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Health : Diseases, Disorders, and Disciplines

MDS Foundation

MDS is a bone marrow failure disorder

three stars

88.22

4573 South Broad Street Suite 150
Yardville, NJ 08620
tel: (800) 637-0839   Web Site
EIN: 22-3283911

Board Leadership
Stephen D. Nimer
Chairman

CEO
Tracey Iraca
Executive Director

  Score
(out of 100)
Rating
Overall Score & Rating 88.22 three stars
  Financial 87.50 three stars
  Accountability & Transparency 89.00 three stars
This rating was published 11/01/2018 and includes data from FY2017, the most recent 990 received at that time.

The Myelodysplastic Syndromes Foundation (MDS Foundation) was established by an international group of physicians and researchers to provide an ongoing exchange of information relating to MDS. A major MDS Foundation effort is our international information network. This network provides patients with referrals to Centers of Excellence, contact names for available clinical trials, sharing of new research and treatment options between physicians, and extension of educational support to physicians, nurses, pharmacists and patients. In response to the needs expressed by patients, families, and healthcare professionals, we have established patient advocacy groups, research funding, and professional educational initiatives.

The Myelodysplastic Syndromes Foundation (MDS Foundation) was established by an international group of physicians and researchers to provide an ongoing exchange of information relating to MDS. A major MDS Foundation effort is our international information network. This network provides patients with referrals to Centers of Excellence, contact names for available clinical trials, sharing of new research and treatment options between physicians, and extension of educational support to physicians, nurses, pharmacists and patients. In response to the needs expressed by patients, families, and healthcare professionals, we have established patient advocacy groups, research funding, and professional educational initiatives.

Financial

three stars

87.50

Accountability & Transparency

three stars

89.00

This rating was published 11/01/2018 and includes data from FY2017, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
88.2%
  Administrative Expenses 8.0%
  Fundraising Expenses 3.6%
  Fundraising Efficiency $0.05
  Working Capital Ratio (years) 0.33
  Program Expenses Growth 37.6%
  Liabilities to Assets 62.5%
All data for Financial Performance Metrics calculations was provided by MDS Foundation on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by MDS Foundation on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
MDS Foundation (NJ) 88.22 three stars
National Alopecia Areata Foundation (CA) 93.29 four stars
Jeffrey Modell Foundation (NY) 95.08 four stars
The Glaucoma Foundation (NY) 87.48 three stars
National MPS Society (NC) 96.89 four stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $2,372,095
   Federated Campaigns $0
   Membership Dues $72,474
   Fundraising Events $0
   Related Organizations $0
   Government Grants $0
Total Contributions $2,444,569
   Program Service Revenue $1,454,707
Total Primary Revenue $3,899,276
   Other Revenue $1,940
TOTAL REVENUE $3,901,216
   
EXPENSES  
   Program Expenses $2,972,953
   Administrative Expenses $216,931
   Fundraising Expenses $131,532
TOTAL FUNCTIONAL EXPENSES $3,321,416
   
Payments to Affiliates $0
Excess (or Deficit) for the year $579,800
   
Net Assets $801,018

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Research Grants $1,343,395 45.2%
Educational Symposia and Bi-Annual Conference $1,222,964 41.1%
Patient Advocacy Outreach Initiatives $406,594 13.7%

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2017-12 11/01/2018 88.22 three stars
2016-12 02/01/2018 81.91 three stars
2015-12 12/01/2016 88.14 three stars
2014-12 06/01/2016 85.28 three stars
 
CN 2.0
2014-12 02/01/2016 84.59 three stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 22-3283911
Name in IRS Master File MYELODYSPLASTIC SYNDROMES FOUNDATION
NTEE Code G30
NTEE Classification Cancer
NTEE Type Diseases, Disorders, Medical Disciplines
Classification Educational Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (995) Described in section 509(a)(2) of the Code
(123) Discussion groups, forums, panels lectures, etc.
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date April, 2000
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2016
  • December, 2015
  • December, 2014
  • December, 2013
  • December, 2012

The data displayed in this profile is provided by the IRS for free in the form of Publication 78 and the Business Master File (BMF).

Compensation % of Expenses Paid to Title
$85,467 2.57% Tracey Iraca Executive Director

Highly Rated

Charity Name & State Overall Score Overall Rating
MDS Foundation (NJ) 88.22 three stars
National Hemophilia Foundation (NY) 95.33 four stars
American Thyroid Association (VA) 97.17 four stars
Massachusetts Down Syndrome Congress (MA) 89.75 three stars
Organization for Autism Research (VA) 95.05 four stars

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Charity Contact Info

MDS Foundation
4573 South Broad Street
Suite 150
Yardville, NJ 08620
tel: (800) 637-0839
fax: (609) 298-0590
EIN: 22-3283911

Visit Web Site

Board Leadership

Stephen D. Nimer
Chairman

CEO

Tracey Iraca
Executive Director

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