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Health : Medical Research

LuMind Research Down Syndrome Foundation

Research Down Syndrome

three stars

80.33

225 Cedar Hill Street Suite 200
Marlborough, MA 01752
tel: (508) 630-2177   Web Site
EIN: 37-1483975

Board Leadership
Ryan M. Hartman
Chair

CEO
Hampus Hillerstrom
President, CEO

  Score
(out of 100)
Rating
Overall Score & Rating 80.33 three stars
  Financial 73.36 two stars
  Accountability & Transparency 92.00 four stars
This rating was published 03/01/2020 and includes data from FY2018, the most recent 990 received at that time.

The mission of the LuMind Research Down Syndrome Foundation is to stimulate biomedical research that will accelerate the development of treatments to significantly improve cognition, including memory, learning and speech, for individuals with Down syndrome. This will allow individuals with Down syndrome to participate more successfully in school, lead to more active and independent lives, as well as avoid the early onset Alzheimer's Disease. LuMind only supports research that focuses on understanding and improving cognition. Moreover, LuMind only supports researchers and institutions that are committed to seeing their basic research translated into effective treatments. In order to increase the likelihood of a breakthrough in the treatment of Down syndrome, LuMind supports multi-disciplinary research, and encourages frequent collaboration among scientists in different fields and at different research institutions.

The mission of the LuMind Research Down Syndrome Foundation is to stimulate biomedical research that will accelerate the development of treatments to significantly improve cognition, including memory, learning and speech, for individuals with Down syndrome. This will allow individuals with Down syndrome to participate more successfully in school, lead to more active and independent lives, as well as avoid the early onset Alzheimer's Disease. LuMind only supports research that focuses on understanding and improving cognition. Moreover, LuMind only supports researchers and institutions that are committed to seeing their basic research translated into effective treatments. In order to increase the likelihood of a breakthrough in the treatment of Down syndrome, LuMind supports multi-disciplinary research, and encourages frequent collaboration among scientists in different fields and at different research institutions.

Impact Information

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Financial

two stars

73.36

Accountability & Transparency

four stars

92.00

This rating was published 03/01/2020 and includes data from FY2018, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
83.2%
  Administrative Expenses 5.0%
  Fundraising Expenses 11.6%
  Fundraising Efficiency $0.14
  Working Capital Ratio (years) 0.45
  Program Expenses Growth -0.6%
  Liabilities to Assets 61.0%
All data for Financial Performance Metrics calculations was provided by LuMind Research Down Syndrome Foundation on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by LuMind Research Down Syndrome Foundation on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
LuMind Research Down Syndrome Foundation (MA) 80.33 three stars
American Federation for Aging Research (NY) 97.60 four stars
International AIDS Vaccine Initiative (NY) 91.12 four stars
Foundation for the National Institutes of Health (MD) 91.16 four stars
The Jackson Laboratory (ME) 96.53 four stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $3,250,636
   Federated Campaigns $10,444
   Membership Dues $0
   Fundraising Events $0
   Related Organizations $0
   Government Grants $0
Total Contributions $3,261,080
   Program Service Revenue $0
Total Primary Revenue $3,261,080
   Other Revenue $343,478
TOTAL REVENUE $3,604,558
   
EXPENSES  
   Program Expenses $2,040,992
   Administrative Expenses $194,998
   Fundraising Expenses $361,439
TOTAL FUNCTIONAL EXPENSES $2,597,429
   
Payments to Affiliates $0
Excess (or Deficit) for the year $1,007,129
   
Net Assets $1,200,869

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Other Grants and Support $1,095,992 53.7%
Support Medical Research $825,000 40.4%
Grant to University of Connecticut $120,000 5.9%

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2018-09 03/01/2020 80.33 three stars
2017-09 03/01/2019 85.38 three stars
2016-09 03/01/2018 89.02 three stars
2015-09 10/01/2016 89.86 three stars
2014-09 06/01/2016 88.05 three stars
 
CN 2.0
2014-09 03/01/2016 89.84 three stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 37-1483975
Name in IRS Master File LUMIND IDSC FOUNDATION
NTEE Code G25
NTEE Classification Down Syndrome
NTEE Type Diseases, Disorders, Medical Disciplines
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date March, 2004
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End September
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • September, 2018
  • September, 2017
  • September, 2016
  • September, 2015
  • September, 2014
Compensation % of Expenses Paid to Title
$90,988 3.50% Hampus Hillerstrom President, CEO
Other Salaries of Note
$147,375 5.67% Michael M. Harpold Former Chief Scientific Officer

Highly Rated

Charity Name & State Overall Score Overall Rating
LuMind Research Down Syndrome Foundation (MA) 80.33 three stars
Salk Institute for Biological Studies (CA) 92.82 four stars
The Scripps Research Institute (CA) 90.59 four stars
The Jackson Laboratory (ME) 96.53 four stars
Oklahoma Medical Research Foundation (OK) 98.11 four stars

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This charity has an official representative registered with Charity Navigator.

Charity Contact Info

LuMind Research Down Syndrome Foundation
225 Cedar Hill Street
Suite 200
Marlborough, MA 01752
tel: (508) 630-2177
fax: (508) 630-2101
EIN: 37-1483975

Visit Web Site

Board Leadership

Ryan M. Hartman
Chair

CEO

Hampus Hillerstrom
President, CEO

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