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Health : Diseases, Disorders, and Disciplines
Board Leadership
Brent Fields
Chairman
CEO
Brian Harman
President, CEO
|
The United Mitochondrial Disease Foundation (UMDF) was founded in 1996 through a merger of several smaller foundations established by those who lost loved ones to the disease. Mitochondria are responsible for producing 90% of the energy needed by our body to sustain life. Mitochondrial diseases result when there is a defect that reduces the ability of the mitochondria to produce energy. The UMDF offers support to all sufferers of mitochondrial disorders regardless of diagnosis, suspected or confirmed. Our mission is to promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families. Since 1996, the UMDF has provided more than $7 million in grants to support the research that may lead to a less invasive diagnosis and ultimately a cure.
The United Mitochondrial Disease Foundation (UMDF) was founded in 1996 through a merger of several smaller foundations established by those who lost loved ones to the disease. Mitochondria are responsible for producing 90% of the energy needed by our body to sustain life. Mitochondrial diseases result when there is a defect that reduces the ability of the mitochondria to produce energy. The UMDF offers support to all sufferers of mitochondrial disorders regardless of diagnosis, suspected or confirmed. Our mission is to promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families. Since 1996, the UMDF has provided more than $7 million in grants to support the research that may lead to a less invasive diagnosis and ultimately a cure.
68.75
100.00
Program Expenses (Percent of the charity's total expenses spent on the programs and services it delivers) |
71.9% | |
Administrative Expenses | 9.0% | |
Fundraising Expenses | 19.0% | |
Fundraising Efficiency | $0.32 | |
Working Capital Ratio (years) | 0.72 | |
Program Expenses Growth | -9.9% | |
Liabilities to Assets | 38.1% |
Charity Name & State | Overall Score | Overall Rating |
---|---|---|
United Mitochondrial Disease Foundation (PA) | 77.90 | |
Tuberous Sclerosis Alliance (MD) | 92.95 | |
Massachusetts Down Syndrome Congress (MA) | 89.46 | |
Sjögren's Syndrome Foundation (MD) | 89.24 | |
Autism Society of America (MD) | 86.32 |
REVENUE | |
Contributions | |
Contributions, Gifts & Grants | $1,386,200 |
Federated Campaigns | $20,916 |
Membership Dues | $0 |
Fundraising Events | $342,413 |
Related Organizations | $15,944 |
Government Grants | $0 |
Total Contributions | $1,765,473 |
Program Service Revenue | $409,819 |
Total Primary Revenue | $2,175,292 |
Other Revenue | $1,052,210 |
TOTAL REVENUE | $3,227,502 |
EXPENSES | |
Program Expenses | $1,778,615 |
Administrative Expenses | $327,712 |
Fundraising Expenses | $545,892 |
TOTAL FUNCTIONAL EXPENSES | $2,652,219 |
Payments to Affiliates | $0 |
Excess (or Deficit) for the year | $575,283 |
Net Assets | $2,255,604 |
Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.
Program Name | Amount Spent | % of Program Expenses |
---|---|---|
Parent Education | $888,033 | 49.9% |
Research | $486,791 | 27.4% |
Public Awareness | $403,791 | 22.7% |
Form 990 FYE | Date Published | Overall Score | Overall Rating | ||||||
---|---|---|---|---|---|---|---|---|---|
CN 2.1 | |||||||||
2018-06 | 09/03/2019 | 77.90 | |||||||
2017-06 | 03/01/2019 | 78.81 | |||||||
2016-06 | 03/01/2018 | 81.60 | |||||||
2015-06 | 11/01/2016 | 84.58 | |||||||
2014-06 | 06/01/2016 | 84.42 | |||||||
CN 2.0 | |||||||||
2014-06 | 11/01/2015 | 87.58 | |||||||
2013-06 | 12/22/2014 | 89.66 | |||||||
2012-06 | 09/01/2013 | 82.97 | |||||||
2011-06 | 08/01/2012 | 84.65 | |||||||
2011-06 | 05/01/2012 | 83.87 | |||||||
2010-06 | 04/01/2012 | 75.10 | |||||||
2010-06 | 12/01/2011 | 73.91 | |||||||
2009-06 | 09/20/2011 | 79.86 | |||||||
CN 1.0 | |||||||||
2009-06 | 12/22/2010 | 72.66 | |||||||
2008-06 | 12/15/2009 | 84.61 | |||||||
2007-06 | 09/01/2008 | 84.62 | |||||||
2006-06 | 05/01/2007 | 84.30 | |||||||
2005-06 | 04/01/2006 | 90.53 | |||||||
2004-06 | 06/01/2005 | 90.97 |
The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).
EIN | 25-1767180 |
Name in IRS Master File | UNITED MITOCHONDRIAL DISEASE FOUNDATION INC |
NTEE Code | G80 |
NTEE Classification | Specifically Named Diseases |
NTEE Type | Diseases, Disorders, Medical Disciplines |
Classification | Charitable Organization |
Subsection | 501(c)(3) (View the list of codes) |
Activities | (994) Described in section 170(b)1)(a)(vi) of the Code (161) Scientific research (diseases) |
Foundation Status | Organization which receives a substantial part of its support from a governmental unit or the general public 170(b)(1)(A)(vi) |
Deductibility | Contributions are deductible |
Affiliation | Central - the organization is a parent (group ruling) and is not a church or 501(c)(1) organization. |
Group Name | UNITED MITOCHONDRIAL DISEASE FOUNDATION INC |
Ruling Date | November, 2001 |
Filing Requirement | 990 (all other) or 990EZ return |
Fiscal Year End | June |
IRS Forms 990 (provided courtesy of Foundation Center) |
(Log In or Register Now to View Forms 990!)
|
Compensation | % of Expenses | Paid to | Title | |
---|---|---|---|---|
$165,000 | 6.22% | Charles A. Mohan Jr. | Executive Director |
Charity Name & State | Overall Score | Overall Rating |
---|---|---|
United Mitochondrial Disease Foundation (PA) | 77.90 | |
Hydrocephalus Association (MD) | 88.38 | |
Creutzfeldt-Jakob Disease Foundation (OH) | 93.90 | |
National Foundation for Infectious Diseases (MD) | 92.60 | |
Cystic Fibrosis Research, Inc. (CA) | 96.58 |
This charity has an official representative registered with Charity Navigator.
United Mitochondrial Disease Foundation
8085 Saltsburg Road
Suite 201
Pittsburgh,
PA 15239
tel: (888) 317-8633
fax: (412) 793-6477
EIN: 25-1767180
Brent Fields
Chairman
Brian Harman
President, CEO
Charity Navigator
299 Market Street Suite 250
Saddle Brook, NJ 07663
EIN: 13-4148824
BRIDGE ID: 3108588923