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Health : Diseases, Disorders, and Disciplines

The Leukemia & Lymphoma Society

Fighting blood cancers

three stars

87.11

3 International Drive Suite 200
Rye Brook, NY 10573
tel: (888) 557-7177   Web Site
EIN: 13-5644916

Board Leadership
Jorge L. Benitez
Chairman

CEO
Louis J. DeGennaro
President and CEO

 
 
  Score
(out of 100) 		Rating
Overall Score & Rating 87.11 three stars
  Financial 82.02 three stars
  Accountability & Transparency 97.00 four stars
This rating was published 11/01/2020 and includes data from FY2019, the most recent 990 received at that time.
Why isn't this based on more recent data?

The Leukemia & Lymphoma Society ® (LLS) is the world's largest voluntary health agency dedicated to blood cancer. The LLS mission: Cure leukemia, lymphoma, multiple myeloma, and improve the quality of life of patients and their families. LLS funds lifesaving blood cancer research around the world, provides free information and support services, and is the voice for all blood cancer patients seeking access to quality, affordable, coordinated care.

Founded in 1949 and headquartered in Rye Brook, NY, LLS has chapters throughout the United States and Canada. To learn more, visit www.LLS.org. Patients should contact the Information Resource Center at (800) 955-4572, Monday through Friday, 9 a.m. to 6 p.m. ET.

The Leukemia & Lymphoma Society ® (LLS) is the world's largest voluntary health agency dedicated to blood cancer. The LLS mission: Cure leukemia, lymphoma, multiple myeloma, and improve the quality of life of patients and their families. LLS funds lifesaving blood cancer research around the world, provides free information and support services, and is the voice for all blood cancer patients seeking access to quality, affordable, coordinated care.

Founded in 1949 and headquartered in Rye Brook, NY, LLS has chapters throughout the United States and Canada. To learn more, visit www.LLS.org. Patients should contact the Information Resource Center at (800) 955-4572, Monday through Friday, 9 a.m. to 6 p.m. ET.

Impact Information

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GuideStar is Charity Navigator's trusted partner in sharing information on how this organization seeks impact.  GuideStar has recognized this organization with a Platinum Seal of Transparency for voluntarily and publicly sharing information about how they measure their progress and results.  Learn More about Impact Information.
Reported Results
Total in 2019
Information Specialists Provide Support to Blood Cancer Patients, Families and Caregivers
13,583
This organization has earned a GuideStar's Platinum Seal of Transparency by voluntarily sharing the measures of progress and results they use to pursue their mission. Organizations earn Platinum Seals by selecting from a catalog of over 900 expert recognized metrics or by creating a new metric that best fits their work. This information is reported by the organization and displayed publicly on their GuideStar Nonprofit Profile. With over 1.6 million Nonprofit Profiles, 9 million annual visitors and over 200 data partners, GuideStar is the world's leading source of information about nonprofit organizations. A nonprofit itself, GuideStar is dedicated to providing better data for better decisions for a better world.
This impact information is current as of August 2020, when it was provided to us by GuideStar. At this time, Impact information published on this organization's page has no effect on its rating per our methodology.

Learn more about how we calculate the overall score and rating.

Financial

three stars

82.02

Accountability & Transparency

four stars

97.00

This rating was published 11/01/2020 and includes data from FY2019, the most recent 990 received at that time.
Why isn't this based on more recent data?
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)		 74.6%
  Administrative Expenses 10.3%
  Fundraising Expenses 15.0%
  Fundraising Efficiency $0.14
  Working Capital Ratio (years) 0.77
  Program Expenses Growth 11.5%
  Liabilities to Assets 40.8%
All data for Financial Performance Metrics calculations was provided by The Leukemia & Lymphoma Society on recent 990s filed with the IRS.
Joint Cost Allocation Adjustment applied. Learn more.
All data for Financial Performance Metrics calculations was provided by The Leukemia & Lymphoma Society on recent 990s filed with the IRS.
Information Provided on the Form 990  
  Independent Voting Board Members
  No Material diversion of assets
  Audited financials prepared by independent accountant
  Does Not Provide Loan(s) to or Receive Loan(s) From related parties
  Documents Board Meeting Minutes
  Provided copy of Form 990 to organization's governing body in advance of filing
  Conflict of Interest Policy
  Whistleblower Policy
  Records Retention and Destruction Policy
  CEO listed with salary
  Process for determining CEO compensation
  Board Listed / Board Members Not Compensated
Is the following information easily accessible on the charity's website?  
  Donor Privacy Policy
  Board Members Listed
  Audited Financials
  Form 990
  Key staff listed

