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Health : Diseases, Disorders, and Disciplines

The ALS Association, National Office

Create a world without ALS

four stars

94.62

1275 K Street, NW. Suite 250
Washington, DC 20005
tel: (888) 949-2577   Web Site
EIN: 13-3271855

Board Leadership
Doug Butcher
Chair

CEO
Barbara Newhouse
President, CEO

  Score
(out of 100)
Rating
Overall Score & Rating 94.62 four stars
  Financial 93.02 four stars
  Accountability & Transparency 97.00 four stars
This rating was published 02/01/2017 and includes data from FY2016, the most recent 990 received at that time.

Learn more about how we calculate the overall score and rating.

Financial

four stars

93.02

Accountability & Transparency

four stars

97.00

This rating was published 02/01/2017 and includes data from FY2016, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
78.1%
  Administrative Expenses 6.4%
  Fundraising Expenses 15.4%
  Fundraising Efficiency $0.08
  Working Capital Ratio (years) 3.29
  Program Expenses Growth 25.4%
  Liabilities to Assets 6.5%
All data for Financial Performance Metrics calculations was provided by The ALS Association, National Office on recent 990s filed with the IRS.
Joint Cost Allocation Adjustment applied. Learn more.
All data for Financial Performance Metrics calculations was provided by The ALS Association, National Office on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
The ALS Association, National Office (DC) 94.62 four stars
Les Turner ALS Foundation (IL) 90.97 four stars
ALS Therapy Development Institute (MA) 92.92 four stars
The ALS Association Western Pennsylvania Chapter (PA) 92.22 four stars
The ALS Association Greater New York Chapter (NY) 97.64 four stars

Compare These Charities (Highly Rated)

Leading the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig's Disease and their families to live fuller lives by providing them with compassionate care and support. Mission Priorities 1. Raise the level of awareness of The ALS Association as the leading voice and most trusted source of information about Lou Gehrig's Disease. 2. Lead, direct and/or collaborate on global research to understand the disease, develop treatments and ultimately find a cure. 3. Provide every person with ALS and their families access to high quality, consistent and compassionate support services. 4. Advance a nationwide advocacy program that increases funding for ALS research, improves patient services and empowers the entire ALS community. 5. Function as one organization with unity of purpose. 6. Operate within a business model designed to ensure stability and promote financial strength.

REVENUE  
Contributions  
   Contributions, Gifts & Grants $22,568,769
   Federated Campaigns $239,873
   Membership Dues $0
   Fundraising Events $359,289
   Related Organizations $0
   Government Grants $319,397
Total Contributions $23,487,328
   Program Service Revenue $115,362
Total Primary Revenue $23,602,690
   Other Revenue $2,042,460
TOTAL REVENUE $25,645,150
   
EXPENSES (Adjusted)  
   Program Expenses $28,250,571
   Administrative Expenses $2,358,153
   Fundraising Expenses $4,853,138
TOTAL FUNCTIONAL EXPENSES $35,461,862
   
Payments to Affiliates $0
Excess (or Deficit) for the year $-9,816,712
   
Net Assets $106,041,180

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Research Programs $17,271,304 60.6%
Patient & Community Services $6,804,773 23.9%
Public and Professional Education $4,416,494 15.5%

Ratings History
The ALS Association, National Office has received 4 consecutive 4-star ratings from Charity Navigator.

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2016-01 02/01/2017 94.62 four stars
2015-01 06/01/2016 94.23 four stars
 
CN 2.0
2015-01 08/01/2015 94.57 four stars
2014-01 09/01/2014 90.77 four stars
2013-01 06/01/2014 90.73 four stars
2013-01 05/01/2014 89.70 three stars
2012-01 03/01/2013 83.30 three stars
2011-01 09/01/2012 77.53 two stars
2011-01 02/01/2012 81.24 three stars
2010-01 09/20/2011 86.57 three stars
 
CN 1.0
2010-01 02/01/2011 74.64 two stars
2009-01 07/01/2010 83.43 three stars
2008-01 02/01/2009 90.20 four stars
2007-01 12/01/2007 90.49 four stars
2006-01 12/01/2006 83.70 three stars
2005-01 12/01/2005 88.48 three stars
2004-01 12/01/2004 88.93 three stars
2003-01 11/01/2003 90.65 four stars
2002-01 04/15/2003 90.08 four stars
2001-01 10/15/2002 89.84 three stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 13-3271855
Name in IRS Master File AMYOTROPHIC LATERAL SCLEROSIS ASSN
NTEE Code G50
NTEE Classification Nerve, Muscle and Bone Diseases
NTEE Type Diseases, Disorders, Medical Disciplines
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (123) Discussion groups, forums, panels lectures, etc.
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Central - the organization is a parent (group ruling) and is not a church or 501(c)(1) organization.
Group Name AMYOTROPHIC LATERAL SCLEROSIS ASSN
Ruling Date July, 1990
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End January
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • January, 2016
  • January, 2015
  • January, 2014
  • January, 2013
  • January, 2012

The data displayed in this profile is provided by the IRS for free in the form of Publication 78 and the Business Master File (BMF).

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Compensation % of Expenses Paid to Title
$303,429 0.85% Barbara J. Newhouse President & CEO

Leading the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig's Disease and their families to live fuller lives by providing them with compassionate care and support. Mission Priorities 1. Raise the level of awareness of The ALS Association as the leading voice and most trusted source of information about Lou Gehrig's Disease. 2. Lead, direct and/or collaborate on global research to understand the disease, develop treatments and ultimately find a cure. 3. Provide every person with ALS and their families access to high quality, consistent and compassionate support services. 4. Advance a nationwide advocacy program that increases funding for ALS research, improves patient services and empowers the entire ALS community. 5. Function as one organization with unity of purpose. 6. Operate within a business model designed to ensure stability and promote financial strength.

Highly Rated

Charity Name & State Overall Score Overall Rating
The ALS Association, National Office (DC) 94.62 four stars
The ALS Association Golden West Chapter (CA) 92.91 four stars
The ALS Association Western Pennsylvania Chapter (PA) 92.22 four stars
The ALS Association of Georgia (GA) 95.64 four stars
The ALS Association Greater New York Chapter (NY) 97.64 four stars

Compare These Charities (Highly Rated)

This charity has an official representative registered with Charity Navigator.

Charity Contact Info

The ALS Association, National Office
1275 K Street, NW.
Suite 250
Washington, DC 20005
tel: (888) 949-2577
fax: (202) 289-6801
EIN: 13-3271855

Visit Web Site

Board Leadership

Doug Butcher
Chair

CEO

Barbara Newhouse
President, CEO

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