Disable all preview features

Health : Medical Research

Dystonia Medical Research Foundation

Working to advance research for more treatments and ultimately find cure for dystonia

four stars

93.30

One East Wacker Drive Suite 1730
Chicago, IL 60601
tel: (800) 377-3978   Web Site
EIN: 95-3378526

Board Leadership
Art Kessler
President

CEO
Janet Hieshetter
Executive Director

  Score
(out of 100)
Rating
Overall Score & Rating 93.30 four stars
  Financial 90.53 four stars
  Accountability & Transparency 100.00 four stars
This rating was published 12/01/2019 and includes data from FY2018, the most recent 990 received at that time.

The Dystonia Medical Research Foundation (DMRF) was founded in 1976. Dystonia is a movement disorder that causes the muscles to contract and spasm involuntarily. The mission of the DMRF is to advance research for more treatments and ultimately a cure; to promote awareness and education; and to support the needs and well being of affected individuals and families. Dedicated to serving the needs of all persons affected with dystonia and their families, the DMRF has grown from a small family-based foundation to a membership-driven organization of approximately 38,000 persons.

The Dystonia Medical Research Foundation (DMRF) was founded in 1976. Dystonia is a movement disorder that causes the muscles to contract and spasm involuntarily. The mission of the DMRF is to advance research for more treatments and ultimately a cure; to promote awareness and education; and to support the needs and well being of affected individuals and families. Dedicated to serving the needs of all persons affected with dystonia and their families, the DMRF has grown from a small family-based foundation to a membership-driven organization of approximately 38,000 persons.

Impact Information

GuideStar is Charity Navigator's trusted partner in sharing information on how this organization seeks impact.  GuideStar has recognized this organization with a Platinum Seal of Transparency for voluntarily and publicly sharing information about how they measure their progress and results.  Learn More about Impact Information.
Reported Results
Total in 2018
Individuals and families served by communications and programs.
49,600
This impact information is current as of March 2020, when it was provided to us by GuideStar. At this time, Impact information published on this organization's page has no effect on its rating per our methodology.

Financial

four stars

90.53

Accountability & Transparency

four stars

100.00

This rating was published 12/01/2019 and includes data from FY2018, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
82.3%
  Administrative Expenses 6.7%
  Fundraising Expenses 10.9%
  Fundraising Efficiency $0.08
  Working Capital Ratio (years) 1.42
  Program Expenses Growth 4.3%
  Liabilities to Assets 21.1%
All data for Financial Performance Metrics calculations was provided by Dystonia Medical Research Foundation on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Dystonia Medical Research Foundation on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
Dystonia Medical Research Foundation (IL) 93.30 four stars
Brain Chemistry Labs (WY) 89.37 three stars
Masonic Medical Research Institute (NY) 85.61 three stars
Moffitt Cancer Center Foundation (FL) 85.57 three stars
National Pediatric Cancer Foundation (FL) 100.00 four stars

Compare These Charities (Highly Rated)

REVENUE  
Contributions  
   Contributions, Gifts & Grants $1,816,704
   Federated Campaigns $9,891
   Membership Dues $0
   Fundraising Events $466,881
   Related Organizations $0
   Government Grants $0
Total Contributions $2,293,476
   Program Service Revenue $0
Total Primary Revenue $2,293,476
   Other Revenue $124,191
TOTAL REVENUE $2,417,667
   
EXPENSES  
   Program Expenses $2,174,381
   Administrative Expenses $195,998
   Fundraising Expenses $299,679
TOTAL FUNCTIONAL EXPENSES $2,670,058
   
Payments to Affiliates $0
Excess (or Deficit) for the year $-252,391
   
Net Assets $3,674,726

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Science $1,442,242 66.3%
Awareness and Education $419,167 19.3%
Membership and Support $190,386 8.8%

Ratings History
Dystonia Medical Research Foundation has received 2 consecutive 4-star ratings from Charity Navigator.

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2018-12 12/01/2019 93.30 four stars
2017-12 04/01/2019 95.85 four stars
2017-12 02/01/2019 95.34 four stars
2016-12 02/01/2018 88.66 three stars
2015-12 02/01/2017 87.09 three stars
2014-12 06/01/2016 89.37 three stars
 
CN 2.0
2014-12 04/01/2016 82.75 three stars
2014-12 12/01/2015 81.08 three stars
2013-12 05/01/2015 82.79 three stars
2012-12 11/01/2013 94.68 four stars
2011-12 05/01/2013 85.53 three stars
2010-12 03/01/2012 84.27 three stars
2009-12 09/20/2011 82.39 three stars
 
CN 1.0
2009-12 03/01/2011 74.11 two stars
2008-12 04/01/2010 85.93 three stars
2007-12 12/17/2008 83.83 three stars
2006-12 11/01/2007 90.56 four stars
2004-12 12/01/2005 82.96 three stars
2003-12 11/01/2004 82.17 three stars
2002-12 01/01/2004 91.97 four stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 95-3378526
Name in IRS Master File DYSTONIA MEDICAL RESEARCH FOUNDATION
NTEE Code H48
NTEE Classification Brain Disorders Research
NTEE Type Medical Research
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (161) Scientific research (diseases)
(162) Other medical research
(602) Gifts, grants, or loans to other organizations
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date July, 1980
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2018
  • December, 2017
  • December, 2016
  • December, 2015
  • December, 2014
Compensation % of Expenses Paid to Title
$156,494 5.86% Janet Hieshetter Executive Director

Highly Rated

Charity Name & State Overall Score Overall Rating
Dystonia Medical Research Foundation (IL) 93.30 four stars
Brain & Behavior Research Foundation (NY) 85.21 three stars
Cure Alzheimer's Fund (MA) 96.46 four stars
Huntington Medical Research Institutes (CA) 87.05 three stars
Retina Foundation of the Southwest (TX) 94.85 four stars

Compare These Charities (Highly Rated)

This charity has an official representative registered with Charity Navigator.

Charity Contact Info

Dystonia Medical Research Foundation
One East Wacker Drive
Suite 1730
Chicago, IL 60601
tel: (800) 377-3978
fax: (312) 803-0138
EIN: 95-3378526

Visit Web Site

Board Leadership

Art Kessler
President

CEO

Janet Hieshetter
Executive Director

Join Our Mailing List

Join over 400,000 other informed givers and get updates on charity ratings, new features, hot topics, and tips for donating.