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Health : Diseases, Disorders, and Disciplines

International Myeloma Foundation

Improving Lives - Finding the Cure

89.39

12650 Riverside Drive Suite 206
North Hollywood, CA 91607
tel: (800) 452-2873   Web Site
EIN: 95-4296919

Board Leadership
Brian G.M. Durie
Chairman

CEO
Susie Novis
President

  Score
(out of 100)
Rating
Overall Score & Rating 89.39
  Financial 85.00
  Accountability & Transparency 100.00
This rating was published 08/01/2016 and includes data from FY2015, the most recent 990 received at that time.

Learn more about how we calculate the overall score and rating.

Financial

85.00

Accountability & Transparency

100.00

This rating was published 08/01/2016 and includes data from FY2015, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity’s total expenses spent on the programs
and services it delivers)
90.3%
  Administrative Expenses 3.9%
  Fundraising Expenses 5.6%
  Fundraising Efficiency $0.05
  Working Capital Ratio (years) 0.17
  Program Expenses Growth 15.0%
  Liabilities to Assets 88.0%
All data for Financial Performance Metrics calculations was provided by International Myeloma Foundation on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by International Myeloma Foundation on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
International Myeloma Foundation (CA) 89.39
National Ovarian Cancer Coalition (TX) 90.01
Bonnie J. Addario Lung Cancer Foundation (CA) 94.05
ZERO - The End of Prostate Cancer (VA) 89.39
Leukemia Research Foundation (IL) 87.71

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Charity Name & State Overall Score Overall Rating
International Myeloma Foundation (CA) 89.39
American Cancer Society (GA) 71.86
The Leukemia & Lymphoma Society (NY) 76.62
The V Foundation (NC) 96.46
Pancreatic Cancer Action Network (CA) 93.98

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Founded in 1990, the International Myeloma Foundation (IMF) is the oldest and largest myeloma organization, reaching more than 200,000 members in 113 countries worldwide. Dedicated to improving the quality of life of myeloma patients and their families while working toward prevention and a cure, the IMF focuses in four key areas: research, education, support and advocacy. As the leader in innovative and globally collaborative myeloma research, the IMF brings together the world's leading experts in the most successful and unique way through the International Myeloma Working Group (IMWG) and the Black Swan Research Initiative, which is charting the course to a cure, mentoring the next generation of innovative investigators, and improving lives through better care.

REVENUE  
Contributions  
   Contributions, Gifts & Grants $11,935,578
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $986,707
   Related Organizations $0
   Government Grants $0
Total Contributions $12,922,285
   Program Service Revenue $89,256
Total Primary Revenue $13,011,541
   Other Revenue $-166,574
TOTAL REVENUE $12,844,967
   
EXPENSES  
   Program Expenses $11,562,572
   Administrative Expenses $424,563
   Fundraising Expenses $655,376
TOTAL FUNCTIONAL EXPENSES $12,642,511
   
Payments to Affiliates $0
Excess (or Deficit) for the year $202,456
   
Net Assets $1,873,421

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Research $4,263,356 36.9%
Education & Awareness $1,473,859 12.7%
Patient & Family Seminars $1,105,336 9.6%
Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2015-09 08/01/2016 89.39
2014-09 07/01/2016 89.39
2014-09 06/01/2016 89.02
 
CN 2.0
2014-09 09/01/2015 93.40
2013-09 12/22/2014 92.17
2012-09 11/01/2013 93.90
2011-09 09/01/2012 93.44
2010-09 10/01/2011 90.60
2009-09 09/20/2011 90.56
 
CN 1.0
2009-09 04/01/2011 84.73
2007-12 06/01/2009 91.34
2006-12 07/01/2008 91.16
2005-12 04/01/2007 91.47
2004-12 11/01/2006 90.81
2003-12 03/01/2005 92.43
2002-09 10/01/2003 82.69
2001-09 04/15/2003 93.41

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 95-4296919
Name in IRS Master File INTERNATIONAL MYELOMA FOUNDATION
NTEE Code Z99
NTEE Classification Unknown
NTEE Type Unknown
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (320) Boy Scouts, Girl Scouts, etc.
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date June, 1995
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End September
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • September, 2014
  • September, 2013
  • September, 2012
  • September, 2011
  • September, 2010

The data displayed in this profile is provided by the IRS for free in the form of Publication 78 and the Business Master File (BMF).

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Compensation % of Expenses Paid to Title
$227,000 1.79% Susan Lavitt Novis President

Founded in 1990, the International Myeloma Foundation (IMF) is the oldest and largest myeloma organization, reaching more than 200,000 members in 113 countries worldwide. Dedicated to improving the quality of life of myeloma patients and their families while working toward prevention and a cure, the IMF focuses in four key areas: research, education, support and advocacy. As the leader in innovative and globally collaborative myeloma research, the IMF brings together the world's leading experts in the most successful and unique way through the International Myeloma Working Group (IMWG) and the Black Swan Research Initiative, which is charting the course to a cure, mentoring the next generation of innovative investigators, and improving lives through better care.

Highly Rated

Charity Name & State Overall Score Overall Rating
International Myeloma Foundation (CA) 89.39
Commonweal (CA) 96.96
Kidney Cancer Association (IL) 92.92
Melanoma Research Foundation (DC) 89.02
National Ovarian Cancer Coalition (TX) 90.01

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Most Viewed

Charity Name & State Overall Score Overall Rating
International Myeloma Foundation (CA) 89.39
American Cancer Society (GA) 71.86
The Leukemia & Lymphoma Society (NY) 76.62
The V Foundation (NC) 96.46
Pancreatic Cancer Action Network (CA) 93.98

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This charity has an official representative registered with Charity Navigator.

Official Charity Response

For 12 years, the IMF has received a 4-star rating based on Charity Navigator's previous methodology.  In 2016, Charity Navigator developed a new methodology for rating charities.  Under the new methodology, 90 points are required for a 4-star rating and the IMF is less than one point away from a 4-star status.  The change in the IMF's rating from 4-stars to 3-stars is due to Charity Navigator's new Liabilities to Assets Ratio metric, which measures an organization's total liabilities against its total assets.  For the IMF, 95% of the liabilities balance relates to deferred revenue.  The IMF's deferred revenue is comprised of fully executed contracts which are recognized as income as the program expenses occur.  For the IMF, the deferred revenue balance provides insight into committed program support.  We look forward to your continued support.  Thank you very much.

Charity Contact Info

International Myeloma Foundation
12650 Riverside Drive
Suite 206
North Hollywood, CA 91607
tel: (800) 452-2873
fax: (818) 487-7454
EIN: 95-4296919

Visit Web Site

Board Leadership

Brian G.M. Durie
Chairman

CEO

Susie Novis
President


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