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Charity Contact Info

The ALS Association, National Office
1275 K Street, NW.
Suite 250
Washington, DC 20005
tel: (888) 949-2577
fax: (202) 289-6801
EIN: 13-3271855

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Board Leadership

William Thoet


Barbara Newhouse
President and CEO

Give From Your Donor Advised Fund

Health : Diseases, Disorders, and Disciplines

The ALS Association, National Office

Create a world without ALS

(out of 100)
Overall Score & Rating 94.23 4 stars
  Financial 92.42 4 stars
  Accountability & Transparency 97.00 4 stars
This rating was published 06/01/2016 and includes data from FY2015, the most recent 990 received at that time.

Overall Rating Chart

Learn more about how we calculate the overall score and rating.

Financial Performance Metrics
  Program Expenses
(Percent of the charity’s total expenses spent on the programs
and services it delivers)
  Administrative Expenses 7.4%
  Fundraising Expenses 16.5%
  Fundraising Efficiency $0.07
  Working Capital Ratio (years) 4.45
  Program Expenses Growth 43.9%
  Liabilities to Assets 8.3%
All data for Financial Performance Metrics calculations was provided by The ALS Association, National Office on recent 990s filed with the IRS.

Income Statement     (FYE 01/2015)

   Contributions, Gifts & Grants $136,815,756
   Federated Campaigns $227,576
   Membership Dues $0
   Fundraising Events $600,749
   Related Organizations $0
   Government Grants $273,482
Total Contributions $137,917,563
   Program Service Revenue $162,174
Total Primary Revenue $138,079,737
   Other Revenue $260,822
TOTAL REVENUE $138,340,559
EXPENSES (Adjusted)  
   Program Expenses $31,068,793
   Administrative Expenses $1,879,185
   Fundraising Expenses $6,174,394
Payments to Affiliates $0
Excess (or Deficit) for the year $99,218,187
Net Assets $119,760,116

Financial Charts

Compensation of Leaders     (FYE 01/2015)

Compensation % of Expenses Paid to Title
$166,002 0.42% Barbara J. Newhouse President & CEO
Other Salaries of Note
$208,386 0.53% Jane H. Gilbert Former President & CEO


Leading the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig's Disease and their families to live fuller lives by providing them with compassionate care and support. Mission Priorities 1. Raise the level of awareness of The ALS Association as the leading voice and most trusted source of information about Lou Gehrig's Disease. 2. Lead, direct and/or collaborate on global research to understand the disease, develop treatments and ultimately find a cure. 3. Provide every person with ALS and their families access to high quality, consistent and compassionate support services. 4. Advance a nationwide advocacy program that increases funding for ALS research, improves patient services and empowers the entire ALS community. 5. Function as one organization with unity of purpose. 6. Operate within a business model designed to ensure stability and promote financial strength.

Charities Performing Similar Types of Work

Highly Rated

Charity Name & State Overall Score Overall Rating
The ALS Association, National Office (DC) 94.23 4 stars
The ALS Association, St. Louis Chapter (MO) 94.83 4 stars
The ALS Association Florida Chapter (FL) 93.73 4 stars
The ALS Association Golden West Chapter (CA) 93.54 4 stars
The ALS Association of Georgia (GA) 89.09 3 stars

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Charity Name & State Overall Score Overall Rating
The ALS Association, National Office (DC) 94.23 4 stars
ALS Therapy Development Institute (MA) 96.46 4 stars
Les Turner ALS Foundation (IL) 90.48 4 stars
ALS Association Minnesota/North Dakota/South Dakota Chapter (MN) 92.85 4 stars
The ALS Association Greater New York Chapter (NY) 96.22 4 stars

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