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Health : Diseases, Disorders, and Disciplines
Board Leadership
Charles Symington
Chair
CEO
Kandi Pickard
President & CEO
|
The National Down Syndrome Society (NDSS) is the leading human rights organization for all individuals with Down syndrome. NDSS envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations and become valued members of welcoming communities. Founded in 1979, NDSS supports and advocates for the Down syndrome community by focusing on three key areas of programming: Resources & Support, Policy & Advocacy and Community Engagement. Within these focus areas NDSS engages in various activities, events and programs such as the National Advocacy & Policy Center, which seeks to create systemic change through engaged advocacy; the National Buddy Walk® Program, which honors and celebrates individuals with Down syndrome in local communities across the world and other initiatives that provide support, informational resources and engagement opportunities for the Down syndrome community.
The National Down Syndrome Society (NDSS) is the leading human rights organization for all individuals with Down syndrome. NDSS envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations and become valued members of welcoming communities. Founded in 1979, NDSS supports and advocates for the Down syndrome community by focusing on three key areas of programming: Resources & Support, Policy & Advocacy and Community Engagement. Within these focus areas NDSS engages in various activities, events and programs such as the National Advocacy & Policy Center, which seeks to create systemic change through engaged advocacy; the National Buddy Walk® Program, which honors and celebrates individuals with Down syndrome in local communities across the world and other initiatives that provide support, informational resources and engagement opportunities for the Down syndrome community.
92.05
100.00
Program Expenses (Percent of the charity's total expenses spent on the programs and services it delivers) |
74.7% | |
Administrative Expenses | 11.3% | |
Fundraising Expenses | 13.8% | |
Fundraising Efficiency | $0.15 | |
Working Capital Ratio (years) | 4.00 | |
Program Expenses Growth | 17.5% | |
Liabilities to Assets | 3.0% |
Charity Name & State | Overall Score | Overall Rating |
---|---|---|
National Down Syndrome Society (NY) | 94.37 | |
Spina Bifida Association (VA) | 85.88 | |
The Cornelia de Lange Syndrome Foundation (CT) | 96.66 | |
Angelman Syndrome Foundation (IL) | 90.55 | |
Fanconi Anemia Research Fund (OR) | 97.25 |
REVENUE | |
Contributions | |
Contributions, Gifts & Grants | $2,352,176 |
Federated Campaigns | $158,178 |
Membership Dues | $0 |
Fundraising Events | $0 |
Related Organizations | $0 |
Government Grants | $0 |
Total Contributions | $2,510,354 |
Program Service Revenue | $35,911 |
Total Primary Revenue | $2,546,265 |
Other Revenue | $716,822 |
TOTAL REVENUE | $3,263,087 |
EXPENSES | |
Program Expenses | $2,921,285 |
Administrative Expenses | $340,756 |
Fundraising Expenses | $617,688 |
TOTAL FUNCTIONAL EXPENSES | $3,879,729 |
Payments to Affiliates | $28,234 |
Excess (or Deficit) for the year | $-616,642 |
Net Assets | $11,884,620 |
Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.
Program Name | Amount Spent | % of Program Expenses |
---|---|---|
Community Support and Outreach | $842,282 | 28.8% |
Advocacy and Public Policy | $401,618 | 13.7% |
Inclusive Health and Sports | $268,233 | 9.2% |
Form 990 FYE | Date Published | Overall Score | Overall Rating | ||||||
---|---|---|---|---|---|---|---|---|---|
CN 2.1 | |||||||||
2018-03 | 07/01/2019 | 94.37 | |||||||
2017-03 | 11/01/2018 | 87.28 | |||||||
2017-03 | 08/01/2018 | 86.97 | |||||||
2016-03 | 07/01/2017 | 87.13 | |||||||
2015-03 | 06/01/2016 | 90.98 | |||||||
CN 2.0 | |||||||||
2014-03 | 10/01/2015 | 87.91 | |||||||
2013-03 | 06/01/2014 | 90.51 | |||||||
2012-03 | 06/01/2013 | 83.41 | |||||||
2011-03 | 03/01/2012 | 91.10 | |||||||
2010-03 | 09/20/2011 | 87.51 | |||||||
CN 1.0 | |||||||||
2010-03 | 07/01/2011 | 78.87 | |||||||
2009-03 | 06/01/2010 | 82.20 | |||||||
2008-03 | 06/01/2009 | 79.79 | |||||||
2007-03 | 05/01/2008 | 87.60 | |||||||
2006-03 | 05/01/2007 | 87.55 | |||||||
2005-03 | 05/01/2006 | 90.78 | |||||||
2004-03 | 03/01/2005 | 88.45 | |||||||
2003-03 | 06/01/2004 | 85.75 | |||||||
2002-03 | 01/01/2004 | 79.50 |
The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).
EIN | 13-2992567 |
Name in IRS Master File | NATIONAL DOWN SYNDROME SOCIETY |
NTEE Code | [Not Provided by IRS] |
NTEE Classification | [Not Provided by IRS] |
NTEE Type | [Not Provided by IRS] |
Classification | Charitable Organization |
Subsection | 501(c)(3) (View the list of codes) |
Activities | (160) Aid to the handicapped (see also 031) |
Foundation Status | Organization which receives a substantial part of its support from a governmental unit or the general public 170(b)(1)(A)(vi) |
Deductibility | Contributions are deductible |
Affiliation | Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations). |
Group Name | [Not Applicable] |
Ruling Date | August, 1979 |
Filing Requirement | 990 (all other) or 990EZ return |
Fiscal Year End | June |
IRS Forms 990 (provided courtesy of Foundation Center) |
(Log In or Register Now to View Forms 990!)
|
Compensation | % of Expenses | Paid to | Title | |
---|---|---|---|---|
$256,046 | 6.59% | Sara Weir | President |
Charity Name & State | Overall Score | Overall Rating |
---|---|---|
National Down Syndrome Society (NY) | 94.37 | |
Spina Bifida Association (VA) | 85.88 | |
Alpha-1 Foundation (FL) | 93.26 | |
The Cornelia de Lange Syndrome Foundation (CT) | 96.66 | |
MiracleFeet (NC) | 96.99 |
This charity has an official representative registered with Charity Navigator.
National Down Syndrome Society
8 E 41st Street
Eighth Floor
New York,
NY 10017
tel: (800) 221-4602
EIN: 13-2992567
Charles Symington
Chair
Kandi Pickard
President & CEO
Charity Navigator
299 Market Street Suite 250
Saddle Brook, NJ 07663
EIN: 13-4148824
BRIDGE ID: 3108588923