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Health : Medical Research

LuMind IDSC Down Syndrome Foundation

Responsive research and resources for the Down syndrome community

three stars

86.98

20 Mall Road Suite 200
Burlington, MA 01803
tel: (781) 825-1300   Web Site
EIN: 37-1483975

Board Leadership
Michael J. Mannor
Board Chair

CEO
Hampus Hillerstrom
President, CEO

  Score
(out of 100)
Rating
Overall Score & Rating 86.98 three stars
  Financial 82.03 three stars
  Accountability & Transparency 96.00 four stars
This rating was published 05/01/2021 and includes data from FY2019, the most recent 990 received at that time.

We accelerate research to increase availability of therapeutic, diagnostic, and medical care options and we empower families through education, connections, and support.

We envision a world where every person with Down syndrome thrives with improved health, independence, and opportunities to reach their fullest potential.

We accelerate research to increase availability of therapeutic, diagnostic, and medical care options and we empower families through education, connections, and support.

We envision a world where every person with Down syndrome thrives with improved health, independence, and opportunities to reach their fullest potential.

Financial

three stars

82.03

Accountability & Transparency

four stars

96.00

This rating was published 05/01/2021 and includes data from FY2019, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
80.1%
  Administrative Expenses 6.4%
  Fundraising Expenses 13.4%
  Fundraising Efficiency $0.13
  Working Capital Ratio (years) 0.52
  Program Expenses Growth 6.4%
  Liabilities to Assets 59.5%
All data for Financial Performance Metrics calculations was provided by LuMind IDSC Down Syndrome Foundation on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by LuMind IDSC Down Syndrome Foundation on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
LuMind IDSC Down Syndrome Foundation (MA) 86.98 three stars
Foundation for the National Institutes of Health (MD) 91.16 four stars
Salk Institute for Biological Studies (CA) 93.03 four stars
Oklahoma Medical Research Foundation (OK) 97.89 four stars
Hereditary Disease Foundation (NY) 92.58 four stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $3,589,169
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $0
   Related Organizations $0
   Government Grants $0
Total Contributions $3,589,169
   Program Service Revenue $0
Total Primary Revenue $3,589,169
   Other Revenue $243,358
TOTAL REVENUE $3,832,527
   
EXPENSES  
   Program Expenses $2,753,711
   Administrative Expenses $216,431
   Fundraising Expenses $515,136
TOTAL FUNCTIONAL EXPENSES $3,485,278
   
Payments to Affiliates $0
Excess (or Deficit) for the year $347,249
   
Net Assets $1,548,117

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Support Medical Research $907,676 33.0%
Community Engagement Program $877,206 31.9%
Film Project $400,000 14.5%

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2019-09 05/01/2021 86.98 three stars
2018-09 03/01/2021 81.16 three stars
2018-09 03/01/2020 80.33 three stars
2017-09 03/01/2019 85.38 three stars
2016-09 03/01/2018 89.02 three stars
2015-09 10/01/2016 89.86 three stars
2014-09 06/01/2016 88.05 three stars
 
CN 2.0
2014-09 03/01/2016 89.84 three stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 37-1483975
Name in IRS Master File LUMIND IDSC FOUNDATION
NTEE Code G25
NTEE Classification Down Syndrome
NTEE Type Diseases, Disorders, Medical Disciplines
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date March, 2004
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End September
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • September, 2018
  • September, 2017
  • September, 2016
  • September, 2015
  • September, 2014
Compensation % of Expenses Paid to Title
$331,908 9.52% Hampus Hillerstrom President, CEO

Highly Rated

Charity Name & State Overall Score Overall Rating
LuMind IDSC Down Syndrome Foundation (MA) 86.98 three stars
The Scripps Research Institute (CA) 93.86 four stars
Oklahoma Medical Research Foundation (OK) 97.89 four stars
Foundation for the National Institutes of Health (MD) 91.16 four stars
American Federation for Aging Research (NY) 97.60 four stars

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This charity has an official representative registered with Charity Navigator.

Charity Contact Info

LuMind IDSC Down Syndrome Foundation
20 Mall Road
Suite 200
Burlington, MA 01803
tel: (781) 825-1300
EIN: 37-1483975

Visit Web Site

Board Leadership

Michael J. Mannor
Board Chair

CEO

Hampus Hillerstrom
President, CEO

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