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Health : Diseases, Disorders, and Disciplines

Tourette Association of America

Awareness. Research. Support.

three stars

82.93

42-40 Bell Boulevard Suite 205
Bayside, NY 11361
tel: (718) 224-2999   Web Site
EIN: 23-7191992

Board Leadership
Rovena Schirling
Chair

CEO
John Miller
President & CEO

 
 
  Score
(out of 100)		 Rating
Overall Score & Rating 82.93 three stars
  Financial 76.20 two stars
  Accountability & Transparency 96.00 four stars
This rating was published 05/01/2017 and includes data from FY2016, the most recent 990 received at that time.
Why isn't this based on more recent data?

Learn more about how we calculate the overall score and rating.

Financial

two stars

76.20

Accountability & Transparency

four stars

96.00

This rating was published 05/01/2017 and includes data from FY2016, the most recent 990 received at that time.
Why isn't this based on more recent data?
Overall Rating Chart
  Program Expenses
(Percent of the charity’s total expenses spent on the programs
and services it delivers)		 71.7%
  Administrative Expenses 15.9%
  Fundraising Expenses 12.3%
  Fundraising Efficiency $0.21
  Working Capital Ratio (years) 1.78
  Program Expenses Growth -4.5%
  Liabilities to Assets 8.9%
All data for Financial Performance Metrics calculations was provided by Tourette Association of America on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Tourette Association of America on recent 990s filed with the IRS.
Information Provided on the Form 990  
  Independent Voting Board Members
  No Material diversion of assets
  Audited financials prepared by independent accountant
  Does Not Provide Loan(s) to or Receive Loan(s) From related parties
  Documents Board Meeting Minutes
  Provided copy of Form 990 to organization's governing body in advance of filing
  Conflict of Interest Policy
  Whistleblower Policy
  Records Retention and Destruction Policy
  CEO listed with salary
  Process for determining CEO compensation
  Board Listed / Board Members Not Compensated
Is the following information easily accessible on the charity's website?  
  Donor Privacy Policy
  Board Members Listed
  Audited Financials
  Form 990
  Key staff listed

Highly Rated

Charity Name & State Overall Score Overall Rating
Tourette Association of America (NY) 82.93 three stars
Childhood Apraxia of Speech Association of North America (PA) 92.22 four stars
National Psoriasis Foundation (OR) 92.94 four stars
Asthma and Allergy Foundation of America (MD) 88.60 three stars
American Autoimmune Related Diseases Association (MI) 92.63 four stars

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Founded in 1972 in Bayside, New York, the Tourette Syndrome Association (TSA) is the only national, voluntary non-profit membership organization in this field. TSA works to identify the cause of, find the cure for and control the effects of Tourette Syndrome (TS). We offer resources and referrals to help people and their families cope with the problems that occur with TS. We raise public awareness and counter media stereotypes about TS. Today, TSA has grown into a major national health-related organization with 31 U.S. Chapters and 125 support groups. TSA funds research that will ultimately find the cause of and cure for TS and, at the same time, lead to improved medications and treatments.

REVENUE  
Contributions  
   Contributions, Gifts & Grants $981,227
   Federated Campaigns $39,802
   Membership Dues $72,849
   Fundraising Events $1,141,112
   Related Organizations $0
   Government Grants $694,108
Total Contributions $2,929,098
   Program Service Revenue $169,185
Total Primary Revenue $3,098,283
   Other Revenue $484,554
TOTAL REVENUE $3,582,837
   
EXPENSES  
   Program Expenses $4,409,045
   Administrative Expenses $1,363,747
   Fundraising Expenses $897,432
TOTAL FUNCTIONAL EXPENSES $6,670,224
   
Payments to Affiliates $0
Excess (or Deficit) for the year $-3,087,387
   
Net Assets $11,642,045

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Research $2,366,310 53.7%
Public Education $1,277,897 29.0%
Center for Disease Control $678,614 15.4%

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2016-02 05/01/2017 82.93 three stars
2015-02 08/01/2016 87.25 three stars
2015-02 06/01/2016 86.61 three stars
 
CN 2.0
2015-02 12/01/2015 78.14 two stars
2014-02 09/01/2015 78.20 two stars
2013-02 02/01/2014 81.88 three stars
2012-02 09/01/2012 93.96 four stars
2011-02 03/01/2012 94.52 four stars
2010-02 09/20/2011 87.33 three stars
 
CN 1.0
2010-02 05/01/2011 81.18 three stars
2009-02 07/01/2010 75.89 two stars
2008-02 12/17/2008 76.93 two stars
2007-02 12/15/2007 96.19 four stars
2006-02 02/01/2007 98.83 four stars
2005-02 01/01/2006 98.94 four stars
2004-02 01/05/2005 98.76 four stars
2003-02 12/01/2003 90.92 four stars
2002-02 04/15/2003 98.77 four stars
2001-02 10/15/2002 98.47 four stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 23-7191992
Name in IRS Master File TOURETTE ASSOCIATION OF AMERICA INC
NTEE Code G50
NTEE Classification Nerve, Muscle and Bone Diseases
NTEE Type Diseases, Disorders, Medical Disciplines
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (179) Other health services
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Central - the organization is a parent (group ruling) and is not a church or 501(c)(1) organization.
Group Name TOURETTE SYNDROME ASSOCIATION INC
Ruling Date December, 1982
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End February
IRS Forms 990
(provided courtesy of Foundation Center)		 (Log In or Register Now to View Forms 990!)
  • February, 2016
  • February, 2015
  • February, 2014
  • February, 2013
  • February, 2012

The data displayed in this profile is provided by the IRS for free in the form of Publication 78 and the Business Master File (BMF).

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Compensation % of Expenses Paid to Title
$200,374 3.00% Annetta Hewko President

Founded in 1972 in Bayside, New York, the Tourette Syndrome Association (TSA) is the only national, voluntary non-profit membership organization in this field. TSA works to identify the cause of, find the cure for and control the effects of Tourette Syndrome (TS). We offer resources and referrals to help people and their families cope with the problems that occur with TS. We raise public awareness and counter media stereotypes about TS. Today, TSA has grown into a major national health-related organization with 31 U.S. Chapters and 125 support groups. TSA funds research that will ultimately find the cause of and cure for TS and, at the same time, lead to improved medications and treatments.

Highly Rated

Charity Name & State Overall Score Overall Rating
Tourette Association of America (NY) 82.93 three stars
Doug Flutie Jr. Foundation For Autism (MA) 86.09 three stars
Scleroderma Foundation (MA) 98.14 four stars
National Ataxia Foundation (MN) 90.71 four stars
Cystic Fibrosis Research, Inc. (CA) 94.05 four stars

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Charity Contact Info

Tourette Association of America
42-40 Bell Boulevard
Suite 205
Bayside, NY 11361
tel: (718) 224-2999
fax: (718) 279-9596
EIN: 23-7191992

Visit Web Site

Board Leadership

Rovena Schirling
Chair

CEO

John Miller
President & CEO

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