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Health : Diseases, Disorders, and Disciplines

Hemophilia Federation of America

Providing assistance to individuals and families in the bleeding disorders community

four stars

94.69

820 First Street NE Suite 720
Washington, DC 20002
tel: (800) 230-9797   Web Site
EIN: 72-1282316

Board Leadership
Josh Hemann
Board President

CEO
Kimberly Haugstad
Executive Director

  Score
(out of 100)
Rating
Overall Score & Rating 94.69 four stars
  Financial 92.50 four stars
  Accountability & Transparency 100.00 four stars
This rating was published 07/01/2020 and includes data from FY2018, the most recent 990 received at that time.

Hemophilia Federation of America is a national nonprofit organization that assists and advocates for the bleeding disorders community. The vision of Hemophilia Federation of America is that the bleeding disorders community has removed all barriers to both choice of treatment and quality of life. HFA member organizations across the country utilize HFA's collaborative federation to strengthen community support and awareness, develop effective local organizations, and implement valuable community-based programs. These programs include a wide range of adult outreach initiatives, as well as broad-based support for families with bleeding disorders / hemophilia.

Hemophilia Federation of America is a national nonprofit organization that assists and advocates for the bleeding disorders community. The vision of Hemophilia Federation of America is that the bleeding disorders community has removed all barriers to both choice of treatment and quality of life. HFA member organizations across the country utilize HFA's collaborative federation to strengthen community support and awareness, develop effective local organizations, and implement valuable community-based programs. These programs include a wide range of adult outreach initiatives, as well as broad-based support for families with bleeding disorders / hemophilia.

Impact Information

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Reported Results
Total in 2019
Number of conference attendees
1,330
Number of independent organizations served
51
This impact information is current as of March 2020, when it was provided to us by GuideStar. At this time, Impact information published on this organization's page has no effect on its rating per our methodology.

Financial

four stars

92.50

Accountability & Transparency

four stars

100.00

This rating was published 07/01/2020 and includes data from FY2018, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
94.4%
  Administrative Expenses 3.5%
  Fundraising Expenses 1.9%
  Fundraising Efficiency < $0.01
  Working Capital Ratio (years) 0.82
  Program Expenses Growth 28.4%
  Liabilities to Assets 39.7%
All data for Financial Performance Metrics calculations was provided by Hemophilia Federation of America on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Hemophilia Federation of America on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
Hemophilia Federation of America (DC) 94.69 four stars
Histiocytosis Association (NJ) 91.16 four stars
National Hemophilia Foundation (NY) 90.04 four stars
American Brain Tumor Association (IL) 90.77 four stars
The Glaucoma Foundation (NY) 86.30 three stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $4,542,980
   Federated Campaigns $0
   Membership Dues $65,685
   Fundraising Events $0
   Related Organizations $0
   Government Grants $433,637
Total Contributions $5,042,302
   Program Service Revenue $0
Total Primary Revenue $5,042,302
   Other Revenue $541,549
TOTAL REVENUE $5,583,851
   
EXPENSES  
   Program Expenses $5,176,458
   Administrative Expenses $156,835
   Fundraising Expenses $113,325
TOTAL FUNCTIONAL EXPENSES $5,446,618
   
Payments to Affiliates $0
Excess (or Deficit) for the year $137,233
   
Net Assets $3,816,274

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Support Programs $1,850,412 35.7%
Patient Education $1,228,939 23.7%
Outreach Services $1,162,438 22.5%

Ratings History
Hemophilia Federation of America has received 3 consecutive 4-star ratings from Charity Navigator.

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2018-12 07/01/2020 94.69 four stars
2017-12 06/01/2019 96.46 four stars
2016-12 04/01/2018 94.69 four stars
2015-12 03/01/2017 88.71 three stars
2014-12 07/01/2016 92.92 four stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 72-1282316
Name in IRS Master File HEMOPHILIA FEDERATION INC
NTEE Code E70
NTEE Classification Public Health Program (Includes General Health and Wellness Promotion
NTEE Type Health - General and Rehabilitative
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date December, 2000
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2017
  • December, 2016
  • December, 2015
  • December, 2014
  • December, 2013
Compensation % of Expenses Paid to Title
$111,203 2.04% Sharon Meyers President & CEO
Other Salaries of Note
$119,659 2.19% Kimberly Haugstad Former President & CEO

Highly Rated

Charity Name & State Overall Score Overall Rating
Hemophilia Federation of America (DC) 94.69 four stars
The Marfan Foundation (NY) 93.43 four stars
National Alopecia Areata Foundation (CA) 91.48 four stars
The Myositis Association (VA) 97.05 four stars
Organization for Autism Research (VA) 94.75 four stars

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This charity has an official representative registered with Charity Navigator.

Charity Contact Info

Hemophilia Federation of America
820 First Street NE
Suite 720
Washington, DC 20002
tel: (800) 230-9797
fax: (972) 616-6211
EIN: 72-1282316

Visit Web Site

Board Leadership

Josh Hemann
Board President

CEO

Kimberly Haugstad
Executive Director

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