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Health : Diseases, Disorders, and Disciplines

United Mitochondrial Disease Foundation

Energy for Life

two stars

77.90

8085 Saltsburg Road Suite 201
Pittsburgh, PA 15239
tel: (888) 317-8633   Web Site
EIN: 25-1767180

Board Leadership
Brent Fields
Chairman

CEO
Brian Harman
President, CEO

  Score
(out of 100)
Rating
Overall Score & Rating 77.90 two stars
  Financial 68.75 one star
  Accountability & Transparency 100.00 four stars
This rating was published 09/03/2019 and includes data from FY2018, the most recent 990 received at that time.

The United Mitochondrial Disease Foundation (UMDF) was founded in 1996 through a merger of several smaller foundations established by those who lost loved ones to the disease. Mitochondria are responsible for producing 90% of the energy needed by our body to sustain life. Mitochondrial diseases result when there is a defect that reduces the ability of the mitochondria to produce energy. The UMDF offers support to all sufferers of mitochondrial disorders regardless of diagnosis, suspected or confirmed. Our mission is to promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families. Since 1996, the UMDF has provided more than $7 million in grants to support the research that may lead to a less invasive diagnosis and ultimately a cure.

The United Mitochondrial Disease Foundation (UMDF) was founded in 1996 through a merger of several smaller foundations established by those who lost loved ones to the disease. Mitochondria are responsible for producing 90% of the energy needed by our body to sustain life. Mitochondrial diseases result when there is a defect that reduces the ability of the mitochondria to produce energy. The UMDF offers support to all sufferers of mitochondrial disorders regardless of diagnosis, suspected or confirmed. Our mission is to promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families. Since 1996, the UMDF has provided more than $7 million in grants to support the research that may lead to a less invasive diagnosis and ultimately a cure.

Impact Information

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This impact information is current as of November 2019, when it was provided to us by GuideStar. At this time, Impact information published on this organization's page has no effect on its rating per our methodology.

Financial

one star

68.75

Accountability & Transparency

four stars

100.00

This rating was published 09/03/2019 and includes data from FY2018, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
71.9%
  Administrative Expenses 9.0%
  Fundraising Expenses 19.0%
  Fundraising Efficiency $0.32
  Working Capital Ratio (years) 0.72
  Program Expenses Growth -9.9%
  Liabilities to Assets 38.1%
All data for Financial Performance Metrics calculations was provided by United Mitochondrial Disease Foundation on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by United Mitochondrial Disease Foundation on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
United Mitochondrial Disease Foundation (PA) 77.90 two stars
International OCD Foundation (MA) 86.95 three stars
Tuberous Sclerosis Alliance (MD) 92.95 four stars
Crohn's & Colitis Foundation (NY) 88.16 three stars
Cystic Fibrosis Research, Inc. (CA) 97.17 four stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $1,386,200
   Federated Campaigns $20,916
   Membership Dues $0
   Fundraising Events $342,413
   Related Organizations $15,944
   Government Grants $0
Total Contributions $1,765,473
   Program Service Revenue $409,819
Total Primary Revenue $2,175,292
   Other Revenue $1,052,210
TOTAL REVENUE $3,227,502
   
EXPENSES  
   Program Expenses $1,778,615
   Administrative Expenses $327,712
   Fundraising Expenses $545,892
TOTAL FUNCTIONAL EXPENSES $2,652,219
   
Payments to Affiliates $0
Excess (or Deficit) for the year $575,283
   
Net Assets $2,255,604

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Parent Education $888,033 49.9%
Research $486,791 27.4%
Public Awareness $403,791 22.7%

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2018-06 09/03/2019 77.90 two stars
2017-06 03/01/2019 78.81 two stars
2016-06 03/01/2018 81.60 three stars
2015-06 11/01/2016 84.58 three stars
2014-06 06/01/2016 84.42 three stars
 
CN 2.0
2014-06 11/01/2015 87.58 three stars
2013-06 12/22/2014 89.66 three stars
2012-06 09/01/2013 82.97 three stars
2011-06 08/01/2012 84.65 three stars
2011-06 05/01/2012 83.87 three stars
2010-06 04/01/2012 75.10 two stars
2010-06 12/01/2011 73.91 two stars
2009-06 09/20/2011 79.86 two stars
 
CN 1.0
2009-06 12/22/2010 72.66 two stars
2008-06 12/15/2009 84.61 three stars
2007-06 09/01/2008 84.62 three stars
2006-06 05/01/2007 84.30 three stars
2005-06 04/01/2006 90.53 four stars
2004-06 06/01/2005 90.97 four stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 25-1767180
Name in IRS Master File UNITED MITOCHONDRIAL DISEASE FOUNDATION INC
NTEE Code G80
NTEE Classification Specifically Named Diseases
NTEE Type Diseases, Disorders, Medical Disciplines
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (994) Described in section 170(b)1)(a)(vi) of the Code
(161) Scientific research (diseases)
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Central - the organization is a parent (group ruling) and is not a church or 501(c)(1) organization.
Group Name UNITED MITOCHONDRIAL DISEASE FOUNDATION INC
Ruling Date November, 2001
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End June
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • June, 2018
  • June, 2017
  • June, 2016
  • June, 2015
  • June, 2014
Compensation % of Expenses Paid to Title
$165,000 6.22% Charles A. Mohan Jr. Executive Director

Highly Rated

Charity Name & State Overall Score Overall Rating
United Mitochondrial Disease Foundation (PA) 77.90 two stars
Tourette Association of America (NY) 87.13 three stars
Hydrocephalus Association (MD) 88.38 three stars
Massachusetts Down Syndrome Congress (MA) 89.46 three stars
Hemophilia Federation of America (DC) 96.46 four stars

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This charity has an official representative registered with Charity Navigator.

Charity Contact Info

United Mitochondrial Disease Foundation
8085 Saltsburg Road
Suite 201
Pittsburgh, PA 15239
tel: (888) 317-8633
fax: (412) 793-6477
EIN: 25-1767180

Visit Web Site

Board Leadership

Brent Fields
Chairman

CEO

Brian Harman
President, CEO

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