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Health : Diseases, Disorders, and Disciplines

MDS Foundation

MDS is a bone marrow failure disorder

four stars

91.45

4573 South Broad Street Suite 150
Yardville, NJ 08620
tel: (800) 637-0839   Web Site
EIN: 22-3283911

Board Leadership
Stephen D. Nimer
Chairman

CEO
Tracey Iraca
Executive Director

  Score
(out of 100)
Rating
Overall Score & Rating 91.45 four stars
  Financial 95.00 four stars
  Accountability & Transparency 89.00 three stars
This rating was published 06/01/2021 and includes data from FY2019, the most recent 990 received at that time.

The Myelodysplastic Syndromes Foundation (MDS Foundation) was established by an international group of physicians and researchers to provide an ongoing exchange of information relating to MDS. A major MDS Foundation effort is our international information network. This network provides patients with referrals to Centers of Excellence, contact names for available clinical trials, sharing of new research and treatment options between physicians, and extension of educational support to physicians, nurses, pharmacists and patients. In response to the needs expressed by patients, families, and healthcare professionals, we have established patient advocacy groups, research funding, and professional educational initiatives.

The Myelodysplastic Syndromes Foundation (MDS Foundation) was established by an international group of physicians and researchers to provide an ongoing exchange of information relating to MDS. A major MDS Foundation effort is our international information network. This network provides patients with referrals to Centers of Excellence, contact names for available clinical trials, sharing of new research and treatment options between physicians, and extension of educational support to physicians, nurses, pharmacists and patients. In response to the needs expressed by patients, families, and healthcare professionals, we have established patient advocacy groups, research funding, and professional educational initiatives.

Financial

four stars

95.00

Accountability & Transparency

three stars

89.00

This rating was published 06/01/2021 and includes data from FY2019, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
86.5%
  Administrative Expenses 8.0%
  Fundraising Expenses 5.3%
  Fundraising Efficiency $0.06
  Working Capital Ratio (years) 0.72
  Program Expenses Growth 34.3%
  Liabilities to Assets 15.6%
All data for Financial Performance Metrics calculations was provided by MDS Foundation on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by MDS Foundation on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
MDS Foundation (NJ) 91.45 four stars
National Foundation for Infectious Diseases (MD) 92.60 four stars
National Brain Tumor Society (MA) 94.08 four stars
National Headache Foundation (IL) 86.48 three stars
The Glaucoma Foundation (NY) 92.33 four stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $1,561,023
   Federated Campaigns $0
   Membership Dues $72,641
   Fundraising Events $203,685
   Related Organizations $0
   Government Grants $0
Total Contributions $1,837,349
   Program Service Revenue $1,087,949
Total Primary Revenue $2,925,298
   Other Revenue $-15,275
TOTAL REVENUE $2,910,023
   
EXPENSES  
   Program Expenses $2,139,650
   Administrative Expenses $132,430
   Fundraising Expenses $103,379
TOTAL FUNCTIONAL EXPENSES $2,375,459
   
Payments to Affiliates $0
Excess (or Deficit) for the year $534,564
   
Net Assets $1,665,436

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Educational Symposia and Bi-Annual Conference $1,111,786 52.0%
Patient Advocacy Outreach Initiatives $600,075 28.0%
Research Grants $427,789 20.0%

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2019-12 06/01/2021 91.45 four stars
2018-12 12/01/2019 87.94 three stars
2017-12 11/01/2018 88.22 three stars
2016-12 02/01/2018 81.91 three stars
2015-12 12/01/2016 88.14 three stars
2014-12 06/01/2016 85.28 three stars
 
CN 2.0
2014-12 02/01/2016 84.59 three stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 22-3283911
Name in IRS Master File MYELODYSPLASTIC SYNDROMES FOUNDATION
NTEE Code G30
NTEE Classification Cancer
NTEE Type Diseases, Disorders, Medical Disciplines
Classification Educational Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (995) Described in section 509(a)(2) of the Code
(123) Discussion groups, forums, panels lectures, etc.
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date April, 2000
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2017
  • December, 2016
  • December, 2015
  • December, 2014
  • December, 2013
Compensation % of Expenses Paid to Title
$96,377 4.05% Tracey Iraca Executive Director

Highly Rated

Charity Name & State Overall Score Overall Rating
MDS Foundation (NJ) 91.45 four stars
The Glaucoma Foundation (NY) 92.33 four stars
Massachusetts Down Syndrome Congress (MA) 91.18 four stars
American Autoimmune Related Diseases Association (MI) 99.11 four stars
National Headache Foundation (IL) 86.48 three stars

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Charity Contact Info

MDS Foundation
4573 South Broad Street
Suite 150
Yardville, NJ 08620
tel: (800) 637-0839
fax: (609) 298-0590
EIN: 22-3283911

Visit Web Site

Board Leadership

Stephen D. Nimer
Chairman

CEO

Tracey Iraca
Executive Director

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