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Health : Diseases, Disorders, and Disciplines (Grantmaking)

National Gaucher Foundation

Providing support through financial, educational, and research programs

one star

69.15

5410 Edson Lane Suite 220
Rockville, MD 20852
tel: (800) 504-3189   Web Site
EIN: 52-1350226

CEO
Brian Berman
President

  Score
(out of 100)
Rating
Overall Score & Rating 69.15 one star
  Financial 85.10 three stars
  Accountability & Transparency 59.00 one star
This rating was published 06/01/2021 and includes data from FY2019, the most recent 990 received at that time.

The National Gaucher Foundation (NGF), established in 1984, has funded millions of dollars to support and promote research towards the cause, treatments and a cure for Gaucher disease. To meet the ever-increasing needs of individuals with Gaucher disease and their families, the NGF offers a wide range of programs and resources. The NGF funds research, offers financial assistance, promotes education and awareness, supports legislative issues and provides outreach programs vital to the Gaucher community. Gaucher Disease is an autosomal recessive disease with an incidence of about 1 in 20,000 live births.

The National Gaucher Foundation (NGF), established in 1984, has funded millions of dollars to support and promote research towards the cause, treatments and a cure for Gaucher disease. To meet the ever-increasing needs of individuals with Gaucher disease and their families, the NGF offers a wide range of programs and resources. The NGF funds research, offers financial assistance, promotes education and awareness, supports legislative issues and provides outreach programs vital to the Gaucher community. Gaucher Disease is an autosomal recessive disease with an incidence of about 1 in 20,000 live births.

Financial

three stars

85.10

Accountability & Transparency

one star

59.00

This rating was published 06/01/2021 and includes data from FY2019, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
88.3%
  Administrative Expenses 11.2%
  Fundraising Expenses 0.4%
  Fundraising Efficiency < $0.01
  Working Capital Ratio (years) 0.46
  Program Expenses Growth 1.6%
  Liabilities to Assets 0.6%
All data for Financial Performance Metrics calculations was provided by National Gaucher Foundation on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by National Gaucher Foundation on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
National Gaucher Foundation (MD) 69.15 one star
National Hemophilia Foundation (NY) 87.54 three stars
Children and Adults with Attention-Deficit/Hyperactivity Disorder (MD) 88.45 three stars
Tourette Association of America (NY) 85.23 three stars
Immune Deficiency Foundation (MD) 92.70 four stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $1,781,138
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $0
   Related Organizations $0
   Government Grants $0
Total Contributions $1,781,138
   Program Service Revenue $0
Total Primary Revenue $1,781,138
   Other Revenue $62,563
TOTAL REVENUE $1,843,701
   
EXPENSES  
   Program Expenses $3,515,157
   Administrative Expenses $415,977
   Fundraising Expenses $17,165
TOTAL FUNCTIONAL EXPENSES $3,948,299
   
Payments to Affiliates $0
Excess (or Deficit) for the year $-2,104,598
   
Net Assets $1,763,690

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Financial Assistance $2,600,000 74.0%
Education and Awareness Initiatives $915,157 26.0%

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2019-12 06/01/2021 69.15 one star
2018-12 03/01/2020 70.65 two stars
2017-12 08/01/2019 70.13 two stars
2017-12 06/01/2019 70.21 two stars
2016-05 08/01/2017 76.07 two stars
2015-05 06/01/2016 75.51 two stars
 
CN 2.0
2014-05 09/01/2015 74.27 two stars
2013-05 06/01/2014 69.19 one star
2012-05 06/01/2013 65.74 one star
2011-05 03/01/2012 73.21 two stars
2010-05 09/20/2011 70.21 two stars
 
CN 1.0
2010-05 07/01/2011 73.27 two stars
2009-05 11/24/2010 85.49 three stars
2008-05 03/01/2009 91.13 four stars
2007-05 05/01/2008 91.54 four stars
2006-05 04/01/2007 91.65 four stars
2005-05 02/01/2006 91.80 four stars
2004-05 02/01/2005 87.85 three stars
2003-05 03/01/2004 88.82 three stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 52-1350226
Name in IRS Master File NATIONAL GAUCHER FOUNDATION INC
NTEE Code G80
NTEE Classification Specifically Named Diseases
NTEE Type Diseases, Disorders, Medical Disciplines
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (161) Scientific research (diseases)
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date November, 1984
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2018
  • December, 2017
  • December, 2016
  • May, 2016
  • May, 2015
Compensation % of Expenses Paid to Title
$200,000 5.06% Brian Berman President

Highly Rated

Charity Name & State Overall Score Overall Rating
National Gaucher Foundation (MD) 69.15 one star
National Headache Foundation (IL) 86.48 three stars
American Brain Tumor Association (IL) 90.77 four stars
Cystic Fibrosis Research, Inc. (CA) 96.58 four stars
Jeffrey Modell Foundation (NY) 95.31 four stars

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Charity Contact Info

National Gaucher Foundation
5410 Edson Lane
Suite 220
Rockville, MD 20852
tel: (800) 504-3189
fax: (770) 934-2911
EIN: 52-1350226

Visit Web Site

CEO

Brian Berman
President

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