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Health : Diseases, Disorders, and Disciplines

The Association for Frontotemporal Degeneration

Opening the gateway to help and a cure

four stars

99.71

290 King Of Prussia Road Building 2, Suite 320
Radnor, PA 19087
tel: (866) 507-7222   Web Site
EIN: 41-2073220

Board Leadership
Gail Andersen
Chair

CEO
Susan L-J Dickinson
Chief Executive Officer

  Score
(out of 100)
Rating
Overall Score & Rating 99.71 four stars
  Financial 99.60 four stars
  Accountability & Transparency 100.00 four stars
This rating was published 03/01/2020 and includes data from FY2019, the most recent 990 received at that time.

The Association for Frontotemporal Degeneration (AFTD) envisions a world where frontotemporal degeneration is understood, effectively diagnosed, treated, cured and ultimately prevented. Our mission is to improve the quality of life of people affected by FTD and drive research to a cure. We work every day to advance research, awareness, support, education, and advocacy. We value knowledge, collaboration, respect, dignity, and compassion. These values are core to our ability to lead a network of caregivers, persons diagnosed, medical professionals and government to forge change that will deliver our mission and achieve our vision.

The Association for Frontotemporal Degeneration (AFTD) envisions a world where frontotemporal degeneration is understood, effectively diagnosed, treated, cured and ultimately prevented. Our mission is to improve the quality of life of people affected by FTD and drive research to a cure. We work every day to advance research, awareness, support, education, and advocacy. We value knowledge, collaboration, respect, dignity, and compassion. These values are core to our ability to lead a network of caregivers, persons diagnosed, medical professionals and government to forge change that will deliver our mission and achieve our vision.

Impact Information

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Financial

four stars

99.60

Accountability & Transparency

four stars

100.00

This rating was published 03/01/2020 and includes data from FY2019, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
83.6%
  Administrative Expenses 6.6%
  Fundraising Expenses 9.7%
  Fundraising Efficiency $0.06
  Working Capital Ratio (years) 3.32
  Program Expenses Growth 38.6%
  Liabilities to Assets 9.6%
All data for Financial Performance Metrics calculations was provided by The Association for Frontotemporal Degeneration on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by The Association for Frontotemporal Degeneration on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
The Association for Frontotemporal Degeneration (PA) 99.71 four stars
Jeffrey Modell Foundation (NY) 97.12 four stars
American Liver Foundation (NY) 86.86 three stars
Crohn's & Colitis Foundation (NY) 88.16 three stars
Immune Deficiency Foundation (MD) 93.68 four stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $7,108,164
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $1,810,899
   Related Organizations $0
   Government Grants $0
Total Contributions $8,919,063
   Program Service Revenue $150,345
Total Primary Revenue $9,069,408
   Other Revenue $72,535
TOTAL REVENUE $9,141,943
   
EXPENSES  
   Program Expenses $5,895,457
   Administrative Expenses $486,634
   Fundraising Expenses $599,743
TOTAL FUNCTIONAL EXPENSES $6,981,834
   
Payments to Affiliates $0
Excess (or Deficit) for the year $2,160,109
   
Net Assets $19,122,906

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Research $4,222,641 71.6%
Education and Support $927,852 15.7%
Advocacy and Awareness $744,964 12.6%

Ratings History
The Association for Frontotemporal Degeneration has received 5 consecutive 4-star ratings from Charity Navigator.

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2019-06 03/01/2020 99.71 four stars
2018-06 05/01/2019 97.82 four stars
2018-06 03/01/2019 94.59 four stars
2017-06 11/01/2018 96.35 four stars
2017-06 05/01/2018 93.85 four stars
2016-06 06/01/2017 94.52 four stars
2015-06 09/01/2016 93.48 four stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 41-2073220
Name in IRS Master File THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION
NTEE Code H12
NTEE Classification Fund Raising and/or Fund Distribution
NTEE Type Medical Research
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date January, 2004
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End June
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • June, 2018
  • June, 2017
  • June, 2016
  • June, 2015
  • June, 2014
Compensation % of Expenses Paid to Title
$182,250 2.61% Susan L-J Dickinson Chief Executive Officer

Highly Rated

Charity Name & State Overall Score Overall Rating
The Association for Frontotemporal Degeneration (PA) 99.71 four stars
California Dental Association Foundation (CA) 87.21 three stars
Tuberous Sclerosis Alliance (MD) 92.95 four stars
National Psoriasis Foundation (OR) 91.44 four stars
The Myositis Association (VA) 97.05 four stars

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This charity has an official representative registered with Charity Navigator.

Charity Contact Info

The Association for Frontotemporal Degeneration
290 King Of Prussia Road
Building 2, Suite 320
Radnor, PA 19087
tel: (866) 507-7222
EIN: 41-2073220

Visit Web Site

Board Leadership

Gail Andersen
Chair

CEO

Susan L-J Dickinson
Chief Executive Officer

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