Disable all preview features

Health : Medical Research (Fundraising)

FRAXA Research Foundation

Finding a cure for Fragile X

four stars

91.36

10 Prince Place, Suite 203 Newburyport, MA 01950
tel: (978) 462-1866   Web Site
EIN: 04-3222167

Board Leadership
Debbie Stevenson
Chairperson of the Board

CEO
Katie Clapp
President, Co-Founder

  Score
(out of 100)
Rating
Overall Score & Rating 91.36 four stars
  Financial 90.00 four stars
  Accountability & Transparency 93.00 four stars
This rating was published 12/01/2016 and includes data from FY2015, the most recent 990 received at that time.

Learn more about how we calculate the overall score and rating.

Financial

four stars

90.00

Accountability & Transparency

four stars

93.00

This rating was published 12/01/2016 and includes data from FY2015, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity’s total expenses spent on the programs
and services it delivers)
91.1%
  Administrative Expenses 3.4%
  Fundraising Expenses 5.3%
  Fundraising Efficiency $0.07
  Working Capital Ratio (years) 1.50
  Program Expenses Growth -9.6%
  Liabilities to Assets < 0.1%
All data for Financial Performance Metrics calculations was provided by FRAXA Research Foundation on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by FRAXA Research Foundation on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
FRAXA Research Foundation (MA) 91.36 four stars
American Foundation for Surgery of the Hand (IL) 90.66 four stars
Diabetes Action Research and Education Foundation (MD) 89.90 three stars
The Hastings Center (NY) 86.65 three stars
Food Allergy Research & Education (VA) 87.01 three stars

Compare These Charities (Highly Rated)

FRAXA Research Foundation was founded in 1994 by three parents of children with Fragile X syndrome, Katie Clapp, Michael Tranfaglia, MD, and Kathy May, to support scientific research aimed at finding a treatment and a cure for Fragile X syndrome. Fragile X research is drastically underfunded, considering its high prevalence, prospects for a cure, and the promise that this research holds for advancing understanding of other disorders like autism, Alzheimer's disease, and X-linked mental retardation. FRAXA funds grants and fellowships at universities all over the world. We have funded more than $17 million dollars in top-notch science. Fragile X is the most common inherited cause of intellectual impairment and the most common known genetic cause of autism.

REVENUE  
Contributions  
   Contributions, Gifts & Grants $853,813
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $322,318
   Related Organizations $0
   Government Grants $0
Total Contributions $1,176,131
   Program Service Revenue $500
Total Primary Revenue $1,176,631
   Other Revenue $101,788
TOTAL REVENUE $1,278,419
   
EXPENSES  
   Program Expenses $1,270,874
   Administrative Expenses $52,797
   Fundraising Expenses $59,326
TOTAL FUNCTIONAL EXPENSES $1,382,997
   
Payments to Affiliates $0
Excess (or Deficit) for the year $-104,578
   
Net Assets $2,159,261

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Fundraising for Research Grants $1,196,677 94.2%
Fund Programs for Education about Fragile X $74,197 5.8%

Ratings History
FRAXA Research Foundation has received 2 consecutive 4-star ratings from Charity Navigator.

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2015-12 12/01/2016 91.36 four stars
2014-12 06/01/2016 92.92 four stars
 
CN 2.0
2014-12 12/23/2015 91.59 four stars
2013-12 12/22/2014 89.24 three stars
2012-12 11/01/2013 81.41 three stars
2011-12 12/01/2012 88.40 three stars
2010-12 11/01/2011 73.37 two stars
2009-12 09/20/2011 76.75 two stars
 
CN 1.0
2009-12 11/24/2010 73.90 two stars
2007-12 07/01/2009 85.25 three stars
2006-12 04/01/2008 93.55 four stars
2005-12 02/01/2008 88.89 three stars
2004-12 08/01/2005 88.08 three stars
2003-12 08/01/2004 77.55 two stars
2002-12 08/01/2003 94.41 four stars
2001-12 04/15/2003 94.69 four stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 04-3222167
Name in IRS Master File FRAXA RESEARCH FOUNDATION INC
NTEE Code H99
NTEE Classification Medical Research N.E.C.
NTEE Type Medical Research
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (994) Described in section 170(b)1)(a)(vi) of the Code
(161) Scientific research (diseases)
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2015
  • December, 2014
  • December, 2013
  • December, 2012
  • December, 2011

The data displayed in this profile is provided by the IRS for free in the form of Publication 78 and the Business Master File (BMF).

We invite you to share your opinions, thoughts, experiences, and stories about this charity here to help inform the decisions of other donors.  
Need more help getting started? Check out our FAQs.
 
This tool is not for questions about Charity Navigator, such as how we derived this charity’s rating. We will happily answer those questions if you contact us directly. Likewise, if you have questions for this charity, then we encourage you to contact the charity directly (we include the charity’s contact information in the upper left-hand corner of this page) since few charities regularly monitor this commenting tool.

Compensation % of Expenses Paid to Title
$94,751 6.85% Katherine N. Clapp President
Other Salaries of Note
$107,671 7.78% Michael Tranfaglia Treasurer, Secretary

FRAXA Research Foundation was founded in 1994 by three parents of children with Fragile X syndrome, Katie Clapp, Michael Tranfaglia, MD, and Kathy May, to support scientific research aimed at finding a treatment and a cure for Fragile X syndrome. Fragile X research is drastically underfunded, considering its high prevalence, prospects for a cure, and the promise that this research holds for advancing understanding of other disorders like autism, Alzheimer's disease, and X-linked mental retardation. FRAXA funds grants and fellowships at universities all over the world. We have funded more than $17 million dollars in top-notch science. Fragile X is the most common inherited cause of intellectual impairment and the most common known genetic cause of autism.

Highly Rated

Charity Name & State Overall Score Overall Rating
FRAXA Research Foundation (MA) 91.36 four stars
The Hope Foundation (MI) 90.10 four stars
Children's Cancer & Blood Foundation (NY) 89.85 three stars
Project ALS (NY) 87.42 three stars
National Association of Chain Drug Stores Foundation (VA) 91.99 four stars

Compare These Charities (Highly Rated)

This charity has an official representative registered with Charity Navigator.

Charity Contact Info

FRAXA Research Foundation
10 Prince Place, Suite 203
Newburyport, MA 01950
tel: (978) 462-1866
EIN: 04-3222167

Visit Web Site

Board Leadership

Debbie Stevenson
Chairperson of the Board

CEO

Katie Clapp
President, Co-Founder

Join Our Mailing List

Join over 400,000 other informed givers and get updates on charity ratings, new features, hot topics, and tips for donating.

Help Center

Charity Navigator is turning 15!

Together, with donors like you, we have been able to:

  • Continually provide new and updated charity ratings
  • Increase charity transparency and accountability
  • Support the long-term missions of charities through our encouragement of informed giving

Did you know that we’re a charity, too? Your donation will help us provide new tools and information that you can rely on to make impactful giving choices. Your gift of any size will make a difference!

Support Charity Navigator
Not at This Time

We’re celebrating!

For 15 years, Charity Navigator has equipped donors with unbiased charity evaluations and tools to help you make informed giving decisions. Learn more about that journey and the bold goals on our road ahead.

Charity Navigator is turning 15!

Together, with donors like you, we have been able to:

  • Continually provide new and updated charity ratings
  • Increase charity transparency and accountability
  • Support the long-term missions of charities through our encouragement of informed giving

Did you know that we’re a charity, too? Your donation will help us provide new tools and information that you can rely on to make impactful giving choices. Your gift of any size will make a difference!