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Health : Diseases, Disorders, and Disciplines

The Association for Frontotemporal Degeneration

Opening the gateway to help and a cure

four stars

97.82

290 King Of Prussia Road Building 2, Suite 320
Radnor, PA 19087
tel: (866) 507-7222   Web Site
EIN: 41-2073220

Board Leadership
Gail Andersen
Chair

CEO
Susan L-J Dickinson
Executive Director

  Score
(out of 100)
Rating
Overall Score & Rating 97.82 four stars
  Financial 96.92 four stars
  Accountability & Transparency 100.00 four stars
This rating was published 05/01/2019 and includes data from FY2018, the most recent 990 received at that time.

The Association for Frontotemporal Degeneration (AFTD) envisions a world where frontotemporal degeneration is understood, effectively diagnosed, treated, cured and ultimately prevented. Our mission is to improve the quality of life of people affected by FTD and drive research to a cure. We work every day to advance research, awareness, support, education, and advocacy. We value knowledge, collaboration, respect, dignity, and compassion. These values are core to our ability to lead a network of caregivers, persons diagnosed, medical professionals and government to forge change that will deliver our mission and achieve our vision.

The Association for Frontotemporal Degeneration (AFTD) envisions a world where frontotemporal degeneration is understood, effectively diagnosed, treated, cured and ultimately prevented. Our mission is to improve the quality of life of people affected by FTD and drive research to a cure. We work every day to advance research, awareness, support, education, and advocacy. We value knowledge, collaboration, respect, dignity, and compassion. These values are core to our ability to lead a network of caregivers, persons diagnosed, medical professionals and government to forge change that will deliver our mission and achieve our vision.

Impact Information

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Financial

four stars

96.92

Accountability & Transparency

four stars

100.00

This rating was published 05/01/2019 and includes data from FY2018, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
83.0%
  Administrative Expenses 6.3%
  Fundraising Expenses 10.5%
  Fundraising Efficiency $0.05
  Working Capital Ratio (years) 3.89
  Program Expenses Growth 31.5%
  Liabilities to Assets 4.2%
All data for Financial Performance Metrics calculations was provided by The Association for Frontotemporal Degeneration on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by The Association for Frontotemporal Degeneration on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
The Association for Frontotemporal Degeneration (PA) 97.82 four stars
Southwest Autism Research & Resource Center (AZ) 92.02 four stars
Tuberous Sclerosis Alliance (MD) 93.40 four stars
Organization for Autism Research (VA) 95.05 four stars
American Brain Tumor Association (IL) 89.86 three stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $12,816,982
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $1,804,086
   Related Organizations $0
   Government Grants $0
Total Contributions $14,621,068
   Program Service Revenue $186,178
Total Primary Revenue $14,807,246
   Other Revenue $-5,247
TOTAL REVENUE $14,801,999
   
EXPENSES  
   Program Expenses $3,660,353
   Administrative Expenses $420,213
   Fundraising Expenses $529,641
TOTAL FUNCTIONAL EXPENSES $4,610,207
   
Payments to Affiliates $0
Excess (or Deficit) for the year $10,191,792
   
Net Assets $16,798,950

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Research $2,062,268 56.3%
Patient Support $594,502 16.2%
Education, Awareness, and Information $1,003,583 27.4%

Ratings History
The Association for Frontotemporal Degeneration has received 4 consecutive 4-star ratings from Charity Navigator.

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2018-06 05/01/2019 97.82 four stars
2018-06 03/01/2019 94.59 four stars
2017-06 11/01/2018 96.35 four stars
2017-06 05/01/2018 93.85 four stars
2016-06 06/01/2017 94.52 four stars
2015-06 09/01/2016 93.48 four stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 41-2073220
Name in IRS Master File THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION
NTEE Code H12
NTEE Classification Fund Raising and/or Fund Distribution
NTEE Type Medical Research
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date January, 2004
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End June
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • June, 2017
  • June, 2016
  • June, 2015
  • June, 2014
  • June, 2013

The data displayed in this profile is provided by the IRS for free in the form of Publication 78 and the Business Master File (BMF).

Compensation % of Expenses Paid to Title
$142,000 3.08% Susan L-J Dickinson Chief Executive Officer
Other Salaries of Note
$144,450 3.13% Nadine Tatton Scientific Director

Highly Rated

Charity Name & State Overall Score Overall Rating
The Association for Frontotemporal Degeneration (PA) 97.82 four stars
NEXT for AUTISM (NY) 87.68 three stars
Scleroderma Foundation (MA) 96.52 four stars
GBS|CIDP Foundation International (PA) 100.00 four stars
Epilepsy Foundation of Texas (TX) 89.60 three stars

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This charity has an official representative registered with Charity Navigator.

Charity Contact Info

The Association for Frontotemporal Degeneration
290 King Of Prussia Road
Building 2, Suite 320
Radnor, PA 19087
tel: (866) 507-7222
EIN: 41-2073220

Visit Web Site

Board Leadership

Gail Andersen
Chair

CEO

Susan L-J Dickinson
Executive Director

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