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Health : Diseases, Disorders, and Disciplines

United Mitochondrial Disease Foundation

Energy for Life

three stars

84.58

8085 Saltsburg Road Suite 201
Pittsburgh, PA 15239
tel: (888) 317-8633   Web Site
EIN: 25-1767180

Board Leadership
Patrick Kelley
Chairman

CEO
Charles A. Mohan, Jr.
Chief Executive Officer

  Score
(out of 100)
Rating
Overall Score & Rating 84.58 three stars
  Financial 78.20 two stars
  Accountability & Transparency 100.00 four stars
This rating was published 11/01/2016 and includes data from FY2015, the most recent 990 received at that time.

The United Mitochondrial Disease Foundation (UMDF) was founded in 1996 through a merger of several smaller foundations established by those who lost loved ones to the disease. Mitochondria are responsible for producing 90% of the energy needed by our body to sustain life. Mitochondrial diseases result when there is a defect that reduces the ability of the mitochondria to produce energy. The UMDF offers support to all sufferers of mitochondrial disorders regardless of diagnosis, suspected or confirmed. Our mission is to promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families. Since 1996, the UMDF has provided more than $7 million in grants to support the research that may lead to a less invasive diagnosis and ultimately a cure.

The United Mitochondrial Disease Foundation (UMDF) was founded in 1996 through a merger of several smaller foundations established by those who lost loved ones to the disease. Mitochondria are responsible for producing 90% of the energy needed by our body to sustain life. Mitochondrial diseases result when there is a defect that reduces the ability of the mitochondria to produce energy. The UMDF offers support to all sufferers of mitochondrial disorders regardless of diagnosis, suspected or confirmed. Our mission is to promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families. Since 1996, the UMDF has provided more than $7 million in grants to support the research that may lead to a less invasive diagnosis and ultimately a cure.

Results Information

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Financial

two stars

78.20

Accountability & Transparency

four stars

100.00

This rating was published 11/01/2016 and includes data from FY2015, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
78.7%
  Administrative Expenses 5.2%
  Fundraising Expenses 16.0%
  Fundraising Efficiency $0.22
  Working Capital Ratio (years) 0.51
  Program Expenses Growth 9.4%
  Liabilities to Assets 51.9%
All data for Financial Performance Metrics calculations was provided by United Mitochondrial Disease Foundation on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by United Mitochondrial Disease Foundation on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
United Mitochondrial Disease Foundation (PA) 84.58 three stars
Asthma and Allergy Foundation of America (MD) 88.60 three stars
Dan Marino Foundation (FL) 92.24 four stars
Organization for Autism Research (VA) 95.46 four stars
The Marfan Foundation (NY) 92.72 four stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $1,363,648
   Federated Campaigns $38,572
   Membership Dues $0
   Fundraising Events $227,800
   Related Organizations $14,459
   Government Grants $0
Total Contributions $1,644,479
   Program Service Revenue $366,605
Total Primary Revenue $2,011,084
   Other Revenue $1,206,484
TOTAL REVENUE $3,217,568
   
EXPENSES  
   Program Expenses $2,428,006
   Administrative Expenses $172,813
   Fundraising Expenses $512,174
TOTAL FUNCTIONAL EXPENSES $3,112,993
   
Payments to Affiliates $0
Excess (or Deficit) for the year $104,575
   
Net Assets $1,499,044

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Research $1,014,232 41.8%
Parent Education $1,067,872 44.0%
Public Awareness $345,902 14.2%

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2015-06 11/01/2016 84.58 three stars
2014-06 06/01/2016 84.42 three stars
 
CN 2.0
2014-06 11/01/2015 87.58 three stars
2013-06 12/22/2014 89.66 three stars
2012-06 09/01/2013 82.97 three stars
2011-06 08/01/2012 84.65 three stars
2011-06 05/01/2012 83.87 three stars
2010-06 04/01/2012 75.10 two stars
2010-06 12/01/2011 73.91 two stars
2009-06 09/20/2011 79.86 two stars
 
CN 1.0
2009-06 12/22/2010 72.66 two stars
2008-06 12/15/2009 84.61 three stars
2007-06 09/01/2008 84.62 three stars
2006-06 05/01/2007 84.30 three stars
2005-06 04/01/2006 90.53 four stars
2004-06 06/01/2005 90.97 four stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 25-1767180
Name in IRS Master File UNITED MITOCHONDRIAL DISEASE FOUNDATION INC
NTEE Code G80
NTEE Classification Specifically Named Diseases
NTEE Type Diseases, Disorders, Medical Disciplines
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (994) Described in section 170(b)1)(a)(vi) of the Code
(161) Scientific research (diseases)
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Central - the organization is a parent (group ruling) and is not a church or 501(c)(1) organization.
Group Name UNITED MITOCHONDRIAL DISEASE FOUNDATION INC
Ruling Date November, 2001
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End June
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • June, 2015
  • June, 2014
  • June, 2013
  • June, 2012
  • June, 2011

The data displayed in this profile is provided by the IRS for free in the form of Publication 78 and the Business Master File (BMF).

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Compensation % of Expenses Paid to Title
$124,716 4.00% Charles A. Mohan Jr. Executive Director
Other Salaries of Note
$127,892 4.10% Philip E. Yeske Science & Alliance Officer

Highly Rated

Charity Name & State Overall Score Overall Rating
United Mitochondrial Disease Foundation (PA) 84.58 three stars
Glaucoma Research Foundation (CA) 91.98 four stars
Autism Society of America (MD) 88.33 three stars
Asthma and Allergy Foundation of America (MD) 88.60 three stars
National Foundation for Infectious Diseases (MD) 92.75 four stars

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Charity Contact Info

United Mitochondrial Disease Foundation
8085 Saltsburg Road
Suite 201
Pittsburgh, PA 15239
tel: (888) 317-8633
fax: (412) 793-6477
EIN: 25-1767180

Visit Web Site

Board Leadership

Patrick Kelley
Chairman

CEO

Charles A. Mohan, Jr.
Chief Executive Officer

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