Health : Diseases, Disorders, and Disciplines

Tuberous Sclerosis Alliance

Finding a cure for tuberous sclerosis while improving lives of those affected

three stars

88.50

8737 Colesville Road, Suite 400
Silver Spring, MD 20910
tel: (800) 225-6872   Web Site
EIN: 95-3018799

Board Leadership
Peter Crino, MD, PhD
Chair

CEO
Kari Rosbeck
President, CEO

  Score
(out of 100)
Rating
Overall Score & Rating 88.50 three stars
  Financial 83.74 three stars
  Accountability & Transparency 100.00 four stars
This rating was published 03/01/2021 and includes data from FY2019, the most recent 990 received at that time.

The Tuberous Sclerosis Alliance (TS Alliance) was founded in 1974 by four mothers coming together to provide fellowship, generate awareness, pursue more knowledge and provide hope to those who share the common bond of facing the daily challenges of tuberous sclerosis complex (TSC). During its 45 years of existence and growth, the TS Alliance has expanded its mission to improve the quality of life for individuals and families affected by TSC through the stimulation and sponsorship of research, the development of programs, support services and resource information, and the development and implementation of public and professional education programs designed to heighten awareness of TSC. TSC is a genetic disorder that causes tumors to form in many different organs, primarily in the brain, eyes, heart, kidney, skin and lungs.

The Tuberous Sclerosis Alliance (TS Alliance) was founded in 1974 by four mothers coming together to provide fellowship, generate awareness, pursue more knowledge and provide hope to those who share the common bond of facing the daily challenges of tuberous sclerosis complex (TSC). During its 45 years of existence and growth, the TS Alliance has expanded its mission to improve the quality of life for individuals and families affected by TSC through the stimulation and sponsorship of research, the development of programs, support services and resource information, and the development and implementation of public and professional education programs designed to heighten awareness of TSC. TSC is a genetic disorder that causes tumors to form in many different organs, primarily in the brain, eyes, heart, kidney, skin and lungs.

Financial

three stars

83.74

Accountability & Transparency

four stars

100.00

This rating was published 03/01/2021 and includes data from FY2019, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
75.1%
  Administrative Expenses 9.1%
  Fundraising Expenses 15.6%
  Fundraising Efficiency $0.19
  Working Capital Ratio (years) 1.58
  Program Expenses Growth 3.1%
  Liabilities to Assets 5.7%
All data for Financial Performance Metrics calculations was provided by Tuberous Sclerosis Alliance on recent 990s filed with the IRS.
Joint Cost Allocation Adjustment applied. Learn more.
All data for Financial Performance Metrics calculations was provided by Tuberous Sclerosis Alliance on recent 990s filed with the IRS.
REVENUE  
Contributions  
   Contributions, Gifts & Grants $2,890,096
   Federated Campaigns $35,476
   Membership Dues $4,329
   Fundraising Events $2,417,642
   Related Organizations $180,000
   Government Grants $0
Total Contributions $5,527,543
   Program Service Revenue $461,658
Total Primary Revenue $5,989,201
   Other Revenue $727,033
TOTAL REVENUE $6,716,234
   
EXPENSES (Adjusted)  
   Program Expenses $4,055,684
   Administrative Expenses $522,270
   Fundraising Expenses $1,061,381
TOTAL FUNCTIONAL EXPENSES $5,639,335
   
Payments to Affiliates $0
Excess (or Deficit) for the year $1,076,899
   
Net Assets $9,756,587

Charts

Compensation % of Expenses Paid to Title Compensation from Affiliates
$195,071 3.45% Kari L. Rosbeck President, CEO $3,612
Other Salaries of Note
$209,520 3.71% Steven L. Roberds Chief Scientific Officer --

Mission

The Tuberous Sclerosis Alliance (TS Alliance) was founded in 1974 by four mothers coming together to provide fellowship, generate awareness, pursue more knowledge and provide hope to those who share the common bond of facing the daily challenges of tuberous sclerosis complex (TSC). During its 45 years of existence and growth, the TS Alliance has expanded its mission to improve the quality of life for individuals and families affected by TSC through the stimulation and sponsorship of research, the development of programs, support services and resource information, and the development and implementation of public and professional education programs designed to heighten awareness of TSC. TSC is a genetic disorder that causes tumors to form in many different organs, primarily in the brain, eyes, heart, kidney, skin and lungs.

Highly Rated

Charity Name & State Overall Score Overall Rating
Tuberous Sclerosis Alliance (MD) 88.50 three stars
National Headache Foundation (IL) 86.48 three stars
American Thyroid Association (VA) 92.75 four stars
National Alopecia Areata Foundation (CA) 91.48 four stars
Solve ME/CFS Initiative (CA) 91.90 four stars

Compare These Charities (Highly Rated)

Charity Contact Info

Tuberous Sclerosis Alliance
8737 Colesville Road, Suite 400

Silver Spring, MD 20910
tel: (800) 225-6872
fax: (301) 562-9870
EIN: 95-3018799

Mail donations to:
8737 Colesville Road, Suite 400
Silver Spring, MD 20910

Visit Web Site

Board Leadership

Peter Crino, MD, PhD
Chair

CEO

Kari Rosbeck
President, CEO