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Health : Diseases, Disorders, and Disciplines

National Down Syndrome Society

The national advocate for the value, acceptance and inclusion of people with Down syndrome.

four stars

90.98

666 Broadway Eighth Floor
New York, NY 10012
tel: (800) 221-4602   Web Site
EIN: 13-2992567

Board Leadership
Robert P. Taishoff
Chair

CEO
Sara Hart Weir
President

 
 
  Score
(out of 100)		 Rating
Overall Score & Rating 90.98 four stars
  Financial 87.89 three stars
  Accountability & Transparency 96.00 four stars
This rating was published 06/01/2016 and includes data from FY2015, the most recent 990 received at that time.
Why isn't this based on more recent data?

Learn more about how we calculate the overall score and rating.

Financial

three stars

87.89

Accountability & Transparency

four stars

96.00

This rating was published 06/01/2016 and includes data from FY2015, the most recent 990 received at that time.
Why isn't this based on more recent data?
Overall Rating Chart
  Program Expenses
(Percent of the charity’s total expenses spent on the programs
and services it delivers)		 75.9%
  Administrative Expenses 11.0%
  Fundraising Expenses 12.9%
  Fundraising Efficiency $0.15
  Working Capital Ratio (years) 1.17
  Program Expenses Growth 2.5%
  Liabilities to Assets 4.3%
All data for Financial Performance Metrics calculations was provided by National Down Syndrome Society on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by National Down Syndrome Society on recent 990s filed with the IRS.
Information Provided on the Form 990  
  Independent Voting Board Members
  No Material diversion of assets
  Audited financials prepared by independent accountant
  Does Not Provide Loan(s) to or Receive Loan(s) From related parties
  Documents Board Meeting Minutes
  Provided copy of Form 990 to organization's governing body in advance of filing
  Conflict of Interest Policy
  Whistleblower Policy
  Records Retention and Destruction Policy
  CEO listed with salary
  Process for determining CEO compensation
  Board Listed / Board Members Not Compensated
Is the following information easily accessible on the charity's website?  
  Donor Privacy Policy
  Board Members Listed
  Audited Financials
  Form 990
  Key staff listed

Highly Rated

Charity Name & State Overall Score Overall Rating
National Down Syndrome Society (NY) 90.98 four stars
Alpha-1 Foundation (FL) 94.31 four stars
Cerebral Palsy, Inc. (WI) 88.15 three stars
The Progeria Research Foundation (MA) 97.94 four stars
Fanconi Anemia Research Fund (OR) 86.44 three stars

Compare These Charities (Highly Rated)

The National Down Syndrome Society (NDSS) is a national advocate for the value, acceptance and inclusion of people with Down syndrome. The NDSS envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations, and become valued members of welcoming communities. Founded in 1979, our activities include shaping and advocating for improved public policy, increased public resources and services for people with Down syndrome; working in partnership with our affiliates and other support organizations; improving educational opportunities for individuals with Down syndrome; advancing basic, clinical and applied research; and implementing a national public awareness strategy.

REVENUE  
Contributions  
   Contributions, Gifts & Grants $1,335,016
   Federated Campaigns $118,130
   Membership Dues $0
   Fundraising Events $637,137
   Related Organizations $0
   Government Grants $0
Total Contributions $2,090,283
   Program Service Revenue $9,426
Total Primary Revenue $2,099,709
   Other Revenue $317,059
TOTAL REVENUE $2,416,768
   
EXPENSES  
   Program Expenses $1,798,119
   Administrative Expenses $245,954
   Fundraising Expenses $346,319
TOTAL FUNCTIONAL EXPENSES $2,390,392
   
Payments to Affiliates $14,394
Excess (or Deficit) for the year $26,376
   
Net Assets $3,874,244

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Community Relations $515,926 28.7%
Public Policy $447,271 24.9%
Buddy Walks $425,805 23.7%

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2015-03 06/01/2016 90.98 four stars
 
CN 2.0
2014-03 10/01/2015 87.91 three stars
2013-03 06/01/2014 90.51 four stars
2012-03 06/01/2013 83.41 three stars
2011-03 03/01/2012 91.10 four stars
2010-03 09/20/2011 87.51 three stars
 
CN 1.0
2010-03 07/01/2011 78.87 two stars
2009-03 06/01/2010 82.20 three stars
2008-03 06/01/2009 79.79 two stars
2007-03 05/01/2008 87.60 three stars
2006-03 05/01/2007 87.55 three stars
2005-03 05/01/2006 90.78 four stars
2004-03 03/01/2005 88.45 three stars
2003-03 06/01/2004 85.75 three stars
2002-03 01/01/2004 79.50 two stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 13-2992567
Name in IRS Master File NATIONAL DOWN SYNDROME SOCIETY
NTEE Code [Not Provided by IRS]
NTEE Classification [Not Provided by IRS]
NTEE Type [Not Provided by IRS]
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (160) Aid to the handicapped (see also 031)
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date August, 1979
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End March
IRS Forms 990
(provided courtesy of Foundation Center)		 (Log In or Register Now to View Forms 990!)
  • March, 2016
  • March, 2015
  • March, 2014
  • March, 2013
  • March, 2012

The data displayed in this profile is provided by the IRS for free in the form of Publication 78 and the Business Master File (BMF).

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Compensation % of Expenses Paid to Title
$109,861 4.59% Sara Weir President
Other Salaries of Note
$225,232 9.42% Jonathan Colman Former President

The National Down Syndrome Society (NDSS) is a national advocate for the value, acceptance and inclusion of people with Down syndrome. The NDSS envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations, and become valued members of welcoming communities. Founded in 1979, our activities include shaping and advocating for improved public policy, increased public resources and services for people with Down syndrome; working in partnership with our affiliates and other support organizations; improving educational opportunities for individuals with Down syndrome; advancing basic, clinical and applied research; and implementing a national public awareness strategy.

Highly Rated

Charity Name & State Overall Score Overall Rating
National Down Syndrome Society (NY) 90.98 four stars
Dystrophic Epidermolysis Bullosa Research Association of America (debra of America) (NY) 91.16 four stars
Fanconi Anemia Research Fund (OR) 86.44 three stars
United Ability (AL) 95.46 four stars
Prader-Willi Syndrome Association (USA) (FL) 88.23 three stars

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Charity Contact Info

National Down Syndrome Society
666 Broadway
Eighth Floor
New York, NY 10012
tel: (800) 221-4602
fax: (212) 979-2873
EIN: 13-2992567

Visit Web Site

Board Leadership

Robert P. Taishoff
Chair

CEO

Sara Hart Weir
President

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