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Health : Medical Research (Grantmaking)

Foundation for Prader-Willi Research

Working toward an independent future

four stars

91.29

340 South Lemon Avenue Suite 3620
Walnut, CA 91789
tel: (888) 322-5487   Web Site
EIN: 31-1763110

Board Leadership
Daniel Chorney
President

CEO
John Walter
CEO

  Score
(out of 100)
Rating
Overall Score & Rating 91.29 four stars
  Financial 94.48 four stars
  Accountability & Transparency 89.00 three stars
This rating was published 05/01/2018 and includes data from FY2016, the most recent 990 received at that time.

The mission of Foundation for Prader-Willi Research (FPWR) is to eliminate the challenges of Prader-Willi syndrome through the advancement of research. High-quality research will lead to more effective treatments and an eventual cure for this disorder. By working together, we intend to free our loved ones from the burdens of PWS, allowing them to lead full and independent lives. Prader-Willi syndrome (PWS) is a genetic disorder that occurs in approximately one out of every 15,000 births. PWS affects males and females with equal frequency and affects all races and ethnicities. PWS is recognized as the most common genetic cause of life-threatening childhood obesity.

The mission of Foundation for Prader-Willi Research (FPWR) is to eliminate the challenges of Prader-Willi syndrome through the advancement of research. High-quality research will lead to more effective treatments and an eventual cure for this disorder. By working together, we intend to free our loved ones from the burdens of PWS, allowing them to lead full and independent lives. Prader-Willi syndrome (PWS) is a genetic disorder that occurs in approximately one out of every 15,000 births. PWS affects males and females with equal frequency and affects all races and ethnicities. PWS is recognized as the most common genetic cause of life-threatening childhood obesity.

Financial

four stars

94.48

Accountability & Transparency

three stars

89.00

This rating was published 05/01/2018 and includes data from FY2016, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
83.2%
  Administrative Expenses 8.3%
  Fundraising Expenses 8.4%
  Fundraising Efficiency $0.07
  Working Capital Ratio (years) 1.30
  Program Expenses Growth 28.1%
  Liabilities to Assets 31.1%
All data for Financial Performance Metrics calculations was provided by Foundation for Prader-Willi Research on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Foundation for Prader-Willi Research on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
Foundation for Prader-Willi Research (CA) 91.29 four stars
Ovarian Cancer Research Fund Alliance (NY) 92.54 four stars
Arthritis National Research Foundation (CA) 97.63 four stars
Hope & Heroes Children's Cancer Fund (NY) 89.39 three stars
FRAXA Research Foundation (MA) 92.92 four stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $2,887,700
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $472,278
   Related Organizations $0
   Government Grants $0
Total Contributions $3,359,978
   Program Service Revenue $0
Total Primary Revenue $3,359,978
   Other Revenue $-82,271
TOTAL REVENUE $3,277,707
   
EXPENSES  
   Program Expenses $2,520,058
   Administrative Expenses $225,532
   Fundraising Expenses $356,968
TOTAL FUNCTIONAL EXPENSES $3,102,558
   
Payments to Affiliates $0
Excess (or Deficit) for the year $175,149
   
Net Assets $3,359,426

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Support Research $2,520,058 100.0%

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2016-12 05/01/2018 91.29 four stars
2015-12 10/01/2017 88.78 three stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 31-1763110
Name in IRS Master File FOUNDATION FOR PRADER WILLI RESEARCH
NTEE Code G80
NTEE Classification Specifically Named Diseases
NTEE Type Diseases, Disorders, Medical Disciplines
Classification Educational Organization
Subsection 501(c)(3)  (View the list of codes)
Activities
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date May, 2001
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2016
  • December, 2015
  • December, 2014
  • December, 2013
  • December, 2012

The data displayed in this profile is provided by the IRS for free in the form of Publication 78 and the Business Master File (BMF).

Compensation % of Expenses Paid to Title
$79,167 2.55% Susan Hedstrom Executive Director
Other Salaries of Note
$170,000 5.47% Nathalie Kayadjanian Director Of Translation Research
$103,050 3.32% Hannah Berger Director Of Development

Highly Rated

Charity Name & State Overall Score Overall Rating
Foundation for Prader-Willi Research (CA) 91.29 four stars
Dysautonomia Foundation (NY) 86.64 three stars
Conquer Cancer Foundation of the American Society of Clinical Oncology (VA) 95.85 four stars
Macula Vision Research Foundation (PA) 86.25 three stars
NephCure Kidney International (PA) 87.00 three stars

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Charity Contact Info

Foundation for Prader-Willi Research
340 South Lemon Avenue
Suite 3620
Walnut, CA 91789
tel: (888) 322-5487
fax: (888) 559-4105
EIN: 31-1763110

Mail donations to:
DEPT LA 23216
Pasadena, CA 91185

Visit Web Site

Board Leadership

Daniel Chorney
President

CEO

John Walter
CEO

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