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Health : Diseases, Disorders, and Disciplines

Parent Project Muscular Dystrophy

Leading the fight to end Duchenne

four stars

91.66

401 Hackensack Avenue 9th Floor
Hackensack, NJ 07601
tel: (800) 714-5437   Web Site
EIN: 31-1405490

Board Leadership
Anessa Gaydou Fehsenfeld
Chairman

CEO
Pat Furlong
CEO, Founder

  Score
(out of 100)
Rating
Overall Score & Rating 91.66 four stars
  Financial 88.91 three stars
  Accountability & Transparency 96.00 four stars
This rating was published 02/01/2017 and includes data from FY2015, the most recent 990 received at that time.

Learn more about how we calculate the overall score and rating.

Financial

three stars

88.91

Accountability & Transparency

four stars

96.00

This rating was published 02/01/2017 and includes data from FY2015, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
81.2%
  Administrative Expenses 6.3%
  Fundraising Expenses 12.3%
  Fundraising Efficiency $0.12
  Working Capital Ratio (years) 0.37
  Program Expenses Growth 8.9%
  Liabilities to Assets 8.6%
All data for Financial Performance Metrics calculations was provided by Parent Project Muscular Dystrophy on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Parent Project Muscular Dystrophy on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
Parent Project Muscular Dystrophy (NJ) 91.66 four stars
Hunter's Hope Foundation (NY) 93.80 four stars
Cystic Fibrosis Foundation (MD) 94.70 four stars
Charcot-Marie-Tooth Association (PA) 87.18 three stars
Aplastic Anemia & MDS International Foundation (MD) 93.32 four stars

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Founded in 1994, Parent Project Muscular Dystrophy's mission is to improve the treatment, quality of life and long-term outlook for all individuals affected by Duchenne muscular dystrophy through research, advocacy, education and compassion. Our objectives include: identifying, supporting and sharing promising Duchenne-related research; making state-of-the-art information about treatment and care options available to all members of the Duchenne community; pursuing strategies that will impact this generation of young men affected by Duchenne as well as future generations; encouraging policymakers to afford the same priority to Duchenne as they would to other disorders of similar incidence and prevalence; and creating a supportive community for people affected by Duchenne.

REVENUE  
Contributions  
   Contributions, Gifts & Grants $7,687,322
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $1,038,163
   Related Organizations $0
   Government Grants $0
Total Contributions $8,725,485
   Program Service Revenue $161,900
Total Primary Revenue $8,887,385
   Other Revenue $-211,878
TOTAL REVENUE $8,675,507
   
EXPENSES  
   Program Expenses $6,521,908
   Administrative Expenses $421,124
   Fundraising Expenses $761,762
TOTAL FUNCTIONAL EXPENSES $7,704,794
   
Payments to Affiliates $0
Excess (or Deficit) for the year $970,713
   
Net Assets $2,498,159

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Research Support $5,092,322 78.1%
Educational Initiatives $1,165,370 17.9%
Advocacy $264,216 4.1%

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2015-12 02/01/2017 91.66 four stars
2014-12 06/01/2016 88.00 three stars
 
CN 2.0
2014-12 12/01/2015 80.60 three stars
2013-12 04/01/2015 91.02 four stars
2012-12 10/01/2013 91.59 four stars
2011-12 12/01/2012 95.35 four stars
2010-12 12/23/2011 89.48 three stars
2010-12 09/20/2011 89.11 three stars
 
CN 1.0
2009-12 03/01/2011 76.67 two stars
2008-12 02/01/2010 90.80 four stars
2007-12 03/01/2009 91.00 four stars
2006-12 10/01/2007 91.50 four stars
2005-12 10/01/2006 90.62 four stars
2004-12 01/01/2006 90.80 four stars
2003-12 12/01/2004 75.27 two stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 31-1405490
Name in IRS Master File THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC
NTEE Code P20
NTEE Classification Human Service Organizations - Multipurpose
NTEE Type Human Services - Multipurpose and Other
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (161) Scientific research (diseases)
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date June, 1994
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2015
  • December, 2014
  • December, 2013
  • December, 2012
  • December, 2011

The data displayed in this profile is provided by the IRS for free in the form of Publication 78 and the Business Master File (BMF).

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Compensation % of Expenses Paid to Title
$197,346 2.56% Patricia Furlong Founding President, CEO
Other Salaries of Note
$190,000 2.46% John Porter Former CEO

Founded in 1994, Parent Project Muscular Dystrophy's mission is to improve the treatment, quality of life and long-term outlook for all individuals affected by Duchenne muscular dystrophy through research, advocacy, education and compassion. Our objectives include: identifying, supporting and sharing promising Duchenne-related research; making state-of-the-art information about treatment and care options available to all members of the Duchenne community; pursuing strategies that will impact this generation of young men affected by Duchenne as well as future generations; encouraging policymakers to afford the same priority to Duchenne as they would to other disorders of similar incidence and prevalence; and creating a supportive community for people affected by Duchenne.

Highly Rated

Charity Name & State Overall Score Overall Rating
Parent Project Muscular Dystrophy (NJ) 91.66 four stars
Epilepsy Foundation of Minnesota (MN) 93.75 four stars
Friedreich's Ataxia Research Alliance (PA) 98.23 four stars
FSH Society (MA) 98.23 four stars
Hunter's Hope Foundation (NY) 93.80 four stars

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Charity Contact Info

Parent Project Muscular Dystrophy
401 Hackensack Avenue
9th Floor
Hackensack, NJ 07601
tel: (800) 714-5437
fax: (201) 250-8435
EIN: 31-1405490

Visit Web Site

Board Leadership

Anessa Gaydou Fehsenfeld
Chairman

CEO

Pat Furlong
CEO, Founder

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