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Health : Medical Research

Chordoma Foundation

Accelerating the search for a cure

four stars

91.47

2520 Meridian Parkway Suite 480
Durham, NC 27713
tel: (919) 809-6779   Web Site
EIN: 20-8423943

Board Leadership
Andrew Schoelkopf
Chair

CEO
Josh Sommer
Executive Director

  Score
(out of 100)
Rating
Overall Score & Rating 91.47 four stars
  Financial 87.94 three stars
  Accountability & Transparency 100.00 four stars
This rating was published 12/01/2018 and includes data from FY2017, the most recent 990 received at that time.

The Chordoma Foundation, founded in 2007, is a nonprofit organization working to improve the lives of chordoma patients by accelerating research to develop effective treatments for chordoma, and by helping patients to get the best care possible. To accelerate the search for a cure, we initiate and fund high-impact research, facilitate information exchange and collaboration among researchers, and provide scientific resources needed to study chordoma. To help patients get the best care possible, we provide information about the latest treatment options, refer patients to experienced doctors, and match patients with trained peer-support mentors.

The Chordoma Foundation, founded in 2007, is a nonprofit organization working to improve the lives of chordoma patients by accelerating research to develop effective treatments for chordoma, and by helping patients to get the best care possible. To accelerate the search for a cure, we initiate and fund high-impact research, facilitate information exchange and collaboration among researchers, and provide scientific resources needed to study chordoma. To help patients get the best care possible, we provide information about the latest treatment options, refer patients to experienced doctors, and match patients with trained peer-support mentors.

Financial

three stars

87.94

Accountability & Transparency

four stars

100.00

This rating was published 12/01/2018 and includes data from FY2017, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
77.8%
  Administrative Expenses 6.3%
  Fundraising Expenses 15.7%
  Fundraising Efficiency $0.13
  Working Capital Ratio (years) 1.53
  Program Expenses Growth 20.6%
  Liabilities to Assets 29.0%
All data for Financial Performance Metrics calculations was provided by Chordoma Foundation on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Chordoma Foundation on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
Chordoma Foundation (NC) 91.47 four stars
Prevent Cancer Foundation (VA) 91.24 four stars
CURE Childhood Cancer (GA) 90.58 four stars
Alex's Lemonade Stand Foundation (PA) 97.40 four stars
Dana-Farber Cancer Institute (MA) 92.74 four stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $2,013,420
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $0
   Related Organizations $0
   Government Grants $0
Total Contributions $2,013,420
   Program Service Revenue $4,345
Total Primary Revenue $2,017,765
   Other Revenue $58,507
TOTAL REVENUE $2,076,272
   
EXPENSES  
   Program Expenses $2,206,803
   Administrative Expenses $202,092
   Fundraising Expenses $510,740
TOTAL FUNCTIONAL EXPENSES $2,919,635
   
Payments to Affiliates $0
Excess (or Deficit) for the year $-843,363
   
Net Assets $3,434,983

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Research $1,881,386 85.3%
Patient Services $325,417 14.7%

Ratings History
Chordoma Foundation has received 4 consecutive 4-star ratings from Charity Navigator.

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2017-12 12/01/2018 91.47 four stars
2016-12 02/01/2018 91.57 four stars
2015-12 04/01/2017 90.60 four stars
2014-12 12/21/2016 90.64 four stars
2014-12 09/01/2016 90.22 four stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 20-8423943
Name in IRS Master File CHORDOMA FOUNDATION
NTEE Code H30
NTEE Classification Cancer Research
NTEE Type Medical Research
Classification Scientific Organization
Subsection 501(c)(3)  (View the list of codes)
Activities
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date October, 2007
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2016
  • December, 2015
  • December, 2014
  • December, 2013
  • December, 2012

The data displayed in this profile is provided by the IRS for free in the form of Publication 78 and the Business Master File (BMF).

Compensation % of Expenses Paid to Title
$119,636 4.09% Josh Sommer President

Highly Rated

Charity Name & State Overall Score Overall Rating
Chordoma Foundation (NC) 91.47 four stars
Pediatric Cancer Research Foundation (CA) 86.97 three stars
Dana-Farber Cancer Institute (MA) 92.74 four stars
Prevent Cancer Foundation (VA) 91.24 four stars
Minnesota Ovarian Cancer Alliance (MN) 91.58 four stars

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This charity has an official representative registered with Charity Navigator.

Charity Contact Info

Chordoma Foundation
2520 Meridian Parkway
Suite 480
Durham, NC 27713
tel: (919) 809-6779
fax: (866) 367-3910
EIN: 20-8423943

Visit Web Site

Board Leadership

Andrew Schoelkopf
Chair

CEO

Josh Sommer
Executive Director

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