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Health : Diseases, Disorders, and Disciplines

MDS Foundation

MDS is a bone marrow failure disorder

three stars

88.14

4573 South Broad Street Suite 150
Yardville, NJ 08620
tel: (800) 637-0839   Web Site
EIN: 22-3283911

Board Leadership
Stephen D. Nimer
Chairman

CEO
Susan Hogan
Director of Operations

  Score
(out of 100)
Rating
Overall Score & Rating 88.14 three stars
  Financial 87.35 three stars
  Accountability & Transparency 89.00 three stars
This rating was published 12/01/2016 and includes data from FY2015, the most recent 990 received at that time.

Learn more about how we calculate the overall score and rating.

Financial

three stars

87.35

Accountability & Transparency

three stars

89.00

This rating was published 12/01/2016 and includes data from FY2015, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
84.5%
  Administrative Expenses 12.1%
  Fundraising Expenses 3.3%
  Fundraising Efficiency $0.04
  Working Capital Ratio (years) 0.24
  Program Expenses Growth 48.2%
  Liabilities to Assets 34.0%
All data for Financial Performance Metrics calculations was provided by MDS Foundation on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by MDS Foundation on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
MDS Foundation (NJ) 88.14 three stars
International OCD Foundation (MA) 85.40 three stars
Glaucoma Research Foundation (CA) 91.98 four stars
Angiogenesis Foundation (MA) 92.92 four stars
Asthma and Allergy Foundation of America (MD) 88.60 three stars

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The Myelodysplastic Syndromes Foundation (MDS Foundation) was established by an international group of physicians and researchers to provide an ongoing exchange of information relating to MDS. A major MDS Foundation effort is our international information network. This network provides patients with referrals to Centers of Excellence, contact names for available clinical trials, sharing of new research and treatment options between physicians, and extension of educational support to physicians, nurses, pharmacists and patients. In response to the needs expressed by patients, families, and healthcare professionals, we have established patient advocacy groups, research funding, and professional educational initiatives.

REVENUE  
Contributions  
   Contributions, Gifts & Grants $1,354,645
   Federated Campaigns $0
   Membership Dues $56,779
   Fundraising Events $0
   Related Organizations $0
   Government Grants $0
Total Contributions $1,411,424
   Program Service Revenue $1,276,277
Total Primary Revenue $2,687,701
   Other Revenue $927
TOTAL REVENUE $2,688,628
   
EXPENSES  
   Program Expenses $2,558,331
   Administrative Expenses $192,963
   Fundraising Expenses $59,605
TOTAL FUNCTIONAL EXPENSES $2,810,899
   
Payments to Affiliates $0
Excess (or Deficit) for the year $-122,271
   
Net Assets $435,053

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Educational Symposia and Bi-Annual Conference $1,518,432 59.4%
Patient Advocacy Outreach Initiatives $530,875 20.8%
Research Grants $509,024 19.9%

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2015-12 12/01/2016 88.14 three stars
2014-12 06/01/2016 85.28 three stars
 
CN 2.0
2014-12 02/01/2016 84.59 three stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 22-3283911
Name in IRS Master File MYELODYSPLASTIC SYNDROMES FOUNDATION
NTEE Code G30
NTEE Classification Cancer
NTEE Type Diseases, Disorders, Medical Disciplines
Classification Educational Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (995) Described in section 509(a)(2) of the Code
(123) Discussion groups, forums, panels lectures, etc.
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date April, 2000
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2015
  • December, 2014
  • December, 2013
  • December, 2012
  • December, 2011

The data displayed in this profile is provided by the IRS for free in the form of Publication 78 and the Business Master File (BMF).

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Compensation % of Expenses Paid to Title
$85,614 3.04% Susan Hogan Operating Director

The Myelodysplastic Syndromes Foundation (MDS Foundation) was established by an international group of physicians and researchers to provide an ongoing exchange of information relating to MDS. A major MDS Foundation effort is our international information network. This network provides patients with referrals to Centers of Excellence, contact names for available clinical trials, sharing of new research and treatment options between physicians, and extension of educational support to physicians, nurses, pharmacists and patients. In response to the needs expressed by patients, families, and healthcare professionals, we have established patient advocacy groups, research funding, and professional educational initiatives.

Highly Rated

Charity Name & State Overall Score Overall Rating
MDS Foundation (NJ) 88.14 three stars
Angiogenesis Foundation (MA) 92.92 four stars
Dan Marino Foundation (FL) 92.24 four stars
Huntington's Disease Society of America (NY) 91.37 four stars
National Psoriasis Foundation (OR) 91.62 four stars

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Charity Contact Info

MDS Foundation
4573 South Broad Street
Suite 150
Yardville, NJ 08620
tel: (800) 637-0839
fax: (609) 298-0590
EIN: 22-3283911

Visit Web Site

Board Leadership

Stephen D. Nimer
Chairman

CEO

Susan Hogan
Director of Operations

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