2172
EIN: 23-7376197

Visit Web Site

Board Leadership

David Zwally
Chairman of the Board

CEO

Meghan Donaldson
CEO

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