Health : Medical Research (Grantmaking/Grants Payable)

FRAXA Research Foundation

Finding a cure for Fragile X

four stars

94.47

10 Prince Place, Suite 203 Newburyport, MA 01950
tel: (978) 462-1866   Web Site
EIN: 04-3222167

Board Leadership
Debbie Stevenson
Chairperson of the Board

CEO
Katie Clapp
President, Co-Founder

  Score
(out of 100)
Rating
Overall Score & Rating 94.47 four stars
  Financial 93.29 four stars
  Accountability & Transparency 96.00 four stars
This rating was published 11/01/2019 and includes data from FY2018, the most recent 990 received at that time.

FRAXA Research Foundation was founded in 1994 by three parents of children with Fragile X syndrome to support scientific research aimed at finding a treatment and a cure for Fragile X syndrome. Fragile X research is drastically underfunded, considering its high prevalence, prospects for a cure, and the promise that this research holds for advancing understanding of other disorders like autism, Alzheimer's disease, and X-linked mental retardation. FRAXA funds grants and fellowships at universities all over the world. We have funded more than $25 million dollars in top-notch science. Fragile X is the most common inherited cause of intellectual impairment and the most common known genetic cause of autism.

FRAXA Research Foundation was founded in 1994 by three parents of children with Fragile X syndrome to support scientific research aimed at finding a treatment and a cure for Fragile X syndrome. Fragile X research is drastically underfunded, considering its high prevalence, prospects for a cure, and the promise that this research holds for advancing understanding of other disorders like autism, Alzheimer's disease, and X-linked mental retardation. FRAXA funds grants and fellowships at universities all over the world. We have funded more than $25 million dollars in top-notch science. Fragile X is the most common inherited cause of intellectual impairment and the most common known genetic cause of autism.

Impact Information

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This impact information is current as of September 2019, when it was provided to us by GuideStar. At this time, Impact information published on this organization's page has no effect on its rating per our methodology.

Financial

four stars

93.29

Accountability & Transparency

four stars

96.00

This rating was published 11/01/2019 and includes data from FY2018, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
89.9%
  Administrative Expenses 3.8%
  Fundraising Expenses 6.1%
  Fundraising Efficiency $0.06
  Working Capital Ratio (years) 1.45
  Program Expenses Growth 1.3%
  Liabilities to Assets 7.2%
All data for Financial Performance Metrics calculations was provided by FRAXA Research Foundation on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by FRAXA Research Foundation on recent 990s filed with the IRS.
REVENUE  
Contributions  
   Contributions, Gifts & Grants $1,454,809
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $358,888
   Related Organizations $0
   Government Grants $0
Total Contributions $1,813,697
   Program Service Revenue $0
Total Primary Revenue $1,813,697
   Other Revenue $30,958
TOTAL REVENUE $1,844,655
   
EXPENSES  
   Program Expenses $1,320,731
   Administrative Expenses $71,203
   Fundraising Expenses $124,771
TOTAL FUNCTIONAL EXPENSES $1,516,705
   
Payments to Affiliates $0
Excess (or Deficit) for the year $327,950
   
Net Assets $2,246,566

Charts

Compensation % of Expenses Paid to Title
$94,751 6.24% Katherine Clapp President
Other Salaries of Note
$113,509 7.48% David Bjork Development Director

Mission

FRAXA Research Foundation was founded in 1994 by three parents of children with Fragile X syndrome to support scientific research aimed at finding a treatment and a cure for Fragile X syndrome. Fragile X research is drastically underfunded, considering its high prevalence, prospects for a cure, and the promise that this research holds for advancing understanding of other disorders like autism, Alzheimer's disease, and X-linked mental retardation. FRAXA funds grants and fellowships at universities all over the world. We have funded more than $25 million dollars in top-notch science. Fragile X is the most common inherited cause of intellectual impairment and the most common known genetic cause of autism.

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Charity Name & State Overall Score Overall Rating
FRAXA Research Foundation (MA) 94.47 four stars
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Charity Contact Info

FRAXA Research Foundation
10 Prince Place, Suite 203
Newburyport, MA 01950
tel: (978) 462-1866
EIN: 04-3222167

Visit Web Site

Board Leadership

Debbie Stevenson
Chairperson of the Board

CEO

Katie Clapp
President, Co-Founder