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Health : Diseases, Disorders, and Disciplines

Scleroderma Foundation

Support, education, research

four stars

90.59

300 Rosewood Drive Suite 105
Danvers, MA 01923
tel: (800) 722-4673   Web Site
EIN: 52-1375827

Board Leadership
Cos Mallozzi
Chair

CEO
Robert J. Riggs
Chief Executive Officer

 
 
  Score
(out of 100) 		Rating
Overall Score & Rating 90.59 four stars
  Financial 86.70 three stars
  Accountability & Transparency 100.00 four stars
This rating was published 09/01/2020 and includes data from FY2019, the most recent 990 received at that time.
Why isn't this based on more recent data?

The Scleroderma Foundation (SF) is the national organization for people with scleroderma and their families and friends. It was formed in 1998 by a merger between the West Coast-based United Scleroderma Foundation and the East Coast-based Scleroderma Federation. The Foundation helps patients and their families cope with scleroderma through mutual support programs, peer counseling, physician referrals, and educational information. We promote public awareness and education through patient and health professional seminars, literature, and publicity campaigns. The Foundation also stimulates and supports research to improve treatment and ultimately find the cause of and cure for scleroderma and related diseases.

The Scleroderma Foundation (SF) is the national organization for people with scleroderma and their families and friends. It was formed in 1998 by a merger between the West Coast-based United Scleroderma Foundation and the East Coast-based Scleroderma Federation. The Foundation helps patients and their families cope with scleroderma through mutual support programs, peer counseling, physician referrals, and educational information. We promote public awareness and education through patient and health professional seminars, literature, and publicity campaigns. The Foundation also stimulates and supports research to improve treatment and ultimately find the cause of and cure for scleroderma and related diseases.

Learn more about how we calculate the overall score and rating.

Financial

three stars

86.70

Accountability & Transparency

four stars

100.00

This rating was published 09/01/2020 and includes data from FY2019, the most recent 990 received at that time.
Why isn't this based on more recent data?
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)		 82.2%
  Administrative Expenses 13.6%
  Fundraising Expenses 4.0%
  Fundraising Efficiency $0.04
  Working Capital Ratio (years) 1.77
  Program Expenses Growth -2.4%
  Liabilities to Assets 14.6%
All data for Financial Performance Metrics calculations was provided by Scleroderma Foundation on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Scleroderma Foundation on recent 990s filed with the IRS.
Information Provided on the Form 990  
  Independent Voting Board Members
  No Material diversion of assets
  Audited financials prepared by independent accountant
  Does Not Provide Loan(s) to or Receive Loan(s) From related parties
  Documents Board Meeting Minutes
  Provided copy of Form 990 to organization's governing body in advance of filing
  Conflict of Interest Policy
  Whistleblower Policy
  Records Retention and Destruction Policy
  CEO listed with salary
  Process for determining CEO compensation
  Board Listed / Board Members Not Compensated
Is the following information easily accessible on the charity's website?  
  Donor Privacy Policy
  Board Members Listed
  Audited Financials
  Form 990
  Key staff listed

Highly Rated

Charity Name & State Overall Score Overall Rating
Scleroderma Foundation (MA) 90.59 four stars
Sjögren's Syndrome Foundation (MD) 89.24 three stars
International OCD Foundation (MA) 90.43 four stars
Immune Deficiency Foundation (MD) 93.68 four stars
The Glaucoma Foundation (NY) 92.33 four stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $4,139,828
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $186,620
   Related Organizations $0
   Government Grants $0
Total Contributions $4,326,448
   Program Service Revenue $114,876
Total Primary Revenue $4,441,324
   Other Revenue $287,982
TOTAL REVENUE $4,729,306
   
EXPENSES  
   Program Expenses $3,902,906
   Administrative Expenses $699,603
   Fundraising Expenses $195,794
TOTAL FUNCTIONAL EXPENSES $4,798,303
   
Payments to Affiliates $331,718
Excess (or Deficit) for the year $-68,997
   
Net Assets $10,418,622

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Education and Support $2,620,038 67.1%
Research $1,282,868 32.9%

Ratings History
Scleroderma Foundation has received 5 consecutive 4-star ratings from Charity Navigator.

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2019-06 09/01/2020 90.59 four stars
2018-06 06/01/2019 93.81 four stars
2017-06 09/01/2018 96.52 four stars
2016-06 11/01/2017 96.51 four stars
2015-06 06/01/2016 98.14 four stars
 
CN 2.0
2014-06 12/01/2015 85.44 three stars
2014-06 09/01/2015 85.16 three stars
2013-06 07/01/2014 91.79 four stars
2012-06 09/01/2013 95.48 four stars
2011-06 08/01/2012 97.11 four stars
2009-12 09/20/2011 96.73 four stars
 
CN 1.0
2009-12 11/24/2010 95.37 four stars
2008-12 08/01/2010 99.02 four stars
2007-12 02/01/2009 92.29 four stars
2006-12 12/01/2007 79.90 two stars
2005-12 03/01/2007 74.40 two stars
2004-12 01/01/2006 77.59 two stars
2003-12 01/05/2005 95.20 four stars
2002-12 12/01/2003 97.94 four stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 52-1375827
Name in IRS Master File SCLERODERMA FOUNDATION
NTEE Code H40
NTEE Classification Specific Organ Research
NTEE Type Medical Research
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (179) Other health services
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date January, 1985
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End June
IRS Forms 990
(provided courtesy of Foundation Center)		 (Log In or Register Now to View Forms 990!)
  • June, 2018
  • June, 2017
  • June, 2016
  • June, 2015
  • June, 2014
Compensation % of Expenses Paid to Title
$112,008 2.33% Robert J. Riggs Chief Executive Officer

Highly Rated

Charity Name & State Overall Score Overall Rating
Scleroderma Foundation (MA) 90.59 four stars
National Hemophilia Foundation (NY) 90.04 four stars
MDS Foundation (NJ) 87.94 three stars
Tourette Association of America (NY) 85.23 three stars
National Alopecia Areata Foundation (CA) 91.48 four stars

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This charity has an official representative registered with Charity Navigator.

Charity Contact Info

Scleroderma Foundation
300 Rosewood Drive
Suite 105
Danvers, MA 01923
tel: (800) 722-4673
fax: (978) 777-1313
EIN: 52-1375827

Visit Web Site

Board Leadership

Cos Mallozzi
Chair

CEO

Robert J. Riggs
Chief Executive Officer

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