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Health : Medical Research (Grantmaking/Grants Payable)

Foundation for Prader-Willi Research

Working toward an independent future

four stars

91.49

340 South Lemon Avenue Suite 3620
Walnut, CA 91789
tel: (888) 322-5487   Web Site
EIN: 31-1763110

Board Leadership
Daniel Chorney
President

CEO
John Walter
CEO

  Score
(out of 100)
Rating
Overall Score & Rating 91.49 four stars
  Financial 88.66 three stars
  Accountability & Transparency 96.00 four stars
This rating was published 06/01/2020 and includes data from FY2018, the most recent 990 received at that time.

The mission of Foundation for Prader-Willi Research (FPWR) is to eliminate the challenges of Prader-Willi syndrome through the advancement of research. High-quality research will lead to more effective treatments and an eventual cure for this disorder. By working together, we intend to free our loved ones from the burdens of PWS, allowing them to lead full and independent lives. Prader-Willi syndrome (PWS) is a genetic disorder that occurs in approximately one out of every 15,000 births. PWS affects males and females with equal frequency and affects all races and ethnicities. PWS is recognized as the most common genetic cause of life-threatening childhood obesity.

The mission of Foundation for Prader-Willi Research (FPWR) is to eliminate the challenges of Prader-Willi syndrome through the advancement of research. High-quality research will lead to more effective treatments and an eventual cure for this disorder. By working together, we intend to free our loved ones from the burdens of PWS, allowing them to lead full and independent lives. Prader-Willi syndrome (PWS) is a genetic disorder that occurs in approximately one out of every 15,000 births. PWS affects males and females with equal frequency and affects all races and ethnicities. PWS is recognized as the most common genetic cause of life-threatening childhood obesity.

Impact Information

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Financial

three stars

88.66

Accountability & Transparency

four stars

96.00

This rating was published 06/01/2020 and includes data from FY2018, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
77.6%
  Administrative Expenses 11.9%
  Fundraising Expenses 10.4%
  Fundraising Efficiency $0.09
  Working Capital Ratio (years) 1.29
  Program Expenses Growth 3.8%
  Liabilities to Assets 23.7%
All data for Financial Performance Metrics calculations was provided by Foundation for Prader-Willi Research on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Foundation for Prader-Willi Research on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
Foundation for Prader-Willi Research (CA) 91.49 four stars
Foundation for Physical Therapy Research, Inc. (VA) 87.32 three stars
Be The Match Foundation (MN) 89.42 three stars
The Buoniconti Fund to Cure Paralysis (FL) 89.38 three stars
Emergency Medicine Foundation (TX) 97.17 four stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $3,488,148
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $462,044
   Related Organizations $0
   Government Grants $0
Total Contributions $3,950,192
   Program Service Revenue $159,797
Total Primary Revenue $4,109,989
   Other Revenue $42,634
TOTAL REVENUE $4,152,623
   
EXPENSES  
   Program Expenses $2,753,882
   Administrative Expenses $522,180
   Fundraising Expenses $317,857
TOTAL FUNCTIONAL EXPENSES $3,593,919
   
Payments to Affiliates $0
Excess (or Deficit) for the year $558,704
   
Net Assets $4,182,186

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Support Research $2,753,882 100.0%

Ratings History
Foundation for Prader-Willi Research has received 3 consecutive 4-star ratings from Charity Navigator.

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2018-12 06/01/2020 91.49 four stars
2017-12 04/01/2019 91.78 four stars
2016-12 12/01/2018 91.29 four stars
2015-12 10/01/2017 88.78 three stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 31-1763110
Name in IRS Master File FOUNDATION FOR PRADER WILLI RESEARCH
NTEE Code G80
NTEE Classification Specifically Named Diseases
NTEE Type Diseases, Disorders, Medical Disciplines
Classification Educational Organization
Subsection 501(c)(3)  (View the list of codes)
Activities
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date May, 2001
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2017
  • December, 2016
  • December, 2015
  • December, 2014
  • December, 2013
Compensation % of Expenses Paid to Title
$276,320 7.68% John Walter CEO
Other Salaries of Note
$87,299 2.42% Susan Hedstrom Executive Director

Highly Rated

Charity Name & State Overall Score Overall Rating
Foundation for Prader-Willi Research (CA) 91.49 four stars
Sansum Diabetes Research Institute (CA) 91.21 four stars
Midwest Athletes Against Childhood Cancer (WI) 96.04 four stars
Multidisciplinary Association for Psychedelic Studies (CA) 88.86 three stars
CDC Foundation (GA) 98.23 four stars

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Charity Contact Info

Foundation for Prader-Willi Research
340 South Lemon Avenue
Suite 3620
Walnut, CA 91789
tel: (888) 322-5487
fax: (888) 559-4105
EIN: 31-1763110

Mail donations to:
DEPT LA 23216
Pasadena, CA 91185

Visit Web Site

Board Leadership

Daniel Chorney
President

CEO

John Walter
CEO

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