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Health : Diseases, Disorders, and Disciplines

Tourette Association of America

Awareness. Research. Support.

three stars

87.13

42-40 Bell Boulevard Suite 205
Bayside, NY 11361
tel: (888) 486-8738   Web Site
EIN: 23-7191992

Board Leadership
Randi Zemsky
Chair

CEO
Amanda Talty
President & CEO

 
 
  Score
(out of 100) 		Rating
Overall Score & Rating 87.13 three stars
  Financial 82.25 three stars
  Accountability & Transparency 96.00 four stars
This rating was published 12/01/2019 and includes data from FY2019, the most recent 990 received at that time.
Why isn't this based on more recent data?

Founded in 1972, The Tourette Association of America (formerly known as the Tourette Syndrome Association) has emerged as the premier national non-profit organization working to make life better for all people affected by Tourette and Tic Disorders. We do this by: • Raising public awareness and fostering social acceptance. • Working to advance scientific understanding, treatment options and care. • Educating professionals to better serve the needs of children, adults and families challenged by Tourette and Tic Disorders. • Advocating for public policies and services that promote positive school, work and social environments. • Providing help, hope and a supportive community across the nation. • Empowering our community to deal with the complexities of this spectrum of disorders.

Founded in 1972, The Tourette Association of America (formerly known as the Tourette Syndrome Association) has emerged as the premier national non-profit organization working to make life better for all people affected by Tourette and Tic Disorders. We do this by: • Raising public awareness and fostering social acceptance. • Working to advance scientific understanding, treatment options and care. • Educating professionals to better serve the needs of children, adults and families challenged by Tourette and Tic Disorders. • Advocating for public policies and services that promote positive school, work and social environments. • Providing help, hope and a supportive community across the nation. • Empowering our community to deal with the complexities of this spectrum of disorders.

Impact Information

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GuideStar is Charity Navigator's trusted partner in sharing information on how this organization seeks impact.  GuideStar has recognized this organization with a Platinum Seal of Transparency for voluntarily and publicly sharing information about how they measure their progress and results.  Learn More about Impact Information.
Reported Results
Total in 2019
Number of physicians the TAA has trained to practice Comprehensive Behavioral Intervention Therapy
78
Number of community events or trainings held and attendance
19,879
This organization has earned a GuideStar's Platinum Seal of Transparency by voluntarily sharing the measures of progress and results they use to pursue their mission. Organizations earn Platinum Seals by selecting from a catalog of over 900 expert recognized metrics or by creating a new metric that best fits their work. This information is reported by the organization and displayed publicly on their GuideStar Nonprofit Profile. With over 1.6 million Nonprofit Profiles, 9 million annual visitors and over 200 data partners, GuideStar is the world's leading source of information about nonprofit organizations. A nonprofit itself, GuideStar is dedicated to providing better data for better decisions for a better world.
This impact information is current as of August 2020, when it was provided to us by GuideStar. At this time, Impact information published on this organization's page has no effect on its rating per our methodology.

Learn more about how we calculate the overall score and rating.

Financial

three stars

82.25

Accountability & Transparency

four stars

96.00

This rating was published 12/01/2019 and includes data from FY2019, the most recent 990 received at that time.
Why isn't this based on more recent data?
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)		 75.4%
  Administrative Expenses 11.4%
  Fundraising Expenses 13.1%
  Fundraising Efficiency $0.15
  Working Capital Ratio (years) 1.98
  Program Expenses Growth -3.7%
  Liabilities to Assets 6.6%
All data for Financial Performance Metrics calculations was provided by Tourette Association of America on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Tourette Association of America on recent 990s filed with the IRS.
Information Provided on the Form 990  
  Independent Voting Board Members
  No Material diversion of assets
  Audited financials prepared by independent accountant
  Does Not Provide Loan(s) to or Receive Loan(s) From related parties
  Documents Board Meeting Minutes
  Provided copy of Form 990 to organization's governing body in advance of filing
  Conflict of Interest Policy
  Whistleblower Policy
  Records Retention and Destruction Policy
  CEO listed with salary
  Process for determining CEO compensation
  Board Listed / Board Members Not Compensated
Is the following information easily accessible on the charity's website?  
  Donor Privacy Policy
  Board Members Listed
  Audited Financials
  Form 990
  Key staff listed