Highly Rated

Charity Name & State Overall Score Overall Rating
The Leukemia & Lymphoma Society (NY) 87.11 three stars
Cancer Wellness Center (IL) 88.60 three stars
Neuroendocrine Tumor Research Foundation (MA) 96.66 four stars
National Ovarian Cancer Coalition (TX) 86.00 three stars
Kidney Cancer Association (IL) 100.00 four stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $180,689,145
   Federated Campaigns $946,462
   Membership Dues $0
   Fundraising Events $191,114,487
   Related Organizations $0
   Government Grants $0
Total Contributions $372,750,094
   Program Service Revenue $14,936,342
Total Primary Revenue $387,686,436
   Other Revenue $8,534,716
TOTAL REVENUE $396,221,152
   
EXPENSES (Adjusted)  
   Program Expenses $259,944,724
   Administrative Expenses $52,019,588
   Fundraising Expenses $55,357,161
TOTAL FUNCTIONAL EXPENSES $367,321,473
   
Payments to Affiliates $0
Excess (or Deficit) for the year $28,899,679
   
Net Assets $268,391,389

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Patient & Community Services $147,721,907 55.4%
Research Programs $65,088,628 24.4%
Public Health Education $40,007,613 15.0%

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2019-06 11/01/2020 87.11 three stars
2018-06 08/01/2019 87.35 three stars
2017-06 08/01/2018 79.95 two stars
2016-06 10/01/2017 76.30 two stars
2015-06 07/01/2016 76.62 two stars
2014-06 06/01/2016 79.55 two stars
 
CN 2.0
2014-06 10/01/2015 84.09 three stars
2013-06 10/01/2014 87.32 three stars
2012-06 05/01/2013 85.00 three stars
2011-06 09/01/2012 84.72 three stars
2011-06 07/01/2012 86.59 three stars
2010-06 10/01/2011 84.34 three stars
2010-06 09/20/2011 83.72 three stars
 
CN 1.0
2009-06 11/24/2010 83.16 three stars
2008-06 06/01/2009 83.93 three stars
2007-06 03/01/2009 84.78 three stars
2006-06 04/01/2008 84.69 three stars
2005-06 06/01/2006 83.49 three stars
2004-06 07/01/2005 77.94 two stars
2003-06 07/01/2004 82.58 three stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 13-5644916
Name in IRS Master File LEUKEMIA & LYMPHOMA SOCIETY INC
NTEE Code G30
NTEE Classification Cancer
NTEE Type Diseases, Disorders, Medical Disciplines
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (59) Other school related activities
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date January, 2001
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End June
IRS Forms 990
(provided courtesy of Foundation Center)		 (Log In or Register Now to View Forms 990!)
  • June, 2018
  • June, 2017
  • June, 2016
  • June, 2015
  • June, 2014
Compensation % of Expenses Paid to Title
$781,916 0.21% Louis J. Degennaro President, CEO

Highly Rated

Charity Name & State Overall Score Overall Rating
The Leukemia & Lymphoma Society (NY) 87.11 three stars
International Myeloma Foundation (CA) 90.91 four stars
American Italian Cancer Foundation (NY) 92.92 four stars
Leukemia Research Foundation (IL) 86.64 three stars
Us TOO International (IL) 89.60 three stars

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Charity Contact Info

The Leukemia & Lymphoma Society
3 International Drive
Suite 200
Rye Brook, NY 10573
tel: (888) 557-7177
fax: (914) 949-6691
EIN: 13-5644916

Visit Web Site

Board Leadership

Jorge L. Benitez
Chairman

CEO

Louis J. DeGennaro
President and CEO

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