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Health : Diseases, Disorders, and Disciplines

Parent Project Muscular Dystrophy

Leading the fight to end Duchenne

four stars

93.98

401 Hackensack Avenue 9th Floor
Hackensack, NJ 07601
tel: (800) 714-5437   Web Site
EIN: 31-1405490

Board Leadership
John Killian
Chairman

CEO
Pat Furlong
CEO, Founder

  Score
(out of 100)
Rating
Overall Score & Rating 93.98 four stars
  Financial 92.50 four stars
  Accountability & Transparency 96.00 four stars
This rating was published 12/21/2018 and includes data from FY2017, the most recent 990 received at that time.

Founded in 1994, Parent Project Muscular Dystrophy's mission is to improve the treatment, quality of life and long-term outlook for all individuals affected by Duchenne muscular dystrophy through research, advocacy, education and compassion. Our objectives include: identifying, supporting and sharing promising Duchenne-related research; making state-of-the-art information about treatment and care options available to all members of the Duchenne community; pursuing strategies that will impact this generation of young men affected by Duchenne as well as future generations; encouraging policymakers to afford the same priority to Duchenne as they would to other disorders of similar incidence and prevalence; and creating a supportive community for people affected by Duchenne.

Founded in 1994, Parent Project Muscular Dystrophy's mission is to improve the treatment, quality of life and long-term outlook for all individuals affected by Duchenne muscular dystrophy through research, advocacy, education and compassion. Our objectives include: identifying, supporting and sharing promising Duchenne-related research; making state-of-the-art information about treatment and care options available to all members of the Duchenne community; pursuing strategies that will impact this generation of young men affected by Duchenne as well as future generations; encouraging policymakers to afford the same priority to Duchenne as they would to other disorders of similar incidence and prevalence; and creating a supportive community for people affected by Duchenne.

Financial

four stars

92.50

Accountability & Transparency

four stars

96.00

This rating was published 12/21/2018 and includes data from FY2017, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
85.9%
  Administrative Expenses 6.0%
  Fundraising Expenses 7.9%
  Fundraising Efficiency $0.07
  Working Capital Ratio (years) 0.41
  Program Expenses Growth 16.3%
  Liabilities to Assets 29.2%
All data for Financial Performance Metrics calculations was provided by Parent Project Muscular Dystrophy on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Parent Project Muscular Dystrophy on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
Parent Project Muscular Dystrophy (NJ) 93.98 four stars
The Boomer Esiason Foundation (NY) 95.63 four stars
Friedreich's Ataxia Research Alliance (PA) 98.23 four stars
Osteogenesis Imperfecta Foundation (MD) 93.31 four stars
Restless Legs Syndrome Foundation (TX) 91.16 four stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $7,723,181
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $1,413,098
   Related Organizations $0
   Government Grants $0
Total Contributions $9,136,279
   Program Service Revenue $466,431
Total Primary Revenue $9,602,710
   Other Revenue $-270,269
TOTAL REVENUE $9,332,441
   
EXPENSES  
   Program Expenses $7,878,190
   Administrative Expenses $531,917
   Fundraising Expenses $692,652
TOTAL FUNCTIONAL EXPENSES $9,102,759
   
Payments to Affiliates $0
Excess (or Deficit) for the year $229,682
   
Net Assets $3,386,069

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Research $6,075,268 77.1%
Educational $1,409,516 17.9%
Advocacy $393,406 5.0%

Ratings History
Parent Project Muscular Dystrophy has received 3 consecutive 4-star ratings from Charity Navigator.

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2017-12 12/21/2018 93.98 four stars
2016-12 04/01/2018 90.72 four stars
2015-12 02/01/2017 91.66 four stars
2014-12 06/01/2016 88.00 three stars
 
CN 2.0
2014-12 12/01/2015 80.60 three stars
2013-12 04/01/2015 91.02 four stars
2012-12 10/01/2013 91.59 four stars
2011-12 12/01/2012 95.35 four stars
2010-12 12/23/2011 89.48 three stars
2010-12 09/20/2011 89.11 three stars
 
CN 1.0
2009-12 03/01/2011 76.67 two stars
2008-12 02/01/2010 90.80 four stars
2007-12 03/01/2009 91.00 four stars
2006-12 10/01/2007 91.50 four stars
2005-12 10/01/2006 90.62 four stars
2004-12 01/01/2006 90.80 four stars
2003-12 12/01/2004 75.27 two stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 31-1405490
Name in IRS Master File THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC
NTEE Code P20
NTEE Classification Human Service Organizations - Multipurpose
NTEE Type Human Services - Multipurpose and Other
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (161) Scientific research (diseases)
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date June, 1994
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2016
  • December, 2015
  • December, 2014
  • December, 2013
  • December, 2012

The data displayed in this profile is provided by the IRS for free in the form of Publication 78 and the Business Master File (BMF).

Compensation % of Expenses Paid to Title
$191,050 2.09% Patricia A Furlong Founding CEO & President

Highly Rated

Charity Name & State Overall Score Overall Rating
Parent Project Muscular Dystrophy (NJ) 93.98 four stars
Friedreich's Ataxia Research Alliance (PA) 98.23 four stars
Epilepsy Foundation of Minnesota (MN) 87.22 three stars
Aplastic Anemia & MDS International Foundation (MD) 91.51 four stars
The Boomer Esiason Foundation (NY) 95.63 four stars

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Charity Contact Info

Parent Project Muscular Dystrophy
401 Hackensack Avenue
9th Floor
Hackensack, NJ 07601
tel: (800) 714-5437
fax: (201) 250-8435
EIN: 31-1405490

Visit Web Site

Board Leadership

John Killian
Chairman

CEO

Pat Furlong
CEO, Founder

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