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Health : Diseases, Disorders, and Disciplines

Parent Project Muscular Dystrophy

Leading the fight to end Duchenne

four stars

96.46

401 Hackensack Avenue 9th Floor
Hackensack, NJ 07601
tel: (800) 714-5437   Web Site
EIN: 31-1405490

Board Leadership
Anessa Fehsenfeld
Board Chairman

CEO
Patricia A. Furlong
Founding CEO & President

  Score
(out of 100)
Rating
Overall Score & Rating 96.46 four stars
  Financial 95.00 four stars
  Accountability & Transparency 100.00 four stars
This rating was published 04/01/2021 and includes data from FY2019, the most recent 990 received at that time.

Founded in 1994, Parent Project Muscular Dystrophy's mission is to improve the treatment, quality of life and long-term outlook for all individuals affected by Duchenne muscular dystrophy through research, advocacy, education and compassion. Our objectives include: identifying, supporting and sharing promising Duchenne-related research; making state-of-the-art information about treatment and care options available to all members of the Duchenne community; pursuing strategies that will impact this generation of young men affected by Duchenne as well as future generations; encouraging policymakers to afford the same priority to Duchenne as they would to other disorders of similar incidence and prevalence; and creating a supportive community for people affected by Duchenne.

Founded in 1994, Parent Project Muscular Dystrophy's mission is to improve the treatment, quality of life and long-term outlook for all individuals affected by Duchenne muscular dystrophy through research, advocacy, education and compassion. Our objectives include: identifying, supporting and sharing promising Duchenne-related research; making state-of-the-art information about treatment and care options available to all members of the Duchenne community; pursuing strategies that will impact this generation of young men affected by Duchenne as well as future generations; encouraging policymakers to afford the same priority to Duchenne as they would to other disorders of similar incidence and prevalence; and creating a supportive community for people affected by Duchenne.

Financial

four stars

95.00

Accountability & Transparency

four stars

100.00

This rating was published 04/01/2021 and includes data from FY2019, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
86.8%
  Administrative Expenses 5.5%
  Fundraising Expenses 7.5%
  Fundraising Efficiency $0.07
  Working Capital Ratio (years) 0.45
  Program Expenses Growth 13.1%
  Liabilities to Assets 7.6%
All data for Financial Performance Metrics calculations was provided by Parent Project Muscular Dystrophy on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Parent Project Muscular Dystrophy on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
Parent Project Muscular Dystrophy (NJ) 96.46 four stars
Charcot-Marie-Tooth Association (PA) 99.51 four stars
Epilepsy Foundation of Minnesota (MN) 92.20 four stars
FSHD Society (MA) 91.14 four stars
Cystic Fibrosis Foundation (MD) 94.75 four stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $10,332,703
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $885,303
   Related Organizations $0
   Government Grants $0
Total Contributions $11,218,006
   Program Service Revenue $536,156
Total Primary Revenue $11,754,162
   Other Revenue $-318,495
TOTAL REVENUE $11,435,667
   
EXPENSES  
   Program Expenses $9,475,413
   Administrative Expenses $597,133
   Fundraising Expenses $780,442
TOTAL FUNCTIONAL EXPENSES $10,852,988
   
Payments to Affiliates $0
Excess (or Deficit) for the year $582,679
   
Net Assets $4,351,672

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Research $7,647,985 80.7%
Education $1,407,262 14.9%
Advocacy $420,166 4.4%

Ratings History
Parent Project Muscular Dystrophy has received 2 consecutive 4-star ratings from Charity Navigator.

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2019-12 04/01/2021 96.46 four stars
2018-12 03/01/2020 90.04 four stars
2018-12 12/01/2019 89.64 three stars
2017-12 12/21/2018 93.98 four stars
2016-12 04/01/2018 90.72 four stars
2015-12 02/01/2017 91.66 four stars
2014-12 06/01/2016 88.00 three stars
 
CN 2.0
2014-12 12/01/2015 80.60 three stars
2013-12 04/01/2015 91.02 four stars
2012-12 10/01/2013 91.59 four stars
2011-12 12/01/2012 95.35 four stars
2010-12 12/23/2011 89.48 three stars
2010-12 09/20/2011 89.11 three stars
 
CN 1.0
2009-12 03/01/2011 76.67 two stars
2008-12 02/01/2010 90.80 four stars
2007-12 03/01/2009 91.00 four stars
2006-12 10/01/2007 91.50 four stars
2005-12 10/01/2006 90.62 four stars
2004-12 01/01/2006 90.80 four stars
2003-12 12/01/2004 75.27 two stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 31-1405490
Name in IRS Master File THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC
NTEE Code P20
NTEE Classification Human Service Organizations - Multipurpose
NTEE Type Human Services - Multipurpose and Other
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (161) Scientific research (diseases)
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date June, 1994
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2017
  • December, 2016
  • December, 2015
  • December, 2014
  • December, 2013
Compensation % of Expenses Paid to Title
$236,487 2.17% Patricia A. Furlong Founding CEO & President

Highly Rated

Charity Name & State Overall Score Overall Rating
Parent Project Muscular Dystrophy (NJ) 96.46 four stars
Charcot-Marie-Tooth Association (PA) 99.51 four stars
FSHD Society (MA) 91.14 four stars
Friedreich's Ataxia Research Alliance (PA) 98.23 four stars
Hunter's Hope Foundation (NY) 93.62 four stars

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This charity has an official representative registered with Charity Navigator.

Charity Contact Info

Parent Project Muscular Dystrophy
401 Hackensack Avenue
9th Floor
Hackensack, NJ 07601
tel: (800) 714-5437
fax: (201) 250-8435
EIN: 31-1405490

Visit Web Site

Board Leadership

Anessa Fehsenfeld
Board Chairman

CEO

Patricia A. Furlong
Founding CEO & President

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