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Health : Diseases, Disorders, and Disciplines

Lupus Foundation of America

Dedicated to improving the quality of life for all people affected by lupus through research, education and advocacy.

three stars

80.76

2121 K Street, NW Suite 200
Washington, DC 20037
tel: (202) 349-1155   Web Site
EIN: 43-1131436

Board Leadership
Susan Manzi, MD, MPH
Board Chair

CEO
Stevan W. Gibson
President & CEO

  Score
(out of 100)
Rating
Overall Score & Rating 80.76 three stars
  Financial 73.10 two stars
  Accountability & Transparency 96.00 four stars
This rating was published 07/01/2019 and includes data from FY2018, the most recent 990 received at that time.

The Lupus Foundation of America, commonly known as LFA, is the only national force devoted to solving the mystery of lupus while giving caring support to those who suffer from its brutal impact. We envision a life free of lupus. Our mission is to improve the quality of life for all people affected by lupus through programs of research, education, support and advocacy.

We have greatly stepped up our fundraising and advocacy efforts to ensure we reach our disease-specific goals:

1. Reduce the time to diagnosis
2. Ensure people with lupus have an arsenal of safe and effective treatments 
3. Expand direct services and increase access to treatment and care
 
Our research efforts deliver the most significant impact on people's lives in the shortest time possible. We tackle lupus from every direction to identify the causes, treatments, means to prevent and cure this life-threatening disease. Our patient-first research approach delivers better results to improve quality of life.

The Lupus Foundation of America, commonly known as LFA, is the only national force devoted to solving the mystery of lupus while giving caring support to those who suffer from its brutal impact. We envision a life free of lupus. Our mission is to improve the quality of life for all people affected by lupus through programs of research, education, support and advocacy.

We have greatly stepped up our fundraising and advocacy efforts to ensure we reach our disease-specific goals:

1. Reduce the time to diagnosis
2. Ensure people with lupus have an arsenal of safe and effective treatments 
3. Expand direct services and increase access to treatment and care
 
Our research efforts deliver the most significant impact on people's lives in the shortest time possible. We tackle lupus from every direction to identify the causes, treatments, means to prevent and cure this life-threatening disease. Our patient-first research approach delivers better results to improve quality of life.

Impact Information

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This impact information is current as of January 2020, when it was provided to us by GuideStar. At this time, Impact information published on this organization's page has no effect on its rating per our methodology.

Financial

two stars

73.10

Accountability & Transparency

four stars

96.00

This rating was published 07/01/2019 and includes data from FY2018, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
72.9%
  Administrative Expenses 7.2%
  Fundraising Expenses 19.7%
  Fundraising Efficiency $0.22
  Working Capital Ratio (years) 0.35
  Program Expenses Growth 8.1%
  Liabilities to Assets 44.9%
All data for Financial Performance Metrics calculations was provided by Lupus Foundation of America on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Lupus Foundation of America on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
Lupus Foundation of America (DC) 80.76 three stars
National Alopecia Areata Foundation (CA) 91.48 four stars
Cystic Fibrosis Research, Inc. (CA) 97.17 four stars
Brain Aneurysm Foundation (MA) 85.52 three stars
Creutzfeldt-Jakob Disease Foundation (OH) 93.23 four stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $11,657,241
   Federated Campaigns $195,958
   Membership Dues $0
   Fundraising Events $245,935
   Related Organizations $51,772
   Government Grants $1,173,257
Total Contributions $13,324,163
   Program Service Revenue $2,989,013
Total Primary Revenue $16,313,176
   Other Revenue $18,341
TOTAL REVENUE $16,331,517
   
EXPENSES  
   Program Expenses $11,945,097
   Administrative Expenses $1,100,099
   Fundraising Expenses $2,580,452
TOTAL FUNCTIONAL EXPENSES $15,625,648
   
Payments to Affiliates $13,999
Excess (or Deficit) for the year $705,869
   
Net Assets $5,245,121

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Public Information and Education $5,741,758 48.1%
Research $2,778,787 23.3%
Network Support and Services $2,356,224 19.7%

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2018-09 07/01/2019 80.76 three stars
2017-09 09/01/2018 72.88 two stars
2017-09 08/01/2018 71.93 two stars
2016-09 11/01/2017 75.98 two stars
2015-09 11/01/2016 78.40 two stars
2014-09 09/01/2016 81.96 three stars
2014-09 06/01/2016 80.56 three stars
 
CN 2.0
2014-09 11/01/2015 83.21 three stars
2013-09 02/01/2015 86.44 three stars
2013-09 12/22/2014 85.72 three stars
2013-09 11/01/2014 77.97 two stars
2012-09 09/01/2013 83.16 three stars
2011-09 11/06/2012 77.56 two stars
2011-09 09/01/2012 76.03 two stars
2011-09 06/01/2012 81.78 three stars
2010-09 09/20/2011 77.26 two stars
 
CN 1.0
2009-09 10/01/2010 75.40 two stars
2008-09 10/01/2009 87.50 three stars
2007-09 09/01/2008 82.77 three stars
2006-09 07/01/2007 87.87 three stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 43-1131436
Name in IRS Master File LUPUS FOUNDATION OF AMERICA INC
NTEE Code G89
NTEE Classification [Not Provided by IRS]
NTEE Type [Not Provided by IRS]
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (160) Aid to the handicapped (see also 031)
(179) Other health services
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date May, 1978
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End September
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • September, 2018
  • September, 2017
  • September, 2016
  • September, 2015
  • September, 2014
Compensation % of Expenses Paid to Title
$295,640 1.89% Sandra C. Raymond CEO

Highly Rated

Charity Name & State Overall Score Overall Rating
Lupus Foundation of America (DC) 80.76 three stars
International OCD Foundation (MA) 87.53 three stars
Cystic Fibrosis Research, Inc. (CA) 97.17 four stars
American Thyroid Association (VA) 89.99 three stars
Histiocytosis Association (NJ) 91.16 four stars

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This charity has an official representative registered with Charity Navigator.

Charity Contact Info

Lupus Foundation of America
2121 K Street, NW
Suite 200
Washington, DC 20037
tel: (202) 349-1155
fax: (202) 349-1156
EIN: 43-1131436

Visit Web Site

Board Leadership

Susan Manzi, MD, MPH
Board Chair

CEO

Stevan W. Gibson
President & CEO

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