Health : Medical Research

Chordoma Foundation

Accelerating the search for a cure

four stars

91.09

2520 Meridian Parkway Suite 480
Durham, NC 27713
tel: (919) 809-6779   Web Site
EIN: 20-8423943

Board Leadership
David Sandak
Chair

CEO
Josh Sommer
Executive Director

  Score
(out of 100)
Rating
Overall Score & Rating 91.09 four stars
  Financial 87.40 three stars
  Accountability & Transparency 100.00 four stars
This rating was published 03/01/2020 and includes data from FY2018, the most recent 990 received at that time.

The Chordoma Foundation, founded in 2007, is a nonprofit organization working to improve the lives of chordoma patients by accelerating research to develop effective treatments for chordoma, and by helping patients to get the best care possible. To accelerate the search for a cure, we initiate and fund high-impact research, facilitate information exchange and collaboration among researchers, and provide scientific resources needed to study chordoma. To help patients get the best care possible, we provide information about the latest treatment options, refer patients to experienced doctors, and match patients with trained peer-support mentors.

The Chordoma Foundation, founded in 2007, is a nonprofit organization working to improve the lives of chordoma patients by accelerating research to develop effective treatments for chordoma, and by helping patients to get the best care possible. To accelerate the search for a cure, we initiate and fund high-impact research, facilitate information exchange and collaboration among researchers, and provide scientific resources needed to study chordoma. To help patients get the best care possible, we provide information about the latest treatment options, refer patients to experienced doctors, and match patients with trained peer-support mentors.

Impact Information

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Reported Results
Total in 2018
Number of unique website visitors
241,714
Number of clients served
417
This impact information is current as of March 2020, when it was provided to us by GuideStar. At this time, Impact information published on this organization's page has no effect on its rating per our methodology.

Financial

three stars

87.40

Accountability & Transparency

four stars

100.00

This rating was published 03/01/2020 and includes data from FY2018, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
75.9%
  Administrative Expenses 7.8%
  Fundraising Expenses 16.1%
  Fundraising Efficiency $0.14
  Working Capital Ratio (years) 1.37
  Program Expenses Growth 15.0%
  Liabilities to Assets 22.8%
All data for Financial Performance Metrics calculations was provided by Chordoma Foundation on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Chordoma Foundation on recent 990s filed with the IRS.
REVENUE  
Contributions  
   Contributions, Gifts & Grants $2,350,245
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $0
   Related Organizations $0
   Government Grants $0
Total Contributions $2,350,245
   Program Service Revenue $11,150
Total Primary Revenue $2,361,395
   Other Revenue $59,794
TOTAL REVENUE $2,421,189
   
EXPENSES  
   Program Expenses $1,614,312
   Administrative Expenses $285,301
   Fundraising Expenses $439,268
TOTAL FUNCTIONAL EXPENSES $2,338,881
   
Payments to Affiliates $0
Excess (or Deficit) for the year $82,308
   
Net Assets $3,486,695

Charts

Compensation % of Expenses Paid to Title
$99,097 4.23% Josh Sommer President
Other Salaries of Note
$155,977 6.66% Joan Levy Director of Research

Mission

The Chordoma Foundation, founded in 2007, is a nonprofit organization working to improve the lives of chordoma patients by accelerating research to develop effective treatments for chordoma, and by helping patients to get the best care possible. To accelerate the search for a cure, we initiate and fund high-impact research, facilitate information exchange and collaboration among researchers, and provide scientific resources needed to study chordoma. To help patients get the best care possible, we provide information about the latest treatment options, refer patients to experienced doctors, and match patients with trained peer-support mentors.

Highly Rated

Charity Name & State Overall Score Overall Rating
Chordoma Foundation (NC) 91.09 four stars
International Waldenstrom's Macroglobulinemia Foundation (FL) 95.59 four stars
Entertainment Industry Foundation (CA) 94.61 four stars
Mesothelioma Applied Research Foundation (DC) 85.08 three stars
Rally Foundation (GA) 94.74 four stars

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Charity Contact Info

Chordoma Foundation
2520 Meridian Parkway
Suite 480
Durham, NC 27713
tel: (919) 809-6779
fax: (866) 367-3910
EIN: 20-8423943

Visit Web Site

Board Leadership

David Sandak
Chair

CEO

Josh Sommer
Executive Director