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Health : Diseases, Disorders, and Disciplines

The ALS Association, National Office

Create a world without ALS

94.23

1275 K Street, NW. Suite 250
Washington, DC 20005
tel: (888) 949-2577   Web Site
EIN: 13-3271855

Board Leadership
William Thoet
Chair

CEO
Barbara Newhouse
President and CEO

  Score
(out of 100)
Rating
Overall Score & Rating 94.23
  Financial 92.42
  Accountability & Transparency 97.00
This rating was published 06/01/2016 and includes data from FY2015, the most recent 990 received at that time.

Learn more about how we calculate the overall score and rating.

Financial

92.42

Accountability & Transparency

97.00

This rating was published 06/01/2016 and includes data from FY2015, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity’s total expenses spent on the programs
and services it delivers)
76.0%
  Administrative Expenses 7.4%
  Fundraising Expenses 16.5%
  Fundraising Efficiency $0.07
  Working Capital Ratio (years) 4.45
  Program Expenses Growth 43.9%
  Liabilities to Assets 8.3%
All data for Financial Performance Metrics calculations was provided by The ALS Association, National Office on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by The ALS Association, National Office on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
The ALS Association, National Office (DC) 94.23
The ALS Association Western Pennsylvania Chapter (PA) 92.22
Les Turner ALS Foundation (IL) 90.97
The ALS Association Greater New York Chapter (NY) 96.22
The ALS Association, St. Louis Chapter (MO) 94.83

Compare These Charities (Highly Rated)

Leading the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig's Disease and their families to live fuller lives by providing them with compassionate care and support. Mission Priorities 1. Raise the level of awareness of The ALS Association as the leading voice and most trusted source of information about Lou Gehrig's Disease. 2. Lead, direct and/or collaborate on global research to understand the disease, develop treatments and ultimately find a cure. 3. Provide every person with ALS and their families access to high quality, consistent and compassionate support services. 4. Advance a nationwide advocacy program that increases funding for ALS research, improves patient services and empowers the entire ALS community. 5. Function as one organization with unity of purpose. 6. Operate within a business model designed to ensure stability and promote financial strength.

REVENUE  
Contributions  
   Contributions, Gifts & Grants $136,815,756
   Federated Campaigns $227,576
   Membership Dues $0
   Fundraising Events $600,749
   Related Organizations $0
   Government Grants $273,482
Total Contributions $137,917,563
   Program Service Revenue $162,174
Total Primary Revenue $138,079,737
   Other Revenue $260,822
TOTAL REVENUE $138,340,559
   
EXPENSES (Adjusted)  
   Program Expenses $31,068,793
   Administrative Expenses $1,879,185
   Fundraising Expenses $6,174,394
TOTAL FUNCTIONAL EXPENSES $39,122,372
   
Payments to Affiliates $0
Excess (or Deficit) for the year $99,218,187
   
Net Assets $119,760,116

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Patient & Community Services $14,208,270 45.5%
Research Programs $13,610,936 43.6%
Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2015-01 06/01/2016 94.23
 
CN 2.0
2015-01 08/01/2015 94.57
2014-01 09/01/2014 90.77
2013-01 06/01/2014 90.73
2013-01 05/01/2014 89.70
2012-01 03/01/2013 83.30
2011-01 09/01/2012 77.53
2011-01 02/01/2012 81.24
2010-01 09/20/2011 86.57
 
CN 1.0
2010-01 02/01/2011 74.64
2009-01 07/01/2010 83.43
2008-01 02/01/2009 90.20
2007-01 12/01/2007 90.49
2006-01 12/01/2006 83.70
2005-01 12/01/2005 88.48
2004-01 12/01/2004 88.93
2003-01 11/01/2003 90.65
2002-01 04/15/2003 90.08
2001-01 10/15/2002 89.84

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 13-3271855
Name in IRS Master File AMYOTROPHIC LATERAL SCLEROSIS ASSN
NTEE Code G50
NTEE Classification Nerve, Muscle and Bone Diseases
NTEE Type Diseases, Disorders, Medical Disciplines
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (123) Discussion groups, forums, panels lectures, etc.
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Central - the organization is a parent (group ruling) and is not a church or 501(c)(1) organization.
Group Name AMYOTROPHIC LATERAL SCLEROSIS ASSN
Ruling Date July, 1990
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End January
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • January, 2015
  • January, 2014
  • January, 2013
  • January, 2012
  • January, 2011

The data displayed in this profile is provided by the IRS for free in the form of Publication 78 and the Business Master File (BMF).

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Compensation % of Expenses Paid to Title
$166,002 0.42% Barbara J. Newhouse President & CEO
Other Salaries of Note
$208,386 0.53% Jane H. Gilbert Former President & CEO

Leading the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig's Disease and their families to live fuller lives by providing them with compassionate care and support. Mission Priorities 1. Raise the level of awareness of The ALS Association as the leading voice and most trusted source of information about Lou Gehrig's Disease. 2. Lead, direct and/or collaborate on global research to understand the disease, develop treatments and ultimately find a cure. 3. Provide every person with ALS and their families access to high quality, consistent and compassionate support services. 4. Advance a nationwide advocacy program that increases funding for ALS research, improves patient services and empowers the entire ALS community. 5. Function as one organization with unity of purpose. 6. Operate within a business model designed to ensure stability and promote financial strength.

Highly Rated

Charity Name & State Overall Score Overall Rating
The ALS Association, National Office (DC) 94.23
Les Turner ALS Foundation (IL) 90.97
The ALS Association Golden West Chapter (CA) 93.54
The ALS Association Connecticut Chapter (CT) 89.13
ALS Association Minnesota/North Dakota/South Dakota Chapter (MN) 92.85

Compare These Charities (Highly Rated)

This charity has an official representative registered with Charity Navigator.

Charity Contact Info

The ALS Association, National Office
1275 K Street, NW.
Suite 250
Washington, DC 20005
tel: (888) 949-2577
fax: (202) 289-6801
EIN: 13-3271855

Visit Web Site

Board Leadership

William Thoet
Chair

CEO

Barbara Newhouse
President and CEO

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