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Health : Diseases, Disorders, and Disciplines

Tourette Association of America

Awareness. Research. Support.

85.23

42-40 Bell Boulevard Suite 205
Bayside, NY 11361
tel: (888) 486-8738   Web Site
EIN: 23-7191992

Board Leadership
Randi Zemsky
Chair

CEO
Amanda Talty
President & CEO

  Score
(out of 100)
Rating
Overall Score & Rating 85.23
  Financial 80.32
  Accountability & Transparency 93.00
This rating was published 03/01/2021 and includes data from FY2020, the most recent 990 received at that time.

Founded in 1972, The Tourette Association of America (formerly known as the Tourette Syndrome Association) has emerged as the premier national non-profit organization working to make life better for all people affected by Tourette and Tic Disorders. We do this by: • Raising public awareness and fostering social acceptance. • Working to advance scientific understanding, treatment options and care. • Educating professionals to better serve the needs of children, adults and families challenged by Tourette and Tic Disorders. • Advocating for public policies and services that promote positive school, work and social environments. • Providing help, hope and a supportive community across the nation. • Empowering our community to deal with the complexities of this spectrum of disorders.

Founded in 1972, The Tourette Association of America (formerly known as the Tourette Syndrome Association) has emerged as the premier national non-profit organization working to make life better for all people affected by Tourette and Tic Disorders. We do this by: • Raising public awareness and fostering social acceptance. • Working to advance scientific understanding, treatment options and care. • Educating professionals to better serve the needs of children, adults and families challenged by Tourette and Tic Disorders. • Advocating for public policies and services that promote positive school, work and social environments. • Providing help, hope and a supportive community across the nation. • Empowering our community to deal with the complexities of this spectrum of disorders.

Financial

80.32

Accountability & Transparency

93.00

This rating was published 03/01/2021 and includes data from FY2020, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
77.4%
  Administrative Expenses 11.3%
  Fundraising Expenses 11.2%
  Fundraising Efficiency $0.12
  Working Capital Ratio (years) 1.82
  Program Expenses Growth -2.0%
  Liabilities to Assets 12.1%
All data for Financial Performance Metrics calculations was provided by Tourette Association of America on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Tourette Association of America on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
Tourette Association of America (NY) 85.23
NEXT for AUTISM (NY) 94.86
American Brain Tumor Association (IL) 90.77
National Foundation for Infectious Diseases (MD) 92.60
Histiocytosis Association (NJ) 91.16

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $1,658,110
   Federated Campaigns $0
   Membership Dues $16,910
   Fundraising Events $991,402
   Related Organizations $0
   Government Grants $940,653
Total Contributions $3,607,075
   Program Service Revenue $116,683
Total Primary Revenue $3,723,758
   Other Revenue $179,390
TOTAL REVENUE $3,903,148
   
EXPENSES  
   Program Expenses $4,184,775
   Administrative Expenses $541,315
   Fundraising Expenses $528,648
TOTAL FUNCTIONAL EXPENSES $5,254,738
   
Payments to Affiliates $0
Excess (or Deficit) for the year $-1,351,590
   
Net Assets $9,719,206

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Research and Medical Programs $1,624,460 38.8%
Public Education $1,562,912 37.3%
Centers for Disease Control Partnership $940,653 22.5%

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2020-02 03/01/2021 85.23
2019-02 12/01/2019 87.13
2018-02 02/01/2019 84.85
2017-02 03/01/2018 81.29
2016-02 05/01/2017 82.93
2015-02 08/01/2016 87.25
2015-02 06/01/2016 86.61
 
CN 2.0
2015-02 12/01/2015 78.14
2014-02 09/01/2015 78.20
2013-02 02/01/2014 81.88
2012-02 09/01/2012 93.96
2011-02 03/01/2012 94.52
2010-02 09/20/2011 87.33
 
CN 1.0
2010-02 05/01/2011 81.18
2009-02 07/01/2010 75.89
2008-02 12/17/2008 76.93
2007-02 12/15/2007 96.19
2006-02 02/01/2007 98.83
2005-02 01/01/2006 98.94
2004-02 01/05/2005 98.76

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 23-7191992
Name in IRS Master File TOURETTE ASSOCIATION OF AMERICA INC
NTEE Code G50
NTEE Classification Nerve, Muscle and Bone Diseases
NTEE Type Diseases, Disorders, Medical Disciplines
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (179) Other health services
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Central - the organization is a parent (group ruling) and is not a church or 501(c)(1) organization.
Group Name TOURETTE SYNDROME ASSOCIATION INC
Ruling Date December, 1982
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End February
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • February, 2018
  • February, 2017
  • February, 2016
  • February, 2015
  • February, 2014
Compensation % of Expenses Paid to Title
$233,379 4.44% Amanda Talty President, CEO

Highly Rated

Charity Name & State Overall Score Overall Rating
Tourette Association of America (NY) 85.23
Solve ME/CFS Initiative (CA) 91.90
The Association for Frontotemporal Degeneration (PA) 99.71
Histiocytosis Association (NJ) 91.16
Angiogenesis Foundation (MA) 85.01

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Charity Contact Info

Tourette Association of America
42-40 Bell Boulevard
Suite 205
Bayside, NY 11361
tel: (888) 486-8738
fax: (718) 279-9596
EIN: 23-7191992

Visit Web Site

Board Leadership

Randi Zemsky
Chair

CEO

Amanda Talty
President & CEO

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