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Health : Medical Research (Grantmaking/Grants Payable)

Lupus Research Alliance

Prevent, treat and cure lupus through medical research

four stars

91.28

275 Madison Avenue 10th Floor
New York, NY 10016
tel: (800) 867-1743   Web Site
EIN: 58-2492929

Board Leadership
Ira Akselrad & Richard K. Descherer
Co-Chair

CEO
Kenneth M. Farber
CEO And President

 
 
  Score
(out of 100) 		Rating
Overall Score & Rating 91.28 four stars
  Financial 88.34 three stars
  Accountability & Transparency 96.00 four stars
This rating was published 06/01/2021 and includes data from FY2019, the most recent 990 received at that time.
Why isn't this based on more recent data?

The Lupus Research Alliance is dedicated to finding a cure for lupus. We believe in doing one thing, and doing it well. Founded in 1999, our sole mission is to prevent, treat and cure lupus through medical research. The Alliance applies a strategic business approach to funding research. In 2000 and 2001 we asked scientists to submit proposals to identify targets for new therapies in lupus. These proposals needed to be ideas that would lead to the development of new drugs or biologic agents to treat lupus within two years. And because we want to fund the best research, wherever that may be, we accepted applications from all over the world, and from industry, as well as academia. The Lupus Research Alliance was created via a merger of the Alliance for Lupus Research and the Lupus Research Institute.

The Lupus Research Alliance is dedicated to finding a cure for lupus. We believe in doing one thing, and doing it well. Founded in 1999, our sole mission is to prevent, treat and cure lupus through medical research. The Alliance applies a strategic business approach to funding research. In 2000 and 2001 we asked scientists to submit proposals to identify targets for new therapies in lupus. These proposals needed to be ideas that would lead to the development of new drugs or biologic agents to treat lupus within two years. And because we want to fund the best research, wherever that may be, we accepted applications from all over the world, and from industry, as well as academia. The Lupus Research Alliance was created via a merger of the Alliance for Lupus Research and the Lupus Research Institute.

Learn more about how we calculate the overall score and rating.

Financial

three stars

88.34

Accountability & Transparency

four stars

96.00

This rating was published 06/01/2021 and includes data from FY2019, the most recent 990 received at that time.
Why isn't this based on more recent data?
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)		 79.2%
  Administrative Expenses 8.4%
  Fundraising Expenses 12.2%
  Fundraising Efficiency $0.16
  Working Capital Ratio (years) 1.72
  Program Expenses Growth 16.4%
  Liabilities to Assets 37.3%
All data for Financial Performance Metrics calculations was provided by Lupus Research Alliance on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Lupus Research Alliance on recent 990s filed with the IRS.
Information Provided on the Form 990  
  Independent Voting Board Members
  No Material diversion of assets
  Audited financials prepared by independent accountant
  Does Not Provide Loan(s) to or Receive Loan(s) From related parties
  Documents Board Meeting Minutes
  Provided copy of Form 990 to organization's governing body in advance of filing
  Conflict of Interest Policy
  Whistleblower Policy
  Records Retention and Destruction Policy
  CEO listed with salary
  Process for determining CEO compensation
  Board Listed / Board Members Not Compensated
Is the following information easily accessible on the charity's website?  
  Donor Privacy Policy
  Board Members Listed
  Audited Financials
  Form 990
  Key staff listed

Highly Rated

Charity Name & State Overall Score Overall Rating
Lupus Research Alliance (NY) 91.28 four stars
Cystinosis Research Foundation (CA) 93.96 four stars
Hope & Heroes Children's Cancer Fund (NY) 88.76 three stars
Children's Cancer & Blood Foundation (NY) 85.42 three stars
National Pediatric Cancer Foundation (FL) 100.00 four stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $12,318,584
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $5,355,038
   Related Organizations $0
   Government Grants $0
Total Contributions $17,673,622
   Program Service Revenue $1,236,449
Total Primary Revenue $18,910,071
   Other Revenue $2,148,621
TOTAL REVENUE $21,058,692
   
EXPENSES  
   Program Expenses $21,529,385
   Administrative Expenses $2,252,069
   Fundraising Expenses $3,029,588
TOTAL FUNCTIONAL EXPENSES $26,811,042
   
Payments to Affiliates $0
Excess (or Deficit) for the year $-5,752,350
   
Net Assets $44,770,201

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Research $11,776,654 54.7%
Scientific Programs $8,906,496 41.4%
Public Policy $846,235 3.9%

Ratings History
Lupus Research Alliance has received 4 consecutive 4-star ratings from Charity Navigator.

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2019-12 06/01/2021 91.28 four stars
2018-12 03/01/2020 91.39 four stars
2017-12 03/01/2019 91.47 four stars
2016-12 12/01/2018 91.39 four stars
2015-12 11/01/2017 86.70 three stars
2015-12 02/01/2017 86.09 three stars
2014-12 06/01/2016 88.48 three stars
 
CN 2.0
2014-12 12/22/2015 92.90 four stars
2013-12 05/01/2015 86.81 three stars
2012-12 05/01/2014 83.45 three stars
2011-12 06/01/2013 92.10 four stars
2010-12 09/01/2012 77.01 two stars
2010-12 03/01/2012 77.03 two stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 58-2492929
Name in IRS Master File LUPUS RESEARCH ALLIANCE INC
NTEE Code H11
NTEE Classification Single Organization Support
NTEE Type Medical Research
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date January, 2000
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)		 (Log In or Register Now to View Forms 990!)
  • December, 2018
  • December, 2017
  • December, 2016
  • December, 2015
  • December, 2014
Compensation % of Expenses Paid to Title
$416,526 1.55% Kenneth M. Farber CEO And President

Highly Rated

Charity Name & State Overall Score Overall Rating
Lupus Research Alliance (NY) 91.28 four stars
CurePSP (NY) 85.41 three stars
International Rett Syndrome Foundation (OH) 91.16 four stars
Familial Dysautonomia Foundation (NY) 91.81 four stars
Cure Alzheimer's Fund (MA) 98.23 four stars

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This charity has an official representative registered with Charity Navigator.

Charity Contact Info

Lupus Research Alliance
275 Madison Avenue
10th Floor
New York, NY 10016
tel: (800) 867-1743
fax: (646) 884-6000
EIN: 58-2492929

Visit Web Site

Board Leadership

Ira Akselrad & Richard K. Descherer
Co-Chair

CEO

Kenneth M. Farber
CEO And President

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