
Health : Diseases, Disorders, and Disciplines
Board Leadership
Cos Mallozzi
Chair
CEO
Robert J. Riggs
Chief Executive Officer
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The Scleroderma Foundation (SF) is the national organization for people with scleroderma and their families and friends. It was formed in 1998 by a merger between the West Coast-based United Scleroderma Foundation and the East Coast-based Scleroderma Federation. The Foundation helps patients and their families cope with scleroderma through mutual support programs, peer counseling, physician referrals, and educational information. We promote public awareness and education through patient and health professional seminars, literature, and publicity campaigns. The Foundation also stimulates and supports research to improve treatment and ultimately find the cause of and cure for scleroderma and related diseases.
The Scleroderma Foundation (SF) is the national organization for people with scleroderma and their families and friends. It was formed in 1998 by a merger between the West Coast-based United Scleroderma Foundation and the East Coast-based Scleroderma Federation. The Foundation helps patients and their families cope with scleroderma through mutual support programs, peer counseling, physician referrals, and educational information. We promote public awareness and education through patient and health professional seminars, literature, and publicity campaigns. The Foundation also stimulates and supports research to improve treatment and ultimately find the cause of and cure for scleroderma and related diseases.
96.09
97.00
Program Expenses (Percent of the charity's total expenses spent on the programs and services it delivers) |
85.3% | |
Administrative Expenses | 10.3% | |
Fundraising Expenses | 4.3% | |
Fundraising Efficiency | $0.05 | |
Working Capital Ratio (years) | 1.63 | |
Program Expenses Growth | 7.6% | |
Liabilities to Assets | 19.6% |
Charity Name & State | Overall Score | Overall Rating |
---|---|---|
Scleroderma Foundation (MA) | 96.51 | |
Childhood Apraxia of Speech Association of North America (PA) | 92.22 | |
Beyond Celiac (PA) | 91.74 | |
Solve ME/CFS Initiative (CA) | 88.34 | |
Organization for Autism Research (VA) | 95.46 |
REVENUE | |
Contributions | |
Contributions, Gifts & Grants | $3,305,915 |
Federated Campaigns | $0 |
Membership Dues | $0 |
Fundraising Events | $633,726 |
Related Organizations | $0 |
Government Grants | $0 |
Total Contributions | $3,939,641 |
Program Service Revenue | $91,015 |
Total Primary Revenue | $4,030,656 |
Other Revenue | $307,688 |
TOTAL REVENUE | $4,338,344 |
EXPENSES | |
Program Expenses | $4,199,599 |
Administrative Expenses | $514,872 |
Fundraising Expenses | $221,285 |
TOTAL FUNCTIONAL EXPENSES | $4,935,756 |
Payments to Affiliates | $441,097 |
Excess (or Deficit) for the year | $-597,412 |
Net Assets | $9,651,497 |
Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.
Program Name | Amount Spent | % of Program Expenses |
---|---|---|
Education and Support | $2,565,604 | 61.1% |
Research | $1,633,995 | 38.9% |
Form 990 FYE | Date Published | Overall Score | Overall Rating | ||||||
---|---|---|---|---|---|---|---|---|---|
CN 2.1 | |||||||||
2016-06 | 11/01/2017 | 96.51 | |||||||
2015-06 | 06/01/2016 | 98.14 | |||||||
CN 2.0 | |||||||||
2014-06 | 12/01/2015 | 85.44 | |||||||
2014-06 | 09/01/2015 | 85.16 | |||||||
2013-06 | 07/01/2014 | 91.79 | |||||||
2012-06 | 09/01/2013 | 95.48 | |||||||
2011-06 | 08/01/2012 | 97.11 | |||||||
2009-12 | 09/20/2011 | 96.73 | |||||||
CN 1.0 | |||||||||
2009-12 | 11/24/2010 | 95.37 | |||||||
2008-12 | 08/01/2010 | 99.02 | |||||||
2007-12 | 02/01/2009 | 92.29 | |||||||
2006-12 | 12/01/2007 | 79.90 | |||||||
2005-12 | 03/01/2007 | 74.40 | |||||||
2004-12 | 01/01/2006 | 77.59 | |||||||
2003-12 | 01/05/2005 | 95.20 | |||||||
2002-12 | 12/01/2003 | 97.94 |
The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).
EIN | 52-1375827 |
Name in IRS Master File | SCLERODERMA FOUNDATION |
NTEE Code | H40 |
NTEE Classification | Specific Organ Research |
NTEE Type | Medical Research |
Classification | Charitable Organization |
Subsection | 501(c)(3) (View the list of codes) |
Activities | (179) Other health services |
Foundation Status | Organization which receives a substantial part of its support from a governmental unit or the general public 170(b)(1)(A)(vi) |
Deductibility | Contributions are deductible |
Affiliation | Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations). |
Group Name | [Not Applicable] |
Ruling Date | January, 1985 |
Filing Requirement | 990 (all other) or 990EZ return |
Fiscal Year End | June |
IRS Forms 990 (provided courtesy of Foundation Center) |
(Log In or Register Now to View Forms 990!)
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The data displayed in this profile is provided by the IRS for free in the form of Publication 78 and the Business Master File (BMF).
Compensation | % of Expenses | Paid to | Title | |
---|---|---|---|---|
$106,255 | 2.15% | Robert J. Riggs | Chief Executive Officer |
Charity Name & State | Overall Score | Overall Rating |
---|---|---|
Scleroderma Foundation (MA) | 96.51 | |
Histiocytosis Association (NJ) | 89.69 | |
Cystic Fibrosis Research, Inc. (CA) | 94.05 | |
Beyond Celiac (PA) | 91.74 | |
American Thyroid Association (VA) | 96.66 |
This charity has an official representative registered with Charity Navigator.
Scleroderma Foundation
300 Rosewood Drive
Suite 105
Danvers,
MA 01923
tel: (800) 722-4673
fax: (978) 777-1313
EIN: 52-1375827
Cos Mallozzi
Chair
Robert J. Riggs
Chief Executive Officer
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139 Harristown Rd Suite 101
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Charity Navigator
139 Harristown Rd Suite 101
Glen Rock, NJ 07452