Highly Rated

Charity Name & State Overall Score Overall Rating
Tourette Association of America (NY) 87.13 three stars
Organization for Autism Research (VA) 94.75 four stars
Creutzfeldt-Jakob Disease Foundation (OH) 93.90 four stars
American Thyroid Association (VA) 93.10 four stars
Dan Marino Foundation (FL) 96.46 four stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $2,031,188
   Federated Campaigns $0
   Membership Dues $41,990
   Fundraising Events $1,072,487
   Related Organizations $0
   Government Grants $1,082,899
Total Contributions $4,228,564
   Program Service Revenue $174,766
Total Primary Revenue $4,403,330
   Other Revenue $159,695
TOTAL REVENUE $4,563,025
   
EXPENSES  
   Program Expenses $3,939,027
   Administrative Expenses $598,169
   Fundraising Expenses $556,432
TOTAL FUNCTIONAL EXPENSES $5,093,628
   
Payments to Affiliates $0
Excess (or Deficit) for the year $-530,603
   
Net Assets $11,009,621

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Public Education $1,649,917 41.9%
Research and Medical Programs $1,167,013 29.6%
Centers for Disease Control Partnership $1,081,176 27.4%

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2019-02 12/01/2019 87.13 three stars
2018-02 02/01/2019 84.85 three stars
2017-02 03/01/2018 81.29 three stars
2016-02 05/01/2017 82.93 three stars
2015-02 08/01/2016 87.25 three stars
2015-02 06/01/2016 86.61 three stars
 
CN 2.0
2015-02 12/01/2015 78.14 two stars
2014-02 09/01/2015 78.20 two stars
2013-02 02/01/2014 81.88 three stars
2012-02 09/01/2012 93.96 four stars
2011-02 03/01/2012 94.52 four stars
2010-02 09/20/2011 87.33 three stars
 
CN 1.0
2010-02 05/01/2011 81.18 three stars
2009-02 07/01/2010 75.89 two stars
2008-02 12/17/2008 76.93 two stars
2007-02 12/15/2007 96.19 four stars
2006-02 02/01/2007 98.83 four stars
2005-02 01/01/2006 98.94 four stars
2004-02 01/05/2005 98.76 four stars
2003-02 12/01/2003 90.92 four stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 23-7191992
Name in IRS Master File TOURETTE ASSOCIATION OF AMERICA INC
NTEE Code G50
NTEE Classification Nerve, Muscle and Bone Diseases
NTEE Type Diseases, Disorders, Medical Disciplines
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (179) Other health services
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Central - the organization is a parent (group ruling) and is not a church or 501(c)(1) organization.
Group Name TOURETTE SYNDROME ASSOCIATION INC
Ruling Date December, 1982
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End February
IRS Forms 990
(provided courtesy of Foundation Center)		 (Log In or Register Now to View Forms 990!)
  • February, 2018
  • February, 2017
  • February, 2016
  • February, 2015
  • February, 2014
Compensation % of Expenses Paid to Title
$194,451 3.81% Amanda Talty President, CEO
Other Salaries of Note
$75,894 1.48% John Miller Former President & CEO

Highly Rated

Charity Name & State Overall Score Overall Rating
Tourette Association of America (NY) 87.13 three stars
Organization for Autism Research (VA) 94.75 four stars
Solve ME/CFS Initiative (CA) 89.01 three stars
The Association for Frontotemporal Degeneration (PA) 99.71 four stars
National Psoriasis Foundation (OR) 91.44 four stars

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Charity Contact Info

Tourette Association of America
42-40 Bell Boulevard
Suite 205
Bayside, NY 11361
tel: (888) 486-8738
fax: (718) 279-9596
EIN: 23-7191992

Visit Web Site

Board Leadership

Randi Zemsky
Chair

CEO

Amanda Talty
President & CEO

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