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Health : Patient and Family Support
Board Leadership
Marshall Summar
Chairman
CEO
Peter L. Saltonstall
President, CEO
|
NORD, a 501(c)(3) organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 230 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.
NORD, a 501(c)(3) organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 230 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.
97.47
100.00
Program Expenses (Percent of the charity's total expenses spent on the programs and services it delivers) |
84.9% | |
Administrative Expenses | 10.9% | |
Fundraising Expenses | 4.0% | |
Fundraising Efficiency | $0.03 | |
Working Capital Ratio (years) | 1.31 | |
Program Expenses Growth | 12.4% | |
Liabilities to Assets | 6.8% |
Charity Name & State | Overall Score | Overall Rating |
---|---|---|
National Organization for Rare Disorders (CT) | 98.21 | |
Ronald McDonald House Charities of Southern Arizona (AZ) | 89.07 | |
Ronald McDonald House Charities Bay Area (CA) | 92.61 | |
Ronald McDonald House Charities of Southwest Florida (FL) | 85.05 | |
Ronald McDonald House Charities of Southeastern Michigan (MI) | 92.46 |
REVENUE | |
Contributions | |
Contributions, Gifts & Grants | $40,329,556 |
Federated Campaigns | $0 |
Membership Dues | $1,321,624 |
Fundraising Events | $1,375,551 |
Related Organizations | $0 |
Government Grants | $0 |
Total Contributions | $43,026,731 |
Program Service Revenue | $5,254,373 |
Total Primary Revenue | $48,281,104 |
Other Revenue | $-149,973 |
TOTAL REVENUE | $48,131,131 |
EXPENSES | |
Program Expenses | $28,183,238 |
Administrative Expenses | $3,522,216 |
Fundraising Expenses | $1,285,288 |
TOTAL FUNCTIONAL EXPENSES | $32,990,742 |
Payments to Affiliates | $0 |
Excess (or Deficit) for the year | $15,140,389 |
Net Assets | $35,662,359 |
Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.
Program Name | Amount Spent | % of Program Expenses |
---|---|---|
Patient Services | $26,050,636 | 92.4% |
Research Grants | $1,057,318 | 3.8% |
Advocacy Services | $686,768 | 2.4% |
Form 990 FYE | Date Published | Overall Score | Overall Rating | ||||||
---|---|---|---|---|---|---|---|---|---|
CN 2.1 | |||||||||
2016-12 | 08/01/2018 | 95.45 | |||||||
2016-12 | 08/01/2018 | 95.45 | |||||||
2015-12 | 05/01/2017 | 91.19 | |||||||
2014-12 | 08/01/2016 | 92.74 | |||||||
2013-12 | 06/01/2016 | 88.03 | |||||||
CN 2.0 | |||||||||
2013-12 | 08/01/2015 | 92.63 | |||||||
2012-12 | 05/01/2014 | 88.93 | |||||||
2011-12 | 03/01/2013 | 91.30 | |||||||
2010-12 | 09/01/2012 | 94.43 | |||||||
2010-12 | 03/01/2012 | 94.70 | |||||||
2009-12 | 09/20/2011 | 90.90 | |||||||
CN 1.0 | |||||||||
2009-12 | 02/01/2011 | 86.72 | |||||||
2008-12 | 03/01/2010 | 99.49 | |||||||
2007-12 | 12/01/2008 | 99.59 | |||||||
2006-12 | 12/01/2007 | 97.16 | |||||||
2005-12 | 11/01/2006 | 97.19 | |||||||
2004-12 | 10/01/2005 | 96.82 | |||||||
2003-12 | 10/01/2004 | 98.64 | |||||||
2002-12 | 01/01/2004 | 98.35 |
The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).
EIN | 13-3223946 |
Name in IRS Master File | NATIONAL ORGANIZATION FOR RARE DISORDERS INC |
NTEE Code | [Not Provided by IRS] |
NTEE Classification | [Not Provided by IRS] |
NTEE Type | [Not Provided by IRS] |
Classification | Charitable Organization |
Subsection | 501(c)(3) (View the list of codes) |
Activities | (179) Other health services (603) Non-financial services of facilities to other organizations |
Foundation Status | Organization which receives a substantial part of its support from a governmental unit or the general public 170(b)(1)(A)(vi) |
Deductibility | Contributions are deductible |
Affiliation | Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations). |
Group Name | [Not Applicable] |
Ruling Date | May, 1989 |
Filing Requirement | 990 (all other) or 990EZ return |
Fiscal Year End | December |
IRS Forms 990 (provided courtesy of Foundation Center) |
(Log In or Register Now to View Forms 990!)
|
Compensation | % of Expenses | Paid to | Title | |
---|---|---|---|---|
$370,073 | 1.12% | Peter Saltonstall | President/CEO |
Charity Name & State | Overall Score | Overall Rating |
---|---|---|
National Organization for Rare Disorders (CT) | 98.21 | |
Ronald McDonald House Charities of St. Louis (MO) | 86.20 | |
Ronald McDonald House Charities of New Mexico (NM) | 86.80 | |
Ronald McDonald House Charities of Charleston (SC) | 91.89 | |
Ronald McDonald House Houston (TX) | 87.79 |
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National Organization for Rare Disorders
55 Kenosia Avenue
Danbury,
CT 06813
tel: (203) 744-0100
fax: (203) 798-2291
EIN: 13-3223946
Marshall Summar
Chairman
Peter L. Saltonstall
President, CEO
Charity Navigator
139 Harristown Rd Suite 101
Glen Rock, NJ 07452
EIN: 13-4148824
BRIDGE ID: 3108588923
Charity Navigator
139 Harristown Rd Suite 101
Glen Rock, NJ 07452
EIN: 13-4148824
BRIDGE ID: 3108588